life changing..

By christine273 Latest Reply 2012-11-03 15:03:24 -0500
Started 2012-10-25 18:08:45 -0500

I've had type 1 diabetes for only 6 months now, and I don't even know what to think of it. there are so many emotions running through my head, I'm only 16 years old, I feel too young to have to worry about all this. I have sports to worry about, school, colleges, I do not need another worry.. my family isn't much support either, they don't really know how I feel about it, they all say I'm dealing with it so well when I reality, alls I want to do is scream. I know some people have it worse, but it changes so much… I can't do some of the other things I see other teenagers doing because of a low blood sugar, it's just a lot to take it. plus my numbers are absolutely out of this world, my doctors and I have tried everything to bring them down and nothing works. I'm sorry to anyone who thinks this is too much, I just had to get this off my chest!

17 replies

FriendlyGuy 2012-11-03 15:03:24 -0500 Report

Find a new type one diabetes doctor if your doctor cannot keep your blood sugar low..Be careful since both stress and emotional CAN cause a high blood sugar level high. Do not exercise if your blood sugar is above 250 (excercises push the blood sugar high if you blood sugar is above 250.) Try to eat any low carb foods that can stabilize your blood sugar well. Google low carb foods or glucose index.

Jessye420 2012-11-02 12:32:12 -0500 Report

All I can say, is it gets easier. I was 9 when I was diagnosed and I'm 18 now. For a while everything will be weird, but eventually it'll just become part of your life. It'll be weird to think about not doing it. It sucks I know! But in reality there's nothing you can do but deal with it! You never know how strong you are until it's the only choice you have. Good luck!

Fefe12 2012-10-31 12:31:48 -0500 Report

Oh wow, how hard this must be for you. I can only imagine. First, please try and find at least one person in your family to talk to. Give them permission to tell the others so you dont have to stress about talking to everyone at once. Second when no one is home go to your room shut the door and scream, let it out. This IS a big deal and its a bummer. Then sit down and write a plan what do you want. Break it down and find out what you need to get it. The writing down is important you need to see and be able to go back to what you've written. Put it in something nice so you can keep it with you. No one has to know about it but those you may want to share it with. Put your dreams in it. But most if all put your how to's in it. Over time as you learn more about your illness things will change. Stay on track, dont let ANYONE get you down. This is your health and your life. You need to control it and yourself. How you become a healthy adult starts now. If you want to play sports look at other players who are also diabetics, a dancer, the same. One thing you will learn is you are NOT alone. Thats what we are here for, to watch out for each other. Find a doc, nutritionist, minister to talk to. It will only help. I wish you the best in your journey. You may not know it now but there is a silver lining. Good luck always.

Anonymous 2012-10-29 20:46:37 -0500 Report

HI Christine, the emotions you are feeling are quite normal. At 16 the last thing you want to think about is having to deal with diabetes. However, even though you may have type 1 diabetes that in no way should limit you in the things that you may want to do. As for the low blood sugars, perhaps you may need to adjust the amount of insulin you are taking, or you simply may need a little more food. You might want to try checking your blood sugar before engaging in any activity with your friends or just to make sure you are within a good range before going out, and if you find yourself on the lower side of normal simply eat a small snack that consist of protein and carb. Then check it again to ensure that you are within a good range. That should help. As for the numbers being a little crazy and out of sorts, make sure that you are rotating your sites because if you give insulin in the same place repeatedly it does not get absorbed properly causing numbers to rise. Your family may not know how to actually deal with this diagnosis themselves. It is very easy for family members to take a back seat , hands-off approach regarding diabetes and a child, however, I think you should sit down and really talk to them about your feelings. Ask your Doctor about possibly putting you in contact with a member of the psychology department who specializes in children and diabetes. These individuals are absolutely great and can assist you with coping through these difficult times. Seeing someone does not mean that there is something wrong with you, but it simply means you need a little help adjusting. Finally, try not to get too bogged down with the numbers whether high or low. They serve as a tool for helping you to get back on the right track. They don't mean you are a failure or you are doing everything wrong. Looking at the entire picture can help you identify what is making your numbers go high or low. Not eating enough food, taking too much insulin, and physical activity can cause you to go low, and eating too much food, not enough insulin, menstrual cycles, stress, and illness can cause you to be high. Keep in mind that diabetes is its own beast, one week the numbers could be great and the next without changing anything you did the previous week, they can be out of sorts. I always say, work diabetes around your life, do not work your life around diabetes. Therefore, try not to beat yourself up, get out there and enjoy your life as
a vibrant beautiful sixteen year old. I hope this helps.

samantha.d 2012-10-29 20:40:31 -0500 Report

I feel exactly the same sometimes, im the same age and was diagnosed 2 months ago. I talked to a psychiatrist and she helped a lot. All i wanted to do was scream but it was frustrating because i know it could be worse.. As for the family thing my parents said i was dramatic until we talked to the psychiatrist and she explained how diabetes makes you feel.. Have you talked to anyone like this ? It does help :) im the same with school too i have failed my ncea level 2 as i have hardly been at school this year ill . I really hope things look up for you !!!

kirsty j
kirsty j 2012-10-27 11:33:15 -0500 Report

I was 5 when I got it I dont no another life apart from diabetes I know how u feel it's annoying I wish I never had diabetes to I am now 13 but I also no I don't have it the worse.

