By jaf76 Latest Reply 2013-01-04 14:04:19 -0600
Started 2012-12-26 09:03:24 -0600

Hello name is John and I have a topic for discussion that I think everyone on DC can relate to. I am just looking for what you all think. Please leave a comment if you want.
I read on here from others the way that they are treated from other people as well as employers. I can't believe the ignorance from other people. I was at Meijer the other day looking at meters and test strips. There was a couple standing close to me and when they noticed that I was looking at the diabetic supplies they moved away from me like I was going to give them something. Are people that stupid, that they actually think that just because we are diabetic that they are going to be sick if they stand too close to us. I read a discussion this morning on DC about a woman being alone and for some reason it really hit home with me and I needed to write this. I am also bothered when I read discussions about people having trouble at work with their employer. You can't test here, that's nasty, don't be getting your blood all over everything.
My family and I don't pass judgment on anyone or look down on anyone other. So its hard for me to handle how people are to a diabetic person. We are just like everyone else, except our body doesn't handle blood sugar as well as someone who isn't diabetic. Its not like if we touch that they are going to get diabetes.
Is there enough information out there for people who aren't diabetic? I think that there should be more info for the people who treat us the way they. I am not sure if I am the only one who feels this way but like I said I needed to post this. Please let all of us on DC know how you feel and have been treated, and what you did to handle the situation. Thank you and God Bless.

22 replies

I_will_fight_it 2013-01-04 13:56:26 -0600 Report

I can tell you from the prospective of a person who did not have diabetes. People can be very judgemental, they think you have a life-turm disease, somethining you cannot get rid of. And coz of lack of knowledge they automatically think they can get it from you just by standing near you. But not all of people like this, just be careful whom you tell you have it. There is no shame, you did NOTHING to get it on purpose. From the prospective of newly diagnosed diabetic I will tell you how I look at it. Be positive, dont let anyone or anything to let you down, look at it like at something you can deal with or/and get rid of. I dont call myself a diabetic, I call myself a person with high sugars. Someone's lack of understanding shouldn't put you down, educate them if you can and take care of yourself first. I think it should be discreet at work, why would you want your co-workers to see how you check your blood sugars or inject yourself and then explain why you do so? People who care know it already anyway.

jaf76 2013-01-04 14:04:19 -0600 Report

Thank for all that you wrote. You gave me some addtional info to look at. And also another way to look at having diabetes. I thank you for your reply.

pdmmara12 2012-12-30 13:13:51 -0600 Report

I recently started having to test my bs and inject insulin 4 x a day. I do this in public. It's easier for me.

jayabee52 2012-12-30 15:35:29 -0600 Report

just be aware that some folks are squeemish about visable blood, especially so since AiDS awareness and concern about blood bourne pathogens.

Safari4 2012-12-29 18:50:17 -0600 Report

"Need to know basis"…friends, Boss etc. as for being treated differently, no, people have been supportive and I'm trying to be an instrument of God's love. As for taking your glucose, don't take that personally. Must public places have that rule for HIV and other communicable diseases thru any fluids. It's not you. Can you go out to your car or some other more private place to do it. Happy New Year! Read, learn, ask questions, share and do all the positive things you can to manage this. You can. I was devastated at first but now I'm grateful. It was a giant kick in the pants or nudge from God to take better care of myself.

jaf76 2012-12-29 18:55:56 -0600 Report

So true. I guess it was a gift from God in a way like you said. I at least now know to start changing my health patterns. Thanks for the reply and God Bless

Nick1962 2012-12-28 14:30:53 -0600 Report

I’m not sure I’d call it ignorance, just uninformed. Since we as a group are pretty much left to our own treatment, we don’t get a lot of the media attention that is out there with some of the more devastating diseases. We don’t get cool, hip spokespeople to represent us (who under the age of 40 pays attention to Wilford Brimley or Paula Deen).
Now, if we could convince a known celebrity or artist in certain age groups/demographics to take up the cause, I think many younger people would take a look at their potential risk factors. Actually, the best place to start is in school. When kids get a message, they tend to bring it home. Nothing worse than a 7 year old watching your diet for you, but it has an effect.

red flower lady
red flower lady 2012-12-27 22:35:24 -0600 Report

Yes, there are alot of ignorent people out there when it comes to diabetes. All you can do is develope a thick skin and ignor it, or inform them. Also, we all have to be careful of our blood when testing. Just becasue it's our blood, doesn't mean anybody else should have to put up with any spills, trash, watching, etc. You can discretely check your BG as I have been doing it for soo many years. I would not be happy if I had to clean up a mess another diabetic left or watched one checking at my table( on their lap would be fine though.)

There is alot of info out there if one has a desire to learn about it. The problem is; if it doesn't involve them then why should they become informed. We diabetics see it differently.

