SEROQUEL... And the death of my health...

By Latest Reply 2009-02-26 12:53:11 -0600
Started 2009-01-20 06:51:01 -0600

Let me start by saying this is MY experience and my experience only. Seroquel is a horrible drug with horrific side effects. I'm living proof. I waited about 6 weeks to post this for several reasons. I have no doubt Seroquel caused my diabetes and have been told so by many, many health professionals. I am posting this after discussing this with several Diabetic Connect members. I wish I was the only person this happened to, but I'm not. This story needs to be told. This is a partial letter I sent when I filed a formal complaint with the FDA on 12/22/2008.

I took Seroquel for "Panic Attacks" from approximately March 2008 until November 2008. I began to get sick in late summer. I was working in a very good position as senior underwriter for Wells Fargo Bank. I began to get sick and started to go down hill. I was laid off from Wells Fargo Bank on October 04, 2008 because my supervisor said "I didn't feel well most of the time." I continued to take the Seroquel but started researching it like crazy and realized it was causing all the serious side effects I was having. My doctor would not let me stop the Seroquel cold, I was on 400 mgs per day which is a VERY high dose. I am 5'8" and was between 125 and 130 at the time. (I am under 100lbs now.) He started cutting the dose back but it was too late. I went to see him on December 01, 2008 after I passed out in my shower. He sent me directly to the Emergency Room and I was admitted to ICU fast. My body was shutting down and I was at death's door. This is the direct diagnoses from the hospital records I have from my release from ICU…Diabetic Ketoacidosis, Newly diagnosed Type 1 Diabetic, Hypocalcemia, Hypomagnesemia, Anxiety, Iron Deficiency, Vitamin B12 deficiency and Sick Enthyroid and the list goes on. This is horrible and I am now still very sick and taking 2 insulin shots per day for life, testing (finger pricks) 5 to 7 times per day. This is crazy and I have no doubt Seroquel caused this.

I was only taking Klonopin and Seroquel when this happened. I have taken Klonopin for approximately 11 years with no problems. I have suffered from major panic attacks since I was robbed at gun point when working as a teller in college when I was 19 years old. Prior to Seroquel, I was the picture of health.

Seroquel was prescribed by my primary doctor who I have used and trusted for over 11 years. I was given samples for the first 3 or 4 months which did not have any drug information included with them. Seroquel, even with my insurance was extremely expensive. I know now that I should have checked, however, when I did check, it was such a "blanket" warning, I'm sure I would have taken it because it was FDA approved. It's the warning you find on almost all drugs of this nature.

I will answer any questions I can but please understand that I am limited as to what I can say for legal reasons.

This is posted in hopes that anyone on Seroquel GET OFF THIS DRUG. Please, I BEG you, talk to your doctor because this is a drug the FDA should never, never have approved.

Your friend, Angie


33 replies

Amy Togtman
Amy Togtman 2009-02-26 12:53:11 -0600 Report

I have been taking Seroquel 800mgs now for about 6 yrs now and thats when I got diagnosed with type 2 diabetes but I was also obese and so I'm not sure if the Seroquel caused my diabetes but I have not had any real problems with Seroquel I am actually doing real good on it and will continue to take Seroquel for my mental problems.

ms hiner - 30998
ms hiner - 30998 2009-02-19 04:20:30 -0600 Report

please reply to me Angie, I too am a diabetic serviver of seroquil no one will disscus this with me in fact doctors get mad if I bring it up & I have several it took me a year to get into a mental health group therapy set up.One man began disscusing seraquil & diabetes i joined in his conversation,& they asked both of us not to come back. So please tell me about these legal

BeckyJ
BeckyJ 2009-02-18 21:11:25 -0600 Report

I just noticed this post and now I will be calling my doctor asap. I started on Serquel about 2 months ago to help me sleep. I am bi-polar and had tried all of the recomended sleep medications with no result. I was taking 3 Klonipan to just relax enough to get 4 hours of sleep. My Dr. recomended Seroquel but advised that there might be some complications with my seizure disorder…but nothing about my Diabetes. Well since then I have had some extremely high blood sugars that I just could not get under control. I am on several medications that can raise blood sugar so we just weren't sure which one was the culprit. After reading this and looking at some other articles on the subject I am definitely going off of it. I am so sorry to hear about the problems that you have had and am praying that now that you are off of the drug you will continue to improve. It's so scary that this is an APPROVED drug. THANK YOU so much for letting me know about these awful side effects.

