Type one & cures -.-

By BroadwayGirl Latest Reply 2013-08-13 16:40:59 -0500
Started 2013-08-04 21:30:40 -0500

Call me pessimistic but sometimes I wonder if I won't be dead by the time they cute this. So often my sister says, "well at least it's nothing serious." Or "if I had to have a disease I'd want it to be diabetes." It drives my crazy but it screws up my life all the time. In school especially. All the highs and lows make it hard to concentrate.
I guess I'm jut really down about it all today

27 replies

Sapphire89 2013-08-13 16:40:59 -0500 Report

I'm 23 years old and have had diabetes my entire life. I've learned that the less you're sensitive about, the happier you'll be. I make everything into a joke when people say "oh, you just need to eat better!" or "hey, I heard cinnamon can cure that!" I wear my diabetes loud and proud. I take injections in front of everyone, check my sugar in front of everyone, openly say, "I'm feeling high" if I am, and "I'm feeling tipsy" if I'm low, and love when they come up to me and ask questions because its an opportunity to educate people. I have a large medic alert tattoo on my arm that says "Diabetic" and get compliments on it all the time. When I was using an insulin pump and had the set on the back of my arm, clients at work (I work at a Law Office) would ask if its a smoker's patch. I'd say no, and pull it out and give them a short lesson on type 1 vs type 2, pumps, insulin, all that jazz. I'm much happier since I've decided to go that route instead of get offended by people who don't understand. I also feel that because I'm so open about it, my friends and family have learned so much from my reactions to it all, that they understand quite well what I'm going through. I make a point to explain it. It's improved my life, and may improve your happiness if you give it a shot. =]

bexcripps 2013-08-13 16:34:29 -0500 Report

Everyone has these days… and they suck! Try not to focus on a 'cure' and live your life the best you can. Diabetes does not need to rule you or stop you from doing anything!

Angie Type 1
Angie Type 1 2013-08-11 12:04:28 -0500 Report

I totally understand BroadwayGirl!! I have a very social lifestyle and no one I know has this disease and they think that because I look ok or "put together" that there are times I simply don't have the energy or can't do, eat, or participate in what they do. Yes I could, but I will usually pay later for "trying" to keep up with them. I am very brittle and sitting in a car for hours traveling, long flights, being on the beach and just sitting, anything basically where I'm not moving around much will send me high. I set a "temp" basal on my insulin pump but it's unpredictable if it works and is a guessing game. I know everyone is here to support and tell you it's ok but everyone (and I'm sorry if this offends some Type 2's , type 1 can suck!) We don't produce or have the beta cells anymore and it is very difficult to get it just right or some days even close. We rely on insulin totally for life…yes exercise, eating "right" can help reduce the amount etc. I also get tired of when I have worked with people in the past say…well I have an Uncle etc with diabetes and they don't have the trouble you do with highs and lows and sickness and infections. And then I ask? What type are they and they say…idk they take some pill?? I'm sorry but are challenges not saying are worse or better can be VERY different than Type 2's.

BroadwayGirl 2013-08-11 19:29:01 -0500 Report

You've summed up every emotion I've ever felt about this disease. Of course type 2 is NO walk in the park but it's so different from type 1. Because of this disease I feel sick sooo often and the only person who sorta understand is my boyfriend.

Angie Type 1
Angie Type 1 2013-08-12 16:00:30 -0500 Report

Yes I know… I have good days which I cherish and bad days which make me want to scream or cry. Everything that I do affects my control. I raised 2 son's basically alone and the stress was always a challenge. Like you, my fiancĂ© tries to understand and has seen me at my worst with the mood swings when my sugar for (some unknown reasons sometimes) would go to 450 and I'm so emotional. But, I don't understand why it's so hard to find diabetic friends who live close…I never have but still hoping one day I'll run into someone wearing a pump. Hang in there :)

BroadwayGirl 2013-08-12 18:00:38 -0500 Report

I use to have a friend who was type one but we lost contact unfortunately. I just want someone to understand, y'know?

Angie Type 1
Angie Type 1 2013-08-12 20:34:05 -0500 Report

I do know and you have all of us on here ok ? When you want to talk or vent with me or others on here who know pretty much all the ups and downs with this disease, just write to us. I have felt for years so alone with this and now I can go somewhere(a lot better than fb) to discuss things. I'm on Facebook but feel so "different" from my friends.

BroadwayGirl 2013-08-08 08:48:24 -0500 Report

I couldn't agree more with everything you've said. I've always wanted to make a few friends with diabetes, just to have friends who wouldn't always say 'that's sad' or 'I'm sorry'. I suppose this is as close as I'll get, which works for now

tinkerbell54 2013-08-08 09:13:02 -0500 Report

I know friends can be mean at times. But I wish we all just try to get along. this world would be a better place. We all need to care for our fellow man. than we would not see people being silly with guns and kill people . What happen with just talking to the when we have a problem. Ruth Tinkerbell54

KathleenAnt 2013-08-08 01:56:02 -0500 Report

I feel the exact same way. I've diabetes for 17 years and I'm still not exactly okay with it. I hate the jokes people make about diabetes, getting looked at in public, etc.. I've learned that it's never going to get easier but maybe if we surround our selves with others that have diabetes and know what we're going through, it will be a little better (the reason why I joined this website five minutes ago, I was feeling super down about having diabetes…).

