By TarynJanine Latest Reply 2013-01-06 15:12:08 -0600
Started 2012-12-03 02:17:16 -0600

Hello I've been looking for a place to talk about diabetes with other diabetics and get advice about things. I'm a Type 1 diabetic for 22 years and feel very alone with this most the time. I wear an insulin pump and glucose monitoring system and it's becoming very hard to keep good numbers. Any advice?

25 replies

Type1Lou 2012-12-25 09:07:42 -0600 Report

I've only been on my pump one year but have been a Type 1 for 36+ years. I do rotate my infusion sites from my thighs, hips, stomach and above my waist. The above the waist seems to be the most sensitive for me. Site rotation is critical to avoid the absorption problems that may arise. Triskit has given you great advice. Hope 2013 sees better results for you!

Triskit 2012-12-08 20:31:51 -0600 Report

If my numbers were creeping up like that even after doing correction blouses the first thing I'd do is change my set and site. Depending how high I was I would give myself a correction by injection with a syringe then follow my blood sugar over the next 2hrs. If things were not turning around I would suspect my insulin was bad and open a new vial.

You should also feel free to call your Dr office on days like that and they should basically walk you through the sawn trouble shooting. Your pump company probably has a number you can call as well.

TarynJanine 2012-12-08 20:49:27 -0600 Report

Hello Triskit. All the replies I've gotten are things I check the one thing I need to take up with the doc is the lumps and the continuous use of my stomach for my pump site insertion. Do you know anything about that?

Triskit 2012-12-08 20:58:59 -0600 Report

If you have lumps its most like scar tissue build up this would also interfere with your insulin absorption making it unpredictable. Can you try inserting in other locations, the buttocks, upper thighs, flank? I don't personally use my stomach never have in the 22yrs I've been taking insulin. I almost always use my butt/hip. Sometimes I'll the side of my waistline. I don't have much real estate to choose from when it comes to injections or pump sites but these two have worked for me since I started pumping 8yrs ago. When I did multiple daily injections I mostly used my thighs and I got a lot of scar tissue build up that took a few yrs to clear up after I switched to pumping.

TarynJanine 2012-12-08 21:24:57 -0600 Report

Is the buttocks comfortable? The leg wasn't comfortable at all. I'm gonna talk to my pump guy about some of these things. Thanx I'm gonna try the massaging and a new site.

Triskit 2012-12-09 01:07:35 -0600 Report

I find the buttocks to be the most comfortable spot for me. I place it about 1.5-2 inches below the waistline of my pants so there's no chance of rubbing but it's still high enough I'm not going to sit on it. It's also more to the side. So if I were wearing a swim suit it would be just barely tucked under the leg line where it passes over my hip and down over the bottom…if that makes sense…

When massaging apply firm pressure so you are really moving the tissue around not just the skin. It should be a little uncomfortable and in fact may be quite sensitive when the scar tissue is still inflamed and dense. Since it's on your stomach you should be able to apply a technique called rolling. Basically you grab an area between your thumbs and fingers and apply firm pressure with the thumbs, and slowly slide the thumbs down. It will feel sort of like you're rolling out dough. Repeat a few times then move to another area.

Cross fiber friction is also a good technique for breaking up adhesions. If there is a spot that feels hard and bumpy. Press the pads of your fingertips in to the point of slight discomfort then rub back and forth. You're not rubbing the skin back and forth but making an effort to manipulate the underlying tissues.

TarynJanine 2012-12-25 08:24:53 -0600 Report

I just wanted to say thanx I spoke to my pump guy after read your advice. I started in the buttocks area and it's not bad at all. Kinda rough to insert the sites but it'll get easier and I'm definitely gonna have to get used to the sites being somewhere other than my stomach my stomach has been the #1 location since 1991.

Triskit 2012-12-08 21:02:27 -0600 Report

To break up scar tissue you need to do a few things. First allow the area to heal by not using it as much if possible. Next massage the area firmly to break up the scar tissue. Do this daily after you shower. Finally take an MSM supplement which helps reduce inflammation and scar tissues in the body.

type1's mom
type1's mom 2012-12-05 21:35:32 -0600 Report

Someone told us that certain areas absorb the insulin better than others. Also check that ur insulin isn't old. Since it sounds like its working some but not enough. Just some stuff u might have forgotten if u have been pumping for a while :)

TarynJanine 2012-12-08 20:46:37 -0600 Report

Type1's mom do you know of there is anything you can do to get rid of the lumpy areas? For the majority of my diabetic span I've taken insulin in my stomach. I've had lumps there for years but don't know how to get rid of them. I tried my legs one time with the pump and my blood sugar stayed high for all 3 days. Idk what to do.

type1's mom
type1's mom 2012-12-05 21:31:36 -0600 Report

Taryn. We r new to the pump but… Could it be that the site where u Inserted is "lumpy"? Like from scar tissue or from having a fav insertion area :)

TarynJanine 2012-12-03 18:39:21 -0600 Report

Today is a perfect example of things I don't understand. This morning my blood sugar was 92 around 2pm it went up to 163 I took a correction. Around 4pm it went up to 172 I took insulin and waited 30 minutes to eat. At 18:20 I checked again up to 272 I took a correction dose checked again at 19:20 and up again to 277. Everything looks fine. It frustrates me so much when I lose control and can't figure out why.

TarynJanine 2012-12-03 17:53:41 -0600 Report

My averages (150) and A1C are good (6.1) I just went over all of those things with the doc 2 weeks ago. Do you have a pump? If so where do you inject at?

ShellyLargent 2012-12-03 17:02:15 -0600 Report

When was the last time you checked your basal rates, carb to insulin ratios, or correction factors? Over time, your body can become more or less sensitive to the insulin for any number of reasons and you might have to start adjusting settings. I always have to bump my basal rates up a couple of points in the winter because I'm less active than I am in the summer. I also tend to put a few more pounds on in the winter. That factors into everything as well. I also agree with Gabby. You might be under-estimating your carb intake. I use a couple of apps for my phone to double check my carbs: My Fitness Pal and Calorie King. Both are great!

GabbyPA 2012-12-03 11:01:22 -0600 Report

Hang in there. You have come to the right place. There are a lot of members who use pumps and I'm sure they can help you with that. There are lots of us who just genuinely want to encourage and help, so let us know what you need and we will do our best to help you out.

As for why your numbers are struggling on the pump, could it be that you need a refresher in carb counting? I don't use a pump, but isn't it based on your levels and your carb intake? I know I have only been diabetic for 4 years now and there are times I go on memory and find out my memory is not so great.

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