New to the disease and new here.

By aris76 Latest Reply 2014-01-22 10:10:51 -0600
Started 2014-01-14 20:57:24 -0600

So I'm a bit different when it comes to getting type 1. I have what is called polyglandular a unto immune disease. Its part of a thyriod condition that shuts down your own endocrine system. took my ovaries back in 06. Threw me into early menopause at age 26. Then a year ago in July has caused d1. I am so uncontrolled in the sugars that in just a year they have gotten my on a sensor and I will be pumping shortly. It is very hard to come to grips with. I've realized I'm very depressed over all of this and needed some where to go with ppl who understand.

Also…how do u post a profile picture here. It keeps telling me an error has occurred! Lol

17 replies

GabbyPA 2014-01-21 14:08:40 -0600 Report

That little gland controls everything. It has really beat you up. I am sorry to hear that.

I am glad you are here though, as you will get a chance to talk with others who can offer you some help with your latest addition. The pump will help you a lot from what I have read here from folks who use one.

As for your photo issue, you may be trying to upload a format that is not accepted. Make sure it's a jpg and also check the size.

aris76 2014-01-21 15:42:12 -0600 Report

Oh. Trust me I know all about that little nasty gland…well what's left of mine anyway. This wonderful adventure all started back in 03 when I felt a lump in my neck…ironic enough a year almost to the day I found a lump in my mom's thyriod. She had cancer. I was lucky to have a cold nodual. But with surgery and medication I just wasn't getting or feeling better. Then in 06 I went into full ovarian failure. I knew something was up because ever since the surgery I was missing periods etc. Anyway investigation and a few endo Dr's later we got the dx of polyglandular auto immune disease. Then a bunch of gastrointestinal issues…little did I know type 1 was next. I thought being robbed of having one more child was hard enough. Then glad a had my one and only son early in as a teen coz if I didn't I'd have none.
Anyway. I'm pretty sure this disease is progressing.

GabbyPA 2014-01-21 19:38:59 -0600 Report

Then treasure that little one with all your heart. I know you do. You were fortunate and being a teen mom is a feat all in itself. You must be very special to endure so much.

GabbyPA 2014-01-21 20:22:54 -0600 Report

Well....he is still your little boy. I find people who go through so many things can go one of two ways. Either become bitter, grumpy and angry or they can be grateful, light hearted and happy. If you want to help other, then you will have a lot to draw from.

aris76 2014-01-21 20:57:21 -0600 Report

Yea I try. I am still going through bouts of why me what did I do so wrong etc. It's only been a year and a half with type 1. I hope I have a lot of time to get used to living with it. Or until I start this stem cell research. Either way. It's hard.

GabbyPA 2014-01-22 07:12:39 -0600 Report

The stem cell injections could do more for you than anything. I have read of so much promise in those types of treatments. I hope it works on more than one of your issues.

jayabee52 2014-01-18 19:41:01 -0600 Report

Howdy Aris and WELCOME to DC!

I know little about your "medical challenges" (as my late wife used to say with a laugh — she had Lupis {SLE} and had many such challenges as do I). Am interested in learning about them though. Please feel free to vent whenever you need! We kinda know what it is like.

Praying the best for you and yours

James Baker

jaydoubleyou23 2014-01-15 15:58:09 -0600 Report

Welcome to the site! Sorry to hear about your condition. I know very little about it, also. Maybe some time you can write a discussion telling us more about it! :) Best wishes.

101 Diabetics
101 Diabetics 2014-01-14 21:50:03 -0600 Report

I really know very little about many of the things you spoke of. I am sure there are others here that will chime is shortly.

But it is good you are here, and posting. It shows you are reaching out for help just as I am.

ashley50 2014-01-14 21:45:39 -0600 Report

I am so sorry to hear that!! :( this app has really helped me with situations! You really really need to work on your blood sugar down, so you wont have any more problems! By the way the pump is great!!! :)

101 Diabetics
101 Diabetics 2014-01-14 21:40:11 -0600 Report

You will definitely find people here who care, and are very familiar with all of this. I am sure they will be along soon to respond.

The way I got my profile picture on here: top right corner, drop down to photo, click on it. Just below the blank profile, it gives you an option to upload a photo, click and follow directions. I think it takes you to browse, if your photo you want is in your computer, then you can go to where it is stored, and click on it. That should do it.

Hope this helps!

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