Has anyone come off insulin?

rickbond1973
By rickbond1973 Latest Reply 2013-05-22 11:00:52 -0500
Started 2013-04-02 08:52:14 -0500

Just wondering…has anyone been on insulin and eventually been weaned off of it? T2 for a couple years now…doing horribly. Yesterday I noticed pain in both my feet and tested…almost 500. Scared the crap out of me…not the number (sadly), but the number PLUS the pain. Feet still hurt a little…tested 371 this morning after a coffee and bagel on the way to work. Going to call my PCP after this message. I imagine I will end up on insulin very soon as I haven't had any luck with my diet and time to exercise is difficult. I know…excuses excuses. I have a coworker that tells me once you go on insulin…he thinks there's no coming back off of it. Just wanted some input on that.


19 replies

rickbond1973
rickbond1973 2013-05-06 13:15:30 -0500 Report

Back to share…ended up seeing a different doctor at my doctors office as mine was out for the week. She was very…umm…stop being dumb and fix it. She didn't actually say that, but her personality did. They put me on Glyburide, in addition to my Metformin, and probably 30 minutes after my first 5mg dose of Glyburide, while cycling on a spin bike…I started feeling REALLY weird…tested 54. Woh!! I saw under 170 probably 4 times since being diagnosed 2 years'ish prior.
I did change some eating habits…not entirely, but worked AGAIN at it. Seemed like every other day that week I was dropping low…wasn't used to it at all…still not, though at least it's not foreign to me now. I probably go overboard trying to compensate when it gets low…oh well. So now…it's rare that I see over 200 (my morning bagel and coffee on the way to work still out me over…I'm sorry…I love my bagel in the morning).
I laughed at the doctor when she said to make sure I had something sugary on me after taking the first pill…she wins. I'm anywhere from mid 50's to 180 at this point…mostly probably 105 to 130'ish…don't feel much different other than when it gets under 70. Just wanted to share. Thanks again for the replies.

ilvtony14
ilvtony14 2013-04-05 01:38:35 -0500 Report

I was on lots of different types of insulin, including lantus. I changed doctors and he immediately took me off the lantus. Insulin was not controlling so we tried some pills Actos and Glymburide. Doing great and that has been 3 years ago. so yes you can come off of insulin.

rickbond1973
rickbond1973 2013-04-05 07:43:09 -0500 Report

Saw a dr yesterday…a1c is still high, right around where it was last test, putting me on Glymburide on top of my Metformin. Thanks for your input.

MoeGig
MoeGig 2013-04-03 19:23:07 -0500 Report

Insulin is easy…it's not horrible. What's 1000 times more horrible are the complications that can(will) result from lack of control. I've been Type 1 for nearly 50 years, and have always been in relatively good control. I take 2-5 shots per day, and it's just not a big deal…especially with the tiny needles we have today. You need to get control—immediately if not sooner. A1c has to get into the 6's and taking insulin is the best way to achieve that. I wish you good fortune.

MoeGig
MoeGig 2013-04-03 19:23:07 -0500 Report

Insulin is easy…it's not horrible. What's 1000 times more horrible are the complications that can(will) result from lack of control. I've been Type 1 for nearly 50 years, and have always been in relatively good control. I take 2-5 shots per day, and it's just not a big deal…especially with the tiny needles we have today. You need to get control—immediately if not sooner. A1c has to get into the 6's and taking insulin is the best way to achieve that. I wish you good fortune.

rickbond1973
rickbond1973 2013-04-03 20:12:02 -0500 Report

Thank you sir…dr appt tomorrow to see where things stand…and working on my mind to get it to acknowledge what I have to do

correctionsnurse1
correctionsnurse1 2013-05-22 11:00:52 -0500 Report

I agree with MoeGig, insulin is not that difficult, especially if you get the pen. I take 3 injections a day, do I like it? Of course not, but w/o it, I would prob be in the hospital. My A1c still stinks @ 8.3, but… I'm doing my best. Just think I need a change in meds. Good luck!

