You & Your Doctor

LadyDi - 26259Miller
By LadyDi - 26259Miller Latest Reply 2011-01-03 10:11:19 -0600
Started 2008-12-07 08:25:18 -0600

I've noticed that many of the questions being asked seem to be ones that should have been addressed by the doctor when the person was first diagnosed, or at least at some point after the diagnosis. This is a good site for sharing information, but please remember that your physician should be your primary source and the one guiding your treatment, etc. It is very important - a must, really - that you and your doctor have an open and healthy communication. When first diagnosed you should be given all of the information you need to deal with your new life. Hopefully you would be sent to a class of some sort and would be set up to speak with a good dietician/nutritionist. There are so many sites on line, incl. the American Diabetes Association, that you should be able to find a lot of helpful information. But your body and your illness and your treatment are specific to you and need to be treated as such. Please work closely with your doctor. If you feel you are not getting the guidance and help you need, then consider finding a new doctor - perhaps an endocronologist. Take this seriously. The results of inappropriate or lacking care can be devastating. Good luck!

27 replies

Ginlea 2008-12-08 14:47:21 -0600 Report

I agree with what you said.I have learned a lot on my own from doing researching.My daughter is Type 1 and when I learn something I call my dietician and ask about it and she tells me it is correct.For example I learned that when counting carbs you subtract the fiber number from the carb number.Since fiber does not digest.I asked my dietician about this and she said that is correct but they do not teach that at the beginning.My daughter has had this for 3 months when were they going to tell me?
Other problem is What Gabby said,what do you do when you can not talk to your doctor.I personally do not do anything until I speak to the doctor but I do have problems and questions that i can not call him and ask him because he has other patients at the Hospital he needs to attend to so I have to wait until my appt. in feb. to get more answers.My daughter is healthy and the questions I have will not harm her if I do not ask right now.If I have an emergency I can call the RN nurse.So in the meantime I do researching for her and go to classes when there is any available for free.
I have questions about putting her on the pump. About when her BG number is high after a meal should I give her more insulin. Shouls she eat certain foods when she is sick (sick days) I do not understand all that information.Her numbers are high when she is sick so should I be feeding her different foods and if so would that kep her BG numbers under control?

GabbyPA 2008-12-08 17:39:22 -0600 Report

Being sick alone can make her numbers high, it is not just he food. That is why we have to be so careful about getting sick because it really gets us out of wack. I would talk to her doctor as soon as you are able about those things. You need to have a plan in place for when she gets sick.

2008-12-08 11:37:57 -0600 Report

I know what it is like to not have insurance and have to pay out of pocket. Thankfully, I now have medicare and medicaid. Have you thought about going to your local health department? You would be able to see a doctor and a nurse, and there is a good possiblity that they may have some free services that could help you. It's worth a try. In my opinion, it would be better than not seeing any doctor at all. But that's just me. Best of luck.

GabbyPA 2008-12-08 14:29:36 -0600 Report

I went to the health department and they say I make too much. I can go if I have a communal disease like rabies....geez.

2008-12-08 17:30:05 -0600 Report

I would like to see you get some help, but I certainly hope you don't get rabies!!! Our health dept. has programs where I can get free mammograms and pap tests. I can also get free flu shots. They also have other agencies they can refer you to. I guess different health depts. have different regulations and programs. I guess it depends on where you live.

GabbyPA 2008-12-08 17:37:32 -0600 Report

I had a great case worker. She tried really hard, but I just didn't qualify. I even explained that I just needed one appointment to get the labs done, but she couldn't help me. I called the hospital today to persue the "charitable" programs. I had to leave a message and no one has called back yet. So we will see if that avenue works out.

2008-12-08 17:43:44 -0600 Report

I hope that works out for you. I know before I had my insurance, I had to be in the hospital for several days. Our hospital here is a not for profit one, and they offer a charity program that paid for my entire hospital stay, over $10,000. Boy was that a relief.

