anyone here with type 2 and kidney issues?

By RainSoul Latest Reply 2014-04-17 09:57:39 -0500
Started 2014-03-20 19:42:39 -0500

I'm sure there are- so hello! I found out almost 2 months ago that my latest eGFR results showed that my kidneys are now in the hyperfiltration stage (104%)

My diabetic case manager told me about it and suggested I start taking lisinopril to help protect my kidney's. I do not have high blood pressure.

Since I started taking the lisinopril I've been getting constant headaches and my primary doc said to go in and have my blood pressure checked a few random times- so today I went in and got checked (120/77) and the nurse asked who my nephrologist was. I don't have one!

Should I have one? Its not considered chronic kidney disease until you reach stage 2 Underfiltrating and protein in urine. That's what I want to prevent.

Opinions appreciated!

6 replies

morgan925 2014-04-17 09:57:39 -0500 Report

I think every diabetic should have a kidney doctor! You should most definitely get one! I wish I would have known a long time ago to get one. I was 21 (I'm 22 now )when I had acute renal failure. I was on dialysis for 3 months and my kidneys came back! I go in once a month to get blood tests done. Good luck with everything !

jayabee52 2014-03-21 00:45:29 -0500 Report

Howdy RS
I have T2D plus CKD. I'm also at the dialysis stage.

Due to the way I developed the CKD to dialysis was rather sudden as I had an acute kidney infection. I didn't know anything was wrong until I went to bed on Nov 1, 2006. I fell from my bed onto the bedroom floor and was there until my son's birthday on Nov 7 when he came to visit me.. I was in and out of consciousness and from my perspective I had only slept for one night.

I hadn't heard about and therefore don't know about the "hyperfiltration stage", however I would suggest if anything unusual is going on with your kidneys, that you get established with a nephrologist. H

aving looked up renal hyperfiltration up I found this quote "Adaptive hyperfiltration, although initially beneficial, appears to result in
long-term damage to the glomeruli of the remaining nephrons, which is manifest by proteinuria and progressive renal insufficiency." for more see ~

So It might be beneficial to you to see a Nephrologist sooner rather than later. You may also want to look at CKD meal plans to conserve what nephrons you do have. Here is a guideline from the National Kidney foundation ~

In the early part of your CKD your Nephro may ask you to limit your protein intake. (there is a debate in the Nephrologist community about that) but if you have a Nephro Dr who is of that mindset you can read the article from NKF here ~ (i noted when reading through that the kidney eating plan and the Diabetes eating plan are often in conflict. You'll have to make your way through that minefield as best you can) I would recommend using the services of a nutritionist or dietetician to help you sort out the complexities of the two eating styles.

Since my nephons are shot, I can eat and am encouraged to eat protein. in fact they do a weekly blood test and one ot the things they measure is if I am getting adequate protein. .

That is a lot to take in, but keep at it little by little and you will gain a lot of knowledge about your kidneys

Praying for better health for you

James Baker

RainSoul 2014-03-21 00:59:19 -0500 Report

Thanks for the info james!!! I appreciate it!

I was shocked that my case manager was the one who told me about my kidneys and when I asked my doctor about it she said she was only going to worry when they started under-filtrating! By the time my kidneys reach that stage its too late to get the function back.

I have only had diabetes for 3 years and I'm just shocked that its progressed this quick. My dad had diabetes too and he had a lot of health issues but kidneys weren't one of them.

jayabee52 2014-03-21 02:42:39 -0500 Report

Your welcome RS. Should you have further qeries please do not hestitate to ask.

Will your Dr refer you to a Nephro?

And to your PCP/GP: once kidney function is gone it is GONE for good. All you can do is minimize the rate of functional decline. WHY for would she want that to happen to you?

RainSoul 2014-03-21 03:07:56 -0500 Report

I don't know why she would want to wait.
She is a family practice physicians assistant. I REALLY like having her as my primary but I will definitely seek out a nephrologist. I don't think I need a referral, my insurance is through Kaiser. I will double check tomorrow though.

jayabee52 2014-03-21 13:26:17 -0500 Report

Howdy RS
I had Kaiser permanente when I lived in the SF bay area.

At that time the Drs there were really top notch, but since the enactment of the (Un)"Affordable" Care act who knows how that has affected that once great team of Drs and other medicos. As i remember Kaiser did need a referral from one's PCP (not a PA) to get a specialist, but that was over 4 yrs ago.

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