I was recently diagnosised ..

vrswesley
By vrswesley Latest Reply 2014-04-29 07:07:02 -0500
Started 2014-04-27 13:23:21 -0500

with a new problem. a new disease…its very rare, and it may …depending on alot of factors…kill me faster than , my diabetis, kidney disease, or anything else I have. to the point.. while I dont know all the details yet.. Im planning my …getting my affairs in order..preparing for a long serious illness, where Im bedridden, in hospice care(in home)…it may not happen that fast… need to talk to the better doc first. the disease is called Pulmonary Hypertension. and it is progressive and fatal in 3 to ? yrs. At this point Im pretty much home bound-not totally.. but close.

there are treatments, but because of my other problems(kidney desease, etc) and side effects Im not sure that Im going to choose treatment. dont know yet…have my reasons.

I still need you all , my friends, Im handling it but am scared.. just need your support.

violet


7 replies

Gabby
GabbyPA 2014-04-29 07:07:02 -0500 Report

We are here and when you need to scream or cry, we are still here. Prayers for your comfort and joy for you and the family.

vrswesley
vrswesley 2014-04-29 01:59:07 -0500 Report

I went to anothwer spealist for A DIFFERENT health problem! family doc is convinced I have an auto immune disesaes too!.. although at this point Im not sure its all worth it…have to admit Im overwhelmed with all these different diseaeses.. just overwhelmed.. no ihavenr quit yet but…I will talk to the PH doc next week..see what all my options are.. but I am leaning truward no treatment but palitive care.

Actually that doesnt really scare me.. Honestly it feels right…Im ok, just sick… and tired…dont worry too much..just pray andthankyou for the notes.

jayabee52
jayabee52 2014-04-27 14:40:17 -0500 Report

Sorry to hear that Vi.
What would I be able to do to support you?
James

vrswesley
vrswesley 2014-04-27 15:39:35 -0500 Report

thankyou for asking. Ill tell more as I can..you talk too.. as you can…I know this is a tough one..

vrswesley
vrswesley 2014-04-27 15:38:40 -0500 Report

pray my needs are meant -that im not forced in to inpatient at any point… and just send me messages, talk to me …I feel very alone be supportive..

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