diabetic autoimmune neurothapy

Goddess
By Goddess Latest Reply 2008-12-15 10:45:45 -0600
Started 2008-05-19 01:39:49 -0500

Please somebody help me!! I've been told by a gastralogist that the nerves that help to swallow are damaged by the neurothapy and he has sent me to a speech pathologist that is supposed to help to swallow a different way. I went to him and all he did was weigh me and told me get sugar free carnation instant breakfast mix it with skim milk twice a day. Does anyone know if the damaged can be repaired or is the outcome going to be what else I was told and that was getting a feeding tube.


23 replies

highlandcitygirl
highlandcitygirl 2008-12-14 16:31:25 -0600 Report

tell me how this turned out for you. i was strolling through the discussions and found this one. it is very interesting a lot of information that i am trying to process.

Goddess
Goddess 2008-12-14 16:43:33 -0600 Report

i still have a little trouble swallowing. my main problem is my stomach doesn't empty out fast enough. there is no cure that.

highlandcitygirl
highlandcitygirl 2008-12-14 17:10:01 -0600 Report

you know until i read this over real good ,i wasn't aware neuropathy could effect your stomach and swallowing like that! whew!! scary!

Debe Pendice
Debe Pendice 2008-12-14 17:41:24 -0600 Report

Your right there. I too have a lot of trouble with emptying my stomach. My endo told me that with gastroparesis it takes 3 days to digestion the food you eat. So thats why I go through bouts of severe, and I mean severe pain…Debe

2008-12-14 19:54:06 -0600 Report

What is Gastroparesis? and how to you get this problem? And how to control
it.

Debe Pendice
Debe Pendice 2008-12-14 20:11:15 -0600 Report

This delayed food from emptying from the stomach to the small intestines. My MD always say to me, It was like my stomach was paralyzed. He explained it like if I ate a good dinner, my body would not release it through my systems for about 3 days. I get this real severe at least once every 3 months. I get nauseaed and vomiting. My MD know when its bad, i always have my bucket with me. I dehydrate myself so fast, I need hospitalized to get fluid (IV's). I hope that helps a little…Debe

Goddess
Goddess 2008-12-14 20:11:42 -0600 Report

when your bs run high for a long period of time you get autonomic neurothapy. it can effecct any orgn in your body it just happened to effect my stomach and that is the medical term for it. it takes a long time for your stomach to empty.

Rick_W55
Rick_W55 2008-12-14 23:00:25 -0600 Report

I too have Neuropathy. Severe pain in heels and above to lower part of legs below legs and hands wrists. There is numbness in toes and front of feet. This makes it very difficult as I am a industrial mechanic/electrician for commercial printer/ publisher and have to spend hours at a time on my feet and use my hands extensively. I get muscle cramping also. Had a day where I had to keep my head turned extremely to one side and my arms extended fully in same direction for most of a shift. Went home after work and while eating neck muscles were pinching off artery in neck. Felt severe pain in chest, thought I was having heart attack. Had severe sharp stabbing pain in chest went to doctor and was told thatI have enlarged muscles in neck and anytime I hold my neck extremely to right or left that it shuts off artery/pulse, 100 percent in one direction and 75 percent in other direction. Have tried to find other work but no other job pays enough for me to pay my bills and for my prescriptions. After being diagnosed for neuropathy I found out that I was diabetic type 2. Proir to being diagnosed for neuropathy thought pain in feet an hands was from arthritis. I also have varicose vains in feet an legs and have had surgery in both feet for poor circulation in both; tarsel tunnel release surgery. Helped circulation but not for pain. Saw many doctors and tests and 3 years later was diagnosed with neuropathy and at that time was told that diabetis is one of more common causes for neuropathy. Had test for diabetis and found out that I have type 2. Was very scary as grandmother was diabetic and she lost toe, foot lower leg and eventually all way to lower thigh. Am feeling some what overwhelmed. Still trying to cary on with everday life. Gets depressing at times. But try to keep upbeat. Have 4 children 2 still living at home and for many years had to work 2 jobs to pay bills. Now I have all I can do to get throug a shift at work with only 1 job.

highlandcitygirl
highlandcitygirl 2008-12-15 10:45:45 -0600 Report

rick, my heart goes out to you! the pain you must endure to take care of your family! you are a true man of courage! know that i am in awe of you and pray the LORD give you HIS strength to bear this burden. take care of yourself as often as you can.

micksmixxx
micksmixxx 2008-07-05 06:34:50 -0500 Report

Hi Misery,

Please accept my apologies for how long it's taken me to respond to your question.

The condition is actually called autonomic neuropathy. It affects the bodily systems that are normally dealt with automatically. It can affect such things as blood pressure, heart rate, temperature control, swallowing (as you've noticed), emptying of stomach contents, sexual function, bowel and bladder control, and a whole multitude of other things.

Sadly, there is no cure for autonomic neuropathy. The only advice my gastroenterologist and endocrinologist have been able to offer is to maintain as near 'normal' blood sugar levels as possible … and that means long-term, not just for a week or two.

