New and seeking support!!

JMan's Mom
By JMan's Mom Latest Reply 2013-02-21 08:39:28 -0600
Started 2013-02-15 21:26:27 -0600

Hello everyone, I have a son who had type 1 and his name is Jordan and he is 11. He was diagnosed 4/23/2012. I feel that we have learned a lot, but I know that I would love for me and my son to have others to talk to who understand!


15 replies

hevyn<3
hevyn<3 2013-02-19 08:54:57 -0600 Report

My daughter is 10 and was diagnosed 1/29/12. She is doing the injections still and her sugars seem to run high in the morning. She refuses to go with the pump because some kids made fun of her for having it on last year. Most of her moodiness I attribute to her preteen stage but we do have times when she tries to skip eating so she doesn't have to take a shot.

JMan's Mom
JMan's Mom 2013-02-17 13:47:32 -0600 Report

Hey guys, It does sound like that our kids were all diagnosed pretty close, Jordan was 4/23/12. For us we never had a honeymoon. He blood sugars have always been hard to control and on the high side until we started the OmniPod. We also are very happy with the pump, but the pod is the only thing we struggle with from time to time. The alarms on the cgm is what I would love to try!! I don't think I have had a good night sleep since he was diagnosed! As far as mood swings, we have had plenty of those!! I also am not sure if it is hormones or high blood sugars? I have even thought maybe it is the stress of having type 1!! My son here recently has started not wanting to go to school. He says it stresses him out. We had to get the school counselor involved.

JMan's Mom
JMan's Mom 2013-02-17 13:47:31 -0600 Report

Hey guys, It does sound like that our kids were all diagnosed pretty close, Jordan was 4/23/12. For us we never had a honeymoon. He blood sugars have always been hard to control and on the high side until we started the OmniPod. We also are very happy with the pump, but the pod is the only thing we struggle with from time to time. The alarms on the cgm is what I would love to try!! I don't think I have had a good night sleep since he was diagnosed! As far as mood swings, we have had plenty of those!! I also am not sure if it is hormones or high blood sugars? I have even thought maybe it is the stress of having type 1!! My son here recently has started not wanting to go to school. He says it stresses him out. We had to get the school counselor involved.

type1's mom
type1's mom 2013-02-17 09:47:33 -0600 Report

Also if either of ya'll Facebook look me up! I'm Valerie Croft :)

JMan's Mom
JMan's Mom 2013-02-19 23:39:50 -0600 Report

I tried to find you on FB and there are a lot of Valerie Crofts. Try looking me up, I'm Currie Anne Marsh.

jayabee52
jayabee52 2013-02-20 02:44:03 -0600 Report

Perhaps you each should go to your FB page and copy the address of your home page on FB from the address bar. You can then (if you are friends with one another) send your FB links to one another via Private Mail here on DC. That would save a lot of looking for one another.

There are so many James Baker s that one would take forever finding me, should someone seek to find me.

type1's mom
type1's mom 2013-02-17 09:35:08 -0600 Report

Have either of ya'll noticed major mood swings? I can't decide if its because of the DM or him being a preteen! Sounds like our 3 children were all diagnosed about a year ago and are about the same age. Ethan will be 11 in may.

puzzlemom01
puzzlemom01 2013-02-17 07:47:47 -0600 Report

hi my daughter is 11 and she was diagnosed on 4/30/12. she is still on injections which she really doesn't mind. she is still in her honeymoon period. are your kids still in the honeymoon period and using the pump?

type1's mom
type1's mom 2013-02-17 09:31:43 -0600 Report

Ethan's doc said "well maybe the honeymoon is over" but never said for sure. I insisted on the pump because his numbers were so erratic and hard to control with no school nurse. His doc changed his insulin doses like twice a week. I was glad when I figure his pancreas finally quit interfering! Lol. The pump was the docs last option but I'm sooo glad we did it. He hasn't had the terrible lows that he did while on different insulins. And we actually carry less supplies around :) but I don't mean to push the pump I'm just glad it has helped us so much!

type1's mom
type1's mom 2013-02-16 22:43:56 -0600 Report

Were you able to get the smaller Omni pod? We considered it but Ethan is so small he like the Medtronic pump better

type1's mom
type1's mom 2013-02-16 22:42:19 -0600 Report

Yes it was a big shock. We don't have any type 1 diabetic relatives. He has the Medtronic pump so his CGM sends the readings to the pump. If u calibrate correctly its amazing how close the readings are to his blood sugar readings. I sleep better knowing he won't wake up seizing from a 31 blood sugar! It has alarms that warn of out of range numbers. But honestly he hasn't had any REAL lows since he started the pump. We will never go back to injections! I will say I had to start putting the CGM in at night because he hates inserting it. He does his own pump site insertions and fingersticks -with my reminders if course :).

type1's mom
type1's mom 2013-02-16 09:05:09 -0600 Report

Hi my son is 10 and diagnosed 3/28/12 with type 1. We also have learned a lot! We r still guessing a lot too!! He is in better control with insulin pump and CGM but we still are figuring out what causes what :) How r ya'll doing with keeping his numbers stable?

JMan's Mom
JMan's Mom 2013-02-16 13:29:21 -0600 Report

I am so glad to hear from you!! We just started on the OmniPod about 1 month ago. We could not keep his sugars under control at all before and now when we can keep the pod on his numbers are amazing!! I would love a cgm but our nurse told us that they were not that good. I'm not sure that I believe her. I would rather here from people who actually use it. Were you guys shocked when you found out about your son?