By msann Latest Reply 2014-03-20 11:08:03 -0500
Started 2014-03-15 18:23:05 -0500


51 replies

PetiePal 2014-03-19 09:19:01 -0500 Report

First thing my endo did was send me to the local hospital diabetes center to get "trained" and learn about all the basics. It was well worth it

Nick1962 2014-03-18 12:18:09 -0500 Report

Like some, my experience was not so positive. I had a couple classes with a CDE, and while she may have been certified, I go the impression she did nothing in the way of continuing education since she had. Label reading was never discussed, nor was carbs and sugars. After 4 classes she seemed to be more of a social coordinator helping the mainly older women tweak their recipes to be lower in sugar. Granted for the most part this was largely a class of folk who would probably never exercise or make any major changes to their diets. My biggest help came from (of all places) my chiropractor who was also a wellness coach. We went into modern foods and diets in-depth, and while it wasn’t focused on diabetes, it sure did the trick far better than the vague classes had I continued taking them.

Chopstix 2014-03-17 22:45:32 -0500 Report

Wish I had been told about classes, etc. The idiot doctor I had even told me that unloading a 53 feet trailer was not exercise! I had to self educate by reading as many books and web sites as possible. I would get, and still do, wild ideas and write them down for research when I got back home. It also took a lot of trial and error trying to figure out what foods would and would not raise my blood glucose. Needless to say I have learned a lot and have tried to teach others when I can…

MrsCDogg 2014-03-17 05:26:00 -0500 Report

That's also one of the first things that my doctor did back then. It really helped me to understand what was going on a lot better. I think most docs do that these days.

MsBugzee 2014-03-16 11:00:40 -0500 Report

That was the first thing my doctor did, lickety split. I've been to one several times to ask questions and get help. I'm grateful because it got me off on a good foot.

MsBugzee 2014-03-16 10:58:12 -0500 Report

That was the first thing my doctor did, lickety split. I've been to one several times to ask questions and get help. I'm grateful because it got me off on a good foot.

GabbyPA 2014-03-16 10:40:22 -0500 Report

I have gone to some great classes by TCOYD. They helped me a lot. Now I see they have a monthly meeting of a support group in my area that I am thinking of going to.

Jan8 2014-03-16 07:44:10 -0500 Report

Last night at 2:30am my blood sugar was 53, My cat woke me up again by running over my face while I was sleeping.

THICKMADAME46 2014-03-16 00:44:27 -0500 Report


CJ55 2014-03-16 00:20:52 -0500 Report

For the past 2 years my A1C has stayed between 5.0 and 5.4. My blood sugars sometimes still go whacky. My Endo cannot figure how my A1C can be so low when my sugars go all over the place. That is why I think they gave me the new meter. They were crazy for a couple of years then realized I was allergic to all oral diabetes meds and insulins. I am doing much better now with diet, no meds, no insulin.. I am still very very insulin resistant but I cannot take any type of medications anymore. Have a very happy day!!!

Michael_1960 2014-03-16 21:53:05 -0500 Report

I too got off all my meds and insulin up until I got the flu and made a big mistake of buying Nyquil cough syrup which is loaded with sugars and I wasn't thinking I was just hunting something for my flu. Now the doc put me back on metformin, and some meds for my cholesterol but just temporary.

jayabee52 2014-03-16 00:56:12 -0500 Report

Howdy CJ
What you said brought to mind something that happened to my late wife "Jem" she had BG levels in the 300s yet on one occasion she had an A1c of 6.0. That puzzled the endo briefly to have such a low A1c with the high BGs. But I think I figured it out. Since an A1c is an AVERAGE figure for 24/7/90days that would include any lows she had (whether or not she felt them). So I figured that she had several pretty serious lows to compensate for the highs she had been having. We had been using some "R" (fast actng) and "aspart" (ultra fast acting) on sliding scales for each. She would have what I thought were "false hypos" but maybe they weren't false. Usually they were at night when I was sleeping and she woke with hypo symptoms and would start scarfing carb laden foods she had stashed near our bed for such an occasion.

