Talk me down off the ceiling...

s l k
By s l k Latest Reply 2013-02-27 03:15:33 -0600
Started 2013-01-27 12:18:51 -0600

I was doing sooooo well…

The doctor added a diuretic to my BP med just after Christmas. I noticed my testings started creeping up (he also lowered my levemir at night). I went back up on my levemir. No change in number.

I have diligently counted carbs. The dr and I discussed last week what to watch for in my monitoring and to begin readjusting based on that on Friday.

I did as he instructed. This mornings fasting was 214. I adjusted my dose and ate my usual French toast (2 slices nothing else) two hours later I expected to be at a reasonable 150. Nope. 214 again.

I just did an adjustment injection of 4 units and am waiting to see what that does in an hour.

Friday I had an unexplained 336. I'm blowing my newfound decent A1c, and I'm guessing the stress isn't helping me.

Both my insulin a were just refilled and the numbers are no different. I've also compared on a spare meter and the numbers have been close.

Need the power of my friends here to help!

63 replies

Fefe12 2013-02-27 03:15:33 -0600 Report

Sorry, you lost me at french toast and cookies. Why would you eat pure carbs and no protien? Do you know how many carbs are in one piece of toast? I think you need to read your food lables and learn what it means to eat healthy. Having a treat once in awhile is fine but as a normal thing is a no no for us. Empty carbs are no good for anyone. Doesn't fill you up and makes you more hungry later. Listen to your body its trying to say something

mary, the diabetes lady
mary, the diabetes lady 2013-02-23 13:52:52 -0600 Report

If you are serious about taking control of your diabetes and it IS YOUR diabetes not your doctor's not your spouses, not your friends - it belongs to you and you are responsible for it. You are not to blame but you sure are responsible - because you are the ONLY one who can control it. So, as I was saying if you are truly serious you need to get the best book ever written about diabetes and how to control it.

I have absolutely no connection with the author or publisher. The book is "Diabetes Solution" by Richard Bernstein, M.D. This book will give you details, it will give you proof that you can control your blood sugars. When I read this book 11 years ago it gave me the ability to set up a program to save my husband's life 11 years ago.

You must first decide that you are going to take control. Then go out and take it.

I won't wish you good luck because luck has nothing to do with it. Knowing what to do has everything to do with it.

Please, please, do yourself and your loved ones a favor and either buy this book from Amazon or I know you can get it at your favorite neighborhood library. You can not even imagine the wellness that awaits you when you take charge. :) My husband suffered with the horrible effects of T2D for over 20 years. Severe neuropathy in both his feet, on 43 units of insulin a day, on statins, on pain medication, morbidly obese at 280 pounds for a 5' 10" person and oh so much more.

Within 3 months he came off of insulin, within 9 months he lost 80 pounds and since has lost another 20 pounds for a total weight loss of 100 pounds. Within 1 year he was in 2 5K races and finished. Neuropathy is gone! Yes, gone. He is off of Neurontin for pain. That was nearly 11 years ago and he continues to thrive and be well.

This past summer we went to Disney World. He walked from 8:30 a.m. until 11:45 p.m. with only a short 2 hour break in the afternoon (which we all needed). My favorite photo from that trip is of my husband getting off of the monorail at 11:45 p.m. with a BIG smile on his face.

My heart leaps for joy every time I see him walking the track at our rec center - 30 minutes 3 times a week.

May I add we have been married 52 years, we have 5 children and 13 grandchildren. My husband just celebrated and I do mean celebrated his 74th birthday!

You can control diabetes.

JSJB 2013-02-24 04:18:04 -0600 Report

Looks like I'm off to Barnes and Nobel to by a book today. I am only pre diagnosed (9/2011) and do not want it to go further. My first BS reading was in the operating room of 200 and now I am keeping it below 130 unless I cheat. I am 70 and retired. I do exercise everyday on a stationary bike and do about 20 min or 4 miles of riding and for 30+ years have been on a low carb diet to lose weight. I went from 250 to 195. Now I am watching my carbs to control this condition. Thanks again.

