PCOS go away!!!

By Scarlet03 Latest Reply 2013-04-22 02:04:46 -0500
Started 2013-04-15 11:46:06 -0500

I hate having PCOS…it has been nothing but agony from the time I started…

Any woman that goes through this understands what Ive been through. Now am 41, idk if any of you believe this..but I cant wait for menapause to happen..

Oh, PCOS and Diabetes, my blood sugars go up and in the 200's if to almost 300.. then it starts and I drop to the 70's and into the low 100's…then everything goes back to normal…

And no I dont take and can't take any estrogen due to blood clots…and it seems im allergic to alot of pills so I get oil based progesterone shots every 4 months…

YES…PCOS is a pain…I wish it was over…I hope there are many of you that feel the same way

51 replies

BellaJ1977 2013-04-19 22:01:39 -0500 Report

I have PCOS and was diagnosed at 14. I would give anything to not have it but unfortunately wanting menopause to happen is not something I want since I have severe endometrosis as well. My endometrosis is hormone based instead of uterine based so having menpause would not helpl as I would still have to go on hormones. There is no cure for it either and I live in pain but I do not let it or my PCOS or diabetes define me. I push forward every day with a smile on my face and take stock in the good things in my life. I did not always think that way though Scarlett.
Dealing with PCOS has at times been frustrating. I always felt different because of it. I get blood clots to even when I am on continous birth control to try to control the PCOS and Endo. It always freaks me out and makes me wonder if something else is going on. I am a allergic to a lot of pills as well and almost all metal but silver. I also got adult onset of allergies of hay fever and pollen. Was curious if you have more allergies or any that popped up the longer you have lived with PCOS?

Scarlet03 2013-04-19 22:16:47 -0500 Report

Never had endometriosis…more like Ive had cysts on my ovariers burst and they were painful…then I got put on an IUD for about 7 years…after being on insulin things seemed to start to go normal…but I have to watch and make sure something happens at least every 4 months

Scarlet03 2013-04-19 22:06:48 -0500 Report

OMG YA!!! I have hurtuism(facial hair) just in the last year,,allergic to alot of pills and food and always been allergic to metal I never wear jewerly…but I can only wear gold and silver…seems even estrogen based pills or medication make me ill…thats why the progesterone oil based shots

great dane
great dane 2013-04-19 14:13:18 -0500 Report

I am unfamiliar with acronym, what is PCO?

Scarlet03 2013-04-19 14:20:53 -0500 Report

Its Poly Cystic Ovarian Syndrome…women in the old days would be considered the bearded lady…Im so glad now doctors are doing their best to help women with this genetic disorder

Anonymous 2013-04-18 19:12:05 -0500 Report

I haven't been formally diabnosed with PCOS but my doctor said he figured I did have it. I too am looking forward to menopause.
As far as the facial hair going away I don't ever see that happening. When I was a CNA I had elderly patients who were into their 80's and 90's and even older who had facial hair. I just keep on shaving mine.
I've been doing some reading on the topic and a lot of experts seem to think that PCOS, diabetes, and insulin resistance are all related.
I think that one day in the future there will be a cure for diabetes of any kind.

Scarlet03 2013-04-21 20:27:47 -0500 Report

Ive done the same thing for years, Ive tried creams etc…I even took a form of steroids where they thought that would do it…ANYWAYS…Ive accepted who I am…I just wish more people would understand this hold disorder

Scarlet03 2013-04-16 07:27:25 -0500 Report

Oh…one more thing…and this is really important…if you know your family history in illnesses it helps…my mother knew diabetes ran in our family and other illnesses…being young at my PCOS stage I would ask what history do we have…and she would say…THERE IS NOTHING…Now that Im a parent…I dont hide my family history and I know what to look for…

Scarlet03 2013-04-16 07:27:18 -0500 Report

Im 41 now..
and nobody diagnosed me until I was 20 something…but I had the horrifying affects from the time I was 10 of 2 to 3 months with nothing…hair on my face when I was a teen…In the 80's they had no idea what was wrong…and being a highschool teen I got terriably teased and tortured cause I was never really thin…and at 17 was put on steroids thinking it would get rid of the hair…it was awful…and if you girls didn't know this PCOS is part of the reason I have diabetes…

RissasMama 2013-04-16 06:08:53 -0500 Report

I was diagnosed at 14 I also suffer terribly from insulin resistance syndrome. I'm so blesses to have my 2 year old and I'm not 16 weeks pregnant again but I'm so resistant I take 8 to 10 viles a month in my pump of insulin. Thank god for my pump bc it is the only thing that has gotten my sugars under control.

