Does Anyone Suffer from NLD? Necrobiosis Lipoidica Diabeticorum

rbergman
By rbergman Latest Reply 2016-02-17 17:21:54 -0600
Started 2009-01-29 21:01:57 -0600

I've scanned several topics and didn't see this one so if it is a repeat I apologize. About 10 years ago my left leg began breaking out with red welts that itched but burned when i scratched or just rubbed them, then it started on the right leg. My primary care physician sent me to a dermatologist and he diagnosed me with NLD
Necrobiosis Lipoidica Diabeticorum. Here is a webpage on the condition:
http://www.aocd.org/skin/dermatologic_disease...
Anyway, I was NOT diabetic and couldn't understand what this condition was. They did a biopsy of one of the spots, which turned into a lesion which spread like wildfire after that. For 2yrs I kept receiving cortisone injections directly into the spots which were growing together and making one large spot. The skin was peeling off in layer after layer and more and more lesions were opening up about 2 1/2 yrs into it I was diagnosed with Type 2 Diabetes 9 months after our daughter was born I did not have gestational diabetes with the pregnancy. Well here it is nearly 7yrs after becoming diabetic and while we were moving back in december i banged my leg on a piece of furniture and it hurt so bad i cried, now here it is 3 wks later and i now have a lesion where i banged my leg and all hell has broken loose again. I cannot wear shorts in public because where the old lesions healed i have huge dents in my legs and big holes that never filled back in. Yes, I'm being treated for it all over again but the scarring is horrific. I just wonder if anyone else has this same condition and what their experiences are with it please.
Thanks,
Robin


137 replies

Wizemonkeys
Wizemonkeys 2016-02-17 17:21:54 -0600 Report

I was diagnosed with this in November after years of trying to get referred for a diagnosis. I have had horrendous complications as a result of the biopsy which I am still recovering.
I am currently receiving injectional steroid treatment which is not recognised by the NHS and seems to be working but they are not prepared to continue it long term!
After a lot of research I have found it is not that it is untreatable as I have been told on many occasions, it is that no money has been put forward to investigate this condition further! Yet more and more people are left with life long disfiguration, it's disgraceful! I now have several legions which I have been told if treat early I wouldn't have and yet they are not prepared to continue treatment! I am now researching myself if anyone knows any finding streams which I can further Pursue this vital research please let me know! No one should have to suffer this condition when it could be solved with right investments!

Ggmnro
Ggmnro 2015-12-15 22:30:42 -0600 Report

I am a 46 yr old from the United States and was diagnosed 4 yrs ago with non diabetic Necrobiosis lipoidica. I started out 5 yrs ago with small raised red bumps on both lower legs that turned brownish red and then yellowish. I thought they were just bruises but they started combining into larger patches. I am very athletic who eats healthy but that doesn't matter. I cut out sugar and everything else to try to alleviate it but that did not help either. During seasonal weather I get massive pain and burning in the sores and also my lower leg bones. Its an ugly sight to see but I love the beach, summertime and I'm not afraid to wear dresses or shorts etc. I have been to many derms but no one helps so I just live with it to the best of my ability. Its nice to see others with the same condition and knowing I'm not alone in this fight to find a cure.

CptKD
CptKD 2015-06-30 08:52:02 -0500 Report

Please forgive the MULTIPLE posts of the SAME REPLY!
Not quite sure what happened there . . .
That said - I look forward to seeing some of you, over on the FB group!
Please know, I've let the Group Members there, know about the Diabetic Group here.
Though not ALL of us are Diabetic, some are, and have shown interest!
Please continue taking good care!

CptKD

Capsey
Capsey 2015-06-04 09:23:57 -0500 Report

Yes my daughter who is a non diabetic has NL. Apparently the cortisone injections into the site on her left shin have caused atrophy (the dent). Now there is not enough tissue to inject. The lesion is intermittently active & inactive. The next proposed treatment is intramuscular cortisone injection into buttock every 6 to 8 weeks whilst active. If that's not helpful two different drugs have been recommended to try as second & third options. She believes hers was triggered by a whack on a surf boat about 8 years ago and has slowly spread & changed over the years. She is now 28 years old. We're always searching for new information for better management of this disease.
HAS ANYONE TRIED PHOTODYNAMIC THERAPY to treat NLD???

