Neuropathy pain...what do you do for it?

Jeremyz mom
By Jeremyz mom Latest Reply 2015-01-24 23:31:18 -0600
Started 2012-11-05 07:17:31 -0600

My feet hurt so bad and my legs swell…primarily the right one. Any suggestions? I already take neurontin (gabapentin) for the pain but it doesn't seem to help much.

53 replies

liquorish 2012-11-16 12:09:24 -0600 Report

Hi again, Jeremyzmom. There is a new discussion about a blogger who has numbness in the face. I didn't know if neuropathy did that or not. I thought you might be able to help. Liquorish

Jeremyz mom
Jeremyz mom 2012-11-16 12:30:54 -0600 Report

Can't help but I'm interested in any comments! Thank you!

jayabee52 2012-11-16 15:11:57 -0600 Report

I did a Boogle search on "numbness in the face" I got this as part of the results 'Searches related to numbness in the face
Bells palsy Paralysis of the facial nerve, causing muscular weakness in one side of the face
Stroke A sudden disabling attack or loss of consciousness caused by an interruption in the flow of blood to the brain, esp. through thrombosis
ParalysisThe loss of the ability to move in part or most of the body, typically as a result of illness, poison, or injury
MigraineA recurrent throbbing headache that typically affects one side of the head and is often accompanied by nausea and disturbed vision
Multiple sclerosis A chronic, typically progressive disease involving damage to the sheaths of nerve cells in the brain and spinal cord, whose symptoms may include numbness, impairment of speech and of muscular coordination, blurred vision, and severe fatigue" Check the following link to find this and other returns on the question.

Melode 2012-11-15 20:40:46 -0600 Report

Oh this is an interesting question! I hope you got good advice from others' suggestions. You can also ask on HealthTap and get advice about this from doctors. Learn more about it here . Good luck! Hope your pain goes away! :)

liquorish 2012-11-15 09:44:52 -0600 Report

Hi Jerymz Mom. Have you tried diabetic shoes? My husband, who is not diabetic but on his feet all day, got some, and loved them. Even diabetic crocs. Will pray for you. Liquorish

Jeremyz mom
Jeremyz mom 2012-11-15 11:29:07 -0600 Report

What a good idea! Are they expensive?

liquorish 2012-11-15 17:29:09 -0600 Report

They cost about the same as a pair of SAS shoes, $180.00, but last alot longer. Just replace the insert when it wears down. If you have a wierd walk like my husband, they will wear down sooner. But he is on his feet all day, pushing heavy carts, etc., and his feet did not hurt when he wore the diabetic shoes. They custom make them to fit your feet. The crocs are harder to find. They are not custom made, but they sure feel good. They have a more pronounced heel, so your feet aren't sliding out. I also have to get special socks because my big toes will start hurting. I need socks that have the seam a little farther up the foot instead of right on the toe. The diabetic socks don't work for me. I found socks at Dillards, but they are $8.00 a pair. If anyone knows where I can get these, let me know. Thanks. Liquorish

sloane 2012-11-11 17:29:12 -0600 Report

There are several options besides gabapentin such as Lyrica(R) and others. There are also good topical treatments such as Neuragen(R) which is more homeopathic and works for many people. Vitamins can also help such as ALA and B complex. There is acupuncture and some other methods that may also be helpful, check with your own health care team!!

Mark Hully
Mark Hully 2012-11-09 19:02:22 -0600 Report

Everyone here gave great replies! I hope you found their ideas useful! If it helps, I use an advice site to get health advice for free from doctors. HealthTap is a great site that I use frequently and you can learn more about it . Hope this helps!

jayabee52 2012-11-10 00:44:50 -0600 Report

How do you get the advice free? Every time I take a look at the health tap site (from the links you've been posting) ii is a PR promo or you are required to pay $9.95 to get a Dr's answer. How does one access the free info?

Nana_anna 2012-11-08 16:56:13 -0600 Report

Hi, I was on neurontin, then swited to pramipexole that I take at bedtime. That seems to help me. I know I have missed a dose when the pain comes back. I had neuropathy in my right leg so bad one time, that I could not do anything. If I moved I would shreach in pain. I couldn't stand, walk or get on my tippy toes. I had to crawl up the stairs to my bedroom, because I couldn't lift my leg without pain. It can get intense. I hate for anyone to go through that. I couldn't walk not even 20 minutes before my feet go numb. Sometimes I had to miss events because of the pain. I tried soaking in a warm bath water, which helps.

erocny 2012-11-17 13:24:27 -0600 Report

Hi, I'm new here. I get a sensation like itching in my feet, not normal itching but way inside my feet and nothing helps. I can scratch until I bleed and I get no relief. I am somewhat better after starting Gabapentin. Actually it stopped for a long time but creeps back from time to time again. The itching is so bad it could probably be called pain.

SallyO 2012-11-07 18:29:23 -0600 Report

Hi there so sorry to hear about your pain. I know it's no fun. I too suffer from this dreadful neuropathy pain in my feet and as a quick fixed my doctor suggested filling a 20 oz soda bottle with water and freezing it and at the end of the day take the bottle and roll it with your foot and boy I tell you the cold gives me so much relief from the burning and throbbing that I have.