Usually I would be awakened by her noshing, but not until she started eating, so getting a BG reading would be futile. I always thought that those had been false hypos, but perhaps they weren't all false..

CJ55 2014-03-16 01:16:53 -0500 Report

Hi James.. I would have hypos all the time for years. I start feeling the low BS at 110. I test my sugars 7-8 xs a day and have from the first onset of diabetes. Actually before then because I was hypoglycemic before I became Diabetic. My BS can drop from 110 to 30 in 10-15 mins. I have to act quickly when I feel low. I have been in the 20's several times, but I have been in the 30's hundreds of times. At that point I am barely functioning. If my BS gets low and I am sleeping, so far I have been able to wake up. A few times it has been close. Stephen has had to feed me sugar tablets one time. I have noticed if I have a low BS at midnight or so by morning my first test of the day is high. It seems as though I have a liver dump every time.i know the pattern, it is the same. When we have an illness that we have to really watch like diabetes, we come to really understand how it affects our bodies and why we are not feeling good, or yes, we need to eat. At least that is how I am. By the way, we are heading to Vegas April 6th.

Sly Kitty
Sly Kitty 2014-03-16 07:57:28 -0500 Report

My doctor told me if I have those lows at only 110 then my highs are very high when I have not tested or slept through it. I too was hypoglycemic before becoming diabetic as it is a sign of future diabetes. You must really work hard at keeping your BS where it needs to be. I was told to eat those healthy carbs (15 to 25 grams) every 3 hours. That is what works for me since I have followed this. Good luck.

CJ55 2014-03-15 23:59:02 -0500 Report

I am very fortunate… I have a great Endo and also a Diabetic Ed who work side by side. I can just go to their office on a "walk in" and get any questions answered or help I need. It is wonderful. It hasn't always been like that, only for the past 4 years. I was in to see the Diab Ed a few weeks ago and she wanted me to test my sugar, so I used my meter & she used her meter. We had different readings. My meter was 2 yrs old. She gave me a new meter to use. She gives out new meters and Diabetes material all of the time. I guess I am very fortunate to have this available to me. I make myself find out ways to learn about diabetes by reading and asking questions. You are the one responsible for you, for what you eat and how much you eat. Yes, you do need guidelines to follow if you have Diabetes 1 or 2. Also, you never stop learning. There is always new stuff to learn all of the time.

Sly Kitty
Sly Kitty 2014-03-16 08:00:26 -0500 Report

Maybe you cannot get in to see them, but they should return a phone call to you. I talk with mine on the phone all the time. If they cannot be available to you when you really need them, you need to find someone who will be. You are so right about reading everything you can and educating yourself as to what has been proven to work. Good Luck.

pandalays 2014-03-15 22:05:31 -0500 Report

I don't have an educator near my place,my mom was a diabetic so learnt a lot while taking care of her,my doctor is an excellent guy and he helps a lot,online reading and these discussions are great,

Trudie Ann
Trudie Ann 2014-03-15 22:21:04 -0500 Report

pandalays, I also have that problem. There isn't an educator any where near I live. I have learned a lot on line, at DC, and I bought the magazine for a while. I had never even heard of it before I was diagnosed, much less knew anyone that had it.

judy james
judy james 2014-03-15 21:51:31 -0500 Report

I have seen an Diabetic Educator and she was informative. My insurance will only pay a portion and i figured i can get good information off the web sites. Even at my age 63 I still have so much to learn. Mostly its how my body reacts with food. I still struggle with hunger and searching for food. Some days its a never ending battle.

haoleboy 2014-03-15 21:28:43 -0500 Report

everything I know about diabetes I have learned on my own. met with a diabetes educator once while I was recovering from my stroke. Pretty sure I knew much more about this disease than she did. that convinced me that I was on my own and
I have accepted the responsibility of managing my disease.


