Hi,my name is.... and I'm a very BAD diabetic. Help!

By MomIsAMess Latest Reply 2014-04-05 22:38:00 -0500
Started 2014-04-01 14:33:29 -0500

I'm here to get back on track, I've got everything possible against me. YES done the denial thing, still do sometimes, I'm bad about testing, My last A1c was 14 and I have got to get on track.

Now here is the bad news. I have pretty bad Systemic Lupus with that came; Fibromyalgia, Raynauds, Chronic Fatigue Syndrome, Fevers, the dreaded memory loss, Lupus fog, major allergies to the point where all I can eat is organic, rashes, severe light sensitivity and arthritis. Now the other stuff, I have Chronic pain from a major accident 10 years ago which left me disabled, Asthma, and Peripheral Neuropathy (got worse with the Lupus)

So yes I'm a mess. I need to do better. I found this place because I made an inquiry about "mold in the toilet" I found the answer here. So now that I'm here I want to do this. I want to get on track, I want to have the same A1c I had while I was pregnant! If I could do it then obviously it's possible. My problem is (as if the above is not enough) I tend to get distracted and forget or quite honestly sometimes I just don't want to (I think that is the worse one). Any ideas

11 replies

Stuart1966 2014-04-03 17:03:24 -0500 Report

Amused chuckle. You have more than your share going on. Im betting that once you can get even a little tighter consistantly you will improve radically. Is anyone monitering your meds actively for their raised blood sugar effects?

Betting whatever you are taking is not friendly to the blood sugar.

Where can you change beyond the med analysis for potential side effects? Whats your eating habit like

Gayla69 2014-04-03 13:35:34 -0500 Report

Hello MomisAMess,,,, I would swear you are my carbon copy . I too have the same things wrong. Plus a few more .. I know the pain you go through, Lupus and R.A. and Fibro will bring you down. Some days I hurt so bad I cry all day long , Than get mad for feeling sorry for myself and I make myself move around and get out side . But between all that, I fight everyday to keep my Sugar at a good number . But when I have to take antibiotics or pain meds or just having a Lupus flare up , my sugar suffers and it doesn't matter if I only eat lettuce it will be very high, Hand in there It will get better , I tell myself that everyday ,,,,,

MomIsAMess 2014-04-03 15:18:51 -0500 Report

It's the being in bed so often that kills me sometmes! How long can you watch the news without pulling your hair out? lol I am into scifi so I have enough to keep me busy there. I am learning more about essential oils. That is my new "keep me busy". I had some amazing luck with them despite the fact that I was so skeptical about using them. The cold/cough that turns to bronchitis that turns to pneumonia that ends up lasting 2-3 months? I was over it, complete in 10 days. My jaw dropped to the floor! So now, I'm learning all I can and keeping my RA in the loop of my interests as I go along. We'll see. Energy and Pain is the biggy! Being off coffee completely was like being shot in the heart. The soaring bird went down like in a spiraling mass with grey smoke plumes following behind. Corvalen and chia seeds are now my "go-to" for energy. I'm learning still but my leg is a big problem in this so. I may want to get up and go but if my leg is bad that day it's like trying to run a marathon and find someone stole your sneakers.

Dr Gary
Dr GaryCA 2014-04-02 14:23:26 -0500 Report

Hey MomisAMess,

Nice to see you! I really appreciate your honesty about how hard it is for you to stay on track with your diabetic self-care. You have so many health challenges. so I can understand why staying on top of your self-care might also be a challenge at times.

I am wondering if it might help to make a daily check list of everything you need to stay on top of to stay on top of your diabetes. You might want to go in on your computer and create a schedule, the things you have to do, e.g. check your blood sugar, and approximate time of day you need to do it. You might keep one version of your schedule, and edit it as needed. Then you could print one out for each day of the week, and use it to guide your day.

You might also include a checklist of the things you need to make sure you have accomplished at some point during the day, but that don't need to be scheduled.

Once you get this schedule created, it's done. Just print it out and follow it. Who knows, it might even be fun.

It might be worth a try.

Take good care of yourself!