LadyDi - 26259Miller
LadyDi - 26259Miller 2009-02-18 21:44:30 -0600 Report

Becky, Angie is out of touch with the site right now, in AL with her mom & dad. Dad just had heart surgery. Just wanted you to know that she might not see your post immediately. I hope you can get with your doctor soon to discuss this, as she really has been hit hard as a result of her use of this drug.

Pauline B
Pauline B 2009-02-19 00:01:08 -0600 Report

There are approved psychiatric uses for Seroquel and as you alreayd know, there are multiple side effects from using these drugs. My work in Alaska'a state psych hospital had me in close contact with patients were having trouble getting their drugs balanced. Good luck to you as you find the right combination. I hope you tell your doctor all your symptoms so he can make a good educated guess. (And, if you already know this, I apologize as I don't mean to be preachy.)

beauty416
beauty416 2009-02-17 11:16:43 -0600 Report

I take SEROQUEL and it did not cause my diabetes. I had diabetes before I was put on SEROQUEL. I take seroquel for a mental health problem. If you don't want your sugar level to go up, exercise and eat right. My diabetes was caused by the fact that I had diabetes when I was pregnant with my daughter.

Bjay
Bjay 2009-01-29 11:07:16 -0600 Report

I'm so sorry that this happened to you. :(

Good for you for educating yourself and getting your story out there. Thank you for for inspiring others to research and advocate for themselves.

Pauline B
Pauline B 2009-01-29 16:52:40 -0600 Report

I was prescibed a then "off-label" use of Topamax for migraines. This drug is usually used for bipolar and other mental health uses, but now is recognized as OK for migraines. Doc titrated too fast, and my family noticed an abrupt change in my personality, and I noticed that I didn't have my smart-axx retorts available to me nor my vocabulary. And my ability to maintain a steady beat with the drums was impossible. I quit cold turkey, and after consulting with the neurologist that did the prescribing, he reduced the dose to 1/4. It works 3/4 of the time to keep headaches under control.

Ya gotta keep on top of your own body…

Debe Pendice
Debe Pendice 2009-01-29 09:46:16 -0600 Report

Angie, That is so sad to see you had to go through this. I had an experience that lasted approxiately 1 week. I went to take to a physicologist and he order these for me. I took this and on the third day went to dialysis. I couldn't keep my composure. After getting weigh, I was trying to walk back to my bed. I couldn't walk right.(this is when I still was able to walk on my own) As I was getting my neeedles in my arms, I was flipping all over and my nurse(Jeff) said what is wrong with you. I said I don't know, I am scare, whats happenning to me. He practically layed on top me. They ended up calling an ambulance. My MD and nephrologist met me at the ER. I looked like I was taking seizures. After they did blood work everything seem OK. But when my mother took out my medicine, they said where she get these from. My mother said the MD you sent her to, to talk with. Low and behold it was 3Xs my dose. I haven't took them since. What would I have done if I didn't go to dialysis and this didn't happen? I glad I wasn't in bed at home and nobody was around to see this…Debe

highlandcitygirl
highlandcitygirl 2009-01-29 09:55:49 -0600 Report

debe, that was a frightening thing to happen! you must have been scared!

LadyDi - 26259Miller
LadyDi - 26259Miller 2009-01-29 11:10:56 -0600 Report

Another great example of the need to check and double check all medications. Be sure you're given the right med AND the right dosage. Mistakes are bound to happen, and they can be - and often are -deadly. Thank goodness you were able to have it detected when you did.

Debe Pendice
Debe Pendice 2009-01-29 11:20:02 -0600 Report

That is one medication I didn't know what the right dose was. I never took it before and first time filled. So I didn't know what a regular dose was…
Debe

Bethy
Bethy 2009-01-26 17:27:28 -0600 Report

I have been taking seroquel for about a year now to help me sleep because the lunesta wasn't working and after many frightning stories I did not want to take ambien.
I also suffer from depression, panic attacks, social phobias and take cymbalta as well.
I was diagnosed with diabeties about 5 years ago before the cymbalta and seroquel. The only side effect that I can really notice is that I am tired all the time. I could sleep 12-14 hours a day if I didn't have things to do.
If I did have side effects I wouldn't know what medication was causing them because I am on about 10 different medications.
I tell you reading this story sure has me shaken. My whole body is shaking and I feel intensly frightened. I will definitely talk to my dr when I go back on 2-5-09.
I am sorry for your problems and surely hope that the drs can help you.