Mz Tara
Mz Tara 2013-04-02 20:11:32 -0500 Report

I was diagnosed 2 yrs ago (t2) with a bg of 1016, and an A1c of 16. I was put on humalog and lantus. 6 weeks later, after much research and counting carbs, my bg levels came down to normal…I took myself off of humalog (I was in the process of changing dr's) and when I got my new dr., he took me off of Lantus and put me on Metformin. So yes, it is possible…its even possible to get off of Metformin if you manage your diet and exercise (that will be a lifetime decision that you will need to keep up daily). You won't have any luck getting off of insulin if you don't watch what you eat and at least try to get some exercise in. I just recently started exercising (I'm skinny) but it's good for my blood pressure and keeps my levels down; however, I was still able to get off of insulin just by maintaining a healthy diet.

jayabee52
jayabee52 2013-04-02 19:11:59 -0500 Report

Howdy Rick.

Your coworker is incorrect. One CAN come off insulin given certain other things are happening for that person, because I was one who had been put on low doses of NPH insulin when my kidneys quit working back in nov/2006. I had been on Met. but that was contraindicated due to my Kidney problems. Fast forward to Feb/2011 and just after I had moved and hadn't yet set up medical insurance or even a PCP yet, my vial shattered on a ceramic tile floor. That was my last vial and it would be some time before a replacement could be acquired.

In the mean time I decided to see if I could get along without my twice daily injections by just eating a lot of protein and avoiding carbs as much as possible.
I found that my pancreas was still producing enough insulin to allow me to eat very carefully and still maintain decent control of my Blood Glucose (BG) levels.
I did get the new insulin vial but decided to try to eat in a way I wouldn't need the external insulin injections. With some trial and error I did come up with a way of eating which works for me. I had maintained my BG levels in the "normal" range, lowered my A1c from somewhere in the 6s to a 5.5, and lost about 65 lbs over about 3 mos. I have written it up here on DC and I will share it should you request.

So long and short, insulin in certain cases is NOT for the rest of your life.

Praying for your improving health

James

SandySilvers
SandySilvers 2013-04-02 18:57:42 -0500 Report

I was diagnosed with Type 2 last August with an A1C of 14. I was put on insulin right away because I ended up in the hospital with an infection and they really wanted to get my numbers down fast. 7 months later, I've lost 50 lbs, my last A1C in January was 5.6, eat low carb and healthy, and exercise daily. My doctor is keeping an eye on my numbers because they're dropping even lower with the weight loss. She may cut down my insulin when I go back at the end of April ( I'm currently on 15 units of Lantus every morning) and eventually take me off completely. I guess I'm just really thankful for insulin. It's nothing more than a minor inconvenience to me right now and it's helped to save my life. If your numbers are that high you really would benefit from it. And there's always the possibility of coming back down if you can get your numbers under control. Best of luck to you!!

alanbossman
alanbossman 2013-04-02 16:16:40 -0500 Report

I also not off completely insulin either I have drop my Insulin from 26 units once a day to 15 units a day. Jayabee is one who has gone off insulin and pills to eating a new meal plan and is keeping his numbers in control.
Alan

Graylin Bee
Graylin Bee 2013-04-02 16:05:21 -0500 Report

When I was 1st diagnosed I was given insulin once or twice a day most days while I was in the hosp. Since I had MRSA, cellulitis, and major open wounds, the Docs wanted my BG not to cause slower healing problems. At release, they prescribed it only if I hit 300. Never needed it…until operation #3 six months later. Again got a few shots while in the hosp. I don't remember what the BG number was that determined the dose. Since then I used metformin for about a year, then diet controlled. I think there is an expired unopened vial of insulin in my fridge somewhere.

ShellyLargent
ShellyLargent 2013-04-02 11:05:16 -0500 Report

Im not off it completely, but I have been able to drop my useage considerably. I'm on an insulin pump and I'm only using it right now for my basal. I haven't needed to take a bolus dose in a while. I'm eating lower carbs and calories. I've also lost a good amount of weight (close to 25 lbs and still counting!) thanks to Weight Watchers and calorie counting. I'm exercising more and that's really helping me to lower the insulin intake.

tabby9146
tabby9146 2013-04-02 09:24:25 -0500 Report

I am interested to see how many people have. I have never been on insulin, but I do know there are some on here who have come off. I will be checking back another day to read about them.

Next Discussion: new here »