Ronp 2012-11-07 15:15:49 -0600 Report

Hello, i was going to comment on my remedies: however, I think we will both will be better off reading Dr. Bernstein's book. I, too, suffer from neuropathy. I'm eager to read it. It pays to visit this site!

maclover1524 2012-11-07 11:43:00 -0600 Report

Oh, my God, I am so sorry to hear you are suffering from the pain of neuropathy. My husband, a type 2 diabetic for over 30 years, suffered with that pain for over 20 years. He was on Neurontin for 15 of those years. For nearly all of those 15 years he could not walk more than 75 feet at one time without sitting down. He went to bed at 7:30 p.m. to fall asleep and get rid of the pain. He was miserable!

Since 2004 his neuropathy has been completely eliminated! Magic? More meds? No, none of that. I put together a program for him that helped him eliminate his neuropathy. I read Dr. Bernstein's book, "Diabetes Solution" and realized that there was a great way to control diabetes and to eliminate many of the horrible effects of this disease.

I have studied and researched diabetes ever since. And I created a program to help my husband and hundreds of others who have attended our program.

Please do yourself a huge favor and read Dr. B's book, "Diabetes Solution". Also read these books, "Good Calories, Bad Calories" by Gary Taubes. "Why We Get Fat" by Gary Taubes. "Living Low Carb" by Jonny Bowden, Ph.D., C.N.S.

My husband was on 43 units of insulin, Neurotin, Naproxen, diuretics, statins. He is off all these meds! And he lost 100 pounds - 80 pounds in the first 9 months of 2003 and 20 more pounds last year for a total weight loss of 100 pounds. He is 73 years old!

It's been 10 years now and he is pain free. Knowing what to do and then doing it is the key to eliminating these horrible effects of diabetes.

One more thing…we went to Disney World this summer. My wonderful husband walked from 8:30 a.m. until 11:45 p.m. with only a short 2 hour break in the afternoon - which we all needed. My favorite photo of the entire trip is the one of him getting off the monorail at 11:45 p.m. with a huge smile on his face. This, the man who could not walk further than the middle aisle of a store before needing to go back and sit in the car.

He is a shining example to everyone in our classes of how you can beat diabetes.

God bless you!

walt03 2015-01-24 23:31:18 -0600 Report

You said you created a program to help your husband. My situation sounds very similar your husband's condition. I would like to know more about the protocol/program you created for your husband. How do I get information about your program?

techguy87114 2012-11-07 16:41:27 -0600 Report

Going to read the books you recommend right away! I have neuropathy in both feet and my calves. I manage my BGL and take Gabapentin but nothing seems to work.

excited to learn new ways to manage pain and great to see your husband is pain free! that is awesome!

Thank You for your knowledge and post to this topic.

maclover1524 2012-11-08 09:03:20 -0600 Report

You are soooo welcome. It is my passion to get the word out about how to REALLY control diabetes and eliminate neuropathy. Dr. B is a saint! It is my hope to one day meet this man and thank him personally for giving me my husband back. Now, it is up to the person with diabetes to take responsibility for this disease - not blame - but responsibility. That means you have to recognize that you are the only one that can control it. You are the only one that can change your life for the better. It can be done. My husband and the hundreds of others we have helped through our program are living proof. Go for it! It is soooo worth it!

Jeremyz mom
Jeremyz mom 2012-11-07 15:40:58 -0600 Report

Thanks for the ideas!

maclover1524 2012-11-08 09:06:40 -0600 Report

Just like I replied to techguy87114 - you are so welcome. This program works. You just have to be willing to do the work. That involves changing your life style. Let me just say from someone who has done the work and changed our life style - I would do it again and again. For the past 10 years my husband has been back to being the wonderful man I married. The night sweats are gone. The apnea is gone. The neuropathy is gone. The irritability and flashes of anger are gone.
I wish you all the best. Please let us know how you're doing.
God bless you!

Lizardfan 2012-11-05 22:13:54 -0600 Report

My hubby had severe neuropathy from shingles, the best relief he got was from a product called Absorbine Jr. It comes in a squeeze bottle, has a sponge applicator and you just roll it on the affected area. It temporarily numbs the area and allowed him some relief. It is over the counter @ the pharmacy or Wal Mart has it too. Good luck in finding relief.

GabbyPA 2012-11-05 17:17:14 -0600 Report

That pain is so troublesome. The things that I have found to help me out are taking 600mg of Alpha Lipoic Acid, exercise like walking helps. Rubbing ointment or coconut oil on the souls of my feet before I go to bed seems to calm them enough to allow me to sleep. If you sit a lot, you may want to try to take breaks to elevate your feet and I find that wiggling my toes a lot helps too.

Also, if you are taking Actos that can cause swelling, so check to see if any meds you are on may cause swelling of hands and feet.

HeidiLynne 2012-11-08 09:40:50 -0600 Report

You are so right about alpha lipoic acid!! I need to get back on it myself! It has
really helped in the past. Thanks for reminding me, Gabby, I love you!

