Karen Weidner
By Karen Weidner Latest Reply 2014-06-07 20:10:55 -0500
Started 2014-05-30 16:24:53 -0500

Hi All,
I am a T1D, I was diagnosed right before my 30th bday. I started on shots back then and have been on an Insulin Pump for 5 years.
Does anyone ever just get down right ANGRY and want to give up sometimes?
I feel like I am fighting a losing battle sometimes and it seems sometimes that I am not normal, that I am just a diabetic. Not a woman, mom, wife, just a diabetic.
What do you all do to get over this hump? I know that my life depends on it and that for my husband, children and grandbabies I have to keep it up but I just find myself getting mad at this disease sometimes. I fight everyday to lose weight, keep my sugars in check and sometimes it seems like i am fighting against myself.

Thanks for letting me vent!!

13 replies

Ainsle15 2014-06-03 21:24:08 -0500 Report

Hi everyone, I hate to barge in here and change subject, but I desperately needed some help. My blood sugar has spiked from 128 to reading HI in 3 hours. I am desperately thirsty, but the more water I drink the worse it makes it for me. It seems the more I drink the thirstier I get and I've drank so much I'm getting nauseous. Does anyone have any suggestions on what I should drink to help quench my thirst? And has anyone had this problem with the water causing so many problems?
Thank you to anyone the can help me!

Karen Weidner
Karen Weidner 2014-06-03 22:33:41 -0500 Report

Hi Ainsle,
I have had it where water wouldnt quench my thirst. My first worry is that your BS is so high. You may need to go to the ER and have them check it for you. When your meter reads HI, well mine anyways, means you are well over the 600 mark which can send you into a coma. Being dehydrated will cause your sugars to spike also. I know when I got that way before I was put on an IV solution in the hospital to bring my electrolytes back up and then my sugars came down. I would definitely either call your dr or get to the ER to be checked.
Hope everything goes well.
Please keep us informed.

Ainsle15 2014-06-04 09:53:38 -0500 Report

Thank you Karen:) We did talk to my Dr. but he really wasn't much help, he just said to try and treat it here at home. I've gotten it to come down thankfully, but I'm still having the problem with the thirst. So, hopefully with my bs being back down the thirst will start to dissipate. Thank again!

Karen Weidner
Karen Weidner 2014-06-03 07:53:28 -0500 Report

Thank you guys! Its nice to just be able to vent to people who understand my frustrations. I know that my daughter and husband get really tired of me complaining!!
My attitude is much better! Yes James, it did feel good to get that all out. I am going to try some of your suggestions and make a game of it.
I have 4 sisters, 2 which are t2d. Its hard to explain the difference between T1 and T2. My body doesnt work the same way theirs does. I HAVE to wear an insulin pump. Mine cant be cured by DIET, only maintained.
Thanks for taking the time to listen!!!

Beurownbf 2014-06-03 20:45:01 -0500 Report

I'm new here and this is in regards to my 39 year old son. I did post on the Ask An Expert, but noticed the most recent posts were in April. I happened to stumble on your post, Karen, and saw you are T1, but weren't diagnosed until later in your life. Our son was diagnosed 4 days ago and treated as thought he has T2, however, as of yesterday there is a question of it being T1 because of the test results. He sees the endocrinologist tomorrow, but as of yesterday he has some signs of ketoacidosis. Odd smell to his breath and his face is flushed. I've read several articles and I am beginning to feel a little panicked. He did not mention this to his doctor's office as the doctor is out of town. He's meeting me in the morning to see the endocrinologist as his wife can't go to the appointment. Does anyone here have some advice for me or am I over worrying?

Karen Weidner
Karen Weidner 2014-06-03 23:00:41 -0500 Report

I dont think anything is over worrying. You have reason to be concerned especially with ketoacidosis. I was treated as a T2D for a while and then when I started seeing an endocrinologist, she stated that I am definitely a T1D. Not really sure how they determine that but they have test I suppose. I can recall as a young child getting the feelings I have now as an adult. Not knowing then that it was my sugars bottoming out and going high. I guess by the grace of God I never went into a coma.
Just talk with the Endo tomorrow and let them settle all of your fears. Hope all works out well for you and your son.
Best wishes sent your way!

Beurownbf 2014-06-04 15:29:03 -0500 Report

Thank you so much for responding. The trip to the Endo went well even though our son is on the roller coaster of emotions right now. He is T1 and T2, and received his first shot of insulin in the office today. Now he's chock full of instructions, meds, and a meter. It really is a little overwhelming. I have copies of his lab work and there is no denying he has both. I think the nutritionist will be the key to him learning about how to take better care of himself. His wife couldn't go today so I had to relate most of it to her. I'm just glad she's there for him. As a mom, I suppose I'll always worry!

