can antbody tell me

By vrswesley Latest Reply 2014-02-24 00:32:39 -0600
Started 2014-02-14 02:34:10 -0600

waht diabetic neuopathy in you legs feels like? my doc doesnt believe I have it, actually one doc does but the pcp doesnt.. Im just esteing the theroy cause I think i have it.. it hurts when i touch it.. its below the knees, seems to be worse when my sugar is high.its thew skin that seems to hurt. doc thinks its my fibro..I just dont buy that..but..trying to ck it out. need an endo too…when I get a new pcp…just wondered if anyboidy could poin t me in he right direction.

6 replies

mary, the diabetes lady
mary, the diabetes lady 2014-02-24 00:32:39 -0600 Report

Neuropathy pain is can be a combination of these types of pain: numbness, burning, tingling as in the pins and needles tingling one feels when they would sit on one leg and then try to get up. The numbness in and of itself is painful.

Naproxen and Neurontin (an drug developed for epilepsy but is used for pain of neuropathy) are two drugs that are typically employed to try to alleviate the symptom/pain.

Your physician should check your feet at EVERY doctors visit. To make sure this happens, take off your shoes and socks before the doctor enters the exam room. He/she may wonder why you did that and you can let them know that you need to have your feet checked for neuropathy.

The doctor will use two methods to check your feet. One is a very thin, long needle with which he/she will lightly prick your feet at various points. The doctor will be checking to see if you can feel those needle pricks.

The other method for checking the level of neuropathy in your feet is with a tuning fork. The doctor will set off the tuning fork and touch it to various parts of your feet to see if you can feel the vibrations.

Neuropathy is not confined to peripheral neuropathy - that is to the hands and feet. There are 4 types of neuropathy. Peripheral, Autonomic, Proximal and Focal. Each of these 4 types of neuropathy will effect different systems and/or organs in the body. Neuropathy can happen in any organ.

An example of autonomic neuropathy is gastroparesis or late stomach emptying. This type of neuropathy affects the longest nerve in the body, the vagus nerve. This nerve controls among many other organs, the stomach. Late stomach emptying is very problematic when a PWD is taking insulin before meals. They maybe instructed by their doctor to take insulin about 10 to 15 minutes before their meals so that the carbohydrates from their meal can be covered by that exogenous insulin dose. The complication occurs when gastroparesis prevents the stomach from emptying and there are no carbohydrates in the blood for the insulin to direct into the cells. This sets up the perfect storm for a hypoglycemic episode.

My husband suffered with severe neuropathy in both his feet for over 20 years. He was on pain medication for at least 15 of those years. For ten of those years, his neuropathy limited his walking to about 75 feet at any one given time. He was always in pain but the evenings was when the pain reached the level of 9 or 10.

In 2003, after much study and research, especially after reading Dr. Richard Bernstein's book, "Diabetes Solution", as well as Dr. Jonny Bowden's "Living Low Carb Life" and Gary Taubes two books, "Good Calories, Bad Calories" and "Why We Get Fat", I developed a program for my husband that I knew he could live with.

Within 3 months he was off of insulin and has never looked back. Within 9 months he lost 80 pounds and a few years later he lost another 20 pounds for a total weight loss of 100 pounds. Within 1 year he walked in 2 5K races and finished. In 2012 we went to Disney World and he walked from 8:30 A.M. until 11:45 P.M. My favorite photo of that trip is of my husband getting off the monorail at 11:45 P.M. with a big smile on his face. When I asked him about his feet, he said, "I never even gave them a thought."

Yes, I totally believe neuropathy can be reversed. I have seen it happen to my own husband who suffered greatly from neuropathy.

Pain medication only masks the symptoms of neuropathy. The problems are still there. Left untreated the neuropathy can and often does lead to more serious issues including amputation. Why mask the pain when there is every chance that you can eliminate the problem.

dagger1234 2014-02-14 23:37:38 -0600 Report

I've told my diabetic counselors that I have pains somewhat like neuropathy too and they say that it's because I have high blood sugar levels/ now that I'm done seeing them and my blood levels see consistently normal', I am still getting the same pains! They don't last long—-only like a few seconds but the feeling from them are annoying and so uncomfortable!

locarb 2014-02-15 00:27:11 -0600 Report

What is so confounding is that people sometimes are diagnosed with neuropathy before they are diagnosed with diabetes. I wish it were as simple as merely controlling BG. Without dispute, control is important. But neuropathy is frequently idiopathic and by it's nature is complex.
Some people are lucky and in time they aren't bothered by neuropathy pains, whether you call that remission or any other word that you're comfortable using.

I hope you're one of them. Continue taking care of yourself and when you need to see your healthcare provider. There are many tests that are available to confirm that diagnosis.

jayabee52 2014-02-14 03:33:51 -0600 Report

Howdy Vi
I have diabetic Neuropathy in my legs from knees to toes, and it feels like my legs are on fire, especially when I take a step or any pressure is put anywhere on my legs below my knees. In the dialysis clinic every night I'm being treated, the RN checks my ankle area to see if I am retaining fluid. If she sneaks up on me and pinches the ankle it about sends me out of my skin. Fortunately that doesn't happen often.

I also have neuro in my arms from elbows to fingertips. That feeling is more like having a limb fall asleep. It gently tingles, but it makes my hands feel more clumsy than I was before.

Yes neuro can be worse when BGs are high.

Haven't heard of fibro being in one's legs. That is a new one on me.



vrswesley 2014-02-14 05:01:09 -0600 Report

thankyou..this does sounld like what im experiecing..I thought so but just cking…I have a appt mon with a specialst ..Im going to find out if she can give me the referalto the kidney doc… a little unusual but Ive had docs do it before w/o me asking.. so not unpresidedted..I know you said there wasnt a big just feel better being cked out if I can be as soon as I can be…so pray for mon.

my legs feel pain.. alot..not 100percent of the time..just doesnt sound as bad as yours but they hurt from my knees down ..if i walk, if I dont walk…If i get touched..if I touch them myself..sometimes there fine but deffinatly worse if sugar is higher. some probably minor feet, pain is mostly in legs.