MomIsAMess 2014-04-03 15:46:24 -0500 Report

Thank you! I told my endocrine that for a few months I just pretended I was not diabetic aside from taking insulin when I KNEW the BS was up. She looked at me as though I had just told her I hung puppies upside down from their tails in my closet. No, I do not need to visit the psych ward…not yet. I thought by telling her the truth about my past and kind of letting it fall to the wayside because of the Lupus and Pain management she would understand. Boy was I wrong.

Since I started here day before yesterday I have been keeping up with my BS records. Actually checking and writing them down for longer than a day is an accomplishment for me. But I have been forgetting my pain meds and boluses on my pain pump. Focusing is a major issue for me. I feel like my memory is just completely gone sometimes. Short of not forgetting the names of those in my own household I'm lost.

I saw a few fellow lupians talk about "the fog" one time on the popular social media. I was never so relieved in my life! One time I thought I was having a low blood sugar, another time I thought I really was losing my mind. I stayed quiet about it and kept it to myself till I heard that conversation. These are the things I have to deal with. I have to change my nerve stimulator program every other day, take pain meds, change my insulin pump stuff every other day (we'll talk later on that one), check my BS and write it down, take lupus meds, record pain levels am and pm,EAT <— hard to believe considering my weight and have time for my family so they don't forget me worse yet I forget them.

Yes a checklist would be great! I need it in poster size though because my vision is not the best and I'm always losing my readers. I'm not making excuses. I just need better organization skills. I feel overwhelmed sometimes…okay, many times and with that of course my BS goes up and then I find myself getting depressed about that. I'm trying. I'm giving it my all now and that's why I'm here. An in-house support team would be better but this will work for now! :o)

oh, if this sounds like a muddled mess it's because sometimes that is exactly how I feel sometimes. It rolls over to my writing now too. LOL

Thanks much Dr. Gary! I may need a life guard once in a while if I think I'm drowning. Throwing floaties in my direction would work too!

Dr Gary
Dr GaryCA 2014-04-05 22:38:00 -0500 Report

Hey MomIsAMess,

Thanks for following up and letting me know more about what's been going on with you. I really appreciate it.

I certainly have a much better understanding of the many challenges you are facing, and the multiple daily responsibilities you have. A lot to remember.

You might consider printing out that checklist in larger type and then hanging in in your kitchen or wherever you will most likely notice it.

I hope you will stay in touch and let us know how you're doing. And yes, sending you a mental floatie!


jayabee52 2014-04-01 16:36:07 -0500 Report

Howdy MomIsAMess
Your situation reminds me of my now late 2nd wife "Jem".

She was totally blinded at 14 by retinitis pigmentosa, she also had Lupis (SLE) which affected her joints (leading to RA) and also her bodily organs. She had CHF which would sometimes present as tachycardia, COPD, Kidney problems for which she needed dialysis, Problems regulating her fluid balances, often she would be "too wet" and then almost the next day "too dry". She also was allergic to most everything. When we went to the ER, they would ask if she had any allergies. Our standard reply: it would be easier to tell you to that which she is NOT allergic.

She would show allergies to many kinds of medical tapes, all of the Biologic medications which were available for RA or Lupis at that time.

When she had a flare she would have to go to the clinic and receive a shot of cortisone or a Rx of predinisone, which of course would send her diabetes into the statosphere (Jem didn't say her diabetes was "bad" she said she was a "brittle diabetic"). Then we'd need to use 2 different insulins ("R" and "aspart") using the appropriate sliding scale for each drawn up by her Endo. Since she was blind, it was necessary for me to take her BG readings and draw up her insulin according to the appropritate sliding scale. We seemed to no sooner get her BG levels back under better control, she'd have another flare and we'd do the whole "dance" all over again.

She was an extremely intelligent lady, but she did say that she had lost some ot her cognative abiltiy over time.

She had a lot of "medical challenges" (as she laughingly referred to them) but she was such a joy to be with, it was definitely worth it to me. My only complaint was our relationship from the day she contacted me on Dating4Disabled, to her passing away quietly in her bed in 07/2010, was about 2.5 years. Way too short for me! .

So you say you want your A1c the same as when you were pregnant? What was it then?

