Sharing information between docs?

By teacherspet Latest Reply 2014-05-26 21:47:42 -0500
Started 2014-05-22 17:07:46 -0500

I am a big tattle-tail. When I go to a medical provider, I have a list of medications from different types of providers, a psychiatrist, a therapist, my Primary and a diabetic coach. Up until yesterday, I thought they shared info, at least I signed a permission ship to have that happen. And yet, as I found out, they don't talk much to each other. My health coach thought that my disability was strictly because of knee pain and arthritis???? HUH????? Where has he been? I got to thinking, if I didn't tell the other people, would they know about the other maladies in my life? Would the therp know about the arthritis and the pain I am in? Would the shrink know about my high blood pressure? Would my primary know about my mental and emotional issues. Right now, I am upset, angry, and frustrated that information that should have been shared, I didn't do, and they didn't ask. "Don't ask/don't tell?" So, what to do now? I have a diabetic check tomorrow, and I'm going to ask my primary if she knows what my disability is about? If she doesn't, I will tell her. AND I will make sure that anyone who is working with me, knows that the arthritis isn't the only thing I am dealing with,
What do you think? Do all your docs/medical providers have to know/should know about your history. HIPPA is supposed to keep that information sacred, but they may better be able to help you if they do know, and you sign the permission to share. I'm so upset that I may go balistic (out of the office of course) if she doesn't have a clue. Share your thoughts with me, please

9 replies

haoleboy 2014-05-24 23:01:14 -0500 Report

I ask for copies of everything and with very few exceptions they have to give then to you. In my experience these have been provided at no coat.
I have PDF's of all my labs and any significant record on my phone and copies of MRI's and CT Scans on CD's. I've had to change PCP's multiple times and have seen an assortment of specialists for my various medical issues. Those records have come in handy and saved a lot of time.

teacherspet 2014-05-25 12:11:31 -0500 Report

I created a beautiful system that works for me, three ring binder that has all my notes, meds, reactions, dr. visits, etc in it. I take this to every visit, and make notes as we go along. My clinic provides me with copies of each visits notes and what has gone into my files, along with having a website where I can access my information. So it doesn't have to become burdensome. I'm beginning to understand after a visit and some questions this past week, that if I want them to know, I have to be the one to tell them what I want them to know. My disability was unknown even to my PCP…I fell down on this one and need to do a better job of taking care of me —— and my team

Dr Gary
Dr GaryCA 2014-05-24 22:07:12 -0500 Report

Hi teacherspet,

You bring up a really good point here. I think that better sharing of information between physicians is on it's way, but it is my understanding that it is not here yet.

It has been my experience that, for better or worse, patients are really in the position of having to advocate for themselves. That means, like you are doing, they have to make sure all providers have the same information. Doctors often don't reach out to other providers unless they have to. There just isn't enough time. And I think they expect patients to keep them informed.

As a therapist, I often have to reach out to doctors for information or to inform them. It is important but also very time consuming, lots of phone tag, for example.

So another reason why it's important to be an empowered medical consumer. Sounds like you are doing a pretty good job of advocating for yourself!


teacherspet 2014-05-25 12:13:37 -0500 Report

Gary, how would you suggest dealing with the obstinate doc or medical provider who still feels he/she is God and they know it all? I only have one person on my team like that, and because of where I live —- in a rural area where there are few specialists—-we have to keep this doc. It is very hard to get him to give direct answers to direct questions, he says it's too complicated for the non-pro to understand????

Dr Gary
Dr GaryCA 2014-05-26 21:47:42 -0500 Report

Hi teacherspet,

That is a great question. Sounds like this guy is going to be a challenge. You might try letting him know how you feel when he won't answer a question. You might tell him that you know he is the expert, and that's why you are asking him. You may have to be persistent, and ask the same question more than once until you get an answer. You could also ask the other doctors you work with if they have any suggestions for dealing with him.

It's a shame that some healthcare professionals haven't yet figured out that this is the age of empowered patients. The old days are over.


Just Joyce
Just Joyce 2014-05-23 19:30:39 -0500 Report

If all of your doctors are with the same hospital the information can be shared between them when they pull up your account. If they are in different facilities, it is up to you to share the information with them. If you sign a release for a doctor to talk to another doctor, it only covers those two doctors.

I went to the ER yesterday and I went to a different ER in February and my doctor is located in a health center. All three are one hospital so the doctor yesterday was able to pull up my medical history.

My girlfriend wrote an authorization that included all of her doctors and had it notarized and included a copy of her Do Not Resuscitate letter and gave it to all of her doctors so they could communicate with each other without having to ask her consent or calling to fax a consent form to her.

neverlowbg 2014-05-22 21:26:58 -0500 Report

All my doctors are affiliated with my local hospital system and they all put the info into comp data base and when you sign the hoops they can all see it. Now if I go out of system I have to have my dr request from out of system dr then they put it in the system so weather I see my dr have a surgery in hospital etc all my info is in system then twice a year my wife takes a memory stick to my dr appointments and they down load all info X-ray's cat scans etc onto drive that way we always have my medical records with us as we travel somewhat frequently so if something happens they stick it in there comp and see my life medically I keep it in my insulin Togo bag and it's labeled with a big tag so easy too see plus my meter and meds are in same bag and it's always with me on my hip and also holds my pump and emergency and dr contacts along with meds and dose and schedule

jayabee52 2014-05-23 02:45:01 -0500 Report

You sound like you might belong to Kaiser Permanente since I had something like that there. I found the medical care there top notch! Wish I had one closer to me now.

neverlowbg 2014-05-23 09:24:53 -0500 Report

That's were I learned but after leaving Cali to Texas no kaiser here so now I have Methodist health system and they work the same way as kaiser

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