CptKD
CptKD 2015-04-10 02:56:52 -0500 Report

Perhaps you'd be interested in checking out our NL group on Facebook. We've actually managed to find a University in the UK interested in providing the funding to begin the process of a true, and proper Medical Research Program into NL.
We've been asked to provide a certain number of Questionnaires/Surveys, to present a sample of sorts. And we could use some help with getting those numbers up.
I was diagnosed with NL in 2007, and do not have Diabetes. Not yet, tho I am checked regularly. I am on a form of Chemo at this point, and would love to share more with all if you! Along with hearing note about yourselves.
Please consider it - If for nothing else, please think about filling the Questionnaire for the possibility of finally bringing this disease to the front!
I am determined to give NL a voice! Please help me, and the rest of the group SPEAK UP!
Thank you, and all the best!
I hope to see some of you there!
My name is Kim, and I am part of the admin team on the NL/D GROUP on fb.
Lots there to share! As I will pass on this connection to our Diabetics!

Than again!

Capsey
Capsey 2015-06-07 21:09:37 -0500 Report

What link for f.b.?
Very interested in surveys/ questionnaires for medical research.
Thanks.

zinzle
zinzle 2015-03-19 23:12:29 -0500 Report

I have nld on both shins. I am type and have been for 30yrs. I've had nld for 18yrs. Almost 1 entire shin is affected, with a smaller spot on my other leg. I wear shorts all the time and people stare and ask questions. Start talking about a rare skin disease and people wish they'd never asked :) What helps me the most with the nld is to keep it moisturized at all times - I use a vitamin E oil blend.
I was in a study years ago that involved late therapy on the NLD. I didn't follow all the directions so I didn't have a big change but my doctor said that there was a marked increase in other people's condition. I am trying to get ahold of her to figure out what the actual treatment was and why its not on the market (i.e.were there crazy side effects). I have a recurring condition where I get a wound on the NLD, which is difficult to heal. Is that what you meant by lesions opening up? I currently have an open wound and have been tanning (with the wound and NLD covered up, of course) and it seems like I had a lot of progress healing so I think there's something to be said about phototherapy. Who knows. It's frustrating. Mostly because it seems like there's so little that anybody really knows about it.
I have never joined a discussion topic online before, but this one definitely hit home.

Maggie1322
Maggie1322 2015-03-19 12:20:16 -0500 Report

HOW TO STOP THE PAIN? This last week my wounds on both legs have become very painful but it isn't the wound itself it is on the top of the wound on the left leg and on the bottom of the wound on the right leg, and radiates around that whole area. It is so bad that I can't focus on anything but that pain. I have tried to up the dose on my gabapantin, aspirin and I don't dare do ibuprophen since that just seems to make my legs swell i also try to keep them elevated but i do work all day and nothing seems to work. Any suggestions on how to deal with the pain?

Maggie1322
Maggie1322 2014-11-21 17:37:44 -0600 Report

Does anyone know of the best home treatment for NL with open lesions? I have done hyper baric treatments, wound vac and countless wound care clinic visits. I can't afford the on-going clinic visits so was hoping someone might have what is the best way to treat it at home is. I have used different coverings but it is hit and miss. Any advice would be great!!

