iNSULIN PUMP Design, development and features: a request for contributions.

Yerachmiel
By Yerachmiel Latest Reply 2014-01-13 11:10:21 -0600
Started 2014-01-08 18:47:53 -0600

TO EVERYBODY IT MAY CONCERN:

Someone wrote to me this morning about my experiences with the new pump and if I would suggest it to them.

after a short time, I realized i haven't been on it long enough to know much but what i did realize is that it would be really really useful to build a database of likes and dislikes, good and bad by everybody we have on board.

I am even more interested in the "should not have" "fails at" and "needs to have" columns than I am in which pump has or hasn't got it yet, as one of my aims is to produce as close to a list of "things pumpers really really
a) need; b) want; c) can't stand; d) must have; e) must never have (again).

I'd appreciate the same for any meters and/or continuous system you are or have used.

Also feel free to write anything related to pumping you want to say

Not sure how long will let this run; my guess is about two weeks at which time I am going to database and construct what I hope will be a useful functional specification for the insulin pump of choice.

My next task will be matching this to current pumps and seeing who we can get interested in implementing this list. If possible, would love to get IP in as part of this design process (that means you Michael) and maybe get some credit for organization as well (without which the list would not exist and without support of which the contents of said list will not be released)

PLEASE respond to ME with your answers leaving the subject as it is. it will be far easier for me to move those emails into their own "home" and then deal with them once collected and archived.

Looking forward to the day when we can laugh at these efforts to fix a product over 30 years in the "making"…

Yerachmiel Altman
yerachmiel.altman@live.com small


8 replies

Yerachmiel
Yerachmiel 2014-01-12 11:44:58 -0600 Report

I'm really looking for a list of
1] I really really LIKE
2] I really really DISLike
3] Iwish my pump …
4] I wish my pump would not …
5

Sweetbutterfly
Sweetbutterfly 2014-01-09 21:10:54 -0600 Report

The Doctor prescribe a insulin pump for me and after I fought for my rights with the insurance and they paid for it is being forgotten by Me in the corner of my bedroom for about one year. It look so complicated and I can found a time to read the manual or the videos I am too tired after work to do anything else.

Yerachmiel
Yerachmiel 2014-01-12 11:43:27 -0600 Report

Please add me and get to me offline. You should be using that pump and it should have come with hours of PERSONAL training from the company If you do not want it there are far too many people who despertly need it!! lets see if we can get you set up with it and allow you to make up your mind on the use and settings of the box and how you will learn and utilize it. If i did it 33 years ago while practically training the doctors staff on how to program and adjust the pump and it's settings!!

Sweetbutterfly
Sweetbutterfly 2014-01-12 13:50:58 -0600 Report

Thank you very much for your support. My husband and I received an hour of training and we saw some videos that Medtronic provides on its website. After issues with the insurance company not approving it, then finally approving it, I was given an appointment with the trainer, but she has not returned my repeated phone calls and messages. Thank you again for your support and would love to stay in contact with you for you obviously know a great deal about diabetes and the insulin pump. Just in case you happen to know this pump it is the Medtronic MiniMed Paradigm.

Silicone eyes
Silicone eyes 2014-01-09 08:23:06 -0600 Report

I've been on the Tslim for close to 3 months. Love it. My only complaint is it does not reverse correct your bolus if your BS is lower than your target, but higher than a low

Yerachmiel
Yerachmiel 2014-01-13 09:12:48 -0600 Report

I'm also just on t:slim (think I'm half way through the second 3 month set of supplies, so not much longer than you are).

While I love the fact that many of the support and even some design people are themselves pump wearing diabetics, they don't really seem to have a lot of the technical diabetic expertise in house making the major future design decisions.

In truth, every pump company ive used (or that I've worked with) is looking at the distant future not the immediate. If we used the glucose sensor and pump data together along with a little more than a little smarts from a computer and a good working relationship with a diabetes educator/trainer, we could produce a product which actually aided a patient to achieve far better levels of control!

crowbird
crowbird 2014-01-13 11:10:21 -0600 Report

I am on the Minimed 723 from Medtronics. I started it in July 2013. If you want to complain to Medtronics call the customer service number. If you want to be heard, and action taken go to insulin pump forum. The only thing I dislike about using my pump is the lack of knowledge, and the supplies are only available through Medtronics, and they're too expensive. I finally got approved for the sensors, and am waiting to be trained on it. My blood sugar has been pretty controlled, and my A1c is 6.9, going down. I have to admit, it is a little overwhelming being burdened with all the cost of test strips, medtronic supplies, and insulin cost. I use Rapid Acting Humalog, and it's expensive. My insurance has a $5,000.00 deductible, and I don't make a lot of money! I have searched for help with all the cost, but I'm not finding any relief. I think the only way to continue with my route of diabetic therapy is to go on disability. I am 63, and have other health issues!

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