Thanks,Bethy

2009-01-26 18:21:05 -0600 Report

Bethy, thank you for your comment. Yes, please, please talk to your doctor. I do know others who have taken Seroquel and did not experience the problems I did. Mine was easy to figure out because I was only on the two medications and I knew the one I had taken for 11 years caused me no problems. If you "google" seroquel, you will find many similar stories. I wish you the best too! Take care, Angie

momwith juvie
momwith juvie 2009-01-24 16:13:13 -0600 Report

I was on this drug for major depression.I did get of it because i became a zombie and was unable to funtion day to day and i have a son who needs me.Iam so sorry this has happened to you and i will let others know about who are on it.I hope all goes well and you get better.

Richard157
Richard157 2009-01-24 15:16:05 -0600 Report

Angie, it has been awhile since you stopped taking that horrible drug. Have your withdrawal symptoms disappeared? Is your health restored to some extent? I hope you get better and better and your body recovers and restores itself. What did that doctor say who prescribed the drug and kept raising your dosages?

I am so sorry for you! I hope you can sleep and feel much better now.

Richard

2009-01-25 16:11:33 -0600 Report

Hi Richard. The withdrawal systems have stopped, thank goodness. I am still having major problems with my Electrolytes which keep bottoming out. Of course this leaves you weak and very tired. I have been going in for regular injections of numerous doses of B-12, Iron, Magnesium and several others to try and build my Electrolytes back up. So far, it's not working. My thyroid has stopped working so surgery will be my next step with this. I going in for a third opinion this week and then if I proceed as planned, I will have the thyroid surgery on Feb 2nd.

Thanks to everyone for all your comments, support and prayers! Take care, Angie

Bluebutterfly
Bluebutterfly 2009-01-24 14:10:39 -0600 Report

I am so sory you are having the problems you are having. I do hope everthing will get straightened out for you.
I have heard so many horror stories about drug re action until I am afraid of meds.We just don't know what side effects may come down the road. Good luck and let me know if I can be of any help. Bluebutterfly

Pauline B
Pauline B 2009-01-24 12:25:06 -0600 Report

Good luck to you as your case proceeds with FDA. I read through many of the incidences where Seroquel was prescibed for other maladies other than what it was oroginally intended (off-label uses). I've worked in the Alaska State psychiatric hospital and know the terrible havoc certain psychiatric conditions, such as schizophrenia have on both the individual and their families. Many can return to a normal produce life by taking psycotropic drugs, such as Seroquel, regularly and properly. However, this drug, from what I read, is being prescribed by non-psychiatrists for many other conditions with drastic results such as yours.

Please keep us posted as to the progress of your case. Is there any case you can join with others as to strengthen your voice?

2catty
2catty 2009-01-24 12:48:39 -0600 Report

Thank you so much for this info. I have a much older brother-in-law who has alzheimers and takes this for it. I just wrote my sister and gave her your story. I hope their is an alternative for him. Thanks again.

2009-01-25 16:17:32 -0600 Report

Hi Pauline and thank you. I am very vocal about this and have been telling my story to anybody and everybody that will listen. My case has sparked new concern of Seroquel and several ads are running on my local TV stations. I am also talking with several people who are trying to get this out on a national level again. It's my mission to have this drug pulled by the FDA before their approval for Seroquel ends in 2011. Take care, Angie

Gabby
GabbyPA 2009-01-24 11:52:37 -0600 Report

This is horrific, and I am so sorry for all you have suffered. It makes me so angry that the FDA and the drug companies are so deep into the doctors pockets that they perscribe things that could be so harmful. I am hesitant to take anything and it pissed my NP off. But you know what, this story is exactly why I am so cautious about drugs. I see it more and more, and maybe that is just becaue I am older now and I see more people that are on some sort of perscription...but the newer the drug the less I want anything to do with it sometimes. It is frightening.
My thoughts are with you as you recover. I am sure it is not going to be an easy road, but one you will overcome and I hope that you will have the strenght and determination to fight it to the outcome that needs happen.

Bjay
Bjay 2009-01-29 11:03:34 -0600 Report

I'm not familiar with this type of discussion format, but this is meant to be a reply to Gabby.

