By msann Latest Reply 2014-03-29 22:32:03 -0500
Started 2014-03-24 13:55:20 -0500


41 replies

lanykins 2014-03-29 10:56:25 -0500 Report

I had numbness start in my feet 10 years ago. It then moved up my legs. I have had it in my hands for a year now. Since I can't really feel things, it is hard to grip them. I send hair brushes flying. I also send spoons full of food flying. I once was an accomplished pianist but now I can't play at all. I'm having a lot of trouble typing which makes sending emails or doing anything else on the computer very difficult. I was tested and found that this is Diabetic Neuropathy. It is rather common in diabetics but not everyone gets it extensively. My neuropathy has gone to my bladder which has made me incontinent. Neuropathy does not go away. It will ease up from time to time for awhile but once you have developed a disability with it, you have it for life. I've had to use a walker for 5 years now because my feet are so numb and my legs are so weak that I lose my balance all the time and fall down.
I wish you much luck with your neuropathy. I do know many diabetics who only have it in their feet or hands. I really hope that this will be true for you. Take good care and don't get discouraged or ever give up!

antknee 2014-03-27 07:40:19 -0500 Report

I have constant numbness. It's not just that I can't hold on to some things but, I will sometimes over compensate. I can't tell you the number of Styrofoam drink cups, RT 44 from Sonic, that I've put my thumb through, or the snacks that I've crushed without realizing. My Dr. says it may be a nerve conduction issue. but he wants to see me get my A1c below 6.5 before checking. As for Arthritis That seems to be his answer for everything else that isn't Diabetes related.

riverrat 2014-03-26 22:50:48 -0500 Report

I too have this problem sometimes. I was diagnosed with rheumatoid arthritis at Mayo Cliinc. You should probably see a rheumatologist as this is nothing to laugh about.. Do you experience pain as well as the numbness.? There is so much that can be done to help if you get the diagnosis early enough. Good luck

Pastor Naomi
Pastor Naomi 2014-03-26 13:52:34 -0500 Report

Hi, again! Pastor Naomi here. I was reading Linda's concerns and James responses. I seem to be in the same boat. My HgA1c has always been between 5.2 and 5.9 for the past 8 years, but they could not even diagnose me as a diabetic by doing the A1c. When I was very young, 26, my 3rd child was born a 10 pounder, and my doctor came in and said you had gestational diabetes with her. It will come back in your future. I immediately started watching what I ate and drank, diet sodas, and low carbs for 30+ years. They finally diagnosed me after one of my 26 operations when the OR reading was 500+. I think I flunked bad. There were classes and training on diet and management, and after a number of months trying every oral med on the market, I ended up on insulin. I did not have a gall bladder to filter the meds and so I had chronic Morning sickness in my upper 50's, no pregnancy, but no way to make my body accept the oral meds. She asked how I felt about insulin, well it didn't matter, cause I had to do it or have no med to take care of the disease. I have had neuropathy ever since my 1st spine surgery back in 88, caused by the deteriorating spine and the fall. That is why I suggested the Dr. and I know what James was talking about. Our primary care Doc keeps us in his office most of the day, and we hate sitting 6 hrs. to be seen. The alternative is a new doc but this one has had us 12 years and knows our needs and we are on Medicare and many are no longer taking it, so you go and sit all day, and wish to be elsewhere, but you have a chronic sinus infection caused by 9 months with the same CPAP supplies that are supposed to be sent every 3 months. Medicare did not notify anyone about competitive bidding and who won, but our former carriers were not allowed to send any more because they would not be paid. Big bother! I pray that God will help both Ann and Linda. I have had all those tests multiple times Linda and it is bearable. God bless! Sometimes I think I am too wordy, maybe still preaching a sermon though retired! Ha! Ha!

camerashy 2014-03-25 21:28:09 -0500 Report

I have. I have to go to a chiropractor on a regular basis, because it doesn't matter how careful I am, my 6th thoracic gets out of whack, pinches a nerve and I can't even hold onto a steering wheel.