Scarlet03 2013-04-17 08:51:34 -0500 Report

I was just lucky to have my 1…I tried one more time and had a miscarriage before becoming diabetic…

Gwen214 2013-04-16 05:01:02 -0500 Report

I was diagnosed with PCOS a year ago, but I think I may have had it in my 20's. it was difficult for me managing diabetes. My blood sugars sometimes will go to the extreme as well. I actually understand what your going through. I'm 39 now, fortunately, I'm able to take a low dies if BC and one other medication.

Gwen214 2013-04-16 05:01:44 -0500 Report

I mean Le dose of, not low dies of

Gwen214 2013-04-17 21:01:44 -0500 Report

My doctor prescribed Metformin for my PCOS diagnosed.

Scarlet03 2013-04-17 21:04:14 -0500 Report

I became allergic to metformin after many years of taking it…all I get now is progesterone shots cause my body and its every 4 months or so

Gwen214 2013-04-17 21:06:45 -0500 Report

I stopped taking the Metformin, because my liver enzymes are off, my liver is not able to help digest certain foods. So, I was taking it for the first 6 months of diagnoses.

Scarlet03 2013-04-17 21:10:32 -0500 Report

idk what it is…but meformin after a while just ruins your body in one form or another…then they put me on avandia and metformin…I almost died with that…and then prandian…i truly idk…with my insulin my hormones seem to do ok…I just have the hair on my face still and will always have until menapause which I wish started sooner than later

Graylin Bee
Graylin Bee 2013-04-17 23:38:20 -0500 Report

No absolute about being less hairy after menopause. In my care giver career I have seen many elderly (80 -100+ years of age) ladies, some still grew/grow a nice 5 o'clock shadow.

Roxannescott 2013-04-16 07:08:24 -0500 Report

At the end of menopause now at 52… no fun at all…Fibroids aregiving me pain now … hoping for it to be OVER SOON!

Graylin Bee
Graylin Bee 2013-04-16 09:02:55 -0500 Report

There are studies that show a relationship to diabetes and increased chance of developing fibroids. Seems the less insulin in your system the more likely they are to occur.
Had my fun of getting them evicted a few years ago.

Just Joyce
Just Joyce 2013-04-16 19:22:27 -0500 Report

I have had fibroids since I was in my 20's. I have not gone through menapause because I refuse to get the shots that will bring it on.

Gwen214 2013-04-16 15:22:40 -0500 Report

I think I may have read that somewhere. When I receive the diagnose, I do my own massive research.

95ncountin 2013-04-16 09:07:16 -0500 Report

Me too. When docs asked how I felt about permanent, surgical cure, I jumped on it and never looked back. I never knew about relationship. Fascinating. Sadly so. My <3 goes out to you women suffering.

Scarlet03 2013-04-16 09:09:01 -0500 Report

There's a permanent cure? I would love to know about that… one thing I dont have is fibroids…the cysts on my ovaries burst and that's painful

Graylin Bee
Graylin Bee 2013-04-16 09:35:25 -0500 Report

The permanent cure I had fixed it all. Had a TAH/BSO. Nothing to get cysts on, nothing to supply room and board for a family of fibroids

Scarlet03 2013-04-16 10:18:16 -0500 Report

Ive tried to ask about a hysterectamy? but not able too :( its that blood clot situation and other stuff that gets in the way…so I have to wait.

Graylin Bee
Graylin Bee 2013-04-16 10:36:45 -0500 Report

Yes, they do worry about blood clots.
My Dad had a mutant blood clotting gene. When I mentioned it to my vascular surgeon, he was on the phone with a hematologist before I could blink. The hematologist tested me for every known blood clotting mutation. I am the 1st person he ever tested for that many that had none.
Even with such an endorsement, I still got the daily blood clot prevention shot (forget the name maybe it's heparin) while in the hosp after theTAH.
I couldn't have the TAH until after 2 other surgeries. The vascular surgeon would not approve it until he did his job.

Scarlet03 2013-04-16 10:57:00 -0500 Report

Im not allowed to do that…believe me I begged my obgyn…that and Im not able to take any estrogen at all sigh

Graylin Bee
Graylin Bee 2013-04-19 22:49:19 -0500 Report

Just remembered, there are women who have had their ovary regrow if a bit gets left. It's called Ovarian Remnant Syndrome, I believe. After awhile I begin to think our bodies are out to get us.