I have found that a large part of mangaing one's DM whether on insulin or not, has a lot to do with one's eating habits. When one eats low carb and high protein, you won't normally have higher BG levels, and therefore your A1c will be lower. But then again, if you have a flare with your SLE or RA, you may need to take some meds which may raise your BG levels and also your A1c. Should that happen, don't be hard on yourself. Do what you can and flush the guilt!

Praying God's best for you and for yours!

James Baker

MomIsAMess 2014-04-01 18:14:46 -0500 Report

Thank you and yes, I call them health hurdles through my race through life! lol And yes I know the odds here and I've accepted that. My A1f during my last pregnancy was 4.8. My first one was a 2.4. I can do it but then I didn't have Lupus. The diet for Lupus aka inflammatory diet, lower protein, higher carbs. NO LEGUMES! Diabetic diet high protein, low carbs use legumes for better blood sugar control. Ask me how I feel? We have goats for a reason, I can drink milk no matter how bad my stomach feels, We know what goes in we know what comes out. Can make our own cheese and soap. Sometimes the organic items set me off. Tomatoes for example. Organic Heirloom tomatoes only. It's as if II am a GMO Geiger counter! Yes, I guess I do have a lot in common with your late wife. James, thank you for your thoughts and prayers.

jayabee52 2014-04-01 19:20:05 -0500 Report

You're welcome "Mess"

4.8 I wouldn't say is diabetic at all!

My Jem pretty much ate what she wanted. I considered her a "foodie" We lived in an "upscale' mobile home park in the SF bay area of CA. Any kind of livestock would have been a no no. I moved there because she had such a great medical team caring for her at Kaiser Permanente. Not long before she passed she said that she had been been cared for for her CHF for 20 yrs.

Also I was not even aware that there even was a suggested meal plan for SLE.

I wasn't aware of a lot of things at that time. When I was with Jem, was the first time I became aware of a lot of things, because Jem taught me a lot about kidneys and diabetes.

It was during that time that i found DC as well. Now about 5 yrs later, I know a lot more than I did then. I sometimes wonder if Jem were still alive, if our relationship would be smooth as it was then.. I know that when I am in a relationship, living with another lady, My diabetes meal plan tends to slip..

I lived with a lady briefly for about 6 mo and I noticed my resolve keeping my meal plan was slipping. I had determined in 2011 that to manage my T2D without diabetes meds, I'd have to completely not eat bread or any other products made with grain. When I was living by myself that was easier because I didn't buy it and bring it home.

But Sue liked bread so we bought it, and I would occasionally have a slice, and my BG showed it.

Now I have a new lady love. We live about 12 hrs apart and won't actually meet for a while. But it will be interesting when we start living together. She also has diabetes so it will be interesting. She regularly comes to DC so I will need to be circumspect (Hi honey! LoL!) in what I say. (I won't name her yet because we are still getting to know one another and we could still find a "deal breaker" but so far so good! - that is something we will need to somehow agree on the method and timing of an announcement).

So where was I? Oh yes, it will be interesting how my BG control might change when I am with a lady. I tended (before I was T2D) to put on weight when I was in a relationship. And I know that when I was with Jem, my control wasn't that great. My weight had balooned to 250 lbs on a 5' 6" frame. But that was before I knew how best to eat for my metabolism. I pray I can manage to control my T2D when in any future relationships.

What you are doing is one of the things I dreamed of doing when in my early 20s. I did a little of it raising my family ( wife and 3 growing sons) on vegetables grown organically in our garden (in those days GMO was science fiction) . We canned most of it.

But raising livestock, while part of that dream, didn't gel for us.for a number of reasons.

God's best to you and yours.


MomIsAMess 2014-04-03 15:06:48 -0500 Report

Goat's are easy! Homemade yoghurt, cheese,ice cream sweetened with a little honey and fruit. Believe me I was surprised to see how easy they are to care for! As pets they are wonderful! You can still realize that dream. You never know what tomorrow may bring…

jayabee52 2014-04-03 22:59:14 -0500 Report

I know I should never say never, but things would radically have to change in my life and living conditions. Right now I live in downtown Las Vegas in a senior housing complex. No place for them around here, and I am reluctant to move (for me move is a 4-letter word) but eventually I may need to move.

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