Have Postprandial Hypoglycemia?

By NinaNolan Latest Reply 2013-03-30 09:00:31 -0500
Started 2013-03-28 16:17:18 -0500

In Dec. 2011, I collapsed unexpectedly & 911 had to be called. My Blood Sugar was 23 at the time. Paramedics brought me out of it. After seeing an endocrinologist & a series of tests, I was diagnosed with an overgrowth of insulin-producing cells in my pancreas, Nesidioblastosis. When I eat a meal with more than about 7 grams of sugar (total), my bs spikes over 300, then quickly crashes into the 20's. I am taking Acarbose with each meal & attempting to follow a strict diet, but I still have these bs fluctuations about once a week. Last month, I had an episode that ended with me on the kitchen floor, having a seizure! Thank goodness, my 8 year old grand-dtr checked my bs, which was 25, then alerted her mom! I am lucky they were visiting, as my dtr is a student in Medical Assisting. She gave me an injection of Glucagon. I was a nurse for 20 years, so I taught all of my grandchildren, including 5 yr old twins, to accurately use a glucometer! When the oldest was 7, I taught her to also give me Glucagon injections, if need be. This disease really frightens me! If we can't control my bs well with diet & Acarbose, the endocrinologist said I will need surgery to remove approx. 70% of my pancreas. Does ANYBODY out there have this problem?? I have a large family history of Diabetes, both type 1 & 2, and have been told by my Dr she believes I have a high probability of developing Diabetes in the future.

9 replies

JSJB 2013-03-30 04:36:39 -0500 Report

Hope everything turns out ok. You are in my prayers.

NinaNolan 2013-03-30 07:43:34 -0500 Report

Thank you JSJB! I don't know if i'll find anyone on this site with the same condition I have, but it is nice for the diabetic community to be understanding & supportive. I've really had no one to talk to about this, and according to my primary physician & my endocrinologist, I'll be joining your ranks sooner than later! Take care! Nina :)

jayabee52 2013-03-28 17:23:51 -0500 Report

Wow that is scary Nina! I have not heard of that previously. My prayers are with you!


NinaNolan 2013-03-28 17:30:03 -0500 Report

Thank you, James. I've been told it is a rare condition. I haven't yet met anyone who has this problem. I liked this site, so I was really hoping to connect with some people who may understand & possibly help me along. I really appreciate you "friending" me :)

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