Desire for community with other Type 1 diabetics

By robjfoley Latest Reply 2014-06-09 11:06:43 -0500
Started 2014-06-05 15:27:16 -0500

I was diagnosed as a Type 1 diabetic 7 years ago (when I was 26), and I've really struggled with the effect of this disease on my life since then - not so much physically (yet, thank goodness), but mostly socially (meeting other diabetics my age and with similar lifestyle) and psychologically (reckoning with the limitations, medications, etc., that weren't part of my life before being diagnosed). I was immediately placed on insulin after being diagnosed, I see an endocrinologist regularly, and my A1c is consistently right around 7, but that's about the extent of my diabetes life and community. I don't know anyone else in my sphere of friends or acquaintances who is diabetic. My wife is a nurse, which helps a little, but the lack of diabetic community has caused me to feel very alone. When you don't have anyone to bounce things off of, to whom you can vent sometimes, to challenge/inspire you to make better decisions regarding management of the disease, or to just help provide some framework for how you're doing, the going can get tough and the path somewhat lonely.

For some reason, it never occurred to me to search for diabetic community online (maybe I was subconsciously ignoring my craving for these kinds of connections), but I accidentally discovered some sites today while searching for other things and in only a couple of hours have discovered that the online diabetic community is actually very extensive. After coming across this site, I joined because it looked like a good place to start connecting. That being the case, I'm just looking to connect with other Type 1 diabetics whose experience is similar to mine. I'm 33, married (first kid on the way), live in Denver, CO, work in higher ed admin, am active in the outdoors and love playing sports. Simply put, I'm looking for community - others who know what it's like to have to constantly monitor what other people's bodies are doing automatically for them. I love the idea of learning from and being challenged by other diabetics trying to live healthy lives and who are also open about the challenges they face - something my endocrinologist doesn't/can't offer me! So, if you read this and feel like we'd connect and/or benefit from each other's experiences, share your story and connect with me!

3 replies

jaydoubleyou23 2014-06-09 11:06:43 -0500 Report

I'm 19 and type one. I got diagnosed in our hospital while my blood sugar was at 1500 and I was measly unconscious. I'm married to the wonderful man that drove out of state to support me in the hospital while being diagnosed. I do like using this community as a support system and there are wonderful people here. My advice to you is to just try not to feel alone be a use you're just like everyone else. You are a normal person, you just have to be your own pancreas is all! Best of luck to you.

wraithmb 2014-06-05 20:37:04 -0500 Report

I'm currently about 33 and was diagnosed with type 1 when I was 10. It's was an uphill battle when I was young, after all what kid wants to do and cheat the same stuff at the same time every day. Seeing some complications and some advancements that allow for flexibility have helped. After at least a decade of neglecting my health and doctors advice, I'm finally waking up and looking after myself. I'm a warehouse worker in Winnipeg, Manitoba, Canada. Wouldn't have it any other way. My job helps keep me in shape, and I'm finally trying to do even better. I'm feeling better than I have felt in years! If you ever need to talk, feel free to shoot me a message! I'm always up for a chat!

Type1Lou 2014-06-05 16:25:03 -0500 Report

I was 27 when diagnosed Type 1, 38 years ago. I grew up with a diabetic Dad, so may have been more amenable to dealing with my diabetes. At that time, I worked in a high-stress administrative job and continued working for the same company another 20 years until I retired. I was an active down-hill skier when I still lived up north and don't remember having friends who were also diabetic…I just dealt with it as best I could. I was lucky to be living with access to good medical care but resisted pumping insulin until 2011 because I hadn't wanted to be connected to something 24/7. Now, I'm sorry I waited so long. Although MDI (Multiple Daily Injections) gave me flexibility about mealtimes, I started pumping because I was having increasing frequent, serious low BG episodes. I am married to my 2nd husband with 2 stepsons and 5 grandchildren and live a moderately active lifestyle. I never felt that diabetes defined me or limited me. This site is excellent for support and for information. Welcome!