GabbyPA 2008-12-08 17:46:08 -0600 Report

I had never heard about this before until Claudia brought it up. So I am curious about how it works and who will qualify. I just need a jump start...just the labs. I can get my meds (I think LOL) But the initial diagnosis is the expensive part.

marla3300 2008-12-07 21:20:20 -0600 Report

You are right on the money about having these discussions with your doctor. Do you see just a primary care physician or do you see a endocrine physician? I ask this because; many times a PCP doctor will not have all of the answers. They should have, but they are human and can be relying on old knowledge and treatments or for that matter just what the drug companies tell them. You have seen the pretty young women come into a doctor’s office to give samples and lectures on their products I am sure. I call them drug cheerleaders, because they very often were cheerleaders in school.
To really get the answers we seek we should ask an endocrine physician or RN. However; this web site allows us to build not just knowledge about our illness, but a support group. If you have asked a question and are given answers from your friends here, write down the questions and answers and discuss them with your Doctor.
Many times we feel embarrassed about asking questions face to face even with a physician, plus many times we forget to ask. Also how many of you have an over worked doctor who rushes you in and out, and in doing so; you forget half of the issues you wanted to discuss with him or her?
I plan on taking another class about how to deal with my diabetes. One can never refresh your knowledge on this. Practice makes perfect!

RedGloves 2011-01-03 10:11:19 -0600 Report

Thank you. I was out here trying to research what kind of physician I need to look for if I switch and wasn't positive that a Endocrinologist was the answer. Seems it is.

LadyDi - 26259Miller
LadyDi - 26259Miller 2008-12-07 21:31:39 -0600 Report

I personally receive care from my primary physician (general practice) as well as an endocronologist. As long as I was able to adequately control my numbers under the GP's watch, she and I were satisfied with that. However I recently had a few high readings, as well as an increase in my A1C, so she insisted I see an endocronologist. I had been misbehaving and not watching my diet, so knew that was the reason. Now that I've gotten it together and got back on track, my numbers are great.

GabbyPA 2008-12-07 18:59:04 -0600 Report

All good in theory, but what of us who cannot see a doctor? Sometimes it is very frustrating. Then I hear from people who have had diabetes for years come here and learn more than they had in the years that they had been in a doctor's me a synic, but sometimes it is over rated.

Then, like in my case, even if I did see a doctor and wanted to see a specialist, becuase I don't have insurance and have to pay cash, they won't even set an appointment for me. How caring is that?? These are the folks that are supposed to help me with my diease? I don't think so.

I'm sorry, but this is such a sore point with me, it just comes out that way. It makes me feel hopless. So all I can do is take it on myself and do the best I can. That is why sites like this are so valuable to me. It is my life line...I have several, but I like this one the best.

highlandcitygirl 2008-12-07 19:05:45 -0600 Report

gabby, you sure are in a situation! it is awful to have a chronic illness and have no insurance. the powers that be have been promising help forever, i haven't seen much come of it. just a lot of hot air!

GabbyPA 2008-12-07 19:08:59 -0600 Report

Yeah, that hot air is one giant "balloon Glow!"

I try not to think about it too much and keep on doing what I am doing. I know that I am going in the right direction, and I would like to have the meds to get me in the range I need to be in, but I can find a way to get there. It is just taking a little longer than I was hoping.

LadyDi - 26259Miller
LadyDi - 26259Miller 2008-12-07 19:18:06 -0600 Report

Gabby, I've read your other posts (even replied to a number of them), and I want to say again how much I admire you for taking the bull by the horn and researching and learning on your own. What a task, and you've obviously done a good job, because your posts are always so right on and so helpful. I do realize that there are many folks (way too many) who do not have health insurance. My own daughter went without for a number of years, and she has multiple health issues. I understand that working with a doctor or a specialist is not always possible, but for those who are able I think that they need to realize the value of letting the doctor be their primary source of information and guidance. I wish I had the answer to the health insurance problem in our country. I continue to pray that things will be better very soon. In the meantime, let me say again how much you add to this site by sharing all that you've learned and found useful to you. I hope you'l continue to do that! God bless you.

GabbyPA 2008-12-07 19:37:30 -0600 Report

I know you are very right in your post. It is just a sticking point with me. I used to see mine every 6 months for labs and visits when I had insurance. It was great.

Medical advice and getting a doctor that you can trust is vital. I actually do like my doctor, I just have not seen him in over 2 years...yikes!! Since I lost my job.

