Nueropathy

Mary M G
By Mary M G Latest Reply 2013-02-24 01:36:08 -0600
Started 2012-12-31 10:16:46 -0600

My main problem with diabeties is nueropathy in both legs. The pain is non-stop and excrutiatiating. I don't see any discussions on this. Does anyone have this problem or am I alone here. It IS very depressing at times especially whenever I research it, bottom line is, there is no cure for nueropathy…very depressing.


36 replies

carlo a
carlo a 2013-01-26 12:39:48 -0600 Report

I have just started to experience exactly what you have described and did not know its in my right big toe its like a painful pins and niddles it has been keeping me up for about two weeks any help in this matter would be great need to get a nights sleep without being woke up with a throbbing toe !!!!!

Nana_anna
Nana_anna 2013-01-24 20:01:51 -0600 Report

I was on medication for it and nothing helped. I hate the tingles, and the spasims that I get in my legs, especially at night. I cannot get a good nights rest sometimes because the pain is so bothersome. I would ask your Dr. He/She may have some tips for you. Sometimes a hot bath helps, but not always. Just something we have to live with, sadly.

Safari4
Safari4 2013-01-24 19:56:01 -0600 Report

Have any of you tried "orthotics" fitted by a podiatrist.
Also, I think acupuncture is worth a try . I had Bell's Palsy and it fixed it in 2 treatments. My chiropractor is qualified in acupuncture and my insurance paid for it.

MrsClaireB
MrsClaireB 2013-01-23 20:02:52 -0600 Report

My fathe

MrsClaireB
MrsClaireB 2013-01-23 20:03:22 -0600 Report

My f

MrsClaireB
MrsClaireB 2013-01-23 20:10:27 -0600 Report

Sorry sensitive screen my father had it so bad I could not touch him the gave him a med that help ease the pain he said it felt like he was on fire just a constant burning feeling.
I am a diabetic type 2 just got my insurance back after 2 yrs so now I can get back on track with my Meds and blood work.
Good luck with the neuropathy I get from time to time and walk it of or sit in a chair and stretch my legs to get the blood pumping thru and it goes away til next time.

knit57
knit57 2013-01-18 07:48:27 -0600 Report

I have neuropathy in both feet. Gabapentin helps. Ointments are useless for me. It is depressing but you are not alone.

MoeGig
MoeGig 2013-01-17 22:06:22 -0600 Report

Hi…have not had this problem yet…but after many years of T1, I've tried to be mostly in control…A1c typically in the 6's…aim for 80-180 blood glucose. My only wild guess is to keep your sugars in that range. Good luck, hope all is elll

Jeremyz mom
Jeremyz mom 2013-01-08 12:43:18 -0600 Report

I have bad neuropathy and my feet hurt all the time too! HATE to tell you that you arent alone…wish we could all get rid of it.

jimmuel
jimmuel 2013-01-04 13:43:38 -0600 Report

I am 42 an have neuropathy in my legs an feet an im bipolar,there is alote of medication out there,that they can try,I have my doctor an a neroligist an my nut doctor as I call him,they put me on trilepital an it seems to help a little,now my neroligist has me using capsaicin,zostrix diabetic foot pain otc,there are others of this same ointment,it seems to relieve alote of the numbness an pain for me,Im not trying to sell this or it may not work for you but it helps me,an i am willing to try anything if it will help give me some relief,this is a great topic,hope it helps

Type1Lou
Type1Lou 2013-01-04 12:36:59 -0600 Report

About 12 years ago, I noticed a numbness in my toes. After moving to Florida in the early 2000's and being bitten on my toe by fire ants (nasty, painful critters)…and not feeling it…I knew I had developed some neuropathy in my feet. Several years later (around 2005), I started on a low-carb diet and got better control of my BG's. I have since regained sensitivity in my toes and attribute this to my better BG control. I have been on insulin since 1976. I'm not saying that higher than normal BG's are the entire cause of your neuropathy, but getting better BG control may help in decreasing the severity of your neuropathy. Wishing you a less painful 2013!

Slade22
Slade22 2013-01-03 20:17:08 -0600 Report

I am 23 years old and have had diabetes for over 12 years. I have horrible experiences with neuropathy! About 2 years ago I had to drop out of auburn university for a semester because of it! I moved back home with my parents and I spent every night crying my eyes out bc I was in so much pain!
After many many doctor visits, blood tests, and medications, I was finally put in the hospital. They did not think my pain was neuropathy because I am so young and overall healthy. They ran every test possible from X-rays to spinal taps. I was even sent to emory hospital in atlanta to meet with a specialist. They ruled out every thing possible and finally declared. It was my diabetes causing it.
Since then I have been on Gabapentin (1800 mg a day) and it has worked wonders! If I skip a day or so without taking It i can def tell a difference! I was also told to get massages and do yoga regularly. It helps too!

