Attention Insulin Pumpers (and past or potential Pumpers)

By Yerachmiel Latest Reply 2015-02-14 12:31:42 -0600
Started 2013-08-21 14:36:35 -0500

Curious about the features you like, dislike, want, etc.

I have been pumping for over 32 years (started in June '81 on an AutoSyringe 6 - single basal rate which was "set' by diluting the U40 regular lilly insulin with lilly diluent. Recently swapped from one pump to a new tSlim and am wondering a few things:

A] seems like very few NEW things but human interface changes for the pumps

B] Despite almost a fifteen years of glucose sensor use (first papers on CGMS were published in '99) there are only two systems in the United States (Medtronics and Dexcom) with one or two others (as well as upgrades on these) stuck in FDA heaven. Why, then, is only ONE pump integrated with a sensor??

C] As of now, I need to have at last THREE different programs to improve my glucose control using my pump and meter readings: Meter, Pump, CGM There is no practical way to use all three at the same time unless one has the previously mentioned medtroncs pump)

D] why can't i program my pump from the computer?

Looking for input on what currernt, past and possible future users are looking for in a pump.

I would love to compile all of these and create a functional specification of a pump and see if any of the current pump companies is even interested in what the users think

If you have any comments or requests or anything related to pumping, cgms, control, etc please record them.

I will try to post a comprehensive set of GOOD, NOT GOOD, NEED, DONT WANT in around a month and a functional specification about two or three months from now.

thank you

Yerachmiel Altman, new member

12 replies

Yerachmiel 2013-11-25 16:03:55 -0600 Report

Update on Insulin Pumps.

It seems that Medtronics has gotten their "new" pump into the market and no one has yet to introduce a pump and sensor combo machine.

Apparently the two or three companies that were going for FDA approval have not yet gotten their paperwork correctly worded or testing done or whatnot, but there is a significant need for something to change in the pump market.

Shutting off a pump when the blood sugar falls below a certain level is a great idea but not sure how much that is going to buy for a patient, given that you are dependent on the sensor working and the patient knowing how to restart tings when he/she becomes able.

Elder K
Elder K 2013-08-27 13:23:24 -0500 Report

I have a MiniMed Paradigm® REAL-Time Revel™ Insulin Pump
Model #: MMT-723LNAH since 2011. I can do a lot with it, it programs uploads to the computer but I don't or at least haven't tried to change anything from the computer to my pump. Maybe you could look it up. Medtronic

Sopies Grandma
Sopies Grandma 2015-02-14 12:31:42 -0600 Report

I will be starting on the pump for the first time next week, and I have a question for you. Has having the pump helped with low numbers? I can and have dropped to dangerous numbers at night. I will be using the same kind of pump you have.

_Sean 2013-08-25 18:26:34 -0500 Report

I don't understand why pump and cgm software can't be integrated together- if not completely onto a smart phone, so one device is needed. Wtf? I got my cgm a couple weeks ago. Kind of sad that this is the best thing out right now considering its 2013. And the software isn't compatible with Mac… Really? Kind of pathetic.

silvie mae
silvie mae 2013-08-22 08:57:23 -0500 Report

I am new on the pump and cgm. I use the Omnipod & Dexcom. The Omnipod is operated by a pdm that uses bluetooth technology to communicate with the pod, so there is no tubing involved. The pdm also has a glucose meter so it is very convenient.
So, I wear the pod and the Dexcom sensor. I'm not thrilled about having 2 separate devices attached to me but it sure beats the alternative.

ShellyLargent 2013-08-21 15:31:29 -0500 Report

I was on the Animas IR1250 years ago. It was my first pump. I'm not 100% sure (it's been a long time since I used it) but I remember being able to see and I do believe, change, my pump settings on my computer while the pump was connected to it via inferred dongle. I had to go back to injections for awhile during a period of time with no and/or little insurance coverage, but am now on the Omni Pod system. Love and hate it… Love it because of the tubeless freedom, the pod is waterproof so I do not have to disconnect for bathing or swimming. Hate it because, compared to my old tubed pump, there is a higher % of failure, either at the pod filling and priming, or during wear. I've had several pods that have failed during the self priming. I've also had several pods malfunction while wearing because they got bumped by a door jamb (yes this can be an issue…) I have, however, had excellent customer service from both Insulet and my pod supplier for getting replacements sent. I also do not like that the food database in the PDM does intergrade with the bolus calculator like my Animas did. I do not wear a CGM, but I've been told the Dexcom CGM will work with the Omni Pod system. Not sure how, but that's what Insulet has told me.

silvie mae
silvie mae 2013-08-26 06:37:55 -0500 Report

Hmmm, I'm going to ask about how the dexcom and omnipod work together?
Si far I have not a problem with priming or pod failure. Except for the first couple of times and the problem was over filling. I was told to make sure that the insulin is exactly at 200ml to prevent even the slightest overfill. That seemed to work so far.

Type1Lou 2013-08-21 15:07:59 -0500 Report

Wow! I was diagnosed in 1976 but have only been pumping for 2 years. I love my Medtronics Minimed Paradigm pump. I do not use a CGM. My main problem has resulted from not reconnecting properly after bathing…even though I am now very careful about reconnecting, it still happens every now and then. I often check BG 2 hours after eating but not always and it doesn't take long for my BG's to climb without that basal insulin. The tubing can get in the way but I haven't opted for an Omnipod system without the tubing. A waterproof pump would be nice so we could wear it while bathing or swimming. And of course, the cost is higher than MDI…lucky that I have insurance…it'll be interesting to see how it's handled next year when I go on Medicare.

silvie mae
silvie mae 2013-08-22 09:11:26 -0500 Report

I would check into the Medicare issue now so you know what to expect. My mom was telling me about a lady who retired and went on medicare. They would not cover her pump so she had to go back on injections :-(. I was so mad when I heard this.
I think that is one of my biggest concerns is insurance. I've heard that once Obama Care kicks in, many companies will opt to pay the penalties rather than provide benefits.
Hopefully for you there will be options available with your Medicare so you can keep pumping.

silvie mae
silvie mae 2013-08-22 09:02:17 -0500 Report

I chose the Omnipod because it is waterproof and I didn't think I would like dealing with the tubing. I'm very happy with it so far. It also has a food database which is a nice feature.

Type1Lou 2013-08-22 13:39:54 -0500 Report

That food database sounds like a big plus since accurately counting our carbs is essential. Also, the lack of tubing and being waterproof does make the Omnipod attractive.

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