Nesidioblastosis (Post-Prandial Hypoglycemia)

By NinaNolan Latest Reply 2018-02-10 10:59:59 -0600
Started 2013-06-17 18:29:17 -0500

I feel alone, depressed & paranoid with this diagnosis I was given approx 1 1/2 yrs ago. I've never met anyone with the same problem. I am not diabetic (yet), but my endocrinologist said I am at very high risk for developing diabetes! I must monitor every single thing I put in my mouth. I'm on a very strict diet of only whole grain or whole wheat, no sugar of any kind, no fruit, no corn, no peas, limited potatoes, etc … If I don't monitor the carbs properly, my blood sugar shoots up over 300, then crashes within about 2 hours into the 20's and causes me to pass out or have seizures! My grand kids or dtr give me a glucagon injection. As I come around, they give me something to try & regulate my blood sugar and then the roller coaster has begun. For most of the day, I have to check my blood sugar every 1/2—1 hour, then eat, if needed. My blood sugar is out Of control all day! I take Acarbose with each meal. If it doesn't control my blood sugar, the endocrinologist said there's nothing else they can do but perform surgery to remove 75% of my pancreas. Can anyone out there relate? Does anyone on this site have the same diagnosis??

3 replies

IronOre 2013-06-18 22:09:39 -0500 Report

No I can't relate to what you are experiencing, but I can tell you that after 38 years of being a type 1 diabetic the extreme worrying that you are going thru is really not worth it.
Being on insulin is not as bad as it sounds, and if you will need to go in it you eventually will feel better than you have in a really long time.
I guess I would go crazy too if I need to monitor so closely everything that I went into my mouth, but the stress that you are causing yourself if worse than the disease itself.

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