By Sherelle112 Latest Reply 2013-11-30 20:12:26 -0600
Started 2013-11-13 21:33:22 -0600

I went to the dr on Monday and got back the results today… A1c is 5.8 instead of 13.2 (like at April 2013 diagnosis)!!! Whoop whoop!!! Time to celebrate, right?! WRONG!!!
So they want me to start on a liprinosil (excuse the spelling)! Apparently my microalbumin is too high. Even though it's a blood pressure medicine it's supposed to help protect your kidneys. And they also want me to start on cholesterol meds!! Wth!!!! I've lost 60 lbs in less than 8 months so I can't imagine that my cholesterol is any worse now than it was at diagnosis!! I'm trying to get off the Metformin, not add more meds! I'm freaking 27 and a lot of times once you start on meds you stay on them for life. Idk what to do. I want to be as healthy as possible for as long as possible, but I really don't think putting me on a ton of drugs is gonna help!
I'm so frustrated!!! I'm doing the best I can at managing my diabetes! Are you guys taking these meds?? I also don't have an Endo, should I find one??
This honestly makes me what to give up & eat whatever the hell I want! At least then it would justify all this crap that's happening!!

27 replies

dagger1234 2013-11-30 20:12:26 -0600 Report

60 months in 8 months is AWESOME! I wish I could do what you can! We will see! Keep down what you're told. They know what's good for you.

Armourer 2013-11-18 18:33:29 -0600 Report

Gee I wish I was fortunate like you, I take two insulins, and 16 meds a day. And there are those who take a lot more!

Brenin 2013-11-18 17:59:08 -0600 Report

As my hubby says… my diabetic journey isn't about doing everything perfectly… he says it's progress, not perfection. I try to remember that when I get really frustrated with any part of my journey.

Brenin 2013-11-18 17:49:27 -0600 Report

I would find an Endo and work as closely as you can with that person. You're on the right track and regardless of how things are looking, you've also accomplished a lot too. Be proactive and advocate for yourself fiercely!

jvdsammy 2013-11-18 17:16:28 -0600 Report

You must have and endo- start there
You're doing GREAT! The proactive approach to help your kidneys works.

Kats49 2013-11-17 23:19:03 -0600 Report

I finally got a referral to go to my Endocrinologist..if you are feeling frustrated, and really don't want to be on drugs ..then Yes you need one. This is their specialty…For me the referral probably saved my life which was 4 years ago..I followed her directions and suggestions to a T
I had to take control of my life. but Diabetes is a lifelong disease…you will never be FREE of it..but you can control the damage..Your body needs the drugs to get back on track of where it should be…it isn't a bad thing. I went from a 7.8 down
to a 5.6 in a 6 month period..My numbers were good for Diabetes, but the other numbers were WAY too Low…I added some egg protein in and the numbers are started to look good all together. However, I am swimming 2x a week and doing Tai Chi 2 x as week…i am still eating lots of HUGE salads, eating micro-greens, I eat less than 4 ounces of beef in a month..it helps to ease the pain from severe arthritis,,,to not eat RED meat..so if it swim, flies, or floats I eat it…I developed an allergic reaction to almost ALL of the Statins..so I have been using Alternative medicines, But I am still under a traditional doctors care.You are 27 you have lost weight and dropped your A1C levels, you should still be celebrating with a movie or a book or go running and scream YES I did it…!!
Protecting your kidneys is vital, even at 27 you are still vulnerable to damage..DON"T give up this is your life..you DO want to live it to the fullest…enjoy and be grateful for this support group and all of those people in your life who love you!!

GabbyPA 2013-11-17 19:38:15 -0600 Report

Lisonpril is a "just because" diabetic medicine. At least that is the response I got from my doctor. My doctor wanted me on statins too. But now they are connecting statins to diabetes in women...what! So I refused to take them and I have worked up my HDL with almond milk, exercise and Fish oil.

I am constantly bargaining with my doctor. Asking him for time to work out things for myself with out meds. Sometimes he's willing, other times he's not.

I do know that giving up and doing what ever you want is not what you really want to do. Be tough with your doctor. He is paid to work with you. Find a treatment plan that you both can be happy with. If not, find another one if you are able to.

xraydebi 2013-11-17 12:35:59 -0600 Report

Physicians won't be getting insurance reimbursement if they do not follow guidelines that are in place. All Diabetics are supposed to be on cholesterol medicines, or so they say! I have refused to take them for years

from CNN:Among the four questions to ask to determine risks: Do you have heart disease? Do you have diabetes (Type 1 or 2)? Do you have a bad cholesterol level more than 190? And is your 10-year risk of a heart attack greater than 7.5%?
According to the new guidelines, if you answered yes to any of those four questions, you should be on a statin. Period

Dr Gary
Dr GaryCA 2013-11-16 21:06:00 -0600 Report

HI Sherelle,

I just wanted to check in and say hi. I can understand your frustration here. This is a good time to get support, so I am glad you are here. I hope you will work closely with your doctor, and take things one day at a time. As you see from all the responses you have received, you are not alone.