I totally hear you about being scared of taking new drugs. Some doctors seem to prescribe every new drug out there (sometimes depending on which reps have given them goodies). Others are very conservative. My own doctor will never prescribe a drug unless it's been used for a couple years and proven itself. He says he refuses to use his patients as guinea pigs. I think this is something very important to look for in a doctor.

LadyDi - 26259Miller
LadyDi - 26259Miller 2009-01-29 11:08:48 -0600 Report

That's the way it should be, I think. I personally go home and do a little research of my own when prescribed something new. If I have questions or reservations I get back with the doctor. With medicine and technology and science moving so fast, it's best to be cautious up front than to look back later and see what a drastic mistake was made.

2009-01-21 07:00:57 -0600 Report

Thank you all very much. It has caused much damage and it just appears to be getting worse as time goes on. I should have been clearer on when I stopped taking Seroquel. The last night I took this horrible medicine was November 30, 2008. When I got to the hospital on December 01, 2008, the doctor's there stopped the Seroquel. I had terrible head rushes, dizzy, I assume I was having withdrawals. That part has finally stopped.

About the dosage of Seroquel, I started with 50mgs, then 100mgs, then 200mgs and finally, the last 4 months it was 400mgs. I would sleep from 9pm until around 2am and then I was up until 9pm that night. Seroquel is taken at night.

They way I figured it out… I woke up about an hour after I had taken it in early November. I thought I heard someone at my bedroom door. I was laying on my stomach with my head away from the door. When I tried to turn my head to look to see if someone was there, I was completely frozen. I could not move my head, arms, leg, nothing. I was screaming and crying. I stayed that way for 2 hours until the Seroquel started to wear off. When I could move, I jumped up, ran down to my computer and pulled up Seroquel. This is how I knew for a fact it was Seroquel causing all this crazy stuff. This is just one example of many.

Again, I hope this helps somebody else to never have to go through this. It's horrible. Love you all! Angie

dyanne
dyanne 2009-01-21 04:19:44 -0600 Report

I am so sorry for what has happened to you. It is just so not RIGHT !!!! Something has to be done about it. I was given that drug I only took it once I just didnt like the way it made me feel. I dont know how you even functioned at all during the day… I couldnt keep my eyes open it made my mind just go blank. May you feel better soon and I wish I could help you in some way. Do what you have to… I will pray for you.
Hugs dyanne

Avera
Avera 2009-01-20 23:09:06 -0600 Report

Angie,

I posted a news article yesterday about this exact same thing. You might want to read it.

Avera

JustGina
JustGina 2009-01-20 10:21:30 -0600 Report

Although I’ve never been prescribed antidepressants/anxiety medications, some here may have friends that are taking these. This has been a very informative post in which we can share with them. Thank you ~G

highlandcitygirl
highlandcitygirl 2009-01-20 09:49:44 -0600 Report

i was given samples of this drug to take. it was supposed to help me sleep! it wasn't helping. then i came across an article about it and stopped taking it. i hope i was in time!

LadyDi - 26259Miller
LadyDi - 26259Miller 2009-01-20 08:32:55 -0600 Report

Hi Angie. Well, this explains those horrificly low BS readings you're always having. From some things you've said in discussions and messages between us, I suspected that you were dealing with some very tough issues. I can't say how sorry I am to hear all of this.

As a result of your post, I pulled up a few sites that detail defective drugs, etc., and the things I read about Seroquel are frightening, to say the least. I immediately sent an email to my daughter to see if that's a drug she's ever had prescribed, as she's had a number of antidepressants and antianxiety drugs over the years.

While it sounds as though this drug has already done a lot to your body, I pray that the doctors can do something to get you in better condition ASAP. Not sure what they can do or are doing, but would be interested in knowing what they say your prognosis is…how they're going to help you at this point other than wean you off of it.

This is a good example of why I fight any new drug that is suggested to me. I detest taking any at all, as most of us do, and actually have considered many times just moving to the holistic approach. Our poor bodies just have way to much put into them, and what is going to save your life today may turn out to be something that will kill you tomorrow. We really have to do our research on any suggested drug, don't we? And even that is not assurance enough for me. Keep me posted, please. I'm pulling for you and keeping you in my prayers. We Alabama gals have to stick together!

Much love,
Diane

P.S. Hope your mom is doing okay.

sexyswamprat
sexyswamprat 2009-01-20 23:30:41 -0600 Report

Angie,

Not sure if you read my previous post or not. I did some reading on seroquel and can see where you are coming from.

Love and Hugs,
Lynda