sissiplay
sissiplay 2015-03-07 18:14:55 -0600 Report

Cheapest I use a toe to knee sleeve, antibiotic cream and feminine pads over wound. Mine produces copious amounts of fluids. At 60 dollars a week I c old not continue seeing MD

sissiplay
sissiplay 2015-03-07 18:13:15 -0600 Report

Cheapest I use a toe to knee sleeve, antibiotic cream and feminine pads over wound. Mine produces copious amounts of fluids. At 60 dollars a week I c old not continue seeing MD

sissiplay
sissiplay 2015-03-07 18:13:13 -0600 Report

Cheapest I use a toe to knee sleeve, antibiotic cream and feminine pads over wound. Mine produces copious amounts of fluids. At 60 dollars a week I c old not continue seeing MD

sissiplay
sissiplay 2015-03-07 18:13:04 -0600 Report

Cheapest I use a toe to knee sleeve, antibiotic cream and feminine pads over wound. Mine produces copious amounts of fluids. At 60 dollars a week I c old not continue seeing MD

sissiplay
sissiplay 2015-03-07 18:12:42 -0600 Report

Cheapest I use a toe to knee sleeve, antibiotic cream and feminine pads over wound. Mine produces copious amounts of fluids. At 60 dollars a week I c old not continue seeing MD

sissiplay
sissiplay 2015-03-07 18:12:40 -0600 Report

Cheapest I use a toe to knee sleeve, antibiotic cream and feminine pads over wound. Mine produces copious amounts of fluids. At 60 dollars a week I c old not continue seeing MD

sissiplay
sissiplay 2015-03-07 18:12:16 -0600 Report

Cheapest I use a toe to knee sleeve, antibiotic cream and feminine pads over wound. Mine produces copious amounts of fluids. At 60 dollars a week I c old not continue seeing MD

sissiplay
sissiplay 2015-03-07 18:12:04 -0600 Report

Cheapest I use a toe to knee sleeve, antibiotic cream and feminine pads over wound. Mine produces copious amounts of fluids. At 60 dollars a week I c old not continue seeing MD

sissiplay
sissiplay 2015-03-07 18:11:15 -0600 Report

Cheapest I use a toe to knee sleeve, antibiotic cream and feminine pads over wound. Mine produces copious amounts of fluids. At 60 dollars a week I c old not continue seeing MD

sissiplay
sissiplay 2015-03-07 18:10:29 -0600 Report

Cheapest I use a toe to knee sleeve, antibiotic cream and feminine pads over wound. Mine produces copious amounts of fluids. At 60 dollars a week I c old not continue seeing MD

sissiplay
sissiplay 2015-03-07 18:09:58 -0600 Report

Cheapest I use a toe to knee sleeve, antibiotic cream and feminine pads over wound. Mine produces copious amounts of fluids. At 60 dollars a week I c old not continue seeing MD

Necrobiosis Lipoidica
Necrobiosis Lipoidica 2014-10-28 23:49:30 -0500 Report

Hi. I too have developed Necrobiosis Lipoidica. I went to my primary care doctor for what I thought was an ingrown hair follicle inside a pinkish bruise that wouldn't heal for over a year. They did a biopsy on a pinkish colored bruise on my opposite leg and determined it was nbl and said it was a rare disease and referred me to a dermatologist. Dermatology tried a steroid cream that didn't work and referred me to a wound care specialist. He said my two wounds were not typical because they should slowly heal and scar. My ingrown hair follicle has gotten much bigger and the biopsy site has also gotten larger. I've been on slow release long term antibiotics, an aspirin regimine, compression stockings, and an ointment called santyl. The best so far has been vacation. I'm not sure if it was the ocean water or the relaxation without all of our children but the wounds took kindly to that break. My current treatment is (not taking birth control for this month the pill I take is called Necon) PLUS medical grade honey applied on each wound daily and one Xanax taken orally each day and just in a weeks time they both wounds appear to be getting smaller in size. I return to wound care Thursday where they will measure and I will know for sure. I'll keep everyone posted.

monte49
monte49 2014-10-18 22:14:05 -0500 Report

I am a 20+year type 1 diabetic. I have had NLD on my shins for 15 years now.
I was so glad to see this site as information on treatment for this condition is bleak at best. I wanted to reach out to any Diabetics that I keep good control of my diabetes with pump therapy and yet it does nothing regarding my NLD condition. Don't feel that you sugars affect this disease it does not. My fear is that I will develop an ulcer eventually, and being diabetic its a consequence I really don't want to deal with. I maintain it with lotion and creams and wear a sleeve over my calf to protect it. Any insight on to photo therapy or any other treatments would be so helpful. Thanks for having this group. It can feel very lonely out there with this disease.

jayabee52
jayabee52 2014-10-19 01:24:25 -0500 Report

Howdy Monte
WELCOME to DC!