Debbiejf 2013-02-01 03:19:27 -0600 Report

Good heavens! I didn't think I was EVER going to get to the last reply! LOL! To date 54 (now 55) replies…sheesh! okay so- Hey everyone :)! Hiya SLK, I take Bumetanide to keep the swelling down in my feet and ankles and it has no effect on my bs at all, this med is said to also be used for high blood pressure. Write the name down and ask you dr about it next time you go in or talk on the phone. I do have a question for you…if you and your dr have your carbs down to 2 or 3 per meal, exactly what does that mean?? Because 1 slice of bread is rarely below 20 grams of carbs. I found a bread in my area Pa. that has 13 per slice and it is white bread—-personally can't stand wheat or grain breads. Besides Levemir what is your other insulin? You didn't say. I used Levemir for the long acting and Novolog for the faster acting which supposedly starts 20-30 minutes after taking it but seems to take 3 hours to fully kick in :(. Also, if my numbers are good before I eat then I take 1 unit of Novolog per 10 carbs I am going to consume. Also if my bs is too high before I eat…say 180 or higher I take my insulin and wait an hour before eating making sure to check it again at that time and will also take the Novolog adjusted for what carbs I am about to eat. It may sound confusing or even that I am taking too much insulin but I'm not because this works for me personally and I have talked to my dr and explained exactly how I figure it all in. I hope some of this helps :)

Dr Gary
Dr GaryCA 2013-01-31 15:33:20 -0600 Report

Hi s l k,

Nice to see you, my friend. I just wanted to give you some support and send you a lot of positive energy. You said it all in your headline. That's what friends are for, to talk you down off the ceiling when you are having an especially challenging day. Knowing that other people are walking this road along beside you, who understand what it's like, who can offer you some words of kindness and share there experiences... support is power. And getting some help in lowering that stress level doesn't hurt either.

I am glad you are here!


MrsCDogg 2013-01-31 10:07:23 -0600 Report

Try decreasing starchy carbs. French toast would have my blood sugars going through the roof.

s l k
s l k 2013-01-31 12:48:30 -0600 Report

I've been eating two slices of plain french toast every Sunday since I returned from the hospital…since the new meds the numbers go up no matter what I eat. I even had cookies on New Year's Eve (just before new meds) and was able to count and control the numbers then. I'm going to talk to the dr about a different blood pressure med.

Jim Edwards
Jim Edwards 2013-01-29 12:10:06 -0600 Report

Forget what everybody else says and listen to the wisdom that I have been inspired to part to you. Now, I have no idea from where this wisdom came, but it is in my head and needs to get out. First, sit down in a recliner with a tall glass of Brandy, I am talking about a 7-11 Big Gulp. I think they are 32 oz. Heck, forget the glass and just drink from the bottle. Be sure to wrap it in a brown bag so no one knows what it is. Sip it slowly until it is gone. Now, if you feel anything, you should feel better, or, at least not give a rip about your BS #'s. Okay, the message has stopped coming in clearly.
Okay, that is the first step, you should be smiling or wondering, "Who the heck is this crazy man"? that is okay, either one works for me.
Now, "the wisdom" from my other personality. Isn't it frustrating?! when your numbers are over 300, what have you eaten or taken by mouth over the last 12 hours? You know you are watching your carbs, so I suspect it is something else, either one of your meds or an OTC med. You would be shocked what some OTC meds for colds and flu will do to your BS. I don't know why I am writing this, we all know that if you followed the first suggestion you are too drunk to even read it! Anyway, my cholesetrol medicine, Crestor (also Zocor and Pravachol) raised my BD by over 100 points! so you need to look at what changes you went thru when your numbers went AWOL. Me, if I thought it was a med, I would stop it and see what happened to my numbers. Do I ck with my doctor before doing this? Absolutely not. Why? they do not know. What I do is keep a 5 day diary before and 5 days after. This is how I was able to prove to him that my cholestrol meds were shooting up my BS.
Yes, stress will increase your numbers, but if you followed the first part of this message you cannot have any stress, or if you do, you don't know it. Now I will read what other wisdom was imparted to you!

s l k
s l k 2013-01-30 08:22:57 -0600 Report

I love this! It really made me smile. I actually considered withdrawing the lisinopril over the weekend. I may do that today. I'm off on Friday so I should probably have a little idea of how the lack of the diuretic affects those numbers.

The brandy suggestion made me laugh. In the winter my mother would keep a water glass of brandy on the windowsill by her bed. She said it was for her "cough"!