bdonna426 2014-03-15 21:17:15 -0500 Report

I was diagnosed with Diabetes Type 2 in Sept 2013. Never would have caught it but I was having issues with walking and the tops of my feet were discolored. During lots of blood tests I was at 7.1 on my A1C. I knew a lot about it as my son was diagnosed with Type 1 when he was 4 yrs old. He is 38 yrs old now. I learned everything I could about it and went to support groups and I was even the President of the Ft. Wayne Diabetes Association for a year. So I knew a lot about food and insulin. But this caught me by surprise. Lots of new things out there to learn, but I am doing great now. Can't wait to have that blood test again. But I know the diet will always be a part of my life now. I am 65 yrs now.
I also was diagnosed with P.A.D. which is peripheral-arterial-disease and my arteries are not fixable so doing my best to exercise and keep my blood sugar down under control to not lose my legs or feet.. Anyway, my doctor told me if I need help with a class or dietician to let him know and he would write a prescription for the insurance to pay for it. So far I am counting my carbs and keeping sugar very low. If someone is having problems just don't give up !!
Lots to learn and adjust to.

bdl0715 2014-03-15 20:57:03 -0500 Report

My Dr office is affiliated with Joslin. Within the office, there are diabetes educators and dieticians that are available any time I have a question.

Lakeland 2014-03-15 20:45:14 -0500 Report

I went to one, but I started with a very bad attitude, I thought I knew a lot, my dad had diabetes for years & then when I got to class, she was saying we could have bread & potato's & all kinds of things. so I tuned out, she actually noticed & asked what I was thinking & I told her, "you are either lying to me now or you folks lied to my dad years ago". that's when she said they have learned a lot & things have changed. I had my dad's old diabetes book so things have changed. I did open up & did learn a lot & I am able to control my numbers. I think I was her nightmare.

33suz 2014-03-15 20:24:58 -0500 Report

I was sent to a diabetic educator after I had diabetes for a couple of years. She helped me immensely. I was able to lower my blood sugar to a much healthier range and get an understanding of my diabetes, the good and the bad. I believe I wouldn't be as healthy as I am without her educating me about a healthier lifestyle.

camerashy 2014-03-15 20:19:05 -0500 Report

My doctor tried to send me to one, but my insurance wouldn't cover it, and I can't afford it on my own. Besides, this site probably has more help from other diabetics than one educator.

Chairmaker 2014-03-15 19:52:10 -0500 Report

I am lucky enough to have a support group close to where I live. While I was in the hospital recently due to falling on ice and breaking both my hip and pelvis bones, the hospital Dietician came to visit me in my room to talk with me about what and why my Doctor wanted me on a diet for diabetics.

Not to mention the help from people here on Diabetic Connect has REALLY help me understand this problem a lot more.

I was in there for almost 3 weeks and she would come and talk with me to help me understand a little better as to just how serious diabetes is. As soon as I am able to be a bit more mobile, I plan on going to the support group she has at the hospital. Just from what little time she spent with me during my stay in the hospital, I have really learned a lot about my diabetes and what I need to do to control it better.

Since being released from the hospital and eating what and how much I should be eating, my blood sugars have never been so normal so to speak in all the time I have had type 2 diabetes.

camerashy 2014-03-15 20:21:52 -0500 Report

I'm so sorry about your fall! I thank my mom almost every day for all the milk she made us drink when we were living at home. I've fallen down the front steps, the back steps, and on the street while walking one of these monster dogs several times, and nothing broke. Amazing !

judy james
judy james 2014-03-15 22:07:51 -0500 Report

I guess we are made out of the same stuff. I took such a bad fall, tripped over a hose and fell into my house.. My face was cut, my eyes back and blue, both knees bruised and scrapped. I sat there for some time not sure if i could make it back into the house. Again nothing broken, praise the lord.

rontexas2 2014-03-15 19:47:37 -0500 Report

For me the CDE was not of great help. Standard ADA information that can be read online. But not right for me. Trial and error taught me for forget ADA carb guidelines and keep my carb intake below 60grams per day. Then my job was to find what food I liked and how to control portion size to meet my needs.