I have NLD myself and have had it for several years. I have other life threatening diseases so I don't pay too much attention to my NLD as it is unsightly.but not much bother to me currently. It is on my right shin where I had an old motorcycle injury from age 15..

An article from Medscape resulted from a search "phototherapy for NLD". It tells of various attempts to manage or cure the malady including phototherapy ~ http://emedicine.medscape.com/article/1103467...

I pray this might be helpful.

James

marideane
marideane 2016-02-04 15:42:32 -0600 Report

Hi everyone. I am interested if anyone has tried the phototherapy route. The JAMA article appears promising. I would love to here from a first hand experience. Thanks.

hayleechristine
hayleechristine 2014-10-12 13:27:39 -0500 Report

Yes I do, I have it exactly how you describe it. Ive had it since I was 13 and I am now 18. I tried the cortisone shots but they only made it worse. have you had any luck with anything to help it?????

JesusRocks
JesusRocks 2014-10-07 17:59:00 -0500 Report

I just received skin grafts for the unhealing open lesions on my shins. has anyone went this route? I wish I would have found this site way before now and tried some of the ideas here. Maybe it would have worked. I am concerned that the grafts will not even work :(

Nanistairs
Nanistairs 2015-03-22 17:07:24 -0500 Report

You mentioned that you have had skin grafts on the open lesions , I wondered how it has gone.
My daughter in law hasn't got Diabetes but through a mis diagnosis and consequently treatment for skin cancer on what was only ' sun spots now has four big holes on her calves , 2 on each leg , plus the skin surrounding them went black. The hospital has admitted their negligence but she has been told that there isn't anything that can be done about the scarring and the holes, which have since formed a scab, hence me asking you about your skin grafts . Her court case is coming up at the end of April , after 4 years , and we really need to know if there is any possibility of plastic surgery , if not in the UK , then elsewhere. Would be really grateful for any information you could give us.
Nanistairs

jayabee52
jayabee52 2014-10-07 19:03:01 -0500 Report

even if your grafts do not work (I pray they do) you have here a good repository of things you can try.

Praying God's best to you

James

Chica1212
Chica1212 2014-08-16 16:39:21 -0500 Report

I found you guys while investigating this condition for my friend. The first thing i was able to tell her was that her doctors are wrong, it isn't rare. She has the discolored recessed spots on her lower right leg and a deep, oozing spot on the left front calf. When i first saw under the bandage it looked black with yellow. It then looked like it was very infected. The local docs didn't seem to want to get involved with it. The Dermatologist referred her to a vein Dr. (Circulation) she got an emergency appmnt in Chapel Hill and they were also clueless. The Doc read about it on the internet the night before she got there, and gave her steroid injections. She is not Diabetic. This is just another predominantly female condition that's getting no attention. So they keep calling it rare to cover it up. Anyway I told my friend that the ocean water has always had healing results for any cuts or abrasions i had. She went to the beach and the next day her oozing lesion was scabbed over and better. I wanted to share that with you guys. It's not a medical solution, but if you have an active spot and live near the ocean its worth a try. Hers was very bad just 3 days ago. Thanks for listening..

Meggettie
Meggettie 2014-06-18 11:43:15 -0500 Report

I've had this condition for 6 or 7 years. The scars from various injuries never seem to go away, but I went to a dermatologist and she wrapped my legs in bandages soaked in zinc for a week. It really lightened the scars. Also when the itchy patches begin to appear, I cover my legs in fatty Advantan cream and wrap cling wrap around them during the night until it clears. I find that it stops the rash from spreading and heals the patch that has started. It has also helped to keep my legs moisturised daily, which stops the dry skin scabs forming on the lesions. I hope this is helpful and that it works for some of you too.