Nick1962 2013-01-29 14:19:20 -0600 Report

C’mon Jim you know diabetics need exercise too. Walking to the liquor store would be a great way to get that. Failing that, at least get up and go outside for a smoke every 30 minutes or so. Smoking does reduce stress.

mary, the diabetes lady
mary, the diabetes lady 2013-02-23 13:41:24 -0600 Report

You have GOT to be kidding about smoking reducing stress! Yes, in a way it does because if you smoke enough cigarettes you won't have to worry ever again about stress - just like the rest of the people laying in the cemetery. UGH! I am sorry that's just wrong to advise a person to get up every 30 minutes or so and go outside for a smoke! :(

jigsaw 2013-01-29 16:59:38 -0600 Report

Actually, smoking reduces everything, it's just a matter of time! Initially, it becomes more difficult to breathe, and the benefit from struggling to breathe uses more calories.

Jim Edwards
Jim Edwards 2013-01-29 15:27:09 -0600 Report

Yes I know. That is why i suggested keeping it in the bottle. It burns more calories to lift the bottle than it does a cup. I didn't think I would have to spell it out. I didn't want her walking to the liquor store in case she wanted to start the cure right away. She could then be arrested for DC, public drunkenesss and who knows what else. I am shocked you suggested a smoke. don't you know that is bad for your health?

jigsaw 2013-01-29 16:54:58 -0600 Report

Now that you mention it, I think I did hear somewhere that smoking is bad for you! Not sure about Brandy though. I'll have to check it out on the web! I believe that's a type of alcohol. Bad news if your an alcoholic.

Debbiejf 2013-02-01 02:32:42 -0600 Report

h'mm, grain and alcohol in the same sentence…sounds like brandy is grain alcohol LOL, that can make it tough to catch your breath!!

s l k
s l k 2013-01-28 19:45:16 -0600 Report

The dr and I discussed carbs. I generally eat nothing but salad and protein at dinner…I was placed on a 3 carb breakfast. 2 carb lunch 3 carb dinner at the beginning in the hospital. I am eating less than that now. 1 serving usually at dinner - 2 carb breakfast. I am not a fruit fun and take vitamin c instead. He never once said to cut the carbs down I did it myself. I've been eating like this since September and the numbers just started creeping up this month.

When he checked my cholesterol levels they were all in the normal range.

I wasn't aware all carbs got cut. Ill be looking into some Atkins type options as a next step, though. My fasting was back down this morning too

French toast. Bread and egg. I'm sorry I seem puzzled but isn't that on my list of options?

from the valley
from the valley 2013-01-31 22:07:45 -0600 Report

that bread in the french toast is probably enough carbs for an entire day, and you really should limit your intake of eggs because of colesterol. I have the opposite problem, I need to monitor all day to keep from going too low

jayabee52 2013-01-31 22:39:56 -0600 Report

Actually that colesterol eggs connection is overblown. See the article here ~ or this from Everyday health here ~ or even here ~

One gets the bad cholesterol from family history, and from eating the wrong type of meal plans See the article here ~


Nick1962 2013-01-29 14:08:07 -0600 Report

As Jim said, breads you have to watch. Do not cut out all carbs, rather be selective of how you get them. Some (like breads) are simply “empty” and will race through your system causing large BG swings. Medications for me like steroids amplify this. Seems like Lisinopril does it to you. Rustic, whole grain breads are better if you can’t kick the habit (but they make nasty french toast). I prefer to get my carbs through sources like beans and nuts which bring with them more protein. My bread intake is about 2 servings per week. This allows me to replace those carbs with peanut butter, or nuts on my evening salad, or even half a 10” whole wheat tortilla for a wrap.

s l k
s l k 2013-01-30 10:33:05 -0600 Report

I have learned the art of breadless sandwichs. Yesterday, the egg salad sandwich was delicious (hard to pick up though…oh, it was egg salad on a plate!!!!!, that's why!!!!!!