ANYSA728 2013-08-06 10:28:53 -0500 Report

I agree with everything you're saying. And I get down too…alot. But I try to just give myself a few minutes and then make myself say "F-you!" and just get on with it. I'm alive and I'm going to stay alive & healthy. Sorry, I'm a potty mouth. And I just mentally curse out the diabetes and the stupid losers around me. Nope, no one can understand until they stick a syringe in your hand and a poker to stick yourself a 1/2 dozen times a day or more. BUT, you can be tougher than all that. Don't let it take your happiness away!!!!!!! (thats my little montra… hope it helps) ~A

BroadwayGirl 2013-08-06 09:48:46 -0500 Report

Thy used to when I was younger, I got diagnosed with type one when I was 3. From the time we found out to just a year ago they did. Now I prefer to go in my self.
I don't expect them to understand, I only expect them to give me a break sometimes.

_Sean 2013-08-05 21:31:04 -0500 Report

I share your feelings. I hear people say things to me as well. "At least its manageable". I love that one. I'd love to see them manage it for a day. What can you do though? I think patience goes a long way.

Angie Type 1
Angie Type 1 2013-08-12 16:04:35 -0500 Report

You're right Sean… I really dislike when I hear that and for one day or one vacation or one hike in the woods not have to think about "what" my blood sugar is doing, going to do, and who is near me if I need help and can't bring it up..

tinkerbell54 2013-08-06 08:47:33 -0500 Report

its funny how people that don't have diabetes always say they could handle having diabetes. But they don't really care what we say. they sometimes think its because we eat a lot of sugar. its not true. I wish people would just leave us alone. if they don't have diabetes then don't try to give us advice about our diabetes. Ruth Tinkerbell54

BroadwayGirl 2013-08-05 23:03:04 -0500 Report

That is the saying that absolutely kills me. I would love to see non-diabetics do it for just one day to see how hard and frustrating life gets with it! I know patience helps a lot, but I guess I just want more support at home. I suppose because I've had it for 14 years my family assume I'm just used to it by now. Whenever I'm sick due to a high or low and my mom asks me to do something and I tell her I need a few minutes because I don't feel good she often replies with "you never feel good." I don't think she realizes how true that is and how hard it is to function due to it.

GabbyPA 2013-08-06 07:28:29 -0500 Report

Even as a diabetic I didn't fully understand the lows until I was put on insulin. I had some kind of creepy lows. I hit 48 and got kind of scared. So now I have a new appreciation for those who fear them at night. It is hard to understand things we have not experienced, even with knowledge. Much less when we know we don't " have to change" because we are "fine".

Do your parents go to the doctor with you? Do they hear the things you share with him/her? I know that helped my husband understand a little better. He still doesn't get it, but that's okay. As much as I look out for him in his wheelchair, there are still days when he says, I don't get it either. And he's right.

tinkerbell54 2013-08-05 10:20:48 -0500 Report

I am here for u.I know how it is the highs & lows of diabetes. Ur sister is silly woman that's all . she does not want what diabetes is all about. take from me she does not want this diaease. Ruth Tinkerbell54

BroadwayGirl 2013-08-05 09:09:20 -0500 Report

It just gets so frustrating when she says that. The exercise and the counting isn't even what makes my mad about it all. It's just the stares and the questions from people. And when people talk to me about it and they are like "so, unlike normal people you don't…' And I jut feel like I should be considered a normal person too.
And then it's the emotional aspect. When my sugar is low I'm confused and shaky an for a reason I can't explain I just start to cry(I know all diabetics emotions go crazy with highs and lows in different ways.). And then when my sugar is high I feel so sick and thirst and just cranky. I jut wished she understood that out of all the diseases out there it might not be the worst to have but is so far from being the easiest to have like everyone says it is.

GabbyPA 2013-08-05 06:44:30 -0500 Report

There are days when we all just get down. It's okay. But I do have to say that your sister is very ill informed. Every disease is "nothing serious" until you are faced with it I suppose. This is one of the most life altering diseases out there, though it doesn't show on the outside like many other ones do. I am not taking away from other chronic illnesses, but they are called chronic for a reason.

Next time she says she would choose diabetes, I would challenge her to live a week of your life style. Testing, counting carbs, limiting the foods you may have grown up on, exercising and all of that. I bet she would change her tune then. Just sayin'

tinkerbell54 2013-08-05 10:01:39 -0500 Report

I think a person who does not have diabetes . does not know what its like we have to test our blood sugar every day & sometimes 3 times a day. So to all the people who do not have diabetes it is not easy being a diabetic type 1 or type 2. Ruth Tinkerbell54

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