Just thought of a few more things. Pain and stress will cause an outbreak with me, so I try and keep as calm as possible and if I'm in pain, I take pain relievers or apply heat or cold to the area. I've also found that a vibrating cushion or other vibrating machines can relieve the pain fast. The last thing I need on top of arthritis pain or a bad headache is an outbreak of the rash. Being brave and pushing through the pain is not really an option with people who have this condition.

I've talked about moisturising your skin every day to keep the scars clear of the dry skin scabs that dry out and tear the skin underneath. But I have one scar where the hole in the middle is very deep and it has a perpetual scab that fills it. If I try and remove it, the pain shoots up and down my leg and through my lower back. The pain is so intense that it makes me really nauseous and ready to faint. I've learned not to try to get rid of that scab. I just keep it subtle with moisturiser. Also, be careful of the moisturiser you use. My online supplier makes natural goats' milk moisturiser, which works really well, but it's quite expensive. Fortunately my pharmacy sells a moisturiser called QV cream and that works really well without causing the rash to come out.

I never use a soap that has any perfume in it at all - even a natural one. There are vegetable soaps in health stores, but I've found that the best by far is the non-perfumed, completely natural, goats milk soap. I get mine online at The Greedy Goat, here in Australia, but you've all probably got goats milk product makers in your own countries, which will cut down on the cost of postage.

If you need to use powder after your shower or bath, use cornflour. Corn starch is the best thing to keep you dry and stop rashes forming. It would be nice to use some beautifully perfumed powder, but your skin is so sensitive, it's not a good idea. It may seem strange, putting food on your skin, but it works really well.

Anonymous
Anonymous 2014-06-17 18:57:22 -0500 Report

Hi i am 38 i have had nld 4 15y rs its painful n itchy i am not diabetic its on my shins i stopped using steroid creams n moisturiser because of sensitivity its got bigger flaring up at different times its never ulcerated but a chair dropped on it in dec 13 it spread 2inch and is a changing colour where the hit was does n e 1 no 0f a gud cover up i am going to try dermablend body foundation i tried dermatology make up dark fake tans and bronzers nothings worked has n e 1 tried sheer cover their concealer looks good i have always covered it up when i 1st ad it i went on fast tan sunbeds i was hoping to cover it this semed to make it spread quicker i was always bangin my shins i think thats how i got nld i am exited to reasearch things what people have tried dermovate sounds good i am glad i have found nld sufferers but i am worried for the future we can all support each other to make this condition better.

MamaMimi
MamaMimi 2014-05-19 20:11:50 -0500 Report

Hi! So grateful to have found this site! I was just diagnosed with NLD today! I've been dealing with it for 3 or more years though. As of right now, I haven't been diagnosed with Diabetes. My NLD started as a tiny little bump on my right shin. When I pointed it out to my Dr. she said "We all have lumpy, bumpy shins." As the little bump grew into a large, red painful spot, my Dr.s immediately thought it was erythema nodosum, as I have Sarcoidosis. Then, when it wasn't going away, as e.n. does, I asked for a biopsy. I already had granuloma annulare on my feet and other leg, but this just wasn't the same. Well, the pathology came back as G.A. I didn't buy it. It just got worse, and worse. Finally when the spot started pitting and became super painful, I was sent to a dermatologist. That was last November. He thought it was Sarcoidosis Granuloma. Injected it with steroids, put me on a steroid cream, and gave me an oral med. The injections turned the skin so thin! And it just grew more outside the borders! I went back again last week and had it biopsied again! This time it wasn't sent to a general pathologist. When the Dermatologist called me today, I was shocked! I guess the next step is to be tested for diabetes. Just happy to have an accurate diagnosis.

Shell_Bell96
Shell_Bell96 2014-04-28 09:24:36 -0500 Report

Hi, My mother was diagnosed with NLD around 8 years ago. Since then it has spread all over the front of her leg, around the sides and on to her ankles. The doctors now think she may have it on her Stomach, Breast and under her arm. Its extremely painful and she has tried all known treatments the doctors could provide her with but none have worked. Recently it has became aggressively "active" again and is all red around the edges meaning its going to spread to the back of her leg. The doctors have told her she may be unable to drive. She doesn't have diabetes and is regularly checked for them. It started out as a little red dot on her shin. She puts creams on it but only to prevent it cracking. I love my mam, She's always out and about even when the pain is at its worst but lately she is unable to go far as it is getting worse…
But one thing shes always wondered is how many people are there in Ireland with NLD? The doctor she attends told her there isn't many so i was hoping to find out how many there actually is for her :) ..