Linda crutch
Linda crutch 2012-11-05 09:41:45 -0600 Report

There's a cream over the counter called Zostrix that also comes for arthritis (I used arthritis one on knees and it worked). Try it. Also, r u taking the right dose of gabapentin? It come in 300 mg, n I take 1 late afternoon and 1 before bed. Talk to your dr. about other things.

Jeremyz mom
Jeremyz mom 2012-11-05 07:22:00 -0600 Report

My hands also swell…WHY???

HeidiLynne 2012-11-08 09:43:37 -0600 Report

I believe it's because we as diabetics, retain too much fluids. We need to keep
drinking the water daily.

mmccance 2012-11-08 20:51:37 -0600 Report

Hi Jeremyz mom and HeidiLynne,

I read through all these comments and found them to be very informative — I've read Dr. Bernstein's book and got a lot of good advice from it. I also recommend it to any interested person.

As to the swelling. All I know about is my own experience. I too have trouble with swelling and I've noticed that I seem to swell up more if I eat high carb items like grain (wheat, oats, etc.) and/or potatoes (etc) for a few days in a row. My first remedy, or line of defense, is to completely eliminate high carb items for at least three days while increasing my intake of water at the same time. (This means I am only eating meat and vegetables, no fruit, for three days.) This seems to allow my body to process the excess water and I begin to eliminate it rather quickly in the bathroom, once it starts to come off.

My doctor has given me a mild diuretic (HCTZ 25 mg) for high blood pressure that I take every day. This also seems to keep the swelling under control IF I eat right and do not over indulge in high carb/refined carb items. If I don't eat right, it does not seem to make a difference.

I've suffered from some pretty severe leg pains but I never associated it with neuropathy so I'm not sure my speedy remedy will apply to your situation but here is what happens for me and what I do about it:

a. My severe pains very often happen after I have indulged in high carb items or sweets before bedtime.

b. When the pains hit — usually in the middle of the night, or upon waking in the morning — I call them leg cramps and I immediately take a combination of magnesium, potassium, and zinc. I used to take calcium, too but my doctor doesn't want me to take that any more.

The brand of magnesium I use is Peter Gillam's "Natural Calm" which I buy at a health food store. I use it because it works really fast. I've tried magnesium pills and do not get the same relief. The "Calm" is a flavored powder which I mix into a hot cup of water (or a cup of cool water works OK too). But I seem to prefer the taste from the hot water.

I try to be careful when mixing it in the hot water, because it foams and will overflow the cup if I am not careful. I put about one finger of hot water in the bottom of a cup, then stir in one level teaspoon of the "Calm" and let it foam, then after it is finished doing its thing, I add water to the top of the cup. If I need to drink it quickly I may fill it part way with cold water to cool it off faster. RESULT: My leg pains are gone in about ten to twenty minutes. Completely gone.

So here is what I take: 1 or 2 level teaspoons of magnesium in a cup of water,
1 50 mg zinc caplet
1 99 mg potassium citrate

Again, I'm not sure that my leg pains are the same as yours, but it certainly could not hurt to try drinking a nice hot cup of orange flavored magnesium and popping a few other minerals to replace the ones the excess carbs seem to have removed. Another plus for me is that the magnesium helps my bowels to move, too. I very often suffer from constipation so, for me, I am killing two birds with one stone.

(Note: it also seems to work if I only take the magnesium without the other minerals — I just think it is a good idea to provide all the minerals my body needs as I believe they work together for good.)

I hope this is of some help.

God bless you and I hope you find the solution that works for you very quickly.

Much love,

mmccance 2012-11-08 21:09:57 -0600 Report

One more thing… I am not on any medication for Diabetes — I control it with my diet — low carb — lots of veggies and meat — so going without carbs for three days is not a problem for me. It may be a problem for someone on medication that lowers blood glucose levels, as not eating carbs, all by itself, will reduce blood sugar levels. It might be dangerous to completely eliminate carbs if you are on blood sugar reducing medications. Just be careful and test your blood sugars often. God bless!

HeidiLynne 2012-11-09 09:17:20 -0600 Report

Wow, I am so impressed with your input! Gabby mentioned alpha lipoic acid, a supplement I
use to take and need to again 600 mg. It has worked in the past for neuropathy and it
boosts your energy levels too.

mmccance 2012-11-09 10:25:09 -0600 Report

Thank you so much… you are very kind. I have a little trouble taking alpha lipoic acid because it makes my stomach burn and also gives me nausea and dizzyness.
One thing I remember Dr Berstein saying in his book is that ALA should be taken along with biotin, and primrose oil. He says taking ALA will deplete your stores of biotin, so if you take some with the ALA it will prevent that from happening. Those three items are his "formula" for combating neuropathy. He has specific amounts listed in his book.

HeidiLynne 2012-11-09 14:40:33 -0600 Report

I have to GET THIS BOOk!! I didn't realize about the biotin and primrose oil.
but it is good to know, thanks!

Jeremyz mom
Jeremyz mom 2012-11-09 08:54:29 -0600 Report

I take high blood pressure mwds and blood glucose meds…among a bunch of other stuff… i will try your suggestions!

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