Im new

By gap2368 Latest Reply 2013-02-24 14:37:10 -0600
Started 2013-02-17 22:00:10 -0600

I am 30 years old and went to the dr. this summer she did a BS test and it was 289 ( or something like that) said I was D and told me that I was type 2 sent me to the diabetes clinic in my town they said that I did not look like a type 2 ( I'm 5 foot and about 115 ) so I'm not over weight at all I had been losing weight with out trying at all they suggested that I see an endo. went to see one they said that I was probably a type 1 ran some test C-petide came back with in normal range but I had very hight GAD65 anti bodes of 30 and another anti body was hight. this all happened in october and by december I was but on insulin because I was going in the 300 to 400. now I'm doing better with my BS with in normal range most of the time I do have some lows and hight numbers ( still tying to get my I to C ratio right ) I feel like I get it then it changes ( I have been told I'm in the honeymoon phase) will my I to C change constantly or will it be pretty even when I am not in the honeymoon phase? also my PCP who dx me originally still says I am type 2 while the other who work with more D people way Im type 1 do you think it matter? ( I do know when I picked my insulin the insurance was not going to cover it could it be that my dr. says in type 2 and I'm on such a low does they think I do not need it?)

19 replies

Mikeal72 2013-02-24 14:37:10 -0600 Report

I think the diagnosis between type 1 or 2 definitely matters for insurance purposes. Get your regular doctor to talk to the others. It will be less of a hassle with the insurance. I was in a similar situation to yours, particularly with being underweight.

annesmith 2013-02-24 01:04:36 -0600 Report

My type is not official either, and I have been so poor for the last 15 years, that I struggled to just keep one excellent endo. My C-peptide showed I produce 10% of my own insulin, there is no question by any of the doctors that I am brittle, they all agree on that, because my numbers change erratically all the time, every 10 minutes, every 20 minutes, etc. However, HERE is the big mystery, and I am scratching my head: One antibody test was moderately high, the other about a year later was slightly below moderate, another one was high. I have no idea what's going on there. I lost my last endo, he was wonderful, he found 99% of everything. One test in the emergency room about 7 years ago showed I was producing short term TRUCKLOADS of insulin, my pancreas was extremely overworked, and it was overproducing insulin, we're talking it was producing as if it was looking to save it up. 7 years ago, my pancreas HALTED, it decided to STOP, for about 8 hours, and I saw angels, I literally almost died, had to be hooked up to I.Vs with enzymes, then given emergency shots of insulin extremely quick. I'm not sure HOW I manage to keep going without insulin on a daily basis. It's real real weird. All I know is, when I feel extremely high, I starve it, I don't eat for 15 hours. I found out it's bad to do that, so I finally stopped doing that. I am on paper as being very brittle, but the type is a big question mark. ANNE

Mz Tara
Mz Tara 2013-02-19 10:06:31 -0600 Report

I only visited an educator once but I do remember her mentioning the type 1 1/2 diabetics … maybe you should also ask about that…

When I first diagnosed, there was a lot of back and forth also, but I switched doctors and it was determined at that time that I was T2. Do your own research, gain as much knowledge as you can and continue to see your doctor (switch if you think you need to)… you'll be fine :)

GabbyPA 2013-02-18 08:42:45 -0600 Report

The more you ask here the more you can ask your doctors about what is really going on. I would keep after them until there is a decision made on what type you are, as that is very important in setting up your treatment plan.

It is a bit of a roller coaster ride most of the time and our bodies seem to adapt and switch faster than we can make our conclusions, but if you keep a log book it will really help you figure out patterns and find trouble spots and rays of sunshine.

gap2368 2013-02-18 17:29:31 -0600 Report

The two people who see more D in one day then my PCP see in a year both say I'm a type 1 and that is what the test ( GAD65) say too just do not know why my dr. will not change are DX unless she does not wont to admit she is wrong.

jayabee52 2013-02-19 03:16:39 -0600 Report

When a Dr won't reconsider a Dx when others who know more about diabetes says she may be wrong leads me to think that she is not showing good judgment. Do you wish to continue to put yourself in the hands of a Dr like that? What other places does she lack good judgment and how will it affect your health?