FriendlyGuy 2012-11-03 14:50:48 -0500 Report

Please think POSITIVE! Help the kids who have type one diabetes..Share your positive experience with them as you can.

Set apart
Set apart 2012-10-27 08:16:25 -0500 Report

Hi Christine, I am 49 and was diagnosed as a Type I August 2012. The last year has been like a roller coaster ride for me! There are days when I still ask why and my life has changed so much. Just know that you're not alone in this, one thing I learned that I was the one in charge of taking care of myself! Ideas that have helped me is that for at least the first 3-4 months I wrote everything I ate, checked my BG Readings before meals and 2 hours after I ate, if certain foods spiked me I knew I needed to either cut the portion or not have it all! Now I usually stick with the same foods which I know work for me! Carry snacks with you like nuts, and make sure you always have your kit along with glucose tablets with you! There will be days when you may run high for reasons unknown, or at that time of the month. Watch your stress level, exercise and meditate. There will be dark moments, I still have them from time to time, but I choose to live and be happy! In order to be able to do that D is the first thing I think about by checking my BG number and the last thing at night as I check to make sure I am okay to fall asleep! One last note is that finding this website was a godsend for me, have learned so much, but especially that I am not alone! Hope some of this helps!

ali21 2012-10-26 19:59:23 -0500 Report

No problem! I know exactly how u feel :)!! I still worry everyday.. But I try to look at it positively.. If I didn't worry it would be much harder to get control over my blood levels.

Nick1962 2012-10-26 14:49:03 -0500 Report

Being a T2 myself I won’t even try to say I understand. But I can offer that I have a T1 work acquaintance who was diagnosed T1 about the same time as you. She’s about 26 now, has a good career as an engineer and is recently married. Outwardly she seems to be handling things pretty well, even jokingly sometimes, (but I’m sure she has her “dark times”), so I know you’ll get through this initial phase.
Yeah, it is life changing, but I think many here would tell you the change was for the better in retrospect. And who knows, maybe this is something you’re supposed to experience in order to help someone else down the road. I won’t give any advice, ali21 below I think is more qualified to do that than me. I’ll just say hang around here for a while and ask questions, there’s plenty of folks to help you through it.

forsakes alive
forsakes alive 2012-10-25 21:31:19 -0500 Report

The only thought I have is to listen and learn,there are alot of people here that can help,just remember that your needs may be diffeent than the person who is giving the suggestions. 20/20

Just Joyce
Just Joyce 2012-10-25 19:21:53 -0500 Report

The key to being diabetic is to stop worrying and learn all you can about your disease. Educating your self will answer a lot of your questions and teach you how to better manage your disease. Diabetes is not going to stop you from being what ever you choose to be in life. As a diabetic you can go to college and become what ever you want to be.

Keep an open line of communication between you, your parents and your doctor. If you have questions, write them down and take them with you to your doctor. If you are athletic, ask to speak to a doctor in sports medicine who may be able to tell you what to do as an athlete with Type 1 diabetes. There are professional athletes who are Type 1 and Type 2 diabetics. You should always address your concerns with your doctor.

Who told you that you can't do what other teenagers are doing. The only thing you can't do is eat the junk foods teens like to eat and drink alcohol which you shouldn't be drinking at your age. You can still have fun in life.

Your family is probably still in shock. They have not accepted that you have a chronic disease. You have to talk to them about how you feel and ask them how they feel. They are saying you are doing good because they want to believe that. Have your mom or dad come into the exam room so they can talk to your doctor or a diabetic educator. This will help all of you to learn more about your disease and the foods you should or should not be eating and how much you should be eating.

You have to take responsibility for your health. You have to eat properly, test regularly and take your insulin. Every diabetic has highs and lows, and over time you will learn what foods will spike your blood sugar. When I was diagnosed as a T2 several years ago, I created a spread sheet and listed the foods I ate for Breakfast, Lunch, Dinner and Snacks. After taking my readings I added them beside each meal and Snack. This is how I learned what foods caused my sugar levels to be high.

There will be times when you will get tired of doing this. It happens to all of us from time to time. It is important for you to stay on track with your care as much as possible because this is how you will be able to manage your blood sugar. I know this is a lot for someone so young to handle but you can do it. Diabetes does not have an age limit and there are kids younger than you who have it so you are not alone in this. I control my diabetes, it does not control me. Good luck to you and this is the place to be when you need help. There are people here who are willing to listen and help you and some have had diabetes longer than you and me.

ali21 2012-10-25 19:04:29 -0500 Report

Hey! I was diagnosed at the age of 15 and I remember feeling the same way you did. Try not to worry about it too much, what everyone always tells me is that you have diabetes, it doesn't have you! I was playing sports too at the time and I did not let my diabetes get in the way. It is always healthy to worry a little but not too much. What I find helped me was being to talk to my friends about it and try to educate them as much as possible so that if ever I needed them they could help me. Don't let it take control of your life.. You got to take control over it first!!

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