Mary M G
Mary M G 2013-01-04 10:17:49 -0600 Report

Wow, I am 54 and even after having the nuerology leg test that confirmed I had nueropathy, Drs. STILL told ME no way b/c I was too young, even with the results right in front of them, They kept saying it was my back and sent me to all kinds of kooks and their midevil methods like tying me to a table and stretching my body, yeah I went for it b/c I was so desperate, did absolutely nothing of course. Their problem is they treat us all like text book cases never thinking outside the box and I just don't feel that it's right. Our bodies are all different no matter what age. I tried the Gabapentin, unfortunetly it did not work. I'm on lyrica which does nothing for the pain BUT it helped with the depression a bit b/c I felt myself getting very depressed I still take that.
Thanks for sharing your story and keep feeling better.
Mary

Lakeland
Lakeland 2013-01-02 16:21:20 -0600 Report

I have neuropathy, but it's not from my diabetes, my doctor nicked a nerve during hip surgery & my leg feels like a numb fat tingling feeling as if novacain was leaving my body after teeth work. it's annoying, It's hard to sleep, trying to get quite at bedtime is almost impossible. my doctor is keeping the vicodin coming so I can sleep, however vicodin affects my hearing. it snowballs, I'm sorry your going through it, its not fun

Mary M G
Mary M G 2013-01-03 17:00:34 -0600 Report

Thanks Lakeland & Jayabee52, you are the 1st to respond to me about neuropathy since I joined the group. Sometimes I just feel useless and stuck going in circles. I take pain meds but won't drive when I do. So if I have somethings to do I hold off best I can, rush around to accomplish simple things finding myself rushing home to take my meds…and if I go beyond a certain point without, it takes that much longer to work if it even does. Very depressing since all my research basically says that once the coating on the nerves are gone they do not come back…meaning there is NO cure.

Mine is in both legs from feet to upper thighs and literally feels like my legs are on fire. I can't tell you how often I cry with this God aweful pain, let alone the stress of the cost to keep me going. One gets so desperate at times you'll try anything including going to some wacky Drs. that promise you the world only to find out yet another scam. Makes me sick how these "professionals" take advantage of people with this, KNOWING how desperate we are to be rid of this, they should be ashamed of themselves taking advantage of people with chronic pain.

I still consider myself young in my mind and soul (54) and feel like I have lots to offer still in this life, but if this is it for me, I can't help but get very depressed.

Thanks for the info, I will check it out.
Feel better & God Bless.
Mary

scuffy69
scuffy69 2013-01-17 16:48:29 -0600 Report

I have had problems with my feet and legs for about 6 years and it only got worse the only thing that helped was oxycotin then the Canadian gov stopped making them they put me on gabapentin then hydro morphine made a cocktail and shut my kidneys down I take percocet and hyro morphine and it helps a bit dont have any other solutions

EJMac
EJMac 2013-01-01 14:07:09 -0600 Report

I have bad pain in my arms and legs sometimes-going numb and stuff. My dentist friend who is also a doctor told me about injectable vit B-12. It has to be prescribed and filled at a compounding pharmacy. It has helped, but I slacked on it because I didn't like all the injections. I already use insulin and have to poke myself. I started back on it a week ago. I really seems to make a difference. My Dr. friend said that most of the tablet Vit B-12 doesn't get used by our bodies. Good luck. It couldn't hurt to try it. It's methylcobalmin-it's pink in color.

Mary M G
Mary M G 2013-01-03 17:22:51 -0600 Report

Thanks EJmac, I will look into that. And I totally understand slacking off, I do with certain things I KNOW I should be doing or eating or not eating,,,,gets tiring same routine, feel like a robot at times.

Feel Better and God Bless.

mc34
mc34 2012-12-31 19:52:27 -0600 Report

I have had diabetes for 16 years, and I have just started experiencing peripheral neuropathy in my feet. I have never felt pain like this before. Mine is worse in the morning. I get this burning and tingling pain that never seems to go away. My Dr put me on lyrica. It has really helped. I know how you feel. Hope you get some relief!

Rynoski
Rynoski 2013-02-24 01:36:08 -0600 Report

I am a T2 diabetic, I get the burning/tingling episodes that is felt from inside as deep as the bones. I use to call it Burning foot syndrome as standing barefoot on ice seemed to subdue its intensity. Otherwise it was digging certain points of the bottom of my feet trying to take care not to cut the skin or draw blood. Lately been getting seriously sharp pain in toes. Mainly big toe. Hurts enough to make you want to snap it off. Starrting pain management sessions.

Mary M G
Mary M G 2013-01-03 17:19:54 -0600 Report

I know how you feel. I woke one morning and thought I had a bruise somewhere on my one leg at the time. After it wasn't going away and continued to get worse to the point I wound up in the emergency room, THAT"S when I found out I was diabetic (had no clue I was).

It doesn't run in my family, never considered myself at risk even though I was overweight. But then I started losing weight FAST, which scared me even more. (lost 80 lbs.). Even though I knew I needed to lose weight, when you lose it fast (witihin like 5 months, scared me) I thought I had something else.

