Are You Connected in Real Life?

Chris Clement
By Chris Clement Latest Reply 2014-10-30 12:54:41 -0500
Started 2013-12-13 12:51:05 -0600

I am curious. Here, I have a pretty solid group of people with diabetes that I can talk to and share with. But, outside of Diabetic Connect, I know very few diabetics. When I try to talk about the daily struggles and wins, for example on FaceBook, I get very little response or support. Do any of you have a support group among people with diabetes that you know in the real world?


11 replies

LRD
LRD 2014-10-30 12:54:41 -0500 Report

I do not have anyone that supports my diabeties. Would not even try on Facebook. They don't want to know. Here is probably the best place to go for answers and feedback. I have not used the site much for myself. My diabeties is controlled by metformin in a small dose although I don't agree with the doctor on some of my high blood glucose checks. Oh well, I see an endocrinologist in December. Linda

Rebelove
Rebelove 2013-12-18 17:54:25 -0600 Report

I don't really consider Facebook to be 'the real world'…LOL Having said that, however, most social sites, other than this one, are not geared to people with specific diseases. My family is my connection…I share this g-d awful disease with my mom, sister, mother-in-law and a friend. I hope you have a supportive family, or group of friends you can turn to when you want or need to share your diabetic experiences. Hey, if nothing else, ya got me! :) Stay connected! :)

KG66
KG66 2013-12-13 21:24:40 -0600 Report

I feel the same way about diabetes and Facebook. I honestly thought people would be wayyy more supportive but nope. Mostly just close friends and a few family members. However I used to participate in a girl group at my clinic for support. I was the oldest at 17 and the ones closest to my age were 15 and I had nothing in common with them, so I stopped going. I do have a cousin with type 1 but she isn't taking very good care of herself and I also know a girl with type 1. Still not a lot of support though. Not in person at least.

Just Joyce
Just Joyce 2013-12-13 19:47:16 -0600 Report

I have friends and family members who are diabetics. We don't do the support thing because we are all self supporting. We don't have a need to discuss diabetes on a regular basis.

When I was first diagnosed and thought I would like to be a part of a diabetes support group, I looked up my local diabetes association. I don't know if every state has a local chapter of the American Diabetes Association. They have a support group in my city. I called and left messages and emails and 6 months later got a response. By that time I was no longer interested in support group. I learned to be supportive of myself and self motivating.

I liked a group on facebook and ended up unliking them. This was when I was diagnosed. None of them offered support. To me it looked like a group of people who mainly whined, cried and complained about diabetes and argued about who was worse off than the other.

Google your states diabetes association. If you live in a major city or near one type in that city to find out if they have support groups and contact them. Some of them have all kinds of functions. Good luck.

Just Joyce
Just Joyce 2013-12-13 19:46:43 -0600 Report

I have friends and family members who are diabetics. We don't do the support thing because we are all self supporting. We don't have a need to discuss diabetes on a regular basis.

When I was first diagnosed and thought I would like to be a part of a diabetes support group, I looked up my local diabetes association. I don't know if every state has a local chapter of the American Diabetes Association. They have a support group in my city. I called and left messages and emails and 6 months later got a response. By that time I was no longer interested in support group. I learned to be supportive of myself and self motivating.

I liked a group on facebook and ended up unliking them. This was when I was diagnosed. None of them offered support. To me it looked like a group of people who mainly whined, cried and complained about diabetes and argued about who was worse off than the other.

Google your states diabetes association. If you live in a major city or near one type in that city to find out if they have support groups and contact them. Some of them have all kinds of functions. Good luck.

dagger1234
dagger1234 2013-12-13 16:15:44 -0600 Report

Btw. I was also thinking of finding diabetic people in the twin cities area in MN where we can meet up, eat, and work out with but this winter is just too drabby, I just want to hibernate!!

Just Joyce
Just Joyce 2013-12-13 22:20:39 -0600 Report

I am currently hibernating and freezing cold. Furnace imploded early November. Took almost 2 months to find someone to pump the oil out of the tank, remove the old oil furnace. Gas furnace was delivered Wednesday and it sitting in the Dining Room and will be installed Sunday morning. I have offically cancelled Christmas.

dagger1234
dagger1234 2013-12-13 23:02:42 -0600 Report

Lawdy. That sucks!! But I rather be cold than hot. Atleast you can throw blankets and wear lots of layers and get a heater etc. Last year out ac died and it was about 100 degrees out…minnesota in the summer sucks so bad because it's so humid. Lol.

Just Joyce
Just Joyce 2013-12-14 17:37:13 -0600 Report

Humid here in MD also during the summer. I can deal with the heat and humidity. Cold is an entirely different beast. LOL

dagger1234
dagger1234 2013-12-13 16:14:58 -0600 Report

I don't know of anyone who is diabetic that lives near me. I know my aunt from Wisconsin but she didn't take care of herself and now has kidney failure. I don't want to go to her with my issues because she's already stressed enough. Her husband also had kidney failure and her son went blind from diabetes. I am assuming he didn't know he had diabetes. My dad's side, diabetes also runs in the genes. That's how I probably got it and that I gained a lot of weight and eat like crap.

Gabby
GabbyPA 2013-12-13 14:15:46 -0600 Report

I have a few people that I can face to face with, but I don't get nearly as much support as I do from here. I had a really good support from my mom, but now she has moved far away from me, so I am online with her too. The one person I really wish I had a great support from is my doctor.

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