MagsC
MagsC 2014-04-20 06:22:31 -0500 Report

Hi
I was diagnosed with necrobiosis at the age of 23. The onset was caused by taking the contraceptive pill. I have a blood disorder too, called factor V Leiden which increases my chance of suffering from thrombosis. Because of this I should not take anything with oestrogen in it. I was not aware that I had this blood disorder when I started taking the pill. At 25 I stopped taking the pill and I have not had a new lesion since.
When first diagnosed I was told to avoid sunlight on my shins, on a very hot holiday I covered my legs with a very high factor and exposed them to the sunlight. The reaction was dramatic, I could see my lesions improving everyday. This is a very slow process, but after the past 5 years of exposing them to sunshine (only on a 2 week holiday though, I live in the UK so not much sun!) I would say that 50% of the redness is gone! the skin is still slightly transparent but nothing like the horrible redness. My plan is to keep exposing them to the sun at every opportunity.

LeeLuBelle
LeeLuBelle 2014-04-15 12:45:06 -0500 Report

Hello. I'm a type 2 diabetic and have had NLD for maybe 4 years. I had fallen down icy stairs and got a "bruise" that never seemed to go away - even a year later. Slowly this bruise started to grow and form my first ulcer. Soon another one was formed right next to it and they eventually grew and have connected.
I've recently started applying vitamin E oil to the sores and the area around at night. In the morning, after my shower I apply another cream that contains alpha lipoic acid and vitamin E. This treatment has seemed to keep things calm.
I know that NLD can lie dormant for sometime and is often activated by trauma - like falling down stairs. I too have been doing a lot of research about NLD treatment as well as what certain vitamins and minerals are capable of. I have just ordered a new oil - Vitamin A & E combined. I believe this will be helpful.
This is where I buy my products: http://dermae.com/product/229/Anti-Wrinkle-Vi...
I'd love to hear what others are doing. Has anyone tried using stockings? Bovine Collagen? What is working for you?
I've looked on Facebook and don't see a support group for NLD. I'm considering starting one… Hope to see you there.
Thanks for sharing your stories and tips!!!
Lee

e_dub04
e_dub04 2014-03-31 20:30:40 -0500 Report

Hello,
I am a 26 year old type-1 diabetic. I have been diabetic for about 20 years now! in 2010, I started developing a tiny spot on my right shin, and didn't think anything of it. Until it started to grow, and itch, and hurt. I had been taking poor care of myself through college (I just wanted to be normal, ya know?) and it definitely took a toll on me. I've been a pretty good diabetic most of the duration I've been diagnosed, I even got a pump in 2012 - best decision I ever made by the way. I had NO idea what the spot was, and when I brought it up to my endo she was like, "that's NLD - and it will never go away" :(:(:( needless to day, I HATE it. I've researched every treatment possibility known to man. I just want it gone! I don't want to wear shorts or dresses and that bums me out because I like my legs, and in the midwest our summers get nasty and humid and I don't like to be the one always in capris. I'm more self conscious about that damn spot than I am about my pump. I'm sad that so many people feel know what it feels like to have this condition, but am also glad I am not alone. I've tried makeup and numerous other ways to cover it up, but to no avail. My best advice to everyone (not that we all haven't heard it a million times) is to seriously take care of yourself. We are a strong breed of people! I wish there was a success story about it going away, I'd jump on that bandwagon in a heartbeat!

