I have some questions?

By JoanDTx Latest Reply 2013-11-20 00:00:00 -0600
Started 2013-11-13 09:13:09 -0600

Hello All,
I'm new to this site, and I'm just recently diagnosed Type 2 diabetes on Oct. 31, 2013. My A1C was 7 and my doctor started me on Metformin 500mg 1 time per day. He didn't start me off taking my own blood sugar reading nor going to a dietician or anything else. Just said cut down on the sweets. He's an internist. My Primary Care Physician. He wants to do bloodwork in 3 weeks.
My question is this: about 5-6 yrs ago I was told by a different doctor that I was Pre-diabetic. I started watching what I ate and he gave me a meter and I wanted to schedule going to a dietician. This doc got angry with me and said you don't do that until you've been diagnosed with diabetes!! I asked why not? I said wouldn't it be better to go now and start now to do all I can to prevent it from progressing further? He was very angry with me and said no you don't do anything else until I say so! So I stopped all of my preventative measures and just changed my diet, but then fell back into old habits.
NOW, I've been OFFICIALLY diagnosed and this doctor doesn't want me to do anything but let him take my blood sugar reading and try to stop the sweets! From the websites I 've read, I should be my own best advocate like I originally started out being way back when I was first told I had pre-diabetes. This time I want to get all the information I can and do all I can because I've had the tingling in my feet and the blurry vision and other markers that I've already noticed and now know are things that are already affected by high blood sugar.
What would be ya'll's suggestions for me to do? I'm 55 yrs old and on Medicare because I'm disabled and retired. I've been reading a lot of info this last couple of weeks and I've changed a lot of my eating habits. Thanks for your suggestions and help. ~Joan

17 replies

kimberly1974 2013-11-20 00:00:00 -0600 Report

Hi joan i feel that u should go and find another doc that cares for ur well being and get rid of that doc u have cause with u being a diabetic u need to check ur sugars and take meds ur doing good the best u can but get another doc

Chopstix 2013-11-16 10:30:58 -0600 Report

Welcome aboard! Just got back home from driving all night/week. I think I would have to slap me a doctor for not wanting you to see someone to help out. See if you can find copy of Diabetes Without Drugs by Nancy Cohen. I found it to be very helpful. Check in the used book stores. Her website is dearpharmacist.com. Don Colbert, MD, has some good books also. He also has a new one out on diabetes. I also found Clean by Alejandro Junger, MD, a good read along with a book called Eat Right For Your Blood Type very helpful. Have been off meds since the end August and my BG is still reading from the low 80's to the very low 100's.

JoanDTx 2013-11-15 00:36:07 -0600 Report

Thank you for all of your replies! I went out to the library and checked out some books on diabetes and some cookbooks for it also. I also reserved a book I want to look into that was checked out! I did some research online to find a cheaper , but reliable meter and cheaper strips that I thought I can afford to buy on my own even if the doctor never orders me to check my blood sugar with a meter and I went and bought it today! And started reading on the basics this evening! So along with this site and some good books and cookbooks I am hopefully on my way to deciphering this Type 2 diabetes thing and learning how to control it whether the doctor likes me doing it my way or not! He's supposed to be in my corner, helping me along anyway! BTW, I did stop going to that other doctor a long time ago after he and his PA's wanted me to start taking meds for cholesterol when it was just 2 points above normal and I refused! He said, "Well, then , WHAT do you come here for anyway?" and I thought, "Hmm, that's a good question!" So I found another doctor who listened and let me be in on my treatment plan! Then I moved over to another city to be back closer to my kids and grandkids and have this doctor I'm using now.
Again, thank you all for your input and welcoming me too!~Joan

Glucerna 2013-11-15 20:05:17 -0600 Report

Getting books from the library and looking for information online is fantastic Joan. You might also ask your doctor for a referral to a diabetes educator, since she/he can help you with information in a variety of areas. ~Lynn @Glucerna