You are so fortunate that you didn't go into a coma! Like you, I believe the signs were missed earlier on with him. He thought his blood glucose was being tested as part of his check up every year but it wasn't.

Thank you for your kind reply and I will keep you on my prayer list now :)


Karen Weidner
Karen Weidner 2014-06-07 20:10:55 -0500 Report

So glad that your visit to the endo went well. I know the feelings that your son is feeling and it is a bit overwhelming at first. I am 15 years in and there are some days I feel I know nothing about this crazy disease. I wonder why me and what did I do to deserve it. He will go on this roller coaster for awhile but it will all work out and will learn to live with it also. I wont lie, it isnt easy somedays. Some days I just wish I would wake up and not be a PWD, but then I get off my pity party, pick myself up and get back at it. Good luck to your son and all of you involved!
Thanks for the prayers I can really use them.

jayabee52 2014-06-05 00:14:49 -0500 Report

Howdy Sharon
you say your son "is T1 and T2". and that "there is no denying he has both". I am wondering why you would say that? From everything I have learned a PWD (person with diabetes) can have either one type or the other. There is a type 1.5 (aka Latent Autoimmune Diabetes of Adults or LADA) "LADA can be classified as a more slowly progressing variation of type 1 diabetes, yet it is often misdiagnosed as type 2" ~ Might that be what he has?


Beurownbf 2014-06-05 15:24:38 -0500 Report

Forgot to mention that his blood sugar was normal as was everything else just 8 months ago. He had complained of being tired and worn down plus his vision had rapidly changed over the last 3 months.

Beurownbf 2014-06-05 15:19:25 -0500 Report

It is possible to have both according to the endocrinologist, and our son's physician who agreed on the lab work. The endocrinologist did additional lab work that supported the original lab work. My understanding is that this is rare, but there are other people who do have both, and I believe it's referred to as Double Diabetes. In his case, treating it as Type 2 did nothing to get his blood glucose levels down. He is now receiving insulin along with Metaformin. Prior to this, his blood glucose count was bouncing between 250 - 590 (he neglected to tell me the highest number so I was pretty startled). Honestly, James, I'm trying to take it all in since yesterday and trusting the doctors knowledge. I'm feeling confused after reading about Double Diabetes.

Is it possible for someone to have Type 1 for awhile and have Type 2 kick in as well? Thank you for the information, also. I did read some on NIH but will check this article out now.

wraithmb 2014-05-31 09:23:05 -0500 Report

James is right. Sometimes we just need a different way to look at things. I get angry about being diabetic too. I always try to remember that I am myself, with or without the diabetes. You are a woman, mom, wife, which is an accomplishment in itself. All of that with diabetes - nothing short of incredible! To say you are not normal - right on! You're better than normal, you're great!

Us diabetics/pwds live with something that is incredibly difficult to manage. Anything that we do is harder than what the "normies" do. I can't even walk my dog without carrying a blood test meter, insulin, and dex4s. We don't have the option to be normal… We need to strive for better!

…words of encouragement from Wayne

jayabee52 2014-05-30 18:29:15 -0500 Report

Howdy Karen
I hope that felt good to get out!

I have been T2D since 1995 and also had a period where I refused to take care of myself. Yes and I was angry. I was furious at the whole world for a lot of reasons, but mainly my life was not going the way I had planned and the diabetes was another of those missteps. I was only hurting myself, I told myself, but that was not true. I also was hurting my wife and my 3 sons, and eventually my wife divorced me.

Eventually (at the urging of my wife - who later divorced me for many reasons ) I finally started taking better care of my T2, but not before I had started some nasty complications.

I have since developed some mental tactics to help me navigate my T2, my need for Dialysis, and my other "medical challenges". I refuse to be a "diabetic" and rarely use that term. I am a Person With Diabetes (PWD). I learned that when I was training to be a Certified Nurse Aide. We were encouraged to not refer to people as diagnoses ("the cancer patient in room 310") but as people and refer to them by name. "Mr Green", ect.

I also look at my T2 as a big experiment. I started that when I started eating a low carb/high protein meal plan, trying to eat in such a way that my pancreas could manage what I ate without the use of diabetes medications. I looked at the meal plan as an experiment and if the experiment failed, it wasn't I who failed, it was my experiment and could be tried again another way. (learned that from the attitude of Thomas Edison).

Another way I cope is through humor. Life can be rather grim sometimes, but I find humor and laughter a wonderful coping mechanism for all the grimness in the world. My 2nd wife taught me that. She was totally blind and had Lupis (SLE) on top of that, but she had a wonderful personality which was based around caring. for others, but also about humor. She is the one who got me to looking at my medical problems as "medical challenges" and she snickered as she described hers that way.

I pray that this has been of help to you. Both to vent, as well as to learn coping skills from others.


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