severe cramps with my neuropathy !

highlandcitygirl
By highlandcitygirl Latest Reply 2014-07-28 11:24:35 -0500
Started 2009-01-27 13:49:41 -0600

i just wanted to know if anybody else has experienced severe cramps with their neuropathy. in the last four days my calf muscles have been cramping up into knots and its very painful. this is mostly at night when i am in bed!


18 replies

karenromano@live.ca
karenromano@live.ca 2012-05-26 10:03:47 -0500 Report

I have also taken gabapetin but found it altered me and I had a hard time thinking properly. It really worked well. I have now been off it and can hardly stand the cramps in not only my feet but calves and thighs. Is there anything else that helps? I take Cymbalta in the a.m. but this does not relieve the cramping.

roger
roger 2009-01-31 12:24:07 -0600 Report

i take gabapentin started at 300MG 3 times the fat foot and cramps came back after 6 mot md uped it to 600 3 times a day only have them once in a wile now md also told me to eat a banana for the potas ( i cant spell )

highlandcitygirl
highlandcitygirl 2009-01-31 12:39:01 -0600 Report

my doctor has me on 600 mg to be taken at night only. the night before last, i had some really bad foot cramps. they just twisted up on me, made me cry!

Avera
Avera 2009-01-30 23:49:06 -0600 Report

This discussion is one I can identify with. I often have leg cramps during the night. Several months ago I did a web search to see if I could find a solution. First I copied a pretty good definition of just what these cramps were. Here it is.

***Nocturnal leg cramps are sudden, painful involuntary spasms of the calf muscles that occur during the night or at rest. Often times, the muscles in the soles of the feet are affected as well. No one knows for sure what causes night cramps. It is postulated, however, that the cramps are sometimes caused by overexertion of the muscles, structural foot problems (such as flat feet), prolonged sitting, inappropriate leg positions while sedentary, diabetic neuropayhy, or dehydration.***

In looking for a way to prevent them, I found a site where different people used different ways to help theirs. I am going to copy them here for you. Some are funny, but the people swear they work. I tried two of them and they both worked for me. I'll let you guess which two I used. lol Here they are…

##1.Crazy Solution To Leg Cramps — This will sound crazy. on a medical talk show they talked about leg cramps. You use a regular bar of soap, any face soap, small or large. Place it in the bottom of your bed under the sheets. In only a few days it will work. My uncle, dad, and my self use it and it works. No more quinine water. The first night I get a cramp, I change it and throw the old bar of soap away. IF THE REST FAILS WHY NOT TRY THIS. OUR FAMILY SWEARS BY IT AND IT BEATS TAKING ANY PILLS. Janene Mirto jmirto@cboss.com small

##2.Leg Cramps — i'm 83 and suffered with leg cramps for a number of years. i try to walk them off. when you get them in both legs at the same time it's hopeless. it feels like knives cutting in my upper thighs. my nurse friend says lack of calcium. some readers have advise b-12 which i take and vitamim e. i take e-400. i take legatron over the counter pills, one at night before i retire at night. that has helped me most. i'm on chemo and sit for three hours for the treament once a week. just recently i've experinced cramps in my thighs. i sit with my feet elevated, too. the legatron shouldn't be taken when you are going to drive or do other things when you need to be alert as it makes you drousey. so it dosen't help in this case. i hope i've helped someone. — vern craig bus82@webtv.net small

##3.RLS Leg Cramps - I have had these awful cramps or muscle spasms for many years. I use these natural pills sold at K mart called"muscle cramps" and have had relief. I also press my forefinger between my nose and upper lip (across like a mustache) and it does help too. Like one of your contributors I also think I am hypoglycemic since I crave sweets at night too. I agree with you that they are the most painful things I have ever endured. Thank you for listening Rose Ramore@gte.net small

##4.Re: Leg cramps — Rev. Ralph J. Karl,OMI" - Hi Folks, Have done my research reading the various messages about leg cramps. Most of you strongly suggest to lay off milk and milk products. Others say quinine is the answer but it is no longer available. I have found the solution for myself. I don't drink milk after 12:00 Noon and I have a substitute for the quinine. An hour before bed time I take half a glass (4ozs.) of wine and half glass (4 ozs.) of quinine water. The quinine water is used in mixed drinks and contains enough quinine to do the job. The large bottles cost about 1.00. The wine is whatever pleases your taste. Results after 6 months of this remedy: NO NIGHT CRAMPS OR PAINS all night long. Hope this helps. Padre.

##5.7-19 Vitamin E — I don't see anyone suggesting the use of vitamin E for leg cramping. I used to wake every night with severe leg and foot cramps and had taken quinine for them with only mediocre results. A doctor told me about vitamin E and I have used it since, for ten years now, and have only rarely had a "rude awakening" from muscle cramping. I take it in the morning and before going to bed. Should I have a cramp in the night, I take more and get relief quickly. The amount needed varies from person to person. I upped the dose until I could sleep through the night. I believe that I have had other benefits from it as well. Eileen Hook Authorized User eileenhook@olympus.net small

##6.I too, have severe leg cramps (tendons have torn). I found this list looking for possible resources for quinine. My cramping is due to post polio syndrome. I've done very good compared to others. I've been taking calcium, magnesium, ibuprophen, but in my case it is VERY important to keep the legs inactive for 5 to 15 minutes each hour. If I don't do that, it doesn't matter what I take. Likewise, if I rest my legs it does no good without the calcium, magnesium. Thank you. Nicolette. ishgooda@tdi.net small