Grandmama16 2013-11-14 01:09:28 -0600 Report

I'm new here too and don't understand a lot. That's not right for your Dr. To talk to you like that. I really like my Dr. But on my last visit she felt I was in normal range in testing B/S yet in what I've read I'm not. I take 1500 mgs of Metformin a day. She increased my Neurontin for tingling, numbness and pain, up to as much as 600mgs slowly. I also have fibromyalgia which makes things confusing. She has me test twice a day which really doesn't show middle of the day levels. I'm 69 and on Medicare and have Insurance so I think I could get more supplies. I use Breeze 2 Meter. I'd like to see what diabetic specialist would say or a Dietician. All I do is watch my carb intake and really crave a solid meal. I do eat a lot of popcorn tho. It helps with acid reflux which veggies and fruits can irritate. I take too many meds. But don't know what to reduce. Some could increase B/S I've heard, like Cymbalta. I battle depression and fatigue too, and do not exercise. Like they've said here, tho, we have to be our own best advocate and learn as much as we can. Take care, ok.

Just Joyce
Just Joyce 2013-11-14 11:59:51 -0600 Report

Grandma, you say you would like to find out what a dietitian would say. Have you asked to see one? You also say you would like to get off some of your meds. Have you discussed this with your doctor? If your doctor gives you medication and you don't question it, he will continue. If you have heard that some of your meds can cause an increase in B/S why have you not found out? Just because your doctor told you to test twice a day does not mean you have to. My doctor told me to test once a day. I test 3 times a day or 4 if I feel the need to do so. I have had acid reflux for years and take meds for it although I take the meds as needed. That has not prevented me from eating solid meals. I take no medications or get the prescription filled until I have researched the medication and talked to the pharmacist.

Everything you have said in your post contains questions for your doctor including asking for a referral to a dietitian who can help you with a meal plan.

I battled depression and fatigue for years. I had a therapist who helped me fight it. I have minor boughts with it today but I pull myself through it. Depression can cause you to be fatigued. Until you learn how to cope with depression or take steps to get rid of it, you will suffer with it for the rest of your life. I got tired of suffering. I don't dwell on the past because I can't change anything that happened. I don't worry about the future because no one can predict what is going to happen.

At 69 you are still young. I would find something to do with my time. I can't stand not doing something. That alone will make me tired. I might get bored but then I find something else. This will help with the depression and fatigue because you will be so busy you won't have time to focus on it. If you are able to do so, take a walk. Get out and meet neighbors and make friends. Before you know it, you will be having the time of your life. Please talk to your doctor about the meds you take and seeing a dietitian. The hardest step to take on lifes road, is the first step. Very good luck to you.

jayabee52 2013-11-13 18:10:13 -0600 Report

Howdy Joan

Welcome to Diabetic connect! I was pretty much like you and listened to my Dr when first Dx'd in 1995. He put me on Metformin (Met). My Dr. however was more kind than yours. I now I don't think I'd allow a Dr to speak to me as yours had to you at that time. To me it seems as though your Dr is on a power trip. I would have looked for another Dr post haste. I would do all I could to learn all I could about diabetes (and this is one of the best places to do that). I really didn't begin to get on top of my diabetes mellitus T2 (DMT2) until after I had been on this site for about 2 to 3 yrs and participated intensely in the discussions. I had even learned how to manage my DMT2 without the use of medications..

My only regret is that I waited too long and made too many mistakes in my own self-care. I now have burning neuropathy from my knees to toes and I also have kidney failure for which I must go to dialysis 3x/wk. Those things will not go away (unless I get a kidney transplant for the kidney issues).

So don't let the Dr who chewed you out win. The quicker you get on top of your management of DMT2 the better off you will be.

Perhaps you might not even need Met or other DM medications. I had gotten off of insulin in 2011 and manage my DM by eating right. I have developed an eating plan which helps me control my DM without the use of meds, I'd be willing to share it with you should you wish.

Praying God's richest blessings be upon you and yours.

James Baker

Just Joyce
Just Joyce 2013-11-14 12:00:47 -0600 Report

James if my doctor had talked to me in that manner, after I chewed him out he would have been in the room alone and never would have seen me again. I am not going to pay someone to treat me in that manner.

