new diagnosis coming-not good news

By vrswesley Latest Reply 2014-04-20 10:32:20 -0500
Started 2014-04-18 17:00:24 -0500

need to let you all in on something… some of you know ..some dont.. it looks like I probably have a rare, progressive, fatal disease. Its called Pulmonary Hypertension. (its what it sounlds like High blood pressure in my lungs that also affects my heart. I also have occasional heart failure.) Final word isnt in yet, but ..the signs are stacking against me. They have some treatments…from drug therapy to transplant. I doubt Id get a transplant but.. I really dont know yet. I could live 3 yrs to many, many yrs.. just plain dont know yet. need more info. But at this point I need you all to know. I wanted to wait to tell you when I knew for sure.. but…Im scared..I have an appt with dr M next tues morning.. to talk about it and hopefully set up the heart cath. that is the "gold standard in diagnosing this disease. The main symptoms are shortness of breath.(there are sveral others..I have the majority of them) I cant walk 20 feet without losing my breath ..Im pretty much home bound, barely can walk Toki. not supposed to do anything that causes symptoms!, but thats not really possible because almost everything causes symptoms! I walk, but VERY little. Chris my friend and next door neighbor has been helping alot. Get out of the car at Meijers, cant walk inside without having to stop and catch my breath, and thats when we park in the handdicapped section.

11 replies

SeaBeagle 2014-04-20 08:25:31 -0500 Report

I am new to this community and I am very sorry for your news. I am sending you prayers and positive thoughts. Mary

T'Leesa 2014-04-20 00:50:05 -0500 Report

I am so sorry that you are ill. May the Lord bless and keep you. You are in my thoughts and prayers. Take care.

GabbyPA 2014-04-19 08:35:15 -0500 Report

We will be praying for you. I know you have been looking at this for a while now. I didn't know it was rare, but I hope that the doctors can find some ways to allow you to have a good quality of life. Hugs to you.

TopazDee 2014-04-19 04:19:17 -0500 Report

Hi love my heart goes out to you, I lit a blue candle and sent out my Reiki Crystal Healing to you and my prayers to the Archangels to be with you Raphael to give you healing, Michael to give you strength and courage and asked that your Guardian Angel be with you always, Please talk to them and you will feel them near you.
Wish I was near enough to visit you to give you that extra shoulder to lean on, please don't hesitate to contact me if you need to talk, are you on Skype?.

Dr Gary
Dr GaryCA 2014-04-18 21:37:49 -0500 Report

Hi vrswesley,

I am familiar with Pulmonary Hypertension. I am so sorry to hear about this. I am hoping that you get some answers and also some treatment recommendations when you meet with the doctor on Tuesday. I hope you are getting a lot of support, your friend Chris sounds like a big help, and I hope you have others, too.

I am going to keep you in my thoughts and prayers. Please keep us posted. Let us know what you learn from the doctor on Tuesday.

Take good care of yourself,


kimfing 2014-04-18 20:01:13 -0500 Report

Wishing you prayers n good thoughts for a possible better outcome. We are all here for you…