Neuropathy

Emartin871
By Emartin871 Latest Reply 2013-03-13 14:14:04 -0500
Started 2013-02-28 19:09:21 -0600

Hello my name is Ed I'm 51 and suffer from neuropathy in my hands and feet, I was wondering if anyone else has this and how your taking care or what Meds are you on


19 replies

Jan8
Jan8 2013-03-13 11:42:39 -0500 Report

I know that awful feeling. My neuropathy is in my feet and legs and I was in agony until the doc gave me lyrica and cymbalta. it took a little while to work but I have absolutley no more pain or burning.

jayabee52
jayabee52 2013-03-13 13:23:37 -0500 Report

you are on both at the same time Jan?

Jan8
Jan8 2013-03-13 13:46:46 -0500 Report

yes and they're great!

jayabee52
jayabee52 2013-03-13 13:52:16 -0500 Report

glad to learn that's working for you!

I believe that one or both of those (I'll have to check) are in the Non Steroidal Anti Inflammitory Drugs (NSAIDs) I had developed a bleeding ulcer due to NSAID use. So I am reluctant to use another. Just got the ulcer healed and don't want to break it open again.

Jan8
Jan8 2013-03-13 14:00:41 -0500 Report

neither are NSAIDS. They work directly on the nerves that cause the pain. I can't take opioids so I'm out of luck as far as they go and neurontin LOL makes me so very loopy. Once I was coming home from a Christmas party and had no idea where I was. It was my sister's house and I've been there hundreds of times. Cymbalta is also used as an antidepressant. so you get 2 for1.

jayabee52
jayabee52 2013-03-13 14:14:04 -0500 Report

Oh thanks for that Jan

I just got back from checking both of those out and Cymbalta is containdicated for me due to my Kidney failure (dialysis).

But maybe lyrica would be OK.

deafmack
deafmack 2013-03-05 10:03:44 -0600 Report

Hi, Sorry to hear that you are having so much trouble. I do as well. I joined two neuropathy support groups as a result. I take Benfotiamine (active B1) and Metanx which is Methylcobalimin and the active forms of B6 and Folic acid. I also take Gabapentin and Nortriptylin and Vicodin for break through pain. I have learned a lot through the support groups. Most of my neuropathy is due to food allergies such as corn. Despite all of this the best thing you can do is get your numbers down to normal as close as possible. Damage to the nerve and blood vessels starts at 140, so your goal should be to get your numbers down to that level. Doing so will be the best help you can find.

Jim Edwards
Jim Edwards 2013-03-01 15:23:09 -0600 Report

Ed, I see a Rolfer, aha spinal manipulation aka spinal intergration therapist every 2 weeks. He has helped with my hands, except the top of one thumb. He knows what nerve it is, but has not been able to get it to release. My feet "lock up" and as they are doing so, I experience nerve issues. He frees these up as well. I have begun to write the alphabet using my big toe. As youe write the alphabet with your feet you take them through a wide range of motion. It is believed that decrease blood flow is the cause, so movement is important. One of the other things I do in my stocking feet is put my toes on the end of a stair and drop my heels and then push up with my toes. My daughter is a Rolfer, but sadly for me, she is on the west coast. If you have trouble finding someone in your area she may be able to help. www.portlandrolfer.com Her name is karin.

Emartin871
Emartin871 2013-02-28 21:22:33 -0600 Report

Thanks, right now I take Neurontin and Cymbalta and also an opiod for pain. I have taken Lyrica but made me pass out, something is not working, the pain is terrible.

CarltonS
CarltonS 2013-02-28 22:47:32 -0600 Report

Wow that is bad. Lyrica is what I was taking but I'm on Cymbalta and it seams ok.
Hope you find some relief some how. I was put on Fentanyl pain patch after my 2nd back surgery and now I'm stuck. I can not get off, it to is an opioid.

locarb
locarb 2013-02-28 20:25:00 -0600 Report

I take Nucynta-ER for pain and Lyrica also. I additionally take Benfothiamine. I also, on occasion, have to take additional opiods for pain. The other things that I do include yoga twice a week and a treadmill an additional two times a week.

jayabee52
jayabee52 2013-02-28 20:03:47 -0600 Report

Yes Ed, there are a lot of people who have this (and worse) here. I am not currently taking anything for my burning Neuropathy.

I had been taking a lot of supplements but needed to discontinue them under Dr's orders. I am starting on dialysis (now on my 3rd week) and we're still sorting out the med and supplement situation.

I had taken Rx Neurontin/Gabepentin in the past and Rx Nortryptelene but neither did much to diminish the burning pain.

Some have reported easing of pain with Gabepentin or other anti depressants.

I pray you find relief somehow. Wish I could.

James

karenalb
karenalb 2013-03-09 21:40:37 -0600 Report

Becareful with gabapentin its very hard on the liver.My husband has developed stage 4 liver disease and cirrhosis from his diabetes.We have learned the hard way what all these medicines that are prescribe can actually be detrimental to your health

jayabee52
jayabee52 2013-03-10 01:55:35 -0600 Report

I had stopped Gabapentin several years ago. I try to avoid prescuption meds as much as possible.

Thanks Karen!

James

CarltonS
CarltonS 2013-02-28 22:24:20 -0600 Report

I was taking Lyracia until last year when my Dr. visit was the same as my prostate surgery. I have not made a new appointment as of yet. I was wonting to wate till after my next visit with my urologist and my PCP this coming march. Need to see if my PSA is still down, since my first visit after surgery was a high PSA with cancer then 3 months later it was down, so now this one will be 6 months. Just hoping it will be down. I know I stepped out of the conversation of nerve pain, but for me it is connected.
Good luck to y'all.