Glucerna 2013-11-13 15:48:00 -0600 Report

You're right Joan that you're the best advocate for your health, and that finding more information and learning about diabetes is the best thing you can do. Joan has a great suggestion to look for diabetes education classes and resources during November, which is Diabetes Awareness month. The American Diabetes Association has a lot of information online, and most hospitals also have programs this month. Medicare includes diabetes education and seeing a diabetes educator as part of reimburseable expenses, and you can often find a diabetes education program through your local hospital or by looking in the Yellow Pages. Plus of course folks here are very supportive and willing to share information. You've already started making changes to your eating habits, and that's an excellent start. ~Lynn @Glucerna

Just Joyce
Just Joyce 2013-11-13 11:27:26 -0600 Report

HI Joan Welcome to the DC family.

You have to go back to being your own advocate and self educate. When I was first diagnosed, my doctor did not give me a meter or tell me about testing my blood. He told me I had to do it and be responsible for that. A coworker had meters as giveaways for a program she had and gave me one. A diabetic coworker taught me how to use it.

You have to test your blood sugar so you can track your results. My doctor read my log book and we discussed needed changes. Find a diabetes education class. Some are free. This is Diabetic Awareness month and there may be more of them available depending on where you live. Ask your doctor for a referral to a nutritonist. If he refuses tell him you may have to find a doctor who is willing to work with you. Unfortunately some doctors are not as educated about diabetes as they should be.

Remember that this is your health and you are the only one responsible for it. You have to be willing to speak up at the doctors. I test all doctors based on how responsvie they are to my questions. You and your doctor have to be on the same page. I do hope it all comes together for you. Good luck

Nick1962 2013-11-13 11:16:19 -0600 Report

First and foremost – listen to your already good instincts, and as you say, be your own best advocate.
If you can, get ahold of a meter and start testing again as much as you can afford to. Look at your diet like you have and start taking the steps the rest of us have to try to get some control and off the meds. Doctor be damned I say, if you want to take control of your condition – do so.

A dietician or endocrinologist isn’t always the necessary next step, as typically their time is so limited they can only give you very basic, generic information. Do your own research and ask questions here and you’ll probably be better educated without the cost.

Bekah Nikole
Bekah Nikole 2013-11-15 06:55:52 -0600 Report

All my first doc did was tell me I was a type 2 diabetic and to take the pills he was about to give me. No other information or help, but I knew that wasn't how it was supposed to go.

I've beem to a lot of doctors in my life and I've walked out of a lot of their offices laughing cause I knew there was no way in hell I was going back to see them. One of the best pieces of advice my Mother has given me is that while I am the paitent, am also paying the doctor for their service.

That doctor had no right to talk to you like that and you have the right to ask as many questions as you can! Learning is the best way to live and deal with any medical problem. No doctor should be stopping that or getting angry at you for asking questions.

For cook books try Diabetic Living, there are magazines as well. All the recipes have been tasted, tested and they give you the nutrional info for each as well. The magazines have the recipes, tips and stories from other diabetics. Plus, they are easy to find at Walmart or your local book store.
Start to keeping a food journal too if you aren't already. You'll be able to recoginize what's spiking you and yoy can cut out or lessen those foods. The food journals really helped me take and keep better control.

jigsaw 2013-11-13 12:07:57 -0600 Report

I completely agree with Nick and Joyce! Nothing short of excellent advice in their replies.
I have had diabetes for 20 years, and seen many doctors including endocrinologists, dieticians, and diabetic educators. Most were somewhat helpful, some were not helpful, and if I were to allow it, some could have been harmful. The most helpful thing with my diabetes was and is my being pro-active with this condition. I read, I share experiences with members here on DC, I talk with specialists of all sorts that are experienced with dealing and treating diabetes, and ask many questions. Bottom line is I have managed to avoid any diabetic related complications, probably because I care more about my health then any of my doctors, or anyone else for that matter.

Just Joyce
Just Joyce 2013-11-14 11:15:39 -0600 Report

I agree with you Jigsaw. By the way when are you planning on cooking that fish? I want some.

jigsaw 2013-11-14 20:17:51 -0600 Report

That fish was not only cooked, but he's been digested! However, your welcome to join me on a fish cookout anytime!

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