Hypoglycemia episodes without any symptoms.

By elba237 Latest Reply 2013-05-16 14:05:43 -0500
Started 2013-04-16 19:10:27 -0500

During the past 2 weeks I had 2 hypoglycemia episodes that made me start worry. None of them show me any symptoms and that is not good. During all my life as a diabetic I control all and I was doing good. Now this. If some one here had or has this kind of situation I would like to share comments. Of course I am in the hands of my doctor and I am following his instructions to avoid this but really is very strange not to have symptoms when your blood sugar go so low to make you be unconcious and that is what happen to me. Any opiniion will be appreciate while I am following my dr instructions.

24 replies

allrosie1 2013-04-29 20:50:20 -0500 Report

Hi Elba, I am a T1 also and have been for 45 years. Over the last year I have been experiencing lows with no symptoms also. I am seriously considering getting the CGM. This has scared me a lot. I came home from work one day (driving) and check my blood glucose and it was 37!! I shouldn't have even been awake. This is very scary. I can relate to how you feel. Listen to the folks here and talk with a DIABETIC doctor. Not just your regular MD. That is important. Take care and good luck.

elba237 2013-05-16 14:05:43 -0500 Report

Thank you allrosie1. I have my endocrinologist and he start some steps with me that I think are working. Of course I still have some of those episodes but much less as the last month. I have to rearange my diet and my schedule for excersice. I am sure my efforts will solve all these scary things cause as you said it is really scary to know that you could have another very low hypoglicemia episode that could be deadly.

Set apart
Set apart 2013-04-21 07:51:11 -0500 Report

I am sorry you're going through this. I am also a T1 and have had some pretty bad lows. I am now on the CGM, Contunuous Glucose Monitor, which alerts me anytime I am below 60BG, or above 140. It has really helped me, and believe me there have been plenty of times where it alerts me when I am sleeping. I also read one time that there does come a time when you no longer experience the symptoms that you are getting low. I hope you can resolve this!

elba237 2013-04-21 14:25:30 -0500 Report

Can you tell me how or where you find this CGM device? I asked my doctor and he said there is nothing like that. Will be very important and usefull for me if you let me know how I can get this. Thank you.

Ebony Faith
Ebony Faith 2013-04-22 09:29:22 -0500 Report

Here is the system I have. http://www.medtronicdiabetes.com/products/con...

This technology has been around since 2008. I'd be concerned if the doctor handling my diabetes had never heard of it.

Good luck

elba237 2013-04-22 19:07:06 -0500 Report

Of course I am concerned. I will have a very strong "fight" with him. Again, thank you so much for your help. I will contact Medtronic to check all the steps I have to do.

Ebony Faith
Ebony Faith 2013-04-20 23:38:59 -0500 Report

I have hypoglycemia awareness and have a diabetes assist dog. She is a beautiful British black lab. We have been together for almost four years. Your breath odor changes when your blood sugar is too high or two low and she is trained like a drug/bomb sniffing dog. She is amazingly accurate and usually 10 minutes ahead of my meter. She is trained to retreive juice, soda, a cloth candy bag, the phone and someone else in the house. I wouldn't be alive if I didn't have her.

sandyfrazzini 2013-04-17 13:41:55 -0500 Report

Hi Elba,
I have had this happen to me as well, and no it's not fun. For me i just started testing alot more even through the night and it really helped me catch alot of the lows that I was not feeling. I suddenly find that my glucose levels have been very high lately and I can't seem to get them down. I guess it's just a big balancing act just keep working at it and good luck to you.

Stuart1966 2013-04-17 12:18:07 -0500 Report

Hello Elba:

This is VERY common issue.

Make no mistakes and still get handed your own rear end. Not a pretty game. Short answer, symptoms can and WILL return. Or you can find OTHER symptoms, the secondary, third symptoms and use them instead.

Symptoms are a perception issue.

If we climbed onto a table top and danced with insane abandon while singing a broadway tune every single time we went "danger low", it'd be REAL EASY to tell when you, I (anybody) was crashing, going low, right ??? (Come on it would be a tremendous "signal" >8 D )

Because the symptoms are small, entirely "common" feelings its harder: fatigue, confusion, giddy, a long, annoying list. But if we can focus on the alternate sensations, the other smaller whispers of a low in progress, you can find them.

B.G.A.T. Blood Glucose Awareness Training Dr. Cox (and friends) out of UVA has a real specific program to achieve this!

A "symptom reboot" happens if we let ourselves STAY HIGH for a particular period, don't try and get anywhere near perfect, don't force yourself into the BG neighborhood to be able to to BE LOW. Stay higher than that for a time… the research indicates the symptoms come back online. If we concentrate, explore the issue a lot, we can and will find alternate symptoms we had no use for, until we got ambushed.

What happened that you got "taken out"? Walk us through it… maybe we can find other solutions too.

elba237 2013-04-17 12:34:58 -0500 Report

Thank you Stuart. I am already reading about all this. As I said, I am a type 1 diabetic since the last 37 years. I know how my body react. I know all the symptoms even those no one think can be signals of low blood sugar. But this time, I couldn't identify anything and just went unconcious. I am dealing with it, going to my doctor and following the plan he gave me. Reading about this and checking for information that can help. But I have to be honest, for first time in more than 30 years I am scared cause this is not good.

Stuart1966 2013-04-17 19:02:10 -0500 Report

Hello Elba:

What's your normal target where are you hovering, or seeking to hover given the choice of setting that "BG stage"? Given your serious experience playing with this dragon, what is your "take" dispassionately re: the cause for the low… separating out the "no signs" aspect for a moment?