##7.My father is 84 years old. He had leg cramp for many years. He also took Quinine to help. However, Quinine is not a finite solution for him. The cramp kept on coming back and got worse. Four years ago, he took advice on drinking one glass of milk a day (skim milk if you prefer as my father does), he has no more cramp. When he is travelling and forgot the routine, he'll get the cramp back. You have to be disciplined. Of course, it won't help you immediately after first couple days. I know how painful it could be as my father described to me. Hope this will help you. Good luck. I believe in natural remedy than drug anytime. thanks to Maria Lian — elian@newssun.med.miami.edu small

##8.I am 72 years old. Conerning leg cramps, I was waken up about 2 times every night with terrible cramps. Doctor gave me Quinine Sulfate capsules of 325 mg. The cramps stopped about four times I awoke with the cramps and checked if I had taken the capsule and found out I had not taken one. Every time I took one I did not have any cramps. From John Rudzinski — yosh@epix.net small

##9.The suggestion of 325 mg. quinine sulphate in the evenings has worked for me, but, if you don't like taking pills using "tonic water" for your beverage will do about the same thing. Either dietetic or regular has the quinine in it. — Thanks to Ron Beal - boxfox@azstarnet.com small
——————-

That's about it. Just remember above all things… If you consider oral options, check with your doctor first to make sure its safe and doesn't conflict with your other medications.

Hope this helps…
Avera

Debe Pendice
Debe Pendice 2009-01-31 06:48:59 -0600 Report

Avera, great infomation you shared here. I knew alot of this but also learned so much too. I love learning new information everyday. You alone have taught me so much from here. My problem is when I get something wrong with me, it gets fixed and I go on. This site has taught to go and reserch things further and I have been enjoying this new learning experience…Debe

highlandcitygirl
highlandcitygirl 2009-01-31 10:27:21 -0600 Report

okay! i found two that i can definetly do, the soap under the pillows and the bottle of wine! i don't need the quinine water,as a bottle of wine should help me sleep through anything! hee! hee!

LadyDi - 26259Miller
LadyDi - 26259Miller 2009-01-27 17:19:10 -0600 Report

From Mayo Clinic -

"The exact cause of night leg cramps isn't known. Some experts believe they may be due to abnormal processing of electrolytes — essential elements and chemical substances your body needs for basic functions — by muscles. Almost everyone has occasional leg cramps. But they occur most often in older adults. Common causes of night leg cramps include:

Muscle overexertion
Prolonged sitting
Dehydration
Pregnancy
Diabetes
Decreased potassium levels
Neuromuscular disorders, such as Parkinson's disease
Certain medications, such as albuterol, niacin, diuretics, and some calcium channel blockers and antipsychotic medications
Alcohol use

If you do get a leg cramp, you may be able to make it go away by:

Walking on the affected leg
Massaging the affected muscle
Straightening your leg and flexing your foot toward your knee until you feel the calf muscles stretch
Applying a cold pack to the affected muscle
Taking a hot bath

To help prevent night leg cramps:

Drink plenty of fluids during the day.
Stretch your leg muscles before bedtime.
Get adequate potassium in your diet.

If you have frequent and severe leg cramps at night, talk to your doctor. Treatment results vary. But the most effective treatments based on current research are:

Vitamin B-12
Gabapentin

Night leg cramps should be distinguished from another common cause of night leg discomfort called restless legs syndrome, a condition in which your legs have a creepy, crawly or fidgety sensation unless you move them. The sensation often worsens as night approaches. Restless legs syndrome is a neurologic condition that requires different treatment from that of night leg cramps."

LadyDi - 26259Miller
LadyDi - 26259Miller 2009-01-27 17:23:27 -0600 Report

My Ex swears by Quinine for his leg cramps and keeps it around all of the time.

"The only drug that has been shown to be effective in treating night-time leg cramps is quinine, but the Food and Drug Administration stopped over-the-counter marketing of this remedy because of concerns about irregular heart beats and other side effects. Doctors may still prescribe quinine pills for relief of leg cramps, but they can cause birth defects and miscarriages, so they should never be taken by a pregnant woman. Quinine can also cause ringing in the ears, headache, nausea, disturbed vision, chest pain, asthma and other problems."

http://www.drmirkin.com/archive/6752.html

wish2adopt1more
wish2adopt1more 2009-01-27 14:44:47 -0600 Report

i am new to this site here but wanted to share with you that i too have severe cramps with my neuropathy mine are all in my legs. my doc doesnt seem to understand how painful they can be ..if you figure a way to help them let me i know, i will in return let you know if i do

highlandcitygirl
highlandcitygirl 2009-01-27 14:59:05 -0600 Report

first you ask them if they have ever had a charlie horse ( cramp in leg) then you tell them that it is cramping often and is so severe you either cry, or almost cry. that depends on how long and what duration the cramp is! some times it is hard to get someone to understand when they have never had the lovely experience for themselves! and if the calf muscle knots up ,or any of your muscles, be sure to tell them.

2009-01-27 14:28:01 -0600 Report

So sorry you are having this problem Barbara! I don't have neuropathy but I hope you can find relief fast. Your friend, Angie