Sly Kitty
Sly Kitty 2014-03-25 20:40:56 -0500 Report

I remember thinking mine was carpel tunnel, but my doctor told me that mine was arthritis. See have seen my primary care physician, an orthopedic surgeon and a neurologist to determine this is arthritis. If your doctor does not take your concerns seriously you need to find one who will. Best Wishes

lindainJapan 2014-03-25 16:27:39 -0500 Report

My doctor always pooh poohs my complaints of numb fingertips, trigger hand cramps and worse retro flex foot cramps saying I can't have neuropathy issues with my good Hbalc. So I 'm kind of on my own. I think massage with Vicks vapor rub helps. Also soaking my hands in warm water in the morning cuts down on my tendency to drop things while making breakfast. I have tried supplements like l arginine but don't really know enough to recommend it. Hope for your improvement. Linda

antknee 2014-03-27 07:50:26 -0500 Report

As for cramps I've found a wonderful product at our Natural Grocer. It's called Tropicin. The recommend usage is to apply every am and pm to affected areas. I can't afford this so I use it at the onset of a cramp. The Label says that it's safe for diabetics. I thought that was a marketing ploy, and it may be but it rally woks great.

jayabee52 2014-03-25 17:51:14 -0500 Report

Howdy Linda
If your Dr is constantly dismissing your complaints perhaps it is time for another Dr who will take you seriously. Also I don't know what you consider a "good" A1c but for quite a while mine was 5.5 (which I consider good) and my neuropathy continued unchanged.

Also as a MD he should be aware that neuropathy can be caused by more medical trouble than Diabetes. It is the main cause of Neuro, but not the only cause. This from the Mayo clinic article on Neuropathy: "Peripheral neuropathy can result from problems such as traumatic injuries, infections, metabolic problems and exposure to toxins. One of the most common causes is diabetes." ~ http://www.mayoclinic.org/diseases-conditions...

God's best to you and yours

James Baker

lindainJapan 2014-03-25 18:14:55 -0500 Report

Thanks, James, but I am mostly grateful for my doctor speaking English. So few do. Also he doesn't insist that I use the diabetes exchange diet guidelines which insist on white rice every meal. From our numbers being similar I guess you may also like low carb? I will check out that Mayo clinic site. Thanks. I am terrified of pain so I refuse to take the neuropathy nerve test so I probably deserve my doctor's displeasure. May I ask did you find some treatment that worked for your neuropathy and are you willing to share it?God bless you too. Linda

haoleboy 2014-03-27 00:20:30 -0500 Report

I just had a nerve conduction test on my legs for neuropathy (positive) last week. It was a bit uncomfortable but as James mentioned you really do not feel the needles and afterwards it was as though nothing had happened.
I'm not happy with the results, but nice to know its not something even worse.
The neurologist said I should keep my A1C below 6 and start and exercise program (hoping to get some physical therapy set up when I next see my Primary Care.


jayabee52 2014-03-25 21:39:44 -0500 Report

If I had something which helped with Neuro I'd certainly share it. Unfortunately I still suffer the burning neuropathy with every step I take.

I guess English would be a good thing to have there in Japan. Didn't occur to me when I wrote that. (My # 1 son and his wife are in Japan with the US Navy)

I had the nerve conduction tests through a neurologist testing to check me out after suffering 3 ministokes (I believe that is the test to which you refer about the needles) the needles were so thin, (like acupuncture needles) they didn't hurt at all and only felt a slight tingling when they were doing the tests, so you may wish to go ahead with the test without fear of the needles.

