Anyone dealing with gastroparesis

Patty 00
By Patty 00 Latest Reply 2015-07-26 06:07:28 -0500
Started 2013-03-05 02:34:40 -0600

I want to know anyone suffering with gastroparesis due to their diabetes? What has worked for you during flare ups? How often do you get flare ups? Or anything you would like to share or any questions.

6 replies

Angelewing 2015-07-25 17:01:43 -0500 Report

I was diagnosed with with Gastroparesis into thousand 10 I was hospitalized 12 times in two years honestly changing my diet to more of liquids made it better but I was still having attacks after staying in the hospital for 21 days A doctor decided to try me with the fentanyl 50 mg patch it is Opium it works perfectly but it is highly addictive this is a narcotic it is a miracle drug for me but there are side effects such as anxiety and Mood swings which may be caused from my hormones not reproductive I had a complete hysterectomy so I'm not sure if that's where that comes from as a long-term fix don't know what it may do to my kidneys and liver but I can say with the use of this drug I have not had any problems with gastroparesis good luck with finding a doctor to write the prescription my recent problem now is my Doctor No longer wants to write the prescription because of all the drug abusers in the United States don't know what I am going to do now I recently started taking probiotics and it seems to help as well and ginger root & peppermint for the nausea in my situation I have learned that if I can control the pain that I will not vomit also anger and stress exacerbates the condition try not to let anything upset you and you can control it better also keep your sugar levels under control God bless us all with this horrible conditions I was diagnosed with gestational diabetes type two I have been a healthy eater all my adult life so I fell victim by no choice I received no compassion from the healthcare providers because in their minds it's our fault because we have gotten to this stage that's very sad because I have learned a lot just by being on this site A lot of physicians need to discover this world i've learned so much and good luck hope this works for you.

Patty 00
Patty 00 2013-03-07 13:05:25 -0600 Report

What I mean by flare ups is when it gets so bad you can't eat anything or even drink water. You can't take your meds and you get dehydrated to the point of almost passing out. The worse part is not being able to take the meds to control the vomiting, nausea and the pain. Hope you are well.

Angelewing 2015-07-26 06:07:28 -0500 Report

Their is a pump they make for the anus it is valum it's designed for epilepsy and seizure patients wants administered it calms the body down I never used it because when I mentioned it to my doctor she just shot me down saying she knows nothing about that I was shocked but I have tried the Finnegan suppositories and paying jells to my stomach every 2 to 3 hours until pain calms down by then try to go to sleep because once the body is at its most relaxed state the pain will go away and vomiting will stop keeping the body at its most relaxed state is the key to Gastro paresis for me wearing the fentanyl patch 50 mg changing it every 72 hours is how I have been able to stay out of the hospital. I have not been hospitalized in a year because I can control it at home by the simple steps that I just told you this is something me and my husband figured out NOT the doctor she stated she was learning from me because I was the only Gastro paresis patient she had at The time. My A1c1 was staying hi. Because as we all know stress affects the glucose levels so stay on top of controlling both is the key to managing your diabetes. keep in mind the doctors separate the two when they should combine the two what I am saying is that you have to control both Gastroparesis and glucose levels in order to live a comfortable life Gastro paresis is not controlled by oral meds because as you mentioned nothing stays down everything is vomited back up having your physician to prescribe meds that are administered through the skin or through the anus is the only way you will control it on your own. I hope this works for you and everyone who's reading this . any thing else that I learned I will share. I am presently working on controlling it an not letting it control me education is the key doctors practicing can't die waiting for them to figure this out they are now labeling Gastro patients as pain seekers so sad because we are in constant pain with this condition and some of us die because no compassion and concern about what is going on with us good luck I hope that I was some help to you and others The doctor that I was seeing name Amy Strossburg in mobile al . I am presently looking for another doctor so if anyone out there know of one thanks in advance

Mikeal72 2013-03-05 22:26:11 -0600 Report

Ironically enough, I was diagnosed with gastroparesis almost two years prior to being properly treated as a type 1 diabetic. Honestly the best thing that has helped my digestion has been insulin and stable blood sugar levels; in addition to a high fat diet. However before all that happened I thought that apple cider vinegar helped the most along with digestive enzyme and betaine hcl supplements. I feel really bad for you, I totally understand yhe misery that is a lazy stomach

Patty 00
Patty 00 2013-03-05 03:52:01 -0600 Report

How often do you have those nonstop throwing up days. With so much pain you can't do anything that you end up the hospital. I have really bad gastroparesis that I constantly have to go to the hospital. I can't work because everyday in its self is a struggle. I have tried numerous medication and treatment but nothing has completely worked. At first when I start the new medication I am ok for the first few weeks then my body gets used to it and it goes back to not tolerating anything not even water and I am constantly throwing up to the point I throw up blood and have to be admits for several days or weeks at a time.

Simlpy Me
Simlpy Me 2013-03-05 03:23:42 -0600 Report

Hi, I have Gastroparesis but I believe mine is from stomach surgery I had years ago, I am however a Type 1 diabetic of some 30 odd years. What do you mean by flare ups exactly?

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