Too aggressive? Stacking? "Rage dosing"
Ate less that you thought? Forgot to eat?
Excessive-Rapid Absorption?
Theres a really long list, as you know… a whole bunch of hummmngh, what caused that possibilities…

For the moment, detouring any low is your goal. Reigniting the pilot light, getting the warning flame, your signals back is important, but not as much as preventing the crash, any crash until you can rewire stuff.

elba237 2013-04-17 20:12:36 -0500 Report

My average numbers during the last 5 years was between 98 to 125. Of course Ihave to work a lot for that but I am use for that and I am happy I can control. But my situation now since the last 2 months show of course that something is not good. I checked my diaries (I wrote all what I eat, all activity I do etc for that reason the last 5 years where the most controled ones. I do good and control during my 37 years as a diabetic but the last 5 were the best ones). I found nothing that can make me have so low BG numbers in the way I had in this last 2 months. The only thing I notice and I told my dr was a little stress cause of personal situation in my family. I don't know if this can be a reason but I still following the instructions of my dr and I am keeping my BG numbers between 115 to 130. In the next 2 weeks I have to go dr again and make labs then I will see what will happen.

Stuart1966 2013-04-19 10:40:55 -0500 Report

Had any new "lows" that didn't get caught? Stress won't cause lows… us not to eat, maybe, push ourselves on the treadmill trying to "release" that stress sure (ie leading to later lows)…but lows themselves, nope. Serious stress the fight-flight stuff, causes highs only. Adrenaline system, liver dumping, rapid breathing, heart racing, uncontrollable hand shaking "stress"… only cause highs.

The other stuff plays with our blood pressure, but not the BG per se.,,, not in the "right" direction at least. That'd be a prescription, I'd love "…Get some serious stress, lower you blood glucose…" >8 D

So what is you take what DID cause the last episode? Gotta have some idea what triggered it? The lack of symptoms made it worse situation obviously, but what caused it to happen to begin with you think?

tabby9146 2013-04-17 10:39:14 -0500 Report

I am sorry to hear this. I know how scary they can be, just even a little low, like I have gotten much less very low numbers. I hope things improve. Glad you are seeing the doctor.

tabby9146 2013-04-17 10:39:49 -0500 Report

I had a dream the other night that I went way low!! it was weird. I woke up and I was fine.

elba237 2013-04-17 10:43:38 -0500 Report

the sensation of this very very low blood sugar is really ugly. When I start recovering my senses I was feeling like in a dream, like things wasn't real. I was trying to talk in normal way but my mother said that my words came with no sense. The sensation after all that was like all my energy went out of my body. I spent more than 2 hours to become completely good. I don't wish this happen to any one really is horrible feeling.

Gwen214 2013-04-20 05:28:39 -0500 Report

Whoa… I haven't had that experience yet, I'm sorry your going through that. This is life threatening, can you ask your doctor to prescribe, something to alert you. With technology growing, there has to be something out there. Have you told your doctor about your situations.

elba237 2013-04-20 13:10:04 -0500 Report

Of course Gwen, I had been in my doctor's off 3 times this month. He gave me instructions that I follow strictly and till now is working. About a device that can send an alarm, no, something for this kind of prob is not available yet. I asked my doctor and other places for it but there is nothing like that.

jayabee52 2013-04-16 20:36:11 -0500 Report

That is frightening! I looked up "resetting hypoglcyemia unawareness" and got this result here ~ http://www.diabetesnet.com/diabetes-control/l...

The article discussed how one gets HU (hypoglycemia unawarentss) gives the reasons it happens and then went into how one could reset the body to be able to feel a hypo again:

"How To Reverse Hypoglycemia Unawareness
Research has shown that people who have hypoglycemia unawareness can become aware again of low blood sugars by avoiding frequent lows. Preventing all lows for two weeks resulted in increased symptoms of a low blood sugar and a return to nearly normal symptoms after 3 months.

A study in Rome by Dr. Carmine Fanelli and other researchers reduced the frequency of hypoglycemia in people who had had diabetes for seven years or less but who suffered from hypoglycemia unawareness. They raised the target for premeal blood sugars to 140 mg/dl (7.8 mmol) and found that the frequency of hypoglycemia dropped from once every other day to once every 22 days. As the higher premeal blood sugar target led to less hypoglycemia, people once again regained their low blood sugar symptoms. The counter-regulatory hormone response that alerts people to the presence of a low blood sugar returned to nearly normal after a few weeks of less frequent lows.

Avoidance of lows enables people with diabetes to regain their symptoms when they become low. To reverse hypoglycemia unawareness, set your blood sugar targets higher, carefully adjust insulin doses to closely match your diet and exercise, and stay more alert to physical warnings for 48 hours following a first low blood sugar. Consider any blood sugar below 60 mg/dl (3.3 mmol) as serious and practice ways to avoid them. Use your records to predict when lows are likely to occur."

I remember recently someone wrote about that in a discussion thread (don't remember who or where), but I cannot find it (I looked). Basically what was said that she delibertely kept her BG (blood glucose) levels slightly high for a couple of weeks which somehow reset the hypo awareness process so she could experience lows once more.

Praying for a healthier YOU!

James Baker

elba237 2013-04-17 10:44:35 -0500 Report

thank you very much James. I will open the site and see cause I like to read everything that help me to learn more and that way have the control. Thank you again.