Take good care of yourself, my friend.


Just Joyce
Just Joyce 2013-11-16 18:51:11 -0600 Report

I agree with TsalagiLenape, getting mad isn't going to help you at all. There is no such thing as a perfect diabetic. Striving to be one is like digging for gold in with a pick axe…very hard to do. I have tried digging for gold and it is hard work.

I was on cholesterol medication for the first year after I was diagnosed. After I got control of my diabetes, I gained control of my cholesterol and was taken off the medication. It was not easy but I did it and now I keep it under control to stay off medication.

I limited my intake of foods that contribute to high cholesterol. One egg a week, nothing fried, butter substitutes but not on a daily basis and as much fresh veggies as I could consume.

Correctionsnurse is correct. However, just because you are on the medication now, doesn't mean you will take it for the rest of your life. My goal is to be as healthy as possible. My numbers are now screwed up because I am suffering from a cold and eating isn't something I really want to do. I will be back on track soon.

You are doing good with weight lost and your A1C. Congratulations.

correctionsnurse1 2013-11-16 14:57:06 -0600 Report

Sherelle112…#1, a soon as someone is diagnosed with diabetes (especially with high A1C's), a good MD starts the patient on Lisinopril or Benazapril to prevent kidney issues.Hypercholestremia/Hyerlipidemia does not mean someone is overweight! Sometime diet and exercise are just not enough to control cholesterol/and or triglycerides. A lot of times it is genetics. If you are not wanting to go on cholesterol meds, I would suggest talking to your physician about trying fish oil capsules or Niacin. Just try to keep a positive attitude and please do not give up. I am not a Dr, and this is just my opinion. Hope this helps.

Bekah Nikole
Bekah Nikole 2013-11-15 06:17:50 -0600 Report

I am constantly fighting the battle against cholesterol meds too. One of my doctors put me on lipitor and it jump started my diabetes. Just like it did my Father's. Once I was diagnosed I went off it and completely flipped my eating habits around. I added in plenty of exercise and made sure to keep moving through out the day. My levels are down to a good number, but my PCM is still thinking about meds.

We're moving in a couple weeks and when we move the first thing I'm going to be asking my new doctor for is an Endo. I've had one since I was 13 (thyroid problems). It's only been about 2 years I think since I've had one doctor taking care of everything. I don't want to go back or take any new meds unless I have too.

Which is why when we move I am going to be asking my new doctor for a referal to an Endo. I want better control and better answers to my questions.Plus, if the Endo thinks a new med is a good idea, I'm going to feel much more comfortable with their answer when I ask but why?

leeshboo 2013-11-14 18:22:20 -0600 Report

ive taken the lisinipril and zocor (for cholestrol) since i first got diagnosed which was about 2yrs ago and im 22 my cholestrol and blood pressure is great but they jus prescribe it to me to be preventitive towards having high blood pressure and high cholestrol

jayabee52 2013-11-15 14:17:02 -0600 Report

I had the same with my GP a few years ago when he put me on Simvistatin. when asked why he said it was to prevent problems with cholesterol. I took it for a while but then I decided to discontinue it and subsequent blood tests have shown I really didn't need it. I've been off it for about 4 years now

Set apart
Set apart 2013-11-14 16:45:00 -0600 Report

I've been on Lisinopril for about a year now, a very low dosage 2.5mg for the same reason. When the protein in my urine was too high, I went into the 4000s, they couldn't figure out why, sent me to a Nephrologist, they ran every test imaginable, even checked me for lupus. Since I don't have high blood pressure, my diabetes is controlled, etc… they couldn't figure it out, once on lisinopril, my numbers dropped within normal range, still a mystery to all! Although I'm opposed to meds, this one is protecting my kidneys and I know it, so like a good girl I take it every night like clock work. Good luck!

Sherelle112 2013-11-14 16:36:52 -0600 Report

Thank you all for the advice!! Trying to be tough about this, but goooood grief!!! I know I don't eat perfectly! I know I don't always take my metformin right on time! I know I'm not a perfect diabetic! But I really didn't think that w/ all my efforts that my results would be this way!! But today… I feel better than I did yesterday & I'm grateful for that!!!

Glucerna 2013-11-15 20:00:11 -0600 Report

I'm glad you're feeling better today. Figuring out how to include diabetes management into your life isn't easy and it's often a work in progress. You're making changes and seeing positive results, and that's great! ~Lynn @Glucerna

Bekah Nikole
Bekah Nikole 2013-11-15 06:28:59 -0600 Report

I'm not always perfect either, just don't stop trying and pushing forward! Take your little victorys and reward yourself for them! Buy a new piece of jewelery or a new cd to exercise to. I did it in the beginning and I still do it now cause I'm always trying.