BellaJ1977 2013-04-19 23:22:57 -0500 Report

I thought I was the only person allergic to things like metal. It drives me nuts but lucky for me silver is my favorite and its the one I can wear. I cannot wear gold or any others. I don't mind not wearing jewelry but I have necklaces I wear occasionaly that are silver and I have silver rings on I never take off. Maybe it is me making up for not being able to wear earrings lol. I hate being allergic to pills. It is the worst allergy as it makes me doubly cautious and making sure a 100 times that the doctor is not giving me any meds with sulfa or the other stuff I am allergic to. I cannot take iron pills either. I literally get violently sick within minutes of taking them so no point. Makes it hard to find multivitamins without iron but have managed to find some. I am starting to wonder if all these allergies are from PCOS. What is worse is PCOS can be hereditary so I really hope I do not pass it onto my daughter who will be 8 in July. I would not wish it on anyone.

Scarlet03 2013-04-19 23:36:02 -0500 Report

And remembering those years just brings me to tears…cause nobody understood…why…nobody did anything that would help…I was really sick…and I all heard from PEOPLE was… YOUR FAT, YOUR UGLY, and ITS YOUR FAULT, you're like this…

Im glad Im hear…cause you guys understand (((((HUGS)))))

BellaJ1977 2013-04-20 00:19:11 -0500 Report

I do understand. My boyfriend still does not get it.. I think I gave up trying to explain to him how this disease works. As long as he loves me for me he does not need to understand. Guys cannot understand female diseases because they don't have our parts lol.. *huggs* to you scarlett and everyone.

BellaJ1977 2013-04-20 00:10:10 -0500 Report

I am glad your daughter is doing so well. Hopefully she will not get it. Sulfa drugs are the worst. I have had nurses try to give me sulfa drugs and one nurse kept trying no matter how allergic I was.. I finally yelled look at my chart is in bold and with a bright red sticker. You would think they would of checked first. I can't believe all they cared about was the hair on your face. They should of none that was not normal. Doctors can be frustrating which is why I tell them all my symptoms since even if you do not think the symptom is related you never know. I still think they are finding new things out about PCOS. It still relatively a new disease.

Scarlet03 2013-04-20 00:19:20 -0500 Report

A new disease to them…but its been around for centuries…think of the bearded lady…if I didn't use a razor…I would be in that catagory…I think its all auto immune related…my hair never grew properly from the time I was born…I feel like a walking doctors experiment from the get go…

If I could Id go around the country and do a talk about this disease…that we're not alone and that something needs to be done…it cause alot of problems including diabetes infertility and so many other things…thanks to PCOS I will never be thin…and I accept that…cause I love WHO I am now…

BellaJ1977 2013-04-20 00:33:05 -0500 Report

I agree its been around forever and that it is new to them. I have diabetes directly because of my PCOS. My cholesterol is high because of it, I have lowered it some but it never goes to where it needs to. I do not even eat fatty foods and it still goes high. I had to go on clomid to get pregnant with my daughter. She and her older brother live with their dad. I decided because of my health and needing to get it in control that it was best for them to live with him when custody was decided over two years ago. I am functioning better now but things still feel out of control at times. I do want another child at some point and I know how difficult it will be for me since I have not one but two disease that cause infertility. The other being endometrosis. I am 35 as well and I know I am running out of time fast. My clock is ringing my ears off so I may have to realize I may not be able to have more. Hard to accept but I might have to.

Scarlet03 2013-04-20 00:42:29 -0500 Report

having a thyroid disease and the PCOS, I had one miscarriage before my daughter…and pregnancy wasn't nice to me…ANYWAYS…Then at 28 I got diabetes, then the allergies started…and by 32 I had back surgery…I believe my one and only chance was her…and I thank god every day for it…even if it was before I got married…

And one nice thing is…she was born the same month as me…so she was Gods gift to me…:)

Scarlet03 2013-04-19 23:31:23 -0500 Report

Bella I hear you LOUD and clear…my one and only daughter shes 17…and on hormones…I wouldn't wish this on anyone either…and I do the same thing with pills I cringe…allergic to sulfa for a very long time, cortizone I can only take vitamins so long and I feel sick to my stomach…idk about iron pills, With my daughter Im glad she is taking hormones…cause at her age I was bad no period for a year and a half…No doctor knew what to do…all they cared about was the hair on my face…it was a living NIGHTMARE…
Getting back to my daughter…shes a healthy and happy teen…Im glad she is…she can live a normal teenage life

Graylin Bee
Graylin Bee 2013-04-16 11:01:28 -0500 Report

Since I had had an early menopause, My GYN did not prescribe any estrogen replacement. Since a whole lotta endo was found, I don't want any estrogen therapy. Just in case it would feed any microscopic leftover bits.

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