Hello everyone. My husband almost died in May of this year when he collapsed at home with horrific abdo pains. Within 3 days he was fighting for his life, with the diagnosis being severe acute pancreatitis. He suffered multi-organ failure and was in the PCU for 10 days. After weeks in hospital he was sent home to "wait" before they did surgery. And this was because he needed to recover from the multi-organ failure. Several weeks later, he became very ill again and that was when they operated as he had very large necrotic collections. They removed his gallbladder (it was healthy but may have caused him problems later) and all of his pancreas. He had drains put in place (for the large collections)and a jejunosotomy feeding tube. We are now 6 weeks post surgery (3 months post initial diagnosis) and although we have the feeding tube running 16 hours/ day and multiple meds, we are on the road to recovery. I am here because we are seriously lacking help with his diabetes management.
We live in New Zealand and I have sheer frustration as I feel like we are a "hot potato" that everyone passes to the next healthcare professional as it is "too hard". His regime is complicated because of the feeding (which is a diabetic one) and his patchy absorbtion of food (he is on creon forte). He does his BSL checking 4 times a day. He is on novorapid at meals if needed and on glargine (long acting insulin) at night- 60units.
I am wanting help in regards to carb counting- no one seems to be able to help with this. Anyone would think that he's the first person to ever have diabetes. He is considered a Type 1 diabetic (technically he is surgically induced diabetic). I also want to hear people's opinions about insulin pumps (here, you have to pay, at around $8000).
I just want to feel welcomed somewhere where people actually understand all of this… and if you've got to the end of this, thank you sooo much for reading.
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