Kidney transplant and Type 2 Diabetes

By sadiegracegraceful Latest Reply 2014-01-31 23:45:30 -0600
Started 2014-01-26 00:39:39 -0600

I am so confused…I am diabetic now, after 5 years on anti rejection meds…my numbers are high and I know it is my fault as I am eating things I know I shouldn't. I had to give up a lot on dialysis so I know how to do it, but for a while after my transplant I was able to eat just about anything…what I need to know is how to eat right…how many carbs a day, what healthy choices for snacks, should I eat breakfast, lunch and supper…and snacks…my doctor tells me I am intelligent and know how to do this but I am in denial. I take Welchol powder form in the AM and 20 units of Levimere in the evening…
COME on friends…guide me and challenge me…I need help…

8 replies

GabbyPA 2014-01-27 13:31:56 -0600 Report

Could there be some issues going on with your transplant that are increasing the numbers? When he says your "intelligent" does he mean that you have a plan and are not following it or that you should figure it out for yourself? If it's the latter, I would ask for more specific help.

I don't know, but will your new kidney allow you to eat proteins or do you still have to watch those? Are there restrictions you should follow for your kidney that outweigh your diabetic needs? It's just not as simple as telling you to count your carbs.

What did you do when you were on dialysis? Why did you change that? I guess I have more questions than answers.

jayabee52 2014-01-27 12:41:44 -0600 Report

Howdy Sadie
I am currently on Dialysis and just starting the process to get a transplant. So I am in the middle of where you were about 5 yrs ago. I pray your body doesn't reject your kidney.

What I'd suggest is to follow your diatetes/kidney meal plans and to take it easy on the kidney.

I know that feeling of being free of restrictions, because I had been on dialysis once before for about 10 months in 2006-07 and then was told by my renal specialist that my kidneys had recovered enough I didn't have to go back to dialysis. I was overjoyed that outside of my restictions due to myT2, I had no kidney restictions. I really didn't pay attention to kidney issues (outside of visits to my renal Dr) for a long time. But my kidneys were damanged and didn't come back to 100% functioning. I should have followed my kidney meal plan and perhaps I would not have started on my long slow slide to dialysis again. It took me about 6 yrs to get to the point where I needed dialysis again. I sometimes wonder if I could have extended the time between stopping and needing dialysis again if I would have continued on my kidney restrictions.

I did get back to my kidney resrictions in 2011 and I may have extended the time a bit before I needed dialysis again (2013).

Some of the online articles I followed regarding diabetes/ckd meal planning were the fo;llowing: ~ and ~ and ~

There had been several more but when I clicked on the links I had I got a 404 message.

Praying God's best for you and yours

James Baker

sadiegracegraceful 2014-01-27 22:41:02 -0600 Report

Thank you for responding…your story sounds really familiar…I had a fistula in my arm and a pd cath put in Nov 2003…my brother's kidney function deteriorated really fast so they thought I might have a similar experience…in the meantime I lost a bunch of weight and went on the pre dialysis diet…I did not go on Dialysis until 2006, peritoneal but my kidneys were too large and were still functioning so I dehydrated to near death…I went off and they removed my pd cathether…I was fine until July 2007, finally went on hemo…only needed two hours and they ended up giving me fluid back as my urine out put was good…got the call on 8/1/08 just after my dialysis, and got the kidney on the 2nd…the donor was a 5 year old little boy so it was very emotional…been great all this time…creatine is .08, all good…but the Prograf and the prednisone caused the t2…I just know I need to work out and I know how to eat low carbs…I have a dang sweet tooth…LOL!
May I ask how old you are,,,do you have a donor? are you on the list? where do you dialysize? Feel free not to answer anything you are not comfortable with…God Bless you and thank you for the web sites…I am getting better at this…LOL

Diane L Riley

jayabee52 2014-01-31 17:25:10 -0600 Report

Howdy Diane

I am 61, No donor, not on waiting list, started the process but it got stalled and now need to restart the process again,

locarb 2014-01-31 23:45:30 -0600 Report

Lets all hope the process is easier and more efficient for you this time.

You're a wealth of assistance and information and generous with your knowledge and resources. I have always appreciate your contributions here.

Glucerna 2014-01-26 20:09:30 -0600 Report

I'm glad you posted here, and it sounds like you're a strong and determined person. Have you asked your doctor for a referral to a registered dietitian and diabetes educator? It's a really good way to increase your knowledge and begin to make the changes you want. ~Lynn @Glucerna

sadiegracegraceful 2014-01-26 23:38:38 -0600 Report

Yes Lynn I asked about that but I was told that the classes are pretty basic and most of what I already know…I did much better today, and I just have to use the advice and motivation provided here…I look at this as here we go again…food is now for survival again…I am blessed with the Internet and having been on dialysis with diabetic patients…I am observant…thanks for the help!

Glucerna 2014-01-27 17:18:23 -0600 Report

It's great that you have a good body of knowledge. Perhaps a referral directly to a diabetes educator or dietitian will help answer your individual questions and build on the knowledge you already have? ~Lynn @Glucerna

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