lindainJapan 2014-03-27 08:54:48 -0500 Report

Thanks Jayabee, but I hear the nerve test is not as easy as acupuncture and my sister who is a med tech in IA hates to give them because she hates to make people scream. Most of my acupuncture treatments over here have not hurt but one in my hand did years ago and I couldn't stop screaming until my interpreter reached over and pushed it out to the doctor's amazement. They have a word GAMAN. Sort of means bite the bullet or be stoic. This foreign lady doesn't do stoic! Life is strange. When I was a kid I kept having dizzy spells from low blood sugar and could pass out if I missed two meals. When I was widowed later in life I became obese 305 and at 53 was found to be having high blood sugar dizzy spells and Diabetes 2! After getting a copy of Diet Solution and a BC tester I changed to low carb diet and pool walking and weight fell off for six months until I went to Brazil and got bypass surgery. Then three wonderful years diabetes free, weight leveled to 180. Then got a terrible fever in India while doing volunteer work and a few months later my weight went into free fall. At 130 I was skeletal and could barely push open doors. Went for tests and then home to USA where my family kept trying to fatten me up but the scale kept moving lower. Got back to Japan to learn I was falling apart because I now had no pancreatic function, diabetes 1. Insulin saved my life. I am so thankful to live in a country that has good medical care covered by insurance and the hospital gives me my Medtronic pump and supplies freely. But I do indeed hate cramps and numb finger tips. Have you tried capsicum on your burnt feet? I had a neurologist put little sticky pad thingies on my scalp and face once to figure out if my claim I was having little shakes which my diabetician again pooh poohed were imaginary. They weren't my imagination. I had a petit seizure while lying in for the test and gave the poor tech assistant a fright. Turns out my calcium was dangerously low. Life is strange. But it is life. Yeah!! Hope everyone finds something that helps.

jayabee52 2014-03-28 00:03:31 -0500 Report

no, Linda, I have not tried the Capcasin cream. I had intended to try it at one time but forgot to pick some up.

Pastor Naomi
Pastor Naomi 2014-03-25 12:14:03 -0500 Report

Ann, honey, see your doctor. My numbness was from a fall down a flight of stairs, and before I was as fixed as it is going to get, I ended up with 6 spine surgeries. I had 2 knee replacements when an old college injury went bad, and have endured a total of 26 surgeries. My husband has carpal tunnel right now and needs to get it fixed. He is non diabetic. Diabetes can make things worse, but is not always the cause of what is going on. Only your doctor can find out for sure. I was young when a lot of my problems started. Now I am a senior citizen, retired and trying to take the best care of my diabetes. I have had the last couple surgeries since becoming a diabetic, which can be problematic. But we can never diagnose ourselves really. We haven't the medical smarts. I am fused from C3-T2, and L1-,y tailbone. Have a number of mobility issues now. But there could be any of 2 dozen causes for your numbness, many of them less serious. It is not always diabetes that causes numbness and tingling. God bless, Pastor Naomi PS. Let us know how you make out. We all care!

HeidiLynne 2014-03-25 09:04:35 -0500 Report

I have experienced numbness in my fingers, hands, legs and the brain! You have no idea how much spilling and dropping of things I
have done daily. Good luck with that!!

Anonymous 2014-03-25 09:01:04 -0500 Report

I go thru periods of numbness, hands, fingers, legs and the braIn! You have
no idea how much spilling and dropping I have done!

bdl0715 2014-03-25 08:17:31 -0500 Report

I have weakness in my hands also, but it didn't start until I had carpal tunnel surgery about 5 years ago. I never had the strength after that I did before the surgery.

I also have recurring pain in both hands but it believed it is unrelated to my diabetes. My hands swell up and have terrible pain. I have the same problem in my right foot occasionally. Several Drs have looked at it and can not figure out what it is.

Bill Barnes
Bill Barnes 2014-03-25 07:06:12 -0500 Report

Okay guys. On TV they advertise that you can get this medicine or that medicine for Neurapathy. Well I was getting tha pain and stinging in my feet about six years ago. And just happen to see an advertisement a doctor had in a flyer from Martha Jefferson hospital. It stated that with minor incisions in your feet and legs that he could clean up the fat arond the nerves and the pain would go away. You see fat deposits around your nerves and blocks the flow of blood to these nerves. Thus you get extreme pain from these nerves which are begging for oxygen. This doctor operated on my feet and legs making very small incisions on the ankles,and on top o f my feet and along the side of my knees. Then he sucked out the fat deposits allowing blood flow back into myfeet and legs. He put me tosleep and so no discomfort at any time. When I wroke up no pain and able to go the next day no problem at all and best of all no pain ever since then. He took classes on this from John Hopkins. He saved my life and my legs and feet. So much better than taking drugs. He has his office in Charlottesville,Virginia
The doctors name is Joseph Disabato DPM phone number is 434-p77-8040 and in Culpeper it is 540-825-1350.

jayabee52 2014-03-26 08:03:02 -0500 Report

Thank you Bill,

I have emailed Dr Disabato to see if someone in the LV NV area does this surgery. I have suffered from this neuro for far too long. I pray that it might work. Am waiting on the Dr's reply.