I have never been made to feel bad about my diabetes, but have had to inform or re-educate people. I also pick who I let know I'm diabetic and don't make a habit of telling everyone as it's none of their buisness anyway:)

jaf76 2012-12-28 06:54:05 -0600 Report

Good point and I will take all that you said into consideration. I know that I need to have a thicker skin and will. I will try not to get so involved with my feeling of how others are. Thanks for the reply. God Bless

Type1Lou 2012-12-27 08:35:54 -0600 Report

Unfortunately, we don't live in the best of all possible worlds where everyone is (or wants to be) well-informed and sympathetic. We can try to educate those who have misconceptions; I have no inhibitions about testing my BG in public and before using my pump, I would also inject (discreetly) in public. This may frequently elicit comments that would enable me to clarify what diabetes is and why I needed to test and take insulin. I tried not to come across as defensive or as a "know-it-all" but just as a PWD who is taking the steps needed to manage my diabetes. I agree with James that there are much worse diseases to have than diabetes. (A friend has Parkinson's with significant deterioration over the last 2 years and a cousin just died after a valiant 20 year battle with breast cancer.) To a great measure, with the right decisions and treatment we can manage our diabetes and insure a reasonably good quality of life by doing so. Wishing you well in 2013!

jaf76 2012-12-27 09:39:10 -0600 Report

Sorry about your loss. I hope the family is dealing with the loss as best they can. I guess just reading what other DC members have posted got to me. I try to deal with diabetes as well as I can. I do think and wish people had more info about the diease. I think that medical personal should test patients every year for diabetes. Maybe that would help also as far as getting people who have it and don't know it. I do thank you for the reply. I have enjoyed all the respones. Have a good New Year. God Bless.

Type1Lou 2012-12-27 18:04:27 -0600 Report

I appreciate your expression of condolence…My cousin and her family live in Canada and I'm in Florida , so I cannot be with them during this time. This cousin was only a year older than I and we were close. Her 90 year old Dad is finding it particularly hard to cope…you never expect to outlive your children. Diabetes is one of the more manageable chronic diseases and, while I'm not happy I have it, I'm happy that I can do much to control it.

jaf76 2012-12-27 18:11:47 -0600 Report

Not sure what to say except I'll keep you in my prayers. If you ever need someone to talk to I will there. Take care and God Bless

jaf76 2012-12-27 06:12:34 -0600 Report

I am terribly sorry for your loss. Yes diabetes is a pain at times, but there are worse diseases out there. My wife and I have an adopted son. His grandmother died of lupus. My wife and I are white and our son is black. We do worry about his health mainly because his biological mother want being to open about health history. I just hope that our son doesn't have to worry about anything. James you have a good day.

manapua72 2012-12-26 18:27:42 -0600 Report

I believe not enough info is out there about diabetes that or people don't care … The ADA believes there r millions of diabetics that don't know they have diabetes and even more so with pre diabetes … I knew some about diabetes before I was told I was diabetic since it runs in my family yet I as an adult never ever worried about it … Just lead my life oblivious to the choices I was making concerning my life style … Did I cause myself to be diabetic who knows ??? I certainly could have made better choices … I wish they REALLY stressed how bad this desease is and how to reduce your chances of type 2 …

jaf76 2012-12-26 18:45:41 -0600 Report

Yeah I to grew up with diabetes in my family. I knew alittle about it but nothing like I do now. I wish there was more info,but would people even read it. I think my wife may also have it. She is gonna get check next week. Thanks for your reply.

jayabee52 2012-12-26 15:44:55 -0600 Report

Well, John, we all come from different emotional, psycological and physical "places" in life. So I don't think there is a one-size-fits-all answer for this. And as far as the couple in the store, you don't know what they were thinking unless they told you. Perhaps it was merely that they were done looking at what they were looking at, and it had nothing to do with what you are looking at.

Honestly, before I became a PWD, (person with diabetes) I really knew nothing about Diabetes and really didn't care about it much. I pitied the person who had it as being the victim of an unfortunate disease, but wasn't interested enough to inquire further about it and probably if someone did try to school me about it, that schooling would gone in one ear and out the other. I was a typical "normal" in other words.

The squeemishness of others about blood testing, comes from the AIDS and other blood bourne diseases scare. So people are even squeemish about seeing blood without the scare of blood bourne diseases, so I understand their fear of our testing and test strips.

I myself have been treated OK by the "normals" in my life regarding my diabetes. But John, you are not the only one who feels as you about perceptions of normals. So you are welcome to post this.


jaf76 2012-12-26 18:48:59 -0600 Report

I read what you wrote and I thank you. I understand what you are saying. I am trying to deal with this diease the best I can. I just think its wrong that people with diebetes have problems with other people who don't. Hope you had a good holiday. Thanks for the reply.

jayabee52 2012-12-27 01:34:50 -0600 Report

To tell the truth even though either type of diabetes can be a Bwitch, I would much rather have Diabetes rather than what my 2nd (late) wife had: Systemic Lupis Erithramosis (SLE aka "Lupis".) as there's really nothing which can control the SLE "flares" except take steroids which messed with her Blood glucose levels (over 300s whenever she took them).

SLE is where one's immune system attacks joints and internal organs. She needed transplants of her heart, lungs and kidneys but couldn't have them because of the SLE attacks. She ended up drifting off to sleep one evening taqlking to a friend on the phone. This after an attack and a shot of corticosteroid the previous day. She just drifted off to sleep and when I woke up the next morning she had already assumed room temperature. Quite a shock for me.

So I rather would have what I got than having SLE.

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