Neuropathy complications

lanykins
By lanykins Latest Reply 2013-05-02 20:06:25 -0500
Started 2013-03-28 21:54:38 -0500

My neuropathy is getting very bad. I haven't felt my feet in many years. Now my hands have gone numb and it is hard to do anything with them. My legs are very painful. But the WORST has just begun. I was told that it has affected my bladder. I've been urinary incontinent for 10 years due to a very bad reaction to insulin but now I don't even know I need to go and am overflowing my Depend about once an hour. It is hard to go anywhere and at home I make a lot of messes, everything is getting wet. The doctor has now told me the only thing he can do is give me a Botox injection in my bladder about every 6 months. This is all very hard to deal with. I am going to go ahead with the Botox since I am desperate. Do any of you have really bad neuropathy complications?


16 replies

jayabee52
jayabee52 2013-05-02 17:34:58 -0500 Report

Sorry to learn that Lanykins. I have urinary incontinence also but not quite that bad. I usually only use 1 shield per day. Of course since I have to be on dialysis, I must limit my water intake to 2 liters per day.

lanykins
lanykins 2013-05-02 20:06:25 -0500 Report

I thank God I'm not on dialysis, that is one thing I really dread the thought of. You must find this very difficult. Do you go 3 times a week? Yesterday I had the urinary catheter removed for good. The nurse was replacing it every 3 days and I had had enough. So I am back to diapers but much happier. I am told to drink a lot of fluids. I would have trouble limiting myself to 2 liters per day.

I found out today that I will also be getting a companion about 4 hrs. per week who will drive me places and socialize, I need this. She can take me to the Joslin Clinic where I really want to go for diabetes treatment. It will cost me some but as long as I can do it, I will be very happy to have her!

Take good care and we'll talk again soon. Lani

Auburngirl73
Auburngirl73 2013-05-02 14:10:08 -0500 Report

I can not explain the feeling in my feet and legs… I have pain in my feet and toes but I have no feeling if you stick them with a pin…I take meds but it does not help at all. I can hardly wear shoes except for a pair of Nike flip flops. The only exercise I can do is swim cause of my feet. I wonder if my insurance company would pay for a pool since that is the only exercise I can do.

kisha82
kisha82 2013-04-19 00:36:34 -0500 Report

Scarlet03 when I went to a doctor that's exactly what they informed me that my muscles was weak in the bladder. I thought it may would have been a good idea for me to start working out to help with the neuropathy boy was I wrong I couldn't even hang in there for 5 min

Scarlet03
Scarlet03 2013-04-19 00:43:53 -0500 Report

The ones I mentioned are stretching…not strenuous like a gym…Id probably do the same thing…they gave me those exercise bands or ties to stretch…and you dont have to do it long…having ostioarthritis I understand how long a person can take it

kisha82
kisha82 2013-04-18 23:05:36 -0500 Report

I suffer from neuropathy myself and I'm always in pain, I've tried different types on medication, tried a tens unit as well as IVIG but nothing seems to help. Because of these issues that I have I lost my job due to me not being able to stand on top of not being able to walk for long periods of time. I also have issues with my bladder but I had no idea that neuropathy could be the cause of this.

Scarlet03
Scarlet03 2013-04-19 00:32:09 -0500 Report

Hang in there Kisha, Diabetic for 13 years and had spine sugery 9 years ago, so neuropothy in my legs can get extremely painful, I did pain drugs for a while but started getting addicted…so now if my legs are burning or anything I usually have a hot bath, or if they get bad enough I call the doc…I believe there are strengthening exercises for the lower half of your body…its not strenuous and I would look into it…the bladder thing could be weak muscles or something else…if the exercises dont work or if you want talk to your doc…

lanykins
lanykins 2013-04-26 15:50:11 -0500 Report

The bladder problems come from the nerves, as does all neuropathy. The nerves in the bladder get damaged and then it becomes difficult, if not impossible, to feel when you need to go to the bathroom. The bladder can hold a lot of urine and sometimes it will slowly leak out but it may all let go at once. When you lose all sensation, you lose all control. It is very much a nerve thing.

ShamefulSugarAddict
ShamefulSugarAddict 2013-04-17 19:58:20 -0500 Report

I drop things constantly. Never used to do that. Wear gloves most of the time because my hands are so numb and cold. Feels like some kind of arthritis almost. Shoulders as brittle as a bird. And the sharp pains - some of you know what I'm talking about - can stop you in your tracks and make you feel like you're going to have a heart attack. Stabbing in the feet and shins terrible numbness. Lucky for me between my wife and son I have a pedicure once a week and several foot massages a week. I HIGHLY recommend Gold Bond "Pain Relieving" Foot Cream it's wonderful with a fresh pair of socks immediately thereafter! For the pain I smoke marijuana. - It works for me…

lanykins
lanykins 2013-04-17 20:21:20 -0500 Report

Yes, I went through those things a long time ago with my feet, more recently with my hands. Now it's in my eyes and bladder. When I went to the doctor last week, I came home with an indwelling catheter and a bag strapped to my leg! I've been having troubles with it and am going back to the doctor tomorrow. I hope he can fix whatever the problem is. I'm getting very tired. Sure wish I could get some marijuana here, that might really help. I don't think they allow it even for medical purposes here in CT.

GinnyStarr
GinnyStarr 2013-03-29 19:55:48 -0500 Report

I am new to neuropathy. It has hit my feet and legs hard. If they are not numb then they are hurting very badly. I am still learning on this subject and would like any info or advice you might want to share. I don't get out much due to porr eye sight and walking with cane when can walk. Thank you for sharing. GinnyStarr

95ncountin
95ncountin 2013-04-02 13:42:41 -0500 Report

I'm sorry all of that is happening to you. Although I am newly diagnosed, I've had neuropathy in my feet for 5 years. I've tried many things. Nothing that works for long. Now I juggle pain meds so they continue to work. Wish I could offer more than empathy.

jayabee52
jayabee52 2013-03-30 14:35:50 -0500 Report

Howdy Ginny!

I have Neuropathy myself. Mine feels like my legs from my knees down to my toes are on fire. My arms from my elbows to fingertips are tingling, and I have other parts of my body affected as well.

Neuropathy is a really big subject as it affects people which have diabetes as well as many other conditions.

Take a look at what Mayo clinic says about the diabetes related Neuropathy here ~ http://www.mayoclinic.com/health/diabetic-neu... ( Please note the tabs immediately above the article which gives more information about the condition and there are links in the pages which give even more information. )

Praying for your improving health

James

katcot2152
katcot2152 2013-03-30 18:38:48 -0500 Report

My dad had neuropathy and as a result he couldn't feel his foot when it got infected - he darn near lost it (the local surgeon wanted to amputate) but his PCP was much wiser and sent him to Beth Israel Hospital where the surgeon took a vein and bypassed the one that was blocked and it saved my dad from amputation!

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