Who has only known this life?

By InfamousBlonde Latest Reply 2013-11-07 09:38:09 -0600
Started 2013-10-09 23:35:09 -0500

So far, I've noticed that a lot of people on here were diagnosed after they've had a normal life without diabetes, usually in their teens or adult years.
But has anyone else there only known this life, with no memory's before diabetes?
Personally, I was diagnosed with type 1 one week after my first birthday, everybody decided to take me to the hospital when I wasn't even coherent, and I was off the charts high. Luckily for me, it runs in the family so my dads side knew a lot about it.
I've never known a life without diabetes and I personally don't like it. I know it must be hard to just have to change your life for this, but sometimes I wish that I could have a life where I didn't need to sit out of gym because I'm low or stay home from the party because my bloods high.
Is there anybody else who knows what it's like to have always stood out because of this?

12 replies

forsakes alive
forsakes alive 2013-11-07 09:38:09 -0600 Report

While living with the diabetes health concerns,I have to say that it does seem to be a 2nd nature for me,always trying to make sure I am in somewhat of control of it. Sure my memory has been a problem the past 5 years,along with dieing more than a few times as a child,though brought back to life.I was diagnosed when I was 5 ,from the age of 2 to 8 I dont have any memory of life,even afterward when I would have some serious insulin reactions along with DKA times.

Beagles3 2013-10-24 17:11:02 -0500 Report

I have had diabetes for 33 years and like you I have no recollection of a normal life. The thing I find most difficult is never ever being able to forget. I go through times when I'm just done. I'm so fed up that I can't take it. In addition to diabetes, I am also lucky enough to have Celiac disease. So, yes if I didn't stand out before, I'm totally different now. I've found that actually talking to other type 1s is really helpful. It helps me forget and feel normal. Know that you are not alone!

Set apart
Set apart 2013-10-16 06:09:04 -0500 Report

I am not sure what's harder, knowing or not knowing what you missed out on! I am not like you where I've lived with this all my life. I was diagnosed with T1 at 48 years old. All i have to do is look at a carb and by BG rises. I am on 2 insulins, do I miss my old life? Yeah gotta say I do, especially when I am sitting in a meeting and I know something is wrong, or when I attend meetings which are often, continental breakfast, oh yeh that just means carbs and more carbs! My life and well being now depend on insulin, if I get cold my BG drops and continues to drop. If I want to exercise I gotta make sure I am covered! Beneath all this I am still here, just a little different, unique I would say and hanging out with great people on DC! I am not alone, and that makes the world of a difference!

Stuart1966 2013-10-16 00:16:25 -0500 Report

I can no longer remember a time i wasn't diabetic and I am not old, no matter what my kids say…

We have very different experiences… I never stayed out of gym class. Home testing was urine based and entirely worthless as a kid. Ended up in the athletic directors office on a cot from time to time, but never missed gym, ever because of diabetes per se. Never stayed home because of sugar… was late on occasion to a party, but never shut myself in regardless of the number(s).

What we eat, or how much is the same choice our non diabetic friends/family possess, we simply do so at times for slightly different reasons than they do. But I can eat (or not) and not be a "spectacle", if that is your question?

Stood out, I suppose… family like to replay the "ghosts of diabetes past", stuck in a literal time loop, rarely acknowledging the present moment is entirely different time than some ancient/recent event… Most are scared of their impotence, their powerlessness to stop such events. Focus upon them (the silly thinking appears to go) and the vigilance (hyper vigilance) will magically prevent em…

Stifled snort of laughter

But yeah, I'm a diabetic, she's got epilepsy, that guy has thrush,.. we have different issues, most, most are the same as the next person I think. How has it made you stand out???

Starry_D 2013-10-13 19:06:29 -0500 Report

I was diagnosed at 4… So I don't remember much. I really only remember my 4th birthday… We had a big cake, and a big party… A few months later, diabetes stepped in.

GabbyPA 2013-10-11 17:22:38 -0500 Report

There are a few members who have known only being diabetic. In some ways, I would think that would be easier as long as you were raised making the best decisions for your health. Mom and Dad make a lot of those decisions and feel "guilt" because their child will never know (insert your favorite food or activity here) I am by no means saying that it's easier for them because their life is not as "easy" as someone who doesn't suffer from a chronic condition. I am not taking that away at all.