I'm so sorry to hear how this is affecting you. It's not pleasant at all.

I can understand where your gastroenterologist is coming from with his suggestion of sugar free Carnation instant breakfast and skimmed milk. He's obviously attempting to control your blood sugar levels without telling you what he's doing. Sadly, that doesn't deal with getting the food down your oesophagus [esophagus] in the first place.

The only thing I can advise there is, if it's really getting difficult to swallow solid foods, is to liquify your foods. i.e. place it in a blender and mash it up until it's really more like a liquid than a solid.

I know it sounds awful, but one thing that I used to do for people who suffered in a similar way, was to massage the food down. It's rather difficult as the oesophagus [esophagus] is behind the tube that you feel at the front of your throat. That's the trachea … the thing that you breathe through. If you do apply pressure to this and sort of stroke it down, however, it does help with swallowing.

Unfortunately, if you aren't able to manage feeding yourself in this way there are only two ways, that I know of, that you can be helped. The first is a nasal gastric tube, which goes up your nose, and down your throat into your stomach, or a tube directly into the stomach … neither of which, I would imagine, would be very appealing to you.

Of course, your sustenance would have to come from liquid feeds using either of these methods.

I do hate to be the bearer of such bad news, dear lady, but you asked the question.

I truly hope that things never actually get to such a stage for you.

Be well.

Lots of Love and Light.

Mick
x x x x
x x x

P.S. Please don't be offended, or alarmed, at the "x's". It's simply a logo, of sorts, that I've used for some 30-odd years now.

Goddess
Goddess 2008-07-05 07:44:51 -0500 Report

Thank You,
I'm not offended if I ddn't really want a true answer I never would have asked. I appreciate you being so candid about it. You're the first one to really come out and tell me the truth.That is what I wanted all along. I'd rather know than no know. Again thank you so much.
Diane

rj
rj 2008-07-04 07:57:37 -0500 Report

I can't help but have a gut feeling that a second opinion is in order…I would think some more test of some kind could be done to clarify your issue.. I have neurapathy in my feet and legs in first stages i would be very appreciative if you would keep my posted…is that the only area you have it

Goddess
Goddess 2008-07-04 11:15:14 -0500 Report

I have neurothapy in my legs, feet and stomach.

jupton1
jupton1 2008-07-05 02:52:51 -0500 Report

I have neurothapy in my feet & fingers,it seem like it get bad when my sugar gets over 150..John

butterfly_8
butterfly_8 2008-07-05 04:10:02 -0500 Report

I have been referred to a Vascular Doctor because of declining circulation or possible nerve damage. I cannot imagine surgery since nothing heals properly not even little scratches. All of this info is very important to me.

taz202020
taz202020 2008-05-25 12:29:12 -0500 Report

I don't know anything about this except I'd find another doctor. A neurologist might be the person to talk with. I told mine I had some sensations in my feet, hot and cold tingling, and she told me it was neuropathy. I'd really try to talk to another doctor.

Ginetteb
Ginetteb 2008-05-25 12:54:53 -0500 Report

Honey, I feel for you. My husband is not diabetic, however, he had a squamous cell carcenoma at the base of his tongue. It was a stage 4 and he was given 1 year tops to live. That was in May 1997. He got 60 radiation treatments and although it saved his life, it did diminish his quality of life. One of the side effects of so much is that it weakens or kills everything in its path. One of them being the salava gland. He now has a perpetual dry mouth. The radiation also burned the tongue, which is a muscle, and now, 11 years later, he finds that he has more and more difficulty to swallow. In order for him to avoid the feeding tube, we bought a "bullet" (that they advertised on TV and Bed Bath and Beyond also carries them) and whatever he can't swallow, which is most things, we put through the bullet. The taste is there but it's easier to swallow.

I wish you luck. I have diabetes, but thank the Good Lord, I do not have neuropathy anywhere, unless the crams I get in my legs and feet are a result of diabetes. The more I read about diabetic prople on this site, the more I feel lucky. I was diagnosed and went on insulin 14 years ago and I'm still holding my own. I feel pretty lucky.

I wish you the same kind of luck. I suggest you choose another name though, Misery is too gloomy. Take a happy uplifting one, you'll feel better with an up-beat mood.

Ginette

Goddess
Goddess 2008-06-16 06:17:22 -0500 Report

Thank you for sharing with me.I will keep the both of you in my prayers. What is the Bullet??? I have never heard of it before. What exactly does it do and will medicare pay for it? I don't think I can change my name.I think once you have your name it stays…Diane

Ginetteb
Ginetteb 2008-06-16 07:36:10 -0500 Report

The "bullet" is a little food processor. Whatever you put in it, it almost pulvarizes it, consequently, the food becomes like baby food, it's very smooth, no chewing, just swallowing almost like water. It's easy to digest. I personally think that for my husband it's the perfect solution.
Keep your chin up, Misery, and don't, never, give up. As miserable as it may get at times, life is still worth living.
Let me know how you're doing. I will send you a message asking you to become a friend. I hope you accept the invitation. We can e-mail each other that way in a more private way.
Ginette