I kind of sneak in some stuff when I go in with my husband on his visits. He has medicare, so he gets his labs and visits done simi-annually. Infact, I can't wait to finally get to set an appointment and show him all the weight I have lost.

He is good as a general DR, but he is not so great as one for diabetes, as my mom goes to him and he often discredits anything that she does outside of his suggestions. That kind of bothters me.

LadyDi - 26259Miller
LadyDi - 26259Miller 2008-12-07 19:48:41 -0600 Report

I assume you are not eligible for Medicaid? It is just criminal how many people there are like you who have to do without appropriate medical care. I'm on Medicare and have a Supplemental Policy and Drug Policy, but I get into that doggon "gap" about mid-year and end up paying out the gazoo for my maintenance drugs the remainder of the year. I sometimes feel like just chunkin' 'em all in the garbage, it's costing so much. But I'm thankful that I can at least get the care I need. I'll keep plugging away on the drugs until I simply cannot.

GabbyPA 2008-12-07 19:55:41 -0600 Report

My mom has that "dougnut hole" she calls it. LOL Her's, fortuantely comes in December, so she can manage it. Fixed income living is rough for so many. Though I would be happy to even have a fixed income...any income! LOL.

Unfortuantely, I am in that limbo zone. I just have had my income decrease to less than 50% of what it was, but I have the life of the previous. So we have divested, cut and surrendered many things to be within our means. So as my "means" continue to dwindle, then I just might qualify, but not yet. One more tax form, and maybe next year.

However, I would rather have increased means! LOL

LadyDi - 26259Miller
LadyDi - 26259Miller 2008-12-07 19:59:50 -0600 Report

I know what you mean. I hope I wasn't too bold to ask about Medicaid. Not being nosey, but just hate so much to hear of situations like yours. I felt sure you would have checked that out already, however.

GabbyPA 2008-12-07 20:12:08 -0600 Report

Nah...I am not one for being too personal. It is a downfall of mine sometimes, but I figure there is nothing of me that is needing to be hidden, so I have not qualms about sharing.

2008-12-07 14:51:45 -0600 Report

I agree with you completely. I, too, am fairly new to this site, and it has been very helpful to me. However, I believe as you do, that the first line of communication should be with your doctor. It is helpful to come to this site and talk with others with the same medical condition, but your doctor is your primary go to person.

2008-12-07 12:19:41 -0600 Report

Agreed!! If you aren't getting information from your doctor though please seek a new one or do your own research. If you have internet access (which you obviously do because you are here on this site lol) go to all the diabetes sites and read what is there. There are many sites out there with ton's of information. Some of them will even help you set up a meal plan to get you started. You have to be willing to do the work though, noone is going to do it for you. Diabetes is a personal disease, it affects everyone differently so you need to tailor your treatment to YOU and you are the key player on your team!!

Good luck and good health to all!


vgarrison 2008-12-07 11:32:27 -0600 Report


Unfortunetly the key word in your post is "hopefully"…some of us have crappy doctors…when I was first diagnosed I was told here take this pill…I told him no you tried me on that in the hospital and it skyrocketed my bg levels…and the sad part was it was written right there on the front page of my chart…I could see it where I was sitting…then he said fine take this…come back in a month…no explination nothing…therefore I got another doctor…but because he saw that I was already diagnosed he assumed that I knew everyting and didnt send me to a class or CDE or anything…I'm moving in a week and I already have appt set up with an endo…he knows the situation and will rectify it…I have to move 3000 miles to get a better doctor…what about people that can't move…it's horrible for some…


LadyDi - 26259Miller
LadyDi - 26259Miller 2008-12-07 13:50:37 -0600 Report

Not sure if your move is only to find a good doctor or not, but if it is that surely is sad and ridiculous. Unfortunately there are some "lemons" in every profession and industry, and it looks like you got one. Sad that there are doctors out there that treat their patients like yours did. I pray you receive better guidance from the endo, and feel you will. If not, however, try again. There are just too many capable and caring doctors out there for you to have to jeopardize your health. Good luck, and don't give up!!

vgarrison 2008-12-07 14:27:43 -0600 Report

Oh I do apologize, no my move is not based on finding a new doctor…but it is deffinetly a bonus…

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