Thanks for the vent sesh, it was much needed :)

ashley1187
ashley1187 2014-02-01 08:57:42 -0600 Report

Hi there,
Im 26, and I have had NLD since I was 21-22. I am not a diabetic, and my doctor did a biopsy of my spot on my shin and it came back that there was nothing there. I did see a dermatoligist about this and he gave me some steroid injections - which in turn caused some sort of seperation inside my skin/fat/muscle underneath. Ive been reading everyones posts, and feel that my spot just showed up with no reasoning at all. The only thing I noticed about my legs a few years ago was that it felt sort of soft, yet slightly hard and I could press my finger into my leg slightly and it would indent. Then a few months later, I noticed a spot growing and viola! NLD. I do get my levels checked, and I am still not a diatbetic, but I cannot find that many people out there that have this condition and is not diabetic. Otherwise, my spot hasnt casued my any issues, other than being very dry and itchy some times. I just want to get rid of it.
Anyone out there like me? has NLD but no diabetic? Msg me back or anything.
Thanks.

lcy
lcy 2014-03-16 21:14:20 -0500 Report

I am not diabetic either and have had NLD for about 15 years. I remember the spots started randomly appearing when I was probably 10-12 years old. They looked like shiny bright pink bruises on my lower legs. My right leg had one giant lesion that wrapped around my entire ankle area, and it puffed out about 1/2 an inch. I saw a dermatologist when I was about 14. The biopsy came back as NLD. I was given steroid cream (which did nothing) and finally injections. The spots on my left leg are barely noticeable now. My right leg still has slight discoloration and is still puffed out, but it's definitely improved. I'm now 26 and diabetes free. I've been told it's just a matter of time though and I'm supposed to be tested yearly. I haven't seen a doctor concerning my NLD since the injections over 10 years ago and there's been no change in the past decade. I have noticed though that I got 2 flea bites on my shin about 4 years ago and they've scarred. It's like they never healed at all. As for any causes, I really have no idea. I started becoming overweight around the age of 7 or 8, but other than that, no other health problems.

Grammie56
Grammie56 2014-02-12 13:17:02 -0600 Report

I am not diabetic and was diagnosed with NLD over 10 years. No one will believe me when I tell them that the onset was after being attacked by a multitude of black flies while my husband and I were bicycling. I even had a huge welt on my back but that went away. I know it was caused by the flies because I watch the spots develop day by day. I started with 7-10 spots in on area and they have since become 1 LARGE area. I have spots on both lower legs and they keep growing. It is embarrasing to wear anything that exposes my legs. I have to wear insect repellent because to this day I still get spots after certain insect bites. My legs are riddled with spots. I am afraid that one of these days both of my legs will be covered. I was told I could try the injections but was not given much hope they would help so I decided not to waste my time or money. I was given a cream to use and that did absolutely nothing. So you are not alone. I wish I could find someone who had some help. I truly believe if it had not been for the flies I would not have this problem. I was also diagnosed at the same time with hypothyroidism and have wondered if there is any connection there.

ashley1187
ashley1187 2014-02-12 16:51:18 -0600 Report

hmm. that is interesting. my mom has hypothyroidism. .and I have a b12 deficiency. .which my doc said is slightly related..not sure how. or even if im remembering the convo right. but that is interesting. I also do get big welts from black flies..but I dont think I got it from that. but…my new doctor seems like he may want to look into this spot more. ill see what I can come up with. also..side note here…I was talking to a plastic surgeon I work with..showed him the spot. he knew exactly what it was, but when I told him im not diabetic he was amazed and shocked. so…im kinda half on fence thinking I can go no where with this..but hopefully I can find something out.

SKIE-LET
SKIE-LET 2013-11-20 09:36:54 -0600 Report

Im type 2 diabetic. Got gastional with my daughter and they never went away. Five years ago I got this bruise on my foot that didnt hurt, then it was a lump, and i just got worse. I went to primary who sent me to a foot doctor who sent me to a dermatologist who did a biopsy on all three that I have now and said it was some kind of rash and sent me on my way telling me it will go away. It didnt. So I went to another dermatologist so knew right off what it was. He done on puncture biopsy and said I have NLD. I currently have three spots on left leg, on my tight, shin and foot. I must say at first they didnt hurt but not my foot hurts so bad I cant even sleep. I cant wear shoes. I use lanacane to help numb it but it doesnt work They have no open cuts on them. They are just getting worse. The one on my shin is starting to hurt and the one on my tight is becoing bothersome. My doctor gave me some cream to try but it burns it on top of the pain I already have.

