pancreas removal and worry

dogsinthehall
By dogsinthehall Latest Reply 2013-11-25 12:48:47 -0600
Started 2013-11-25 05:29:05 -0600

In 2011 I had a very strange thing happen. I had a gallstone that came out of the gallbladder (large one from what I was told). Anyway, it stopped in the common bile duct and everything backed up. The ambulance took me to a doc in the box so we call them. They were not able to handle what was going on. The pancreas was shutting down, I was jaundiced and the blood work was off the charts. My husband works for a large hospital as an EMT. When he got there the nurse argued with him ,that I was going to the hospital of her choice! Can you believe that ?! He said that was not going to happen, we have good insurance and I was going where he worked witch is a level one hospital. They got me to the hospital, and put me on oxygen, which was not helping. I pulled my IV out. My husband finally came down from the top floor where they had rooms for the family. He told me, even though I did not really get it, they were going to put me on a vent. I was on it for 15 days and was in the hospital for a month and a half. I have since had the gallbladder removed, a given. Also the spleen was the next to go because the pancreas had done so much damage the spleen was close to rupturing. By then I was already a type 1 and was told that I would be dependent for the rest of my life because the pancreas was dead expect for the head. The shots were not working so my Dr. put me on the insulin pump. It was the best decision that we made. It just makes things easier for me.
In January of this year, my Dr. found that the pancreas had come away from the head and the dead part of the pancreas had attached t the back of my stomach. The hits just keep coming lol The removed the dead portion of the pancreas and some of the back of my stomach because they were not able to save it. I have since lost 65 pounds. While I am happy with the weight loss, I hate what has happened to me.
I almost was not here to see my sons. My oldest graduated in 2012 and I cried because I may have missed it. My youngest just got his learner's permit . Again busted out crying.
Sorry for the long post but this is the only way that I can explain. Thanks for listening


4 replies

Gabby
GabbyPA 2013-11-25 09:30:17 -0600 Report

That is incredible. Amazing how our bodies are so linked with everything inside us. I would never have thought that a gallbladder issue would have been linked to killing your pancreas. I'm glad to hear you're on the pump. I have heard from so many members here that it was a life saver in many ways.

I hope you have a continued recovery and take time this thanksgiving to really be glad you didn't miss those special events in your boys' lives. You are truly remarkable to come out on the other side of all of that. We are glad you're here to share your story.

jigsaw
jigsaw 2013-11-25 06:50:50 -0600 Report

That is an amazing story of sadness and great strength! I hope you are managing your type 1 successfully. DC is a site where I'm confident you can find a great deal of support and info.

dogsinthehall
dogsinthehall 2013-11-25 09:21:07 -0600 Report

Thanks for your help. I have been trying to find people other people beside my family that can understand all this

jigsaw
jigsaw 2013-11-25 12:48:47 -0600 Report

You may want to contact member lacat87. She is a DC member that had her pancreas removed, resulting in her becoming a type 1 also. I'm sure she would have much in common, and would enjoy sharing her experience.

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