I was trying to absorb all the info (am still educating myself 2 years later), the nueropathy kept getting worse and worse, went from Dr. to Dr. none of them offering me any hope. That's when I started doing my own research only to find out there is no cure…gets very very depressing at times. The burning is unbearable, wakes me up at night when it's at it's peek, so sleep is at a minimum, then of course tired all day and so on and so on.
Thanks for your feedback…hope you feel better.
Mary

jayabee52
jayabee52 2012-12-31 17:02:56 -0600 Report

I have this problem myself, Mary.

I have the tingling neuropathy from my elbows to fingertips and the burning neuropathy from knees to toes. I have heard of a suppliment produced by Neuropathy treatment Group which may be found here ~ http://neuropathytreatmentgroup.com/# (I have no connection with or receive compensation of any type when I mention this product. In fact I have yet to try it. ) A PDF "book" is offered and may be found here ~ http://neuropathytreatmentgroup.com/wp-conten...

I am strongly considering trying this formula and see if it lives up to the sales pitch they make.

Yes it is rather depressing and tireing to walk around and hurt with each step I take.

James

type1skillset
type1skillset 2012-12-31 12:42:45 -0600 Report

I was fortunate enough to attend some scientific presentations by leaders in this field. If you are interested I have the information summarized here (and no it is not something I am selling). Hope this helps. http://www.curediabetesblog.com/2012/neuropat...

Mary M G
Mary M G 2013-01-03 17:26:30 -0600 Report

Thank You so much. I will check out the site. Appreciate your input & help, I thought I was alone in this since I didn't see any discussions on it.
TY,
Mary

jayabee52
jayabee52 2013-01-04 01:33:37 -0600 Report

if you want to see more discussiona about Neuropathy, Mary, just go to the top of this page and type in "Neuropathy". You will get every mention of Neuropathy on this site, and it is much talked about here. It is one of the most frequent complication of this disease. Prepare to spend a little time reading all of the "hits" because there are many.

James

Mary M G
Mary M G 2013-01-04 10:20:40 -0600 Report

Thanks, After my errands I will have some time to do that. Thank You for suggesting it to me, I do appreciate your reply :)
Mary

Nick1962
Nick1962 2012-12-31 11:55:33 -0600 Report

Well, there is the possibility that PILT (pulsed infrared light therapy) may be effective, at least in the feet.
http://www.ncbi.nlm.nih.gov/pubmed/16710647
I have a local chiropractor that administers PILT with some success.
http://www.musacchiochiro.com/page/-periphera...

Mary M G
Mary M G 2013-01-03 17:34:17 -0600 Report

Funny you should mention the light therapy, it was just recommended by my Dr. but for the depression that comes with all this. But hey if it helps with both then the investment is worth it. I have a good friend who is a chiropractor and he would be the 1st to tell me if there was a cure (unlike some of the scams that are out there promising us the world KNOWING there is no cure and yes I was that desperate that I fell for a couple of them).

Thanks for your input, appreciate it very much.
Mary

Caroltoo
Caroltoo 2013-01-04 03:06:50 -0600 Report

Yes, light therapy does help. Its a very effective treatment for SAD (Seasonal Affective Disorder) which is the kind of depression which developes when you are not in direct sunlight enough. Vitamin D3 also works with many cases of depression.

I use D3 for my husband who gets depressed each winter because, even though we live in Hawaii, the land of sunshine, he is handicapped and does not get out in the sun enough.

Another interesting fact is that when we are depressed we feel every little pain MORE than we would feel it when we are not depressed. Your neuropathy will feel better when your depression lightens.

Mary M G
Mary M G 2013-01-04 10:24:20 -0600 Report

Not sure all I know is that I am depressed b/c of the pain however I have heard from other diabetics without nueropathy that depression is a part of diabeties.

Mary M G
Mary M G 2013-01-04 10:08:31 -0600 Report

Very interesting that you say when that when depressed we feel every little pain, I think back to the summer and how much better I felt, I was out doing something every day plus being diabetic my body will just not hold on to vitamin D no matter how much I take. So I will look for an inexpensive home light therapy system and hope that helps. Thank you for repying.
Mary

Nick1962
Nick1962 2013-01-03 18:52:15 -0600 Report

Ooooh take your doctor up on the light therapy. I went through a "period" and it seemed to help - lots of unhappy things going on in my life at the time plus 6 months of snow and freezing temps.
The PILT is a little different, and some chiropractors (like mine) won't use it because it's not their area of specialty. Mine's more into neurology and wellness, but she has no issue referring to the other who does PILT. I too doubt it's a cure, but even a little relief can be welcome if it helps. Best for you!

Mary M G
Mary M G 2013-01-04 10:04:27 -0600 Report

Thank you Nick1962, I am looking nto an inexpensive home one for the depression, these cold dreary long winter days I know do not help. I look back at the summer and how much better I felt, so for me it's worth it,,,,hope it works. Thanks for your input!
Mary