But you cannot miss something you never had and if you can make it through the peer pressure of "You never tasted what??" Then they can do great.

I once asked a blind boy in my 7th grade class if he knew what colors were? He just said that he could associate colors with touch, but for him he didn't miss color because he doesn't know what it is.

Just Joyce
Just Joyce 2013-10-11 12:15:59 -0500 Report

I have never figured out the meaning of a normal life. This may not be the answer you are looking for. I was diagnosed 5 years ago and my life is still the same with the exception of having to eat healthier and check my blood sugar.

Feeling left out is a choice you make. You choose to feel left out. If you are sitting out at gym, use the time to read, study or do homework. This gives you an advantage over those participating because now you have some extra time on your hands. Missing a party isn't the end of the world, I missed a lot of them growing up. Not because I wasn't invited but because I didn't want to go or I wasn't good friends with those going. There are always going to be a party somewhere. If you are up to it when you miss the party, try doing something special with your parents, siblings or yourself.

Life is only as normal as you choose to make it and you only stand out because you choose to feel that way. There was a kid in my class all through elementary school who never could participate in recess or gym classes because he had really bad asthama. He would take a book and read or the teacher would give him some kind of project he could do during gym class or recess. There was a kid in my Sr. HIgh english class who had a bad heart. He never took gym class. He asked for permission to sit in on another class for the gym period. Sadly he passed away 3 days before graduation. His mother and father accepted his diploma and the entire graduating class and guest gave them a standing ovation. I had an eye infection and could not take gym for a month. I got permission to check in at gym class and then go to the library. I spent the time researching all of the papers I needed to write. My paper was turned in the day most of my classmates were beginning to write them.

You can live a "normal" life and have as much fun as anyone else if not more. All you have to do is look at your time and use it wisely when you can't take gym or go to a party. There were times I would be tired from studying the night before and I would have paid someone to take my gym class for me. Stop feeling left out or that you are standing out. You can be all you choose to be and one day you will realize that you ostricized yourself for no reason. Enjoy your life and good luck to you.

Young1s 2013-10-11 03:24:28 -0500 Report

Okay, not the responses that you were looking for so far, but we can still relate. No I didn't grow up with diabetes but it took me some growing to be a good diabetic. I bet you could show me a thing or two seeing as it's just my second year.

And I see your point of being/feeling left out because my mom is a type 1. So I remember having to eat only what she could eat growing up. Special diets for her mean't the same for us all. But don't honestly know how the effects of that as a child growing up in this day would be like.

Can only say, if you are aware of your needs and the right people in your life know what to look out for, I don't see where you couldn't live just as "normal" a life as anyone else. Whatever normal means anyways. You may not see it as this way, but you have the advantage over me.

I, in my middle age, am just learnig how to deal. You on the otherhand, know just what you need and when. Either way, we both can learn from each other. The plan is to not give up and realize that we are better than this annoyance. We will not let it stop us in any way cause then you let it win.

Just Joyce
Just Joyce 2013-10-11 12:23:30 -0500 Report

Excellent Young. Sometimes people make themselves feel left out or that they stand out from the crowd for one reason or another. When you do this, I think over time you will feel as though people are not including you.

I don't think anyone has ever found out what a "normal" life is. Based on what society thinks it is may not fit in with your ideas of what it is. There are so many different views on what a "normal" life is suppose to be.

I also don't know how being diabetic as a child would be like in the world today. There are so many kids with diabetes who probably feel the same way. I think again this is societies fault for not teaching young people with diabetes that they can have a "normal" life.

Friends can help with this because true friends will understand why you can't participate in something and won't let you feel left out. I think there should be a kids forum where the kids can sit down and talk to adults about how they feel and with other kids with the disease to learn how they cope.

lcf74 2013-10-11 02:23:27 -0500 Report

Guess I had never thought of it like that. Have always thought it might have been easier to grow up with and not know what I might be missing in foods. My parents had very little education and wonder if I would have even grown up to be an adult had I been in your shoes. I am sure there has to be others on here who grew up with it.

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