Mirena 2013-02-18 07:56:18 -0600 Report

I don't know why people think that you have to be overweight to have type 2. That is not always the case. Type 2 is not a fat medical condition. I was diagnosed with Type 2 at 27 back in 2009 and I was overweight but I wasn't skinny either. Diabetes runs in my family so in my case it's hereditary. Welcome to the group! I have found this group informative and supportive and I just started taking insulin this past Friday after being on pills for 4 years. Seeing a diabetes educator or nutritionist is necessary to help manage your diabetes. I plan on seeing in a few months.

tabby9146 2013-02-21 18:41:41 -0600 Report

I was only 35 lbs overweight when I was diagnosed in late 2008. I was shocked! some are close to ideal weight than that are are type 2, you are right. I have never personally met anyone that I know that is at ideal weight like me and controlling by diet and exercise, but I do know of you now, and one or two others on here. I lost the weight quickly and have been at ideal ever since and I am very surprised I have kept it off over 3 yrs. congrats to you Mirena!

Mirena 2013-02-21 18:56:21 -0600 Report

Thanks! Continue doing your research to stay informed. I know having diabetes can be overwhelming at times but it does get better.

tabby9146 2013-02-21 18:42:38 -0600 Report

I was skinny everywhere except my tummy, but tummy wasn't real big either, but definitely a good bit more than now for sure and being so short, and small boned, my weight has to be pretty low. I am 129 - 130 lbs.

Tony5657 2013-02-18 06:35:01 -0600 Report

Hi Gap2368,

Welcome to this great family. You're at the right place to make friends and to learn. Of course, listen to your Dr. but they are not all "created equal." If one seems to be wishy-washy, try another one. It seems diabetes is a complex condition, not affecting everyone the same because our bodies are also complex. Hopefully you can meet someone here that lives close to you and can guide & encourage you. If not, you can still learn tons of valuable information via these discussions from members and also from postings of our wonderful advocates in this site.

In my opinion, you've started in the right direction, asking questions & seeking input. I wish you the best!

Tony5657 in New Braunfels, TX

jayabee52 2013-02-18 04:15:59 -0600 Report

Some Drs do not believe in this, however did either Dr suggest you might have Latent Autoimmune Diabetes of Adults? (aka "Type 1.5")? You may see a writeup on it in Diabetes Forecast magazine here ~

I pray you'll get it sorted out soon!

James Baker

gap2368 2013-02-18 06:34:03 -0600 Report

yes the endo has said it might be LADA but they are just looking at type 1 now ( I think they said if it was LADA would be slower)

rawebb 2013-02-18 14:27:29 -0600 Report

The endo is who you need to listen to. If you are still feeling uncomfortable then I would get a second opinion from another endo. I also have LADA I dont know if it really makes any difference as far as treatment goes. I was diagnosed with type 2 at first then within 2 months my pancreas had shut down and I was on insulin from then on. That was when I was 47. Now it has been almost 5 years and yes it sucks but you work through it and eventually it will all be second nature. It still sucks but you just do what ya have to do.

manapua72 2013-02-17 23:03:34 -0600 Report

The right diagnoses is very important !!!!!!!!!! If you are type 1 then you need insulin to live without it you will die in a matter of days if not faster … Now if your c-peptide test came back within normal range I would assume that means you're still making insulin which type 1's don't do … So I'm guessing you're not type 1, but hey I'm not a doctor … Gotta go with what your doctors tell you … I'm type 2 also had that test … Results showed my pancreas was no longer making insulin … So I'm insulin dependent … If your doctor prescribed insulin for you then I would think that the insurance or your medical would cover it … If they won't you could ask then why ??? I hope you find your answers and I hope you are able to get your #'s under control …

gap2368 2013-02-18 06:39:49 -0600 Report

The diabetes educator who only works with type 1 said that my anti body was one of the highest that she has every seen and she said that type 2 do not have it. Yes you are right I need insulin for got to bolus one time when I ate 14 carbs and went up in to the 300

ShelleyS92 2013-02-18 15:37:17 -0600 Report

Actually more and more studies are proving that even type-1's can still produce insulin according to the Diabetes Conference we recently attended. Having a son who is currently going through his 14th month in "honeymoon" (very unusual according to his endo) then I can assure you that fluctuations in your I/C ratios is very normal. His still change and just when we think he levels off for any bit of time he changes again. Keep in mind that any stress on the body will fluctuate your numbers too—especially illness. I would take the advice of your endo and not bother with your other doctor. They're the diabetes specialists. And don't let your insurance company tell you they won't pay for it. Pumps, most won't, but they should all pay for insulin, syringes, test strips, lancets, etc.