Does anyone else have this pain? And know of any treatments?

homee
homee 2014-11-20 13:33:45 -0600 Report

I have nld with no open lesions. I get very intense itching and pain, that come on quickly. I grab a vapor rub. I massage it on the sore and in a minute or two the pain and itching are completely gons. I have tried many other creams and things for the pain and itching. I have had nld for 20 years. The vapor rub is by no means a substitute for daily moisturizing.

Anonymous
Anonymous 2014-11-20 13:33:37 -0600 Report

I have nld with no open lesions. I get very intense itching and pain, that come on quickly. I grab a vapor rub. I massage it on the sore and in a minute or two the pain and itching are completely gons. I have tried many other creams and things for the pain and itching. I have had nld for 20 years. The vapor rub is by no means a substitute for daily moisturizing.

homee
homee 2014-11-20 13:33:30 -0600 Report

I have nld with no open lesions. I get very intense itching and pain, that come on quickly. I grab a vapor rub. I massage it on the sore and in a minute or two the pain and itching are completely gons. I have tried many other creams and things for the pain and itching. I have had nld for 20 years. The vapor rub is by no means a substitute for daily moisturizing.

homee
homee 2014-11-20 13:33:28 -0600 Report

I have nld with no open lesions. I get very intense itching and pain, that come on quickly. I grab a vapor rub. I massage it on the sore and in a minute or two the pain and itching are completely gons. I have tried many other creams and things for the pain and itching. I have had nld for 20 years. The vapor rub is by no means a substitute for daily moisturizing.

homee
homee 2014-11-20 13:32:30 -0600 Report

I have nld with no open lesions. I get very intense itching and pain, that come on quickly. I grab a vapor rub. I massage it on the sore and in a minute or two the pain and itching are completely gons. I have tried many other creams and things for the pain and itching. I have had nld for 20 years. The vapor rub is by no means a substitute for daily moisturizing.

homee
homee 2014-11-20 13:32:25 -0600 Report

I have nld with no open lesions. I get very intense itching and pain, that come on quickly. I grab a vapor rub. I massage it on the sore and in a minute or two the pain and itching are completely gons. I have tried many other creams and things for the pain and itching. I have had nld for 20 years. The vapor rub is by no means a substitute for daily moisturizing.

homee
homee 2014-11-20 13:32:16 -0600 Report

I have nld with no open lesions. I get very intense itching and pain, that come on quickly. I grab a vapor rub. I massage it on the sore and in a minute or two the pain and itching are completely gons. I have tried many other creams and things for the pain and itching. I have had nld for 20 years. The vapor rub is by no means a substitute for daily moisturizing.

homee
homee 2014-11-20 13:32:14 -0600 Report

I have nld with no open lesions. I get very intense itching and pain, that come on quickly. I grab a vapor rub. I massage it on the sore and in a minute or two the pain and itching are completely gons. I have tried many other creams and things for the pain and itching. I have had nld for 20 years. The vapor rub is by no means a substitute for daily moisturizing.

homee
homee 2014-11-20 13:32:03 -0600 Report

I have nld with no open lesions. I get very intense itching and pain, that come on quickly. I grab a vapor rub. I massage it on the sore and in a minute or two the pain and itching are completely gons. I have tried many other creams and things for the pain and itching. I have had nld for 20 years. The vapor rub is by no means a substitute for daily moisturizing.

homee
homee 2014-11-20 13:31:50 -0600 Report

I have nld with no open lesions. I get very intense itching and pain, that come on quickly. I grab a vapor rub. I massage it on the sore and in a minute or two the pain and itching are completely gons. I have tried many other creams and things for the pain and itching. I have had nld for 20 years. The vapor rub is by no means a substitute for daily moisturizing.

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