Set apart
Set apart 2013-01-28 05:47:30 -0600 Report

I am on Lisinopril had too much protein dropping into my urine. I haven't noticed too much of a spike, only once in a while and will note was it the food or the medication? What is your dosage? Mine is low 5.0 mg one time in the evening. I have cut all sodium out of my diet, use mrs dash now, although I didn't have the swelling in my legs. I
Hardly eat French toast and if I do I use natures own bread 10 g of carbs per slice with some fresh berries over it or sugar free syrup. I make sure I eat a little more scrambled eggs on the side for balancing. My meal totals 20 g of carbs this way.

jigsaw 2013-01-28 06:53:44 -0600 Report

I found Natures Own (whole wheat) to be about the lowest in carbs! I can get away with a slice, but I generally keep it to a minimum. Two slices will definitely raise my bg to an unacceptable level, so I simply avoid it.

jayabee52 2013-01-28 00:07:02 -0600 Report

SLK, I am wondering why you are eating french toast at all? I eat nothing in the way of breads and / or any grain products. I used to eat oatmeal but found out through testing even the "Irish" or "steel cut" oats raised my BG to an unacceptable (to me) level. Of course my goal was to manage my BG levels without diabetes meds at all.

However, just because one is taking insulins does not give you carte blanche permission to indulge in higher carb meals. Of course you CAN get away with it but you DO often have side effects such as weight gain and "bad" cholesterol readings.

s l k
s l k 2013-01-27 18:36:56 -0600 Report

Hi nick!
Yes we've talked about carbs at meals. He's hoping for 2 carb servings at breakfast and dinner and 3 at lunch. For now. My breads are 15g so that's 2 carbs. I use the whole egg. And normally I'm a 1 piece of toast with 2 over easy (through the week). In any case I cover w 2 units for every 50 points over 150 - and 3 units per 15g. So I had 10 units of regular. Those extra 4 should have brought me down. And in almost every case since October when I began doing it this way it has.

I'm pretty sure it's the lisinopril BUT the swelling I was having in my ankles is totally gone ill get it going and in fact after my lunch today my number came down to a respectable 100.

I've cut nearly all the sodium from my diet…wouldn't even begin to tell you where our salt shaker is and we haven't used prepared food or boxed casseroles in months.

I do think stress may be playing a part in it as we'll

Jim Edwards
Jim Edwards 2013-01-29 12:15:20 -0600 Report

If I were stuch on an island and could have 2 things in endless supply, they would be bread & butter, but, like james, I have almost eliminated bread from my diet. Exception is the occassional pizza and subs. Did you every try to eat either without the bread part?

Nick1962 2013-01-28 10:46:02 -0600 Report

Sounds like the diuretic has the same effect that my steroids did. Everything goes straight to the bloodstream. I’m glad it has leveled off for you. I learned real quick that when I get the steroid shots, I take in little to no carbs or sugar for about 2-3 days. Hamburger and eggs for breakfast.

Nick1962 2013-01-27 18:29:27 -0600 Report

Yes, diuretics do cause a rise in BG's, some worse than others. They mess with your ability to metabolize glucose. Has your doctor talked about diet prior to prescribing these? Sounds like a little too much sodium in the diet.
Also curious why you thought you'd go down after 2 slices of french toast (normal serving is one slice). Unless they were tiny slices, that's about 40g of carbs right there. What little protein you gained from the egg in no way made up for the carbs. I think I'd switch to 2 eggs with one slice whole wheat toast.
Just my 2 cents, hope you and your doc get it figured out.

s l k
s l k 2013-01-27 16:07:55 -0600 Report

It says in the lisinopril facts that it will raise blood sugar. It just seems that no matter what the numbers climb.

Today it seems to be behaving more in line with a couple weeks ago so I'm hoping stress caused more issues.

jigsaw 2013-01-28 10:56:21 -0600 Report

What is your source that says Lisinopril will raise blood glucose? I was under the impression that it is not a proven fact.

Jim Edwards
Jim Edwards 2013-01-29 12:17:52 -0600 Report

I know, for me, Lisiniprol caused swelling in my lip(s) and face. Better than Botox. For the lower lip, think about the black man who the Sargent told him to pull his lip in or a bird would perch on it. Botox is probably better as you can control where the swelling takes place!

jigsaw 2013-01-30 08:13:14 -0600 Report

It's time to be concerned, especially if it's a Pelican that tries to perch on your lip!

Nick1962 2013-01-28 12:20:21 -0600 Report

In some acute pancreatitis has been associated with Lisinopril.
Much of the documentation contains the words “may” and “can” because of the many factors/medications that reduce Lisinopril’s effectiveness (like NSAIDS, aspirin, diabetic meds like glyburide or insulin, ‘roids, etc.)

Of the 7 types of diuretics, some prevent adequate reabsorbtion of glucose.