Just Joyce
Just Joyce 2014-03-15 20:07:13 -0500 Report

Ron that is what I did. Standard ADA is basically industry standards. I learned by myself. Portion control works for me. I eat what I want and keep my blood sugar in control.That is why it is important to self educate.

Julie D
Julie D 2014-03-15 19:24:11 -0500 Report

Planning to ask my doctor at my appointment this Tuesday. I'm totally lost as what to eat that will satisfy both me and my fiancée. It's time to get us both healthier!!

msann 2014-03-15 22:05:44 -0500 Report

Julie d you will be surprised at the information you will learn the food and the exercise to help you better she help me with my feet what to use on them I have had diabetes for 14 years and CDE for 9 years

camerashy 2014-03-15 20:23:44 -0500 Report

I ended up being a "short-order" cook. I won't even try to get my roommate to eat the way I do.

Julie D
Julie D 2014-03-16 00:45:28 -0500 Report

I hope my fiancée is willing to give a new way of eating a chance. He is also diabetic so it would be great for us to be able to support each other in the changes we should be making.

Just Joyce
Just Joyce 2014-03-15 20:15:48 -0500 Report

I agree with Lynn. Where I live you don't need to have your doctor refer you. 90% of them are free. Our City Council President has Senior Seminars that rotate through Senior buildings or at a Senior Center. They are free so I go even though I am not yet a senior.

I have been diabetic for 5 years and went for the first time last year. You really should see a nutritionist to help with meal plans. Your doctor can refer you to one and insurance covers it. My nutritionist is my friend and neighbor and not referred to by my doctor. She did my meal plan and tweeks it when I need a change. I basically eat whatever I want and keep my blood sugar in control. It will help you if you ask your doctor how many carbs per meal/day you can have and work from there.

Glucerna 2014-03-15 19:49:31 -0500 Report

I hope you find that working with a diabetes educator meets your needs. It's often helpful if you bring a 2-3 day food record with you, and that way they can see what and when you usually eat and help you identify changes that will work for you. ~Lynn @Glucerna

ICDA250 2014-03-15 19:20:56 -0500 Report

I know that both myself and my now deceased cousin both went to diabetic educators with different specialties and or degrees. It got to be really frustrating sometimes because not all the physicians, nurses or registered dieticians were on the same page. We were sometimes told different things about prescription medicines and insulin… there might be some differences because we were different individuals but overall there seemed to be a need for more consistency. For example one doctor told me a 9.1 A1c was not so bad and another told me for my age it should not be anything over 7.0,
Some people on the site said they were aiming for an A1c of 4.0 or 5.0 and I was told for a diabetic that could actually be quite dangerous.

rontexas2 2014-03-15 19:51:35 -0500 Report

I've kept my A1C in the mid-fives for a few years. Take my oral meds and exercise three to four days each week for an hour or more, get 8hrs of sleep regularly. I would not try taking my A1C below five. If you check, that is where a normal, non-diabetic would average.

robertoj 2014-03-15 18:57:52 -0500 Report

When I first got my dx I had substandard health care but they did send me to a CDE and a nutritionist. I suggest that everyone ask their doctor. It's the best way to change bad habits.

hamhock62 2014-03-15 18:53:08 -0500 Report

When I was first diagnosed with diabetes, my doctor drug his feet about sending me to a diabetic info class & evaluation. I insisted. Can't say I got a lot out of it and their info wasn't as up to date as I would have liked but I still think that going was a good idea. It's been 15 years and I have learned a lot on my own since then. But I'm a dedicated information junkie and a lot of people aren't like that and will probably profit from the classes.

jayabee52 2014-03-15 19:28:31 -0500 Report

Back in 1995 when first Dx'd I was sent to diabetes education class too. It was a full day and my mind was reeling when I got out. I likened it to trying to take a drink out of a firehose at full open. (What a rush!) Too much all at once! I much prefer this way of learning things at DC. Kinda at one's own pace.

Next Discussion: Steroids »