Bill Barnes
Bill Barnes 2014-03-26 16:02:31 -0500 Report

I hope he can help you.Please tell him William Barnes said hello. I would be in a wheel chair now if he hadn't helped me. He is very nice.

Chairmaker 2014-03-24 18:30:23 -0500 Report

I started having the same thing starting some time ago with my feet. Now the same numbness and tingling is in my fingers which was actually carpal tunnel. After an operation on my right hand, it did feel better but it has sense started the same numbing and tingling feeling again. My doctor told me it is most likely the neuropathy due to my diabetes. I have to be really careful, especially when I am doing any wood working. My tools are scarey sharp and I have cut myself a time or two and not even know I did until I see spots of blood on my work bench.

Trudie Ann
Trudie Ann 2014-03-24 15:56:25 -0500 Report

As Gabby said there are many causes for this problem. Your doctor will be able to let you know what yours is.
For me it was carpel tunnel in both wrist and trigger finger in both thumbs. I haven't had any more problems with it since the surgery 10 years ago.

jayabee52 2014-03-24 15:52:15 -0500 Report

Howdy Ann
Yes I don't have the grip I used to have. Partly from tingling neuropathy (feels like hands are constantly on the verge of "going to sleep", and partly, I think from just getting older.

God's best to you and yours


Laurene 2014-03-24 15:30:54 -0500 Report

It could be the same as in the legs and feet - nueropathy (my spelling is not good what I mean is the same nerve damage that is in your legs and feet can happen to other parts of the body). Ask your doctor.

LauraS 2014-03-24 14:58:07 -0500 Report

Could be carpel tunnel. I used to do a lot of crafting and hand sewing and even at a much younger age my hands cramped and numbed and eventually lost a lot of strength. I also started typing for a living a very young age and now have to use an ergonomic keyboard or the pain shoots up my arms and keeps me awake at night. Any repetitive motion can cause pain and numbness.

Gma Brenda
Gma Brenda 2014-03-24 14:48:04 -0500 Report

I have a problem with my right hand does the same thing and at times my thumb and pointing finger and birded finger I can't move and pain goes upmy arm doc said arthirites but I think its something else.

33suz 2014-03-24 14:37:04 -0500 Report

Gabby is right. Talk to your doctor. Numbness in the hands can have numerous causes and different treatments. I had carpal tunnel problems with my hands way before I ever developed diabetes. Even though it feels similar to the numbness in my feet, two different causes.

GabbyPA 2014-03-24 14:18:58 -0500 Report

A doctor will be able to diagnose it better. There can be many causes for loss of strength to grip things.

jango10 2014-03-25 16:23:23 -0500 Report

i have same problem had test and have mild neuropathy sometimes my hand goes into a really painfull spasm ,i went for nerve conductive tests

lindainJapan 2014-03-25 18:25:24 -0500 Report

Jango, Is that the test with electricity that hurts quite a bit? I'm a coward to pain and can't face that.

jango10 2014-03-26 03:30:30 -0500 Report

it does hurt but is bearable just well for me it was also found that i have a trapped nerve as well i know this sounds silly well to me it does but was told to try and not bend my elbow bit tricky when the job you do you are using your arms ,and i have to wear arm splint at night to keep my arm straight

lindainJapan 2014-03-27 09:05:42 -0500 Report

A trapped nerve you say. Chiropractors always used to say my nerve in my spine was pinched by my book worm hump back which now we call osteoporosis granny bump 40 years later. I wonder if that causes my tingling fingertips? Hmmm, a new thought. thanks. I'll need to look for a neck specialist who speaks English!!

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