Diagnosed with type 1 but then they think it might be type 2???

By KG66 Latest Reply 2013-11-06 12:06:27 -0600
Started 2013-10-24 21:12:20 -0500

Has this happened to anyone? So at first when I was diagnosed they said I had type 2. I was 17 and weighed a 109lbs so after a closer look they said pretty much said "Nope, you have type 1!" So for the past 2 years I've been living with type 1. I went to my clinic a couple weeks ago where my diabetic educator said my numbers were "too good" cause my numbers are almost always below my target. I go see my diabetic doctor and he explained how they have been finding more and more teenagers, even 12 years olds in good condition to be diagnosed with type 2. He also said that my "honey moon faze" should be done since it has been 2 years. So he sent me for a Cpeptide (Not sure how you spell it) test. Pretty much to determine whether or not my pancreas is still secreting insulin, meaning there is a small chance I could have type 2! What a roller coaster. Anyways, I was wondering if this has ever happened to anyone? Or even anyone you know? I found it so odd but interesting too!

5 replies

LSpizale 2013-10-29 21:25:09 -0500 Report

Yes, ME! I was never on any diabetes pills only insulin. First the doc said I was a T2. But I was very brittle (out of control). Years later I get the same blood test you had because they were putting me on the pump. Lo and behold my pancreas doesn't make any insulin…T1!! Why didn't I get that test in the beginning??

silvie mae
silvie mae 2013-10-25 06:00:38 -0500 Report

Wow! I know 2 years ago I was diagnosed type 2. I was put on Metformin Then Janumet neither one produced any results. Then I was started on 15 units of Novalog, Yikes!! That worked too good My BG was crashing about 4 or 5 times daily. Finally after going through 5 doctors I was diagnosed by an Endo with type 1. What I don't understand is, why they don't do the proper testing immediately to determine the patients pancreas function. It seems to me a proper diagnosis from the start is pretty important. Especially when starting someone on insulin.

KG66 2013-10-25 08:37:44 -0500 Report

Yes I agree. You get used to a routine then they tell you that's it's not what they thought and you have to start all over again. Not fun at all!

Annity 2013-10-25 16:15:15 -0500 Report

True. And it does seem that testing the pancreas's function would save a lot of trouble. Is it covered by insurance? Sorry to give a cop-out answer, but it is true that everyone's body will react differently to anything we do to change it, so we, the guinea pigs just have to roll with it until an answer is found.

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