Issues with School Setting

By Anonymous Latest Reply 2013-03-07 22:30:13 -0600
Started 2013-03-05 00:12:03 -0600

My daughter's school that she attends won't always follow the Care Plan and I get several emails daily from her teachers complaining that Sydney was either late for their class, or had to leave their class to go to the clinic for bloodsugar check. Usually the school nurse will call a family member to pick Sydney up if she has a correctable high reading, with no ketones. I'm at my wits end with this issue, what can I do???

14 replies

Gwen214 2013-03-07 22:30:13 -0600 Report

Wow, I'm surprise the school system is uncooperative, especially about a chronic health condition. Also, especially when it's important to treat the lows or highs. Which could be a life or death situation.

Mair 2013-03-06 11:59:58 -0600 Report

Your school has to comply by the state laws, Contact the American with disabilities offce in your state and they will guide you o how to proceed. many times the total care plan is not coveyed to teachers. Suggestion email all the teachers she has and let them kow what is required. Also contact the school counseler. My husband teaches and once this is given to all teachers it must be followed.

IronOre 2013-03-05 14:57:05 -0600 Report

the schools have state rules (laws?) that need to be followed, and it drives me crazy !
I got type 1 as a freshman in high school (38 years ago) and if I had to do what today's kids need to do I would have never survived.

Sydney's Mom
Sydney's Mom 2013-03-05 09:18:08 -0600 Report

We have a 504 plan in place with school plan, and the school system wont allow students to transfer any meds or equipment to any class or bathroom, I've been exploring our Civil Rights, and see what I need to do about this, they shouldn't be able to make it even harder on Sydney or her caregivers.

deafmack 2013-03-05 18:16:25 -0600 Report

If you have a 504 plan and you put in it that Sidney shall be able to carry her diabetes supplies to all classes and all school activities on campus and off campus then the school cannot argue that point. They have to allow your daughterr to carry her supplies. Their denial of that right is just plain discriminatory. She should have to leave her supplies with the nurse. That is just plain nuts.

Sydney's Mom
Sydney's Mom 2013-03-05 16:33:29 -0600 Report

Its really frustrating to Sydney and all of our family. I felt that if I didn't send the letter, that it would continue. They've basically told me that they don't want to be held liable, and I have to say that the only time they would be held liable is if they don't abide by the 504 plan or the drs care plan..this is my daughter's jr year, she don't have much longer to go and she can graduate, but the next diabetic that walks through their doors will more than likely be treated the same way if someone don't stand up now and support all diabetics that are in school.

deafmack 2013-03-05 09:13:22 -0600 Report

Do you have a 504 plain for your daughter. Legally it holds much more weight than just having a diabetes care plan. Also it would help if your daughter could test and treat the low or high in the classroom so she would not miss so much classtime. If she needs the nurse the nurse should come to her not the other way around. The 504 plan will protect your daughter's rights as a person with diabetes and also include her care plan in it. I would also call 1-800-Diabetes and let them know what is happening. They will help you with this dilemma. The American Diabetes Association would be your best bet since from what you are saying it sounds like she is being discriminated against and that behavior is illegal. Also you can find your state and see if they have any laws regarding schools and kids with diabetes. To me students should be able to have their diabetes supplies with them at all times. They should not have to traipse to another room to treat a low or correct a high blood sugar. It takes too much time out of theiir school day and they miss too much and class work and it isn't right. If you have a 504 plan and it is not being followed then school is breaking federal law. If you don't have a 504 plan then make sure your daughter has one. It will protect her in so many ways. By the way, don't let the school tell you that your daugnter doesn't need a 504 plan or doesn't qualify for one. She does and in fact any student with a chronic condition such as diabetes or asthma.

raccoon mana
raccoon mana 2013-03-05 05:50:10 -0600 Report

talk to the school district superintendant. i had the same issue with my son when he was in school. only his issue was severe asthma and sinus infections. heaven forbid he missed a day of school or needed his inhaler. it is a form of discrimmination as far as im concerned.

Sydney's Mom
Sydney's Mom 2013-03-05 13:20:30 -0600 Report

I've tried a little bit of everything, and then discovered that I could review the federal laws for protection of diabetics civil rights and when I researched the laws, the school isn't complying with atleast half of the guidelines required for diabetic care. I then copied off the Federal Laws and wrote the school administrators a letter and asked them nicely to recognize the guidelines and. Abide by them to avoid me filing a complaint with the US Department of Education Office for Civil Rights. I will fight for Sydney's right to her education, and always make sure she is being cared for properly.

deafmack 2013-03-05 18:12:19 -0600 Report

I think your best bet is to call 1-800-Diabetes and let them know what is going on. They will provide you with an advocate that is well versed in the laws that protect your child and can also act as a mediator in a way that works well for everyone. This advocate will be familiar with the lboth federal and state laws and will be supportive of your daughters's needs and rights. I think it would be a good idea for you to have one. I do wish you the best and know it has to be frustrating to deal with these people who are carelesss and reckless to say the least.

jayabee52 2013-03-05 23:52:57 -0600 Report

perhaps this is best addressed to the Dept of Justice. If you have further questions requirements of the ADA, you may call the U.S. Department of Justice's toll-free ADA Information Line at 800-514-0301

Sydney's Mom
Sydney's Mom 2013-03-05 05:12:02 -0600 Report

I've tried several times for several years, they don't seem to care, I can't tell you how many times Syds insulin went home with another kid, or the vial got busted. I feel Sydney is being discriminated.

Stuart1966 2013-03-07 11:45:25 -0600 Report


Here, every ridiculous med at school requires the script be attached to them without exception. Complete stranger gets/got your daughters insulin 8 O. They better prey they are diabetic too! But that's just nuts…

That vial should stay at school period. You should have several at home. Whether she keeps one on her is an arguable point. But, if she has one accessible at both ends of the trip, seems the easiest solution. No hauling involved, just get to point A or point B… either one.

Sure sounds like discrimination, and not the hummmngh, I wonder if it is… what you describe sounds VERY clear.

Something else to consider, find out who the other diabetics at the school are. Your daughter can find out in lots of ways. Speak to counseling, ask the nurse, and act a little bit if necessary… I'm so alone… I cant figure this stuff out easily, want to find another diabetic my age to… all kinds of versions to use. Regardless, there are potential solutions among and between you.

Start with the nurse(s). Proceed to the school counselors. Then speak to the principal. Principal Schmuck, five sets of diabetic parents want to make you aware of serious problems, entirely fixed at this level.

Lets get this off all our plates, its a no-brainer … and entirely avoidable. What are you willing to help us with (sic. The ADA is clear)?