Glucerna 2013-11-14 15:47:33 -0600 Report

With all the changes you've made and the positive results you're getting in your A1c and weight, I know it had to feel almost like a betrayal when your physician started talking about additional medications. Everything you're doing will continue to be helpful, and continuing to have a conversation with your doctor about your overall health and the role of medication is key. Stay in touch and let us know how you're doing. ~Lynn @Glucerna

TsalagiLenape 2013-11-14 13:44:29 -0600 Report

Well getting mad isnt going to change things. Ask why you need those pills ok? then do what is best for you. Yes you should find an Endo. It will help overall. I understand the frustrations but calm down. I was on Lisinopril for 5 or 6 years and was recently taken off of it. Hope this helps. Hugs

2catty 2013-11-14 13:26:53 -0600 Report

Yep I have been on those meds since 26 so yeah it is a bummer, but lisinopril will indeed protect your kidneys. I have high triglycerides and I eat healthy but high a1c and high tri. goes hand in hand no matter what. Good luck and hand in there at least you are straightning some things out and you will be protected.

jayabee52 2013-11-14 11:39:45 -0600 Report

Howdy sherelle

I congratulate you on your major wins with your weight and your A1c!

I understand your frustration with the medications. I don't like to take a bunch of them either,

In fact you can DC (discontinue) meds after disuussion with your Dr. Have you have expressed your feelings re: medications to your Dr? If not perhaps at the next visit you may wish to make your views on meds known to him/her. I changed my eating plan to enable me to DC my insulin in 2/2011 so DCing meds is doable. Being put on a med does not make a lifetime commitment to that med, or taking meds in general.

You may not need the services of an Endo unless you have a specific problem like high BG levels which will not come down. Bringing down your A1c suggests to me that you've been dealing with your T2 pretty successfully with the Drs you currently have. .

I understand the need to vent every once in a while but since you have been doing so well with your weight and A1c it would be a shame to self-sabotage. I pray you will resist the urge!

Praying God's richest blessings be upon you and yours


21Rose'syearsT1 2013-11-14 09:14:53 -0600 Report

I'm so happy for you. When I was 16 I was taking insulin 7 times per day and metformin four times a day. And I had all the crazy medz because I wasn't controlling my diabetes once you take control start eating different type of food your cholesterol will be better I promise.

Nick1962 2013-11-14 08:59:44 -0600 Report

Congrats on the weight loss and the great A1c! As jigsaw and Graylin eluded to, your body’s response isn’t always in step with what you’ve done. I dropped a bunch of weight, and have maintained it now for about 3 years, but it wasn’t until this past August that all my things like cholesterol, anion gap, triglycerides and such have come into “normal” range.

Among the some 500 estimated functions your liver has, it stores a multitude of things like fats, glucose and vitamins. A 1-4 year supply is stored for some vitamins like B-12, so it may take a while to “reset” your liver to your new weight. It kinda functions as an emergency organ, and wants to be sure you’re not going to get into some trouble that will make you need those reserves - a 60 lb. drop in 8 months kind of borders on an emergency situation to Mr. Liver. Patience – it will happen, and no, you don’t have to be on meds the rest of your life. If I can turn it around after a lifetime of obesity and really bad habits, you sure will.

jigsaw 2013-11-14 06:43:17 -0600 Report

Don't rush to neg conclusions! Every positive step that you are taking, is keeping you healthier, and making your life that much easier. Congratulations on your success so far! Keeping our bodies healthy is a lifelong venture. 20 years with diabetes, and I'm still not an expert! Unbelievable! (-; I'm not even thinking about giving up though. I try to keep an open mind, and continue learning to manage my diabetes. It's a constant challenge, and can be frustrating at times! Just keep doing , and learning, and these feelings of frustration will dissipate with time.
How serious is your situation or mine? I'll tell you a little story and you decide.
I use to have a beautiful sister. She was a teacher with a good life. Her students and their parents seemed to love her and hold her in the highest regard. She had excellent health all her life. She had an excellent diet, and worked out at a gym religiously! one day she had bit of pain in her abdominal area. It was diagnosed as an umbilical hernia. A couple of weeks later, she visited the doc again to have it checked. Next day she got a call and was informed that she had about 3 months left to live!! Keep in mind that up till this point she felt great, looked healthy and still had rosy cheeks. Anyway, the diagnoses meant shockwaves, terror and fear. She was informed that she had pancreatic cancer! 9 months later, she passed away.
After seeing what happened to my sister, and although I still feel deeply saddened, I am that much more grateful for all that I still have. What about you?
Here's is an interesting link:

Graylin Bee
Graylin Bee 2013-11-14 02:37:06 -0600 Report

Great A1c.
Sorry the other problems haven't responded to your changes. Sometimes when our bodies malfunction it takes more than our best efforts to get it working better.