31 Year Old Type 2, Sugars rising over past month or so. Concerned!

By PetiePal Latest Reply 2014-03-05 06:39:18 -0600
Started 2014-03-03 13:55:29 -0600

Background: Type II Diabetic Here. Diagnosed in Summer of 2010. Before diagnosis A1c was about 11.7. After diagnosis/medication I've been steady around 6.1. I take Glumetza (extended release Metformin) 2000mg 1x a day with dinner, and 2mg Glimepiride/Amaryl 2x a day.

I was sick for about 3-4 weeks right after Christmas. It went away, and it came back again and I was on basically 2 courses of antibiotics. Got better, feel great. Still feel great. However back in January I started to notice that my sugars were a little higher than normal. Also my fasting sugar overnight was higher than I was used to (used to range from 140-160, now I'm seeing 160-190 etc. Sugars are also not coming down as quickly. Recently went to my endocrinologist who has ordered blood and urine work to be done. I'm fairly young, and very early along in my diagnosis that he doesn't believe it's progression of the disease, and is having the blood work done to see if something else maybe is off kilter. Doc said my thyroid seem to be a little swollen, but didn't think too much of it at the time. My father has had thyroid issues, (And is a Type 2, 72 years old). He's actually I think had a parathyroid removed because it was the size of a marble a few years back. Blood tests first, then we'd worry about getting those scanned doc says.

I weigh about 280 lbs, but I'm down about 10 pounds in the past few months. Been using that Nutribullet system to get more kale, spinach and greens into my diet. Almond milk, a little coconut water and frozen fruit etc, so not a carb heavy breakfast by any means. Pretty good about what I eat. I'm working on losing more weight currently, plan to be down maybe another 20 by Summer.

Anyone have any idea what might be going on or have had a similar experience? Nothing physically has changed. I haven't gained more weight, I'm not less active, I'm not getting too little sleep. Is it possible my body isn't responding well to the Metformin anymore? Am I becoming more insulin resistant? Doctor says it's way too early for my beta cells to be burnt out etc. Really concerned and not sure what could be happening. And I REALLY don't want to be on insulin if I can avoid it :(

7 replies

Renee Adair
Renee Adair 2014-03-05 06:12:52 -0600 Report

The EXACT same thing is happening to me - it was almost like I wrote your post. Same meds - same year of diagnosis- I was sick … Better now - nothing else has changed - green drink for breakfast - exercise everyday - I'm seeing my doctor today - she wants to check my thyroid. I keep worrying there is something going on that I don't know about that has nothing to do with the diabetes - but is causing my BS to act this way. I joined this yesterday just because of this issue. I will let you know what she says today and how my tests turn out. Hang in there - I KNOW how frustrated you are.

PetiePal 2014-03-05 06:39:18 -0600 Report

Thanks for the reply. It's pretty scary because I'm so young and I handle my diabetes very we'll…but to wake up with such high fasting sugars and for my readings to be in the 200w 2-3 hours after meals is pretty disconcerting.

Let me know what your doc says!

Glucerna 2014-03-03 22:24:14 -0600 Report

I've been reading more about how there are various ways that diabetes manifests itself in people. Sometimes diabetes progresses really slowly, and other times much more quickly. The research is looking at possible genetic and/or environmental connections but right now there isn't a definitive answer or way to predict what will happen. You're doing the best you can by staying on top of this with your physicians and managing your weight. You said your activity has been stable, and perhaps this is a good time to re-evaluate both your purposeful exercise program as well as activity throughout the day, since exercise can really help reduce insulin resistance. ~Lynn @Glucerna

JaredLahti 2014-03-03 21:53:37 -0600 Report

I was diagnosed with Type 2 about two years before that and my doctor put me on Byetta immediately to help me avoid insulin. I am currently using Bydureon, which is fairly similar, but I only have to take it once a week. This med has helped with losing some of the weight. Your doctor may have a reason for not putting you on one of those meds, but it's worth talking to him. My doctor added Metformin after a couple of months on those meds.

jigsaw 2014-03-03 18:19:10 -0600 Report

There are different possibilites, of which Gabby thoughtfully covered a few. I'll add my experience to these possibilities which may also be helpful.
I was on Amaryl many years ago. It eventually stopped working, as I was told it would by my doctors. Like you, my blood glucose started to climb, causing me much concern. Everything I was doing, that kept my blood glucose under control, was no longer working adequately. After seeing a few different doctors that were not helpful, I went to an endocrinologist that specialized in diabetes. He switched my medication, and my blood glucose normalized again. Eventually, and after a year or two, my blood glucose began to rise again. A new medication was added to my regimen. To make a long story short, I was put on Metformin. Metformin was definitely helping, but after a couple of years, I started to have some of the less common side effects. These side effects were intolerable, but the metformin continued to do it's job, even after a few years.

It is common for an oral medications to eventually stop working. Fortunately, there are quite a few available medications and alternate choices that can be utilzed, that fall into about 6 classifications.

Of course this is simply and only one possibility, in addition to what Gabby has mentioned. Over my 20 years of dealing with diabetes, I ran into a similar problem concerning blood glucose control, every few years. On the other hand, my A1c has always remained around 6.0 to 6.2. I have never allowed my blood glucose to climb any longer then absolutely necessary. I always increased my exercise routine, and lowered my carb intake to less than usual to compensate during these episodes. I'm pleased to say that it never took me very long to gain good control back with the help of my endocrinologist.

One other thing, it's always a good idea to see a registered dietician with backround in diabetes, if you haven't already. A good food plan is critical, and can make all the difference. These are simply a few things that have worked for me during my 20 years of living with diabetes. I have not experienced any diabetic complications, and my health is good in general.

Hopefully, you can find the best solution with the help of your doctor. My experience just may be some food for thought and worth keeping on hand.

GabbyPA 2014-03-03 14:08:13 -0600 Report

With such a bout it could be your body is just playing catch up after all you went through. Being sick that long is hard on anyone, but our bodies tend to raise our levels to deal with on going illness.

And while we all want to say we are too young for the progression of the disease, I would not discount that. Diabetes is progressive and all we can do is manage it to try to keep it at bay.

Medications can require tweaking. My body adjusts to all my medications usually within 3 months. So what works for me now, generally has to be adjusted down the road. Just the way my body works.

What you might want to do is set a time limit on what you are willing to accept and work at it giving you time to make it happen. If you can't get control back, then it might be time to look at other options.

PetiePal 2014-03-03 14:13:32 -0600 Report

That was my thought too. The doc thought that maybe what I went through "pushed me" into the next level of the disease. So we're giving it a little time, but it's odd that just as my gastro has really adjusted to taking it…the sugars go nuts