Restless legs or neuropathy?

By mcashmore Latest Reply 2013-08-27 21:03:30 -0500
Started 2013-04-09 16:42:29 -0500

So how many of you thought you had restless legs before Dx and found out/figured out it was actually neuropathy?

20 replies 2013-08-27 21:03:30 -0500 Report

me for two years now I get shootting pain in my toes after 7 pm all night long and keeps me up all night.ive been on potassium for years and magnesium for years now now for 6 months my toes are getting numbness all nite and half the morning lightly during the day back to the foot doctor again I hope he can give me something I sleep only 2-3 hours a nite.

sweet61 2013-08-27 19:23:41 -0500 Report

I am also losing feeling in my feet, especially the toes. I have been taking gabapentin for some time now, about 1800mg per day and it really helps with the pain and numbness. This drug was a godsend for me and it doesn't harm your body.

sNerTs1 2013-04-11 21:55:02 -0500 Report

I definitely have restless legs, always have. I cannot sit still without wiggling my feet or my legs. I have no pain whatsoever except for when my knees decide to click a tune or two but thats a whole nother story LOL. I learned from your post, from what others posted so I thank you for making me more aware!!
*Hugs* Cheryl

Nana_anna 2013-04-11 10:48:31 -0500 Report

So me! I was having numbness in my legs. Strangest pains and soreness especially at night. When I went to my Endoc…he checked me for neuropathy and said that the pain in my legs were from that. At least I know now. They are controlled thank God for that.

Anonymous 2013-04-11 11:23:37 -0500 Report

Thanks for the info Nana_anna. I'm really glad to hear that people can tell the difference between the two!

katcot2152 2013-04-10 10:27:49 -0500 Report

As for the pain? As long as I have had RLS -(Since the 80s) I have never experienced pain with it. I can only tell you from observation and what my father told me. And he said he had nerve pain. But he also said his feet were numb. I believe him on that because he had gangrene set in his foot and nearly lost his leg because of it.

katcot2152 2013-04-10 10:22:05 -0500 Report

I just have RLS. But my neurologist (he was also my father's neirologist up intil my dad passed away). is following that very closely. And my PCP has been supportive as well and checks me each time I go in, by pricking my feet with a pin. So I essentially have two opinions and they happen to have the same opinion about the RLS. Also, I have held a lot in re: my medical history - for one I don't want folks to think I am a hypochondriac…my children said, when I was going in for the heart surgery "gee mom, we didn't think it was that serious." My oldest son went with me to meet the cardithoracic surgeon and when the surgeon asked me "What took so long in you having this procedure done? it should have been done years ago!" My son just looked at me!

katcot2152 2013-04-09 23:56:25 -0500 Report

mcashmore, i have RLS, but the symptoms aren't the way you describe it. I get this creepy, crawly feeling and a very strong urge to move my legs. it wakes me up from a sound sleep, and I have to get up and walk around to calm it down. i finally got the gumption to go see a neurologist and he confirmed my suspicions of RLS. He put me on mirapex and it really helped. I can tell right away if I miss a dose or if I am late taking it because the creepy, crawly feeling comes back and I have to constantly move my legs. It is the most disturbing feeling I have endured. It impacts me mostly at night, but have had episodes if I sit for any length of time.

My father had neuropathy (he was type 2 on insulin) and his main complaint was numbness and nerve pain. His feet got so numb that he never felt the sore that wouldn't heal and gangrene set in. Fortunately his doctor sent him to Beth Israel Hospital in Boston where they did bypass surgery on his leg and that saved him from amputation.


mcashmore 2013-04-10 08:07:14 -0500 Report

The creepy, crawly feeling, yes. And the absolute urge to move. Mine seems more focused in the feet and toes and not so much the legs. I HAVE to curl my toes for some reason??? And when I brought it up to my GP, he said it didn't sound like RLS. Then, when I asked my neurologist about it, he increased my Mirapex dose…go figure. The twiching I think I've always had, and its more or less all over. The mag ox seems to help that out. So Kathy, do you have neuropathy also, or just RLS? And if so can you tell the difference between the two?

tinkerbell54 2013-04-10 03:39:46 -0500 Report

A friend to me about diet Tonic water . I use it for leg cramps. Tinkerbell54

katcot2152 2013-04-10 06:35:42 -0500 Report

Tonic water has quinine (that's what gives it that bitter taste) in it and that's is supposed to help with leg cramps. I never found it to be effective. I find that eating oranges, or drinking orange juice or eating bananas work best in preventing them in the first place. But I haven't had leg cramps in a long while. And leg cramps are quite different from that creepy, crawly sensation of RLS.


mcashmore 2013-04-10 08:09:33 -0500 Report

And I use to take quinine before I was ever Dx with RLS until it was supposedly not to be taken anymore. Am I remembering that correctly? I'm pretty sure I've seen it of late in RLS meds again. Or as my husband calls it…the Jimmy Legs!

mcashmore 2013-04-09 20:11:19 -0500 Report

Oh, and James, my husband has always said I twitch before falling asleep. I've noticed it more recently as well as an increase in waking with Charlie horses. I eat bananas to make sure my potassium is good as well as take mag ox which is a natural muscle relaxer.

jayabee52 2013-04-09 22:26:04 -0500 Report

The twitch before sleep,called a "hypnic jerk " I believe is a universal thing, for PWDs and non PWDs alike. there is a fascinating artcle on that here ~

My late wife needed to take potassium and magnesium because she was on heavy diuretics to manage her congestive heart failure (to keep the sac of water around her heart from growing too large and restricting it)

I get charlie horses often too, but those are due to my dialysis treatment making me dry. Sometimes I get them while on the machine and they stop the water draw on my body, and it eases up. The night after a dialysis treatment is the worst. They will wake me from a dead sleep! They do a weekly bloodwork and I get a monthly report and my potassium is in a normal range (actually high nornal) and my mag is in normal range.

mcashmore 2013-04-09 20:05:53 -0500 Report

So, if I've had that for years and been taking med, mirapex, for tx then I would wonder why this didn't show up when I got pregnant 7 yrs ago? Would it be because they are only looking for high BG readings?

locarb 2013-04-09 18:17:11 -0500 Report

It's not uncommon. Pending several tests, I had conversations regarding vascular disease and restless leg syndrome. Long story short, it was neuropathy…why was diagnosed before my Type 2 diagnosis. I have now learned that is not uncommon.

jayabee52 2013-04-09 17:22:32 -0500 Report

Yep it is happening more frequently for me now. I get electric shocks in my foot and makes my whole leg jump.

mcashmore 2013-04-09 17:08:34 -0500 Report

Sorry everyone, it somehow got posted twice…

jayabee52 2013-04-09 17:19:50 -0500 Report

pick one of the duplicates and red flag it and ask on the report box to have it deleted. Preferably not this one as I'll have to repost what I have written above.

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