Type 1 diabetic diagnosed later in life.....

By ambaxte Latest Reply 2013-01-22 20:25:39 -0600
Started 2012-11-25 23:10:36 -0600

Trying to find someone for my Dad to talk to for some support. Type 1 Diabetic. Diagnosed after 20 years in Air Force at around age 35 (10 years ago). Private message if you know anyone!

I think it is different for people who are diagnosed as Type 1 when they are already adults in their 30's. I know my dad needs some support right now… just hospitalized while on thanksgiving vacation for ketoacidosis. I don't know how to help and think he needs support from those who have been in the same spot.

12 replies

cramerlynn77 2013-01-22 20:25:39 -0600 Report

I was diagnosed as type 2, 3 years ago and was found to be type 1 about a year ago. I have been hospitalized 3 times for dka. Hugs to you all!

jaf76 2012-12-26 09:12:03 -0600 Report

Hello just thought that I would ad a hug to begin with. Your dad isn't alone. There is so much information here on DC. I was told in Oct this year that I was diabetic. It was a shock because I thought that I was living a healthy life for the most part. I found support and friendship here on DC and much more. There is a lot your dad can benefit from on this site. Mainly support and friendship. Sorry your dad is diabetic but its not the end. God Bless and good luck

Set apart
Set apart 2012-12-17 05:57:02 -0600 Report

I was diagnosed at 48 years old with T1! It's been a long haul and some days I still feel as if I am lost with this! Good luck and best wishes to your father!

TightControl 2012-12-17 03:37:48 -0600 Report

I came down with type 1 at age 39. [The likelihood follows the Poisson Distribution and peaks around age 10-12, then tails off out past age 40. That's why most get it as juveniles, but you can get it as an adult, even over 50 years of age (though there are very very few of them).]

When I first started this 27 years ago the tools for BG control were limited. Today your dad has it much better, with even continuous BG meters available, insulin pumps that didn't exist back then, and far better control strategies (that allow type 1 patients to eat pretty much whatever they want whenever they want).

Being type 1, where all you need to do is manage insulin, is far better than being type 2, where there is a physical problem with metabolism (primarily insulin sensitivity), leading to higher insulin levels than with type 1, leading to pancreas exhaustion, at which point these high levels of insulin need to be injected (along with sensitizing drugs, carb restrictions, exercise, etc.).

What your dad needs to do is learn the Basal / Bolus regimen, first tailoring his basal dose all day long while fasting. If he can't go without eating for more than 12 - 14 hours at a time he can establish it in stages: fasting overnight up to a late lunch skipping breakfast, then fasting after breakfast up to a late snack before bedtime. He can either use 3 shots of NPH (at bedtime, plus 8 hours before and after), or do it with a pump. On no account should he let them put him on Lantus or Levemir. They are flat acting and his basal need while fasting rises in the morning and dips in the afternoon. You can't get a true basal insulin action profile with them, and while a 3 NPH dose regimen isn't as perfect as a pump, it's good enough and much cheaper.

Once he has his true basal insulin action profile established while fasting, he can eat whenever he wants, by adapting a bolus dose to the size of the meal, adjusting that estimate for his pre-meal BG (and perhaps for a previously injected bolus if it has been less than 4 hours since then).

By testing BG two hours after eating, it is possible to see if the bolus was high, low, or close enough. If low, he can supplement, and if high, the excess amount can tell him how much more carb to eat to avoid hypo.

Works like a charm for me, with an HbA1c in the low 6% range and no hypos at all. Being type 1 today is nothing to worry about. Just be responsible about watching your BG and take the right insulin dose at the right time.

I can point him to the details if his physician can't.

Type1Lou 2012-11-29 12:48:40 -0600 Report

I was diagnosed T1 at age 27 and am now 63. Having grown up in a household with a Dad who developed diabetes when I was around 5 years old, it was probably easier for me to handle, since I'd seen my Dad testing and giving himself shots. But, it wasn't until the early 2000's that I buckled down and really started to manage my own diabetes. Reading Dr Richard Bernstein's "Diabetes Solution" was a turning point for me. He advocated a low-carb approach to managing blood sugars long before main-stream medicine accepted that approach. He is also a Type 1 diabetic. This is a great site for info and support. Your Dad needs to learn as much as he can about managing his condition to ensure a good quality of life. If I can help, please let me know.

rayfamily 2012-11-29 11:48:36 -0600 Report

I was diagnosed T1 at 25. A little different, but I remember the bitterness. It just didn't make sense. (And still doesn't!) I think it was very different being an adult & diagnosed. I remembered what eating a donut was like because I ate one YESTERDAY! He's welcome to email or message me. I'd do my best to help, or at least listen to him!

jayabee52 2012-11-27 12:18:09 -0600 Report

There is a fella on DC who has recently joined DC. His screen name is AF retired 462 ~ http://www.diabeticconnect.com/users/1229692-...

He is t 2 but may be able to relate to your dad about being in the Air Force.

There is another person RayG ~ http://www.diabeticconnect.com/users/602505-r... But he may not respond since has not participated here other than putting up a profile. Haven't seen him posting anywhere.

BTW: Please thank your father for serving our nation!

James Baker

IronOre 2012-11-27 02:30:09 -0600 Report

So was you dad in the USAF when diagnosed ?

Next Discussion: BULLIES »