Like Met, there just isn’t a label big enough to list all the combinations, but from personal experience, there is no control on diuretics (at least at first) if you take any other drugs.

jigsaw 2013-01-28 17:41:24 -0600 Report

Thanks Nick1962! Quite a bit of wothwhile info in those links. I suspect that my endo is well aware of most if not all. I have not seen a noticable increase in my blood glucose as a result of Lisinopril. Also, I don't THINK that I am experiencing any neg side effects as of yet! Since it has had a positive effect, I continue to take it. Of course it's always a good idea to be armed with information and decrease the odds of the unexpected should side effects occur.

Nick1962 2013-01-28 18:18:47 -0600 Report

It’s the internet so take it for what it’s worth. I’m under the theory that any medication has side effects given the right circumstances.
When I was on Lis, if I checked my blood I could quite literally poke my finger and spray blood like a cow sprays milk. I could write my name in blood in the sink.
Sometimes the effects are slow and cumulative and you don’t necessarily feel them until you are so far down the road you’re contemplating suicide. Had a friend who started ED meds. Wasn’t long before he was too sick to have sex.

jigsaw 2013-01-28 18:44:23 -0600 Report

Taking meds, for me is a serious concern, and not a first line of defense. As an example, if I can't get my blood pressure to normal readings with exercise, diet, yoga, or any natural means, then I will resort to medication as prerscribed by my doc. Of course I try to discuss all other means of treatment with my medical team initially. Naturally I watch and monitor for side effects with the help of medical tests and monitoring also. As far as Lisinopril is concerned, I have decided to risk potential side effects rather than risk a stroke, heart attack, vascular problems, senility and other potential brain problems that high blood pressure can cause.
Let me know if you have any BP meds that you think may be a superior choice.

Nick1962 2013-01-29 09:51:30 -0600 Report

Agreed 100%. Pretty much with anything in life, risk vs benefits.
I can't really say what might be superior for you, but I have good luck with Caduet

mhcfc13 2013-01-28 13:38:48 -0600 Report

Thanks for that information. I was taking lisinopril for cholesterol, but switched for cost by the MD.

kittenpurr1 2013-01-29 15:37:01 -0600 Report

They gave it to me- to keep my kidneys functioning. But with all those painful blisters- it was dc. It is usually used for blood pressure. Oh my goodness, they want to give me all kind of steriod shots, in the neck, the spine, the knees, the elbos, the hands, the feet- I don't want them b/c in the long run, they make the bone mineral densisty worse. It's a never ending battle- it seems.

Nick1962 2013-01-28 14:17:42 -0600 Report

Odd, Lisinopril is usually just for blood pressure, never heard of it for cholesterol. Since I had both and was on Lipitor in addition to Lisinopril), I got things low enough to switch to Caduet which is a combo BP/Chol drug. It’s still partially a statin (which I don’t like), but side effects are a whole lot less. It’s not cheap (.75/tablet), but the generics are and I’m only on maintenance dosage now so I can take those.

Nick1962 2013-01-28 15:36:07 -0600 Report

Never big on french toast, but biscuits and sausage gravy, that's worth blowing my numbers for every now and then.

mhcfc13 2013-01-28 14:47:34 -0600 Report

Your right got the two mixed up I am on meds for both and just switched at my last visit. Thanks for the clarification.

Nick1962 2013-01-28 15:34:53 -0600 Report

No thanks needed. From what i read about the stufff when I was on it, it gets prescribed for a whole mess of things.

GabbyPA 2013-01-27 16:23:00 -0600 Report

I hope it calms you a bit. It's so hard to see high numbers and then we get stressed and then more high numbers. It's a hot mess to be sure.

Yes, I do think it's strange that they say "every diabetic should be on Lisinopril" and yet it raises our levels. We just can't seem to get a break.

GabbyPA 2013-01-27 16:05:21 -0600 Report

Don't freak over one reading or meal. If it persists then call the doc, but sometimes our bodies just have a party without us. I ope you are getting back down and where you want.

Is there something in the diuretic that could be causing the creep?

Jim Edwards
Jim Edwards 2013-01-29 12:19:45 -0600 Report

How about this for wisdom? The diuretic decreases the water in the body. By doing this it raises the concentration of sugar.

kittenpurr1 2013-01-29 14:35:06 -0600 Report

Lisiniprol made me break out in blisters- they looked like the Shingles. I had to go to the ER, why does these things always happen on a weekend????