So I Have To Ask....

By CassBen Latest Reply 2013-02-23 13:52:19 -0600
Started 2013-02-20 21:41:22 -0600

I have had type one diabetes for 43 years. In that time the changes in technology and how we care for ourselves has been incredible.
However, in the last few years it has become increasingly difficult to care for myself as I should. I am not speaking only of the financial burden here, but (and maybe more so) of the emotional strain of knowing I need to be doing certain things for optimal health, and having to choose between what I can and cannot afford. for example, I have retinopathy but I have not seen an eye doctor since 2007.
So I just have to ask,…how do you deal with the frustration of knowing what you need to be doing, but making do with doing what you can?

13 replies

MoeGig 2013-02-23 12:31:33 -0600 Report

Been T1 since 1965, two more years will be 50 years. In my case, went on Medicare, and for $100/month out of my SocSec, got into Kaiser Perm. It's very cost effective, plus they have all the docs you need. Everything from cardiologist to Eye doctors to endocrinologist, all under the management of an in-house gp. Fear of developing complications is what drives me to stay on the "straight and narrow". Pushing 70 at this point, I do not want to have the last 10-20 years of my life in misery. Just read some of the discussions on this site to see what can happen. I guess for me, fear dominates my psyche and puts emotional strain in the background. I don't agonize about all the stuff a diabetic has to do, I just do it because I'm scared of the results if I don't. Maybe that doesn't make sense to you, but it's what works for me. Good Luck.

jayabee52 2013-02-23 13:52:19 -0600 Report

back in 2008 -2010 I was on Kaiser permanente ins also (my new wife got me in) and I have to say KP is excellent! Too bad they are not here in LV or I would still be with them. The nearest KP facility is about 3 hrs away from me now but they were so good I actually considered driving there for medical care.

Mz Tara
Mz Tara 2013-02-22 10:35:02 -0600 Report

I feel your pain, when I first diagnosed I had no insurance, had no prior education in regard to diabetes and there I was with a $500 medication per month bill, food to go with the insulin (and that's not just ordinary food), supplies that totaled about $300 a month…not to mention meds for hypertension … my lights got turned off because I couldn't pay, my water got turned off because I couldn't pay, my cable got turned off because I couldn't pay … I just felt like "well, why did they save me…FOR THIS?" I am now stuck with a $8,000 hospital bill and the e.r. dr's are sueing me for their portion … smh. Just recently I caught a cold and had to choose between the cough medicine (the pharmacy said that there were only two brands I could use due to my hypertension) and test strips.. I chose the strips because at the end of the day, I have to know what my bg is WHILE I have this cold… and in the meantime, I just have to suffer with the cold. While I now have insurance, I still can't go to the dr when I need to because I can't always afford the co-pay …mind you I work 40 hrs a week and get paid decently… but trying to recover from the setback when I was first diagnosed is hard and I am still trying to recover. Just wanted you to know, like everyone else here… that you are not alone …

Gins 2013-02-22 09:56:43 -0600 Report

Hi, I am going through a similar situation. I feel like my whole bank account is spent on supplies, and at the same time i had to have cataract surgery in both eyes. I find it extremely difficult to manage all this, even though I have been s type 1 for 20 years. I feel like I should be used to it by now, but truthfully, I don't think I will ever be used to it. I guess I can't provide you with any "answers", but just letting you know that you are not alone in this.

CassBen 2013-02-22 10:19:03 -0600 Report

I know I am not alone. What's nice is being able to share that with people who really get it. Some days we're used to it, and some days we're not I think. It just seems to be getting more difficult to afford everything we need as diabetics. Thanks for your answer, I appreciate it

2013-02-21 17:04:53 -0600 Report

before I looked at the paycheck which said $7467, I have faith that my mother in law woz like they say trully erning money part time on-line.. there aunt haz done this for only 10 months and a short time ago repayed the morgage on there mini mansion and purchased a brand new Car. I went here, jump14.ℂom

type1's mom
type1's mom 2013-02-21 16:23:12 -0600 Report

I have no advice for you but just wanted you to know I can imagine how frustrated you are. It's got to be hard picking which thing seems the most important! Luckily I was able to get my son signed up for Medicaid and just have my fingers crossed they don't drop him in a few months

CassBen 2013-02-22 09:13:00 -0600 Report

My fingers are crossed for you! I have no doubt that you fight for your son, but remember to take care of yourself as well. My mother, fighting with the school system when I was a child about my diabetes needs, once told me: "The most important lesson I learned from having a child with diabetes is remembering to advocate for myself as well". I felt a little bothered by this when I heard it, but when I thought about it, it made a lot of sense! Sometimes this only took the form of an afternoon off from anything diabetic related to do whatever she wanted…I get that! You go mom!

davidhogan 2013-02-21 16:21:28 -0600 Report

You might want to take a look at another discussion today-

for some ideas on getting assistance, but I know your question was how to deal with the frustration. For me I try to remember to be grateful for as much as I can, even if it is just not having to endure a past pain. I am a firm believer in two things:

1. Gratitude is one of the healthiest human emotions

2. When times are really bad finding something to be grateful for, makes you even more grateful even if you have to strain to find that first thing.

Hang in there!

CassBen 2013-02-22 09:53:24 -0600 Report

Thanks for sharing that discussion. I have been there and I know things could be a lot worse. And…you reminded me: I generally do live in the moment. It began as a coping mechanism and became a positive way of life, and having had very serious complications that almost took my life, I do remember to be grateful for every day I have. Despite the occasional frustration because it could or should be better I am a happy, positive, mostly content person. Guess every now and then I need a nudge in the right direction…thanks! I think this site is going to be very helpful and positive. Wish I had found this a long time ago

jayabee52 2013-02-22 09:59:53 -0600 Report

I wish I had it available in 1995 when I was first Dx'd, I might not have made the mistakes I did after the Dx. Perhaps I would not be in as bad shape as I am now.

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