In April of 08 my daughter began gaining weight, she was 6yrs old and 57lbs, by her 7th birthday in July 08 she was 88lbs and doctors kept saying it was just a growth spurt, finally in Aug 08 I was at my wits end and finally found a doctor to listen to me who agreed that at 111 lbs my daughter was NOT going through just a growth spurt. Tests were ran and her TSH was 84.40 (normal thyroid level is 4.0). We were sent to a specialist in Denver (we lived in western Nebraska at the time) They put her on Synthroid and ran several tests and determined she was experiencing Auto-immune failure which produced anitbodies that attacked her Thyroid. She will be on the medication for the rest of her life for this condition. In late Oct. 08 we returned for level tests and the medication was doing its job at the level she was prescribed, but they noticed signs of pre-diabetes (I myself am a 4th generation type 2 diabetic) so they suggested I randomly check her b/s. By mid November she was having readings of 180-290 so an A1C was ordered, it came back normal at 6.2. Over Christmas we moved to South Dakota, transferred primary physicians and such with an upcoming appt. in Denver of Jan 22 '09. At that appt. I explained we'd moved and had found a Ped. Endo. closer to home and wanted to transfer her care to their office. Well, as if slighted by my actions, they handed me a free meter for my daughter of her own, was told to test her in morning fasting and 2 hrs after Dinner meal, they did her thyroid blood test, another A1C test, said to put her on a 300g carb diet a day and to make an appt. with the new doctor closer to home in 3 months and sent us home! I felt like my daughter and her issues just didn't matter to them and that she didn't get the care she needed just because it was our last visit to this place. After returning home (732miles round trip) I called our new primary and told her what was going on, she in turn called the new Ped. Endo. and told them what had happened, turns out there should have been a test done to actually determine whether Laura was diabetic or not other than an A1C test the OGTT 2hr test. It was also explained that due to genetic diabetes and thyroiditis they should have tested her for MODY which has 6 classifications and is neither Type1 or Type 2 Diabetes. I realize I am JUST a mother but I cannot understand a child being pushed aside and not having the care she should just because we were changing providers, not to mention what it cost us to take her all the way to Denver and back with no real answers. We have since set up all the necessary appointments and tests but I don't have to tell you that our insurance on her isn't real happy about a "repeat" doctor visit that shouldn't have had to happen. I may not be a doctor but I feel that the Denver doctor saw more of a loss of income than a child in need of help.
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