I'm a one of a kind

Ebony Faith
By Ebony Faith Latest Reply 2013-04-30 20:31:03 -0500
Started 2013-04-27 09:37:03 -0500

I became diabetic after having a lifetime of chronic pancreatitis and an 18 month run of acute pancreatitis. The only way they could stop it was to remove my pancreas. They also have to remove your spleen and part of your stomach. They separated out the islet cells and transplanted them into my liver. The good news was that it got rid of the horrible pain. The transplant worked for about eight weeks. The bad news is the surgery and the diabetes gave me severe gastroparesis. Most people's stomachs empty in 90 minutes. Mine was emptying in about 18 hours. I had a gastric pacemaker installed. It's kind of like a heart pacemaker except they wire it to your stomach. The electrical impulse is supposed to make the stomach muscle contract. It helps some, but not enough to be able to eat normally. I lost so much weight they put me on IV nutrition. What started out as a six week run to give my gut a break has morphed into a necessity for the rest of my life. I have hypoglycemia unawareness and have a diabetic assist dog, who is awesome. I wouldn't be alive if I didn't have her.

I always feel like the odd person out. I haven't been able to find anyone out there who has even been near the road I'm on. It gets kind of isolating and lonely sometimes.

4 replies

Ebony Faith
Ebony Faith 2013-04-30 20:31:03 -0500 Report

Thank you all for your wonderful words of welcome and support. I know I can't do this alone and I'm glad I've found a place for support.

sNerTs1 2013-04-30 10:12:49 -0500 Report

Sending you hugs and prayers!! We are like a family here and learn from each other, so I ask that you embrace us all and allow us to be here for you in any capacity that we can help. Like Teresa, you can lean all you want or need. Being a "One Of A Kind" person doesn't mean you have to live in a cell, it means you are a "Beautiful Prism" reflecting the light in many beautiful shades. I Love my AB-normalness and I love yours too! *Hugs* ~ Cheryl

Teresa Adkins
Teresa Adkins 2013-04-30 07:59:10 -0500 Report

Oh MY… Will keep you in my prayers! I have never heard of this but I hope